My son is almost 9 months and started doing the same thing about 3 weeks ago, his are mild, seem to mostly happen at highchair time, and he does these same spasms in his shoulder, jerking it towards his head and one arm at times jets out and jerks slightly. He makes faces but doesn't cry and never seems bothered. He is developmentally perfect (so far) I am hoping and praying he has this condition and not an epileptic condition, I have breakdowns reading up on infantile spasms/conditions...
I am not in the position where I can discuss diagnosis of different kind, you need your doctor or specialists to do that. But I do think that you should contact your doctor, and try capturing the jerks on tape, that really helped us, as the medicals had something to compare with. It can be very difficult to force a jerk during 5 minutes of consultage. I hope your daughter will grow to be as perfect as our daughter is today :) Good luck.
My little girl is 6 months and her jerks aren't continuous like these but when she is focused on an object for a few seconds then she jerk as if someone has scared her. Do u think it could be infantile spasms or benign myoclonus?
I also have a son, 13 months who has been diagnosed with myoclonic jerks. Waiting on results for EEG, blood and urine. This all started after his vaccine. They last one second, where the body jerks and it has been very stressful if anyone has any recommendations pls help me. God bless all the children who have been affected.
This is so interesting. I have just posted my daughters up on You Tube. She has also jsut had her injections last week (6 month for hooping cough). Could this be related? What is your situation now. I am in tera reading up on all the various syndromes that seem very serious.
This is so interesting. I have just posted my daughters up on You Tube. She has also just had her injections last week (6 month for hooping cough). Could this be related? What is your situation now. I am in tears reading up on all the various syndromes that seem very serious.
Hi, my daughter does that same thing she has 3 EEG with no evidence of hypsarrytmia, my doc tolds us that is is called "benign myoclonus of early infancy" and that she will outgrow them, but he is recomending us to give her a medicine called keppra to "minimize" the movements, do you gave her anything? can you give me your email? we don´t know what to do.... thank you for the hope
Los eventos epileptoides se pueden entender a la luz de los conceptos del proceso de enfermar de las medicinas biologistas o la Nueva medicina de Hamer entre otras.
oh she is adorable! the jerks almost look painful with how violent they are [or were] but she doesn't seemed fazed & just keeps on bouncing. she looks a LOT like my daughter Trystan. :)
i have non-eplieptic myoclonus. the doctors said i would grow out of it when i was 5. im now 15 and i still have it. I think the reason i have it is because i was born with a lack of Serotonin in my brain. Serotonin is what keeps you calm and its what keeps your body calm. i think this is the reason because i have noticed that when i dont get enough sleep its much worse and i shake way more frequently. when i am well rested i am calm and the Serotonin is present. i barely shake. hope this helps!
...doctor's best guess is "benign myoclonous of infancy" which from what I can tell means "well, we don't really know what's wrong but she'll probably be ok". Sure hope he's right
Thx Quvang. The latest VEEG came out negative so we are happy about that even though her jerks continue. Lately, she's been alot happier; but I think that's because we've changed her sleeping arrangement and she's alot more alert now.
Anyway, just hoping that her jerks go away soon...as you know, they are very stressful :(
their brains developing. The brain is not finished developing at birth, and when I think of it now, it is not strange that the body reacts while chemistry is happening :o)
Good luck to you and your daughter - with a clean EEG, I am sure that she will be just fine.
Thank you very much. Our daughter is today 1½ years old and very well developed!!
I will cross my fingers for you, thats for sure!! I don't know if it is any help to you, but during our rough time I was in contact with many parents who experience the exact same thing with their babies, starting around 5-6 months old. None of them are sick today! It is difficult to think straight while you are in the middle of your worst nightmare, but today I am convinced that it is very normal, and that it is
Congratulations to you. Our daughter is going through the same kind of thing. She has many jerks a day (mostly invovles her arms). So far her EEG's are ok...going for a 8 hour EEG on Friday...crossing fingers obviously. Neorologist doesn't think her jerks are epileptic. Hoping to God that he is right.
Glad your daughter is doing well...best wishes to both of you.
My son is almost 9 months and started doing the same thing about 3 weeks ago, his are mild, seem to mostly happen at highchair time, and he does these same spasms in his shoulder, jerking it towards his head and one arm at times jets out and jerks slightly. He makes faces but doesn't cry and never seems bothered. He is developmentally perfect (so far) I am hoping and praying he has this condition and not an epileptic condition, I have breakdowns reading up on infantile spasms/conditions...
Westonsmommy11 4 months ago
Neurological synapse damage
MrMcshane70 6 months ago
Dear you,
I am not in the position where I can discuss diagnosis of different kind, you need your doctor or specialists to do that. But I do think that you should contact your doctor, and try capturing the jerks on tape, that really helped us, as the medicals had something to compare with. It can be very difficult to force a jerk during 5 minutes of consultage. I hope your daughter will grow to be as perfect as our daughter is today :) Good luck.
Quvang79 6 months ago
My little girl is 6 months and her jerks aren't continuous like these but when she is focused on an object for a few seconds then she jerk as if someone has scared her. Do u think it could be infantile spasms or benign myoclonus?
lovesmylivie 6 months ago
I also have a son, 13 months who has been diagnosed with myoclonic jerks. Waiting on results for EEG, blood and urine. This all started after his vaccine. They last one second, where the body jerks and it has been very stressful if anyone has any recommendations pls help me. God bless all the children who have been affected.
slayer69247 7 months ago
@slayer69247
This is so interesting. I have just posted my daughters up on You Tube. She has also jsut had her injections last week (6 month for hooping cough). Could this be related? What is your situation now. I am in tera reading up on all the various syndromes that seem very serious.
olivia20116 3 months ago
This has been flagged as spam show
@slayer69247
This is so interesting. I have just posted my daughters up on You Tube. She has also just had her injections last week (6 month for hooping cough). Could this be related? What is your situation now. I am in tears reading up on all the various syndromes that seem very serious.
olivia20116 3 months ago
Hi, my daughter does that same thing she has 3 EEG with no evidence of hypsarrytmia, my doc tolds us that is is called "benign myoclonus of early infancy" and that she will outgrow them, but he is recomending us to give her a medicine called keppra to "minimize" the movements, do you gave her anything? can you give me your email? we don´t know what to do.... thank you for the hope
luigiboyzz 8 months ago
Los eventos epileptoides se pueden entender a la luz de los conceptos del proceso de enfermar de las medicinas biologistas o la Nueva medicina de Hamer entre otras.
franciscoloperalopex 8 months ago
oh she is adorable! the jerks almost look painful with how violent they are [or were] but she doesn't seemed fazed & just keeps on bouncing. she looks a LOT like my daughter Trystan. :)
DawnieLou 10 months ago
i have non-eplieptic myoclonus. the doctors said i would grow out of it when i was 5. im now 15 and i still have it. I think the reason i have it is because i was born with a lack of Serotonin in my brain. Serotonin is what keeps you calm and its what keeps your body calm. i think this is the reason because i have noticed that when i dont get enough sleep its much worse and i shake way more frequently. when i am well rested i am calm and the Serotonin is present. i barely shake. hope this helps!
DanaLuvsYew8471 1 year ago
...doctor's best guess is "benign myoclonous of infancy" which from what I can tell means "well, we don't really know what's wrong but she'll probably be ok". Sure hope he's right
moodypete 1 year ago
Thx Quvang. The latest VEEG came out negative so we are happy about that even though her jerks continue. Lately, she's been alot happier; but I think that's because we've changed her sleeping arrangement and she's alot more alert now.
Anyway, just hoping that her jerks go away soon...as you know, they are very stressful :(
moodypete 1 year ago
their brains developing. The brain is not finished developing at birth, and when I think of it now, it is not strange that the body reacts while chemistry is happening :o)
Good luck to you and your daughter - with a clean EEG, I am sure that she will be just fine.
Quvang79 1 year ago
Thank you very much. Our daughter is today 1½ years old and very well developed!!
I will cross my fingers for you, thats for sure!! I don't know if it is any help to you, but during our rough time I was in contact with many parents who experience the exact same thing with their babies, starting around 5-6 months old. None of them are sick today! It is difficult to think straight while you are in the middle of your worst nightmare, but today I am convinced that it is very normal, and that it is
Quvang79 1 year ago
Congratulations to you. Our daughter is going through the same kind of thing. She has many jerks a day (mostly invovles her arms). So far her EEG's are ok...going for a 8 hour EEG on Friday...crossing fingers obviously. Neorologist doesn't think her jerks are epileptic. Hoping to God that he is right.
Glad your daughter is doing well...best wishes to both of you.
moodypete 1 year ago