Love it! I have been a nurse for 28 years and will be posting this for our staff to watch so that they understand how to do this better and also suggest it to our pts for them to become more confortable.
Hello! Thank you for this great video.. My daughter's husband is just home from the hospital. We live across the country from them . They are really struggling tonight with leakage, etc. I am an RN, but cannot much help to her this far away. I just emailed you to her in the hopes that your willingness to share your expertise will be of assistance to them. Many Blessings,
Thank you so much for this wonderful video. I'm a nursing student and it is so overwhelming to have to teach care to a patient when you have never really seen it before yourself. I have a patient who is post operative for this tomorrow and this was just awesome. All the best to you, thanks :)
Ron, Thank you so much for the informative video! You take such great care of your urostomy. I am in nursing school and found this very helpful for caring for my patients in clinical. You presented it very well. Best of luck to you :)
Thanks for a video that shows real life techniques to cope with the results of this procedure. I am a scrub tech who has done hundreds of diversion procedures & am now in nursing school & it was so helpful to see things from a long term post-op view particularly the patients quality of life. Thanks again!
The first couple months was hardest, getting used to having an ostomy and the mechanics of changing it. Also, right after my surgery, the surgical incision created lots of fluid as it was healing, which made it difficult for the wafer to adhere to the skin. Most of my initial problems were temporary and went away with time and experience.
My dad is currently facing this procedure as he has just been diagnosed with bladder cancer that has advanced into the bladder muscle. Thank you so much for your video it is very informative. I was wondering, if you don't find this question too personal, but what is/was the most difficult part of this procedure?Thanks again for this video!!
Thank you so much for your informational video. My mom was just diagnosed w/bladder cancer and is about to go through surgery. I live in MN she in DE so this is extremely tough for me. I want as much info as I can digest before going home for her surgery. You have been very helpful. Thank you so much.
Thankyou for this i have not met anyone else with a urostomy before and i have mines exactly like yours . i want to use your kind of technics on changing but i do not have the plastic wafer that you are using i am using an older version called simpla urostomy pouches and the only other protection is the wafer flange extentions. but i am suffering from leaks beacause my stomack crease's while sitting, driving , or even sleeping. next thing i know i am covered in my own urine,
To Ron or any other others who may know... How often do you have to change the wafer? And how long does the bag last before you have to get a new one?
Dear Ron, I have a 70 yr old close family friend who had his bladder removed 8 days ago so has a urostomy bag. He is very anxious about life after "the bag". I really appreciate your positive attitude and honesty. You have informed us that you can still be active with a urostomy and that it's not the end of life ! The tampons are handy! These are importsant details for some of your viewers. I will be passing this on to my friend. It is most encouraging and informative. Blessings, Mares:)
Great video! I'm a pre-med undergrad surfing through various ostomy vids just to learn about them. The stoma is bigger than I would have imagined. Cool to see it in real life! Is this an example of the ileal conduit procedure? Thanks for sharing!
thank you this videos is very higly educational and would i personally thanks you for this video.. i served youtube about a few years ago and had issue coming to learn more about this.. thank yoiu good bless and if you have more videos please post them up i a huge fann thanks
Thanks for the great video! My mom had an illeostomy last summer, but now she is dealing with the beginnings of fungal problems. We are going to use your method to nip this thing in the bud, luckily she has some Nystatin at home. Thanks again for the tips!
thank you for posting this video....I am awaiting ILEAL CONDUIT Urostomy...I lost my bladder fuction when I was 19years old...I am now 35...after 16 years of suffering with wetness 24-7 I have finally found a urologist that can help me...we have desided to take this step...I was so scared but you showing me what it looks like i am not as scared thank you
I've had a urostomy since I was a baby, and it's great to see how someone else copes with a wafer change. Products have improved so much over the years, in terms of reliability and ease of use. Very helpful video!
Thank you so much for sharing this! I work as a medical transcriptionist and this video really brought me into the patient's realm. God Bless You and Continue to Keep You.
I had a foley for almost EIGHT months, and one of the happiest days of my life was when I had an infection in my urethra and my doctors removed the foley and put in a supra-pubic catheter. I had that catheter for another six months before I had my bladder removed at MD Anderson. If your husband has the surgery, you'll probably want to get some opinions about your surgeon. Apparently, the skill of your surgeon makes a big difference in how well the patient adapts to the stoma. Best of luck!
I am an RN student. One of my instructors stumbled across your video and recommended it to us for further learning. It was very thorough and quite helpful. It is not easy to put yourself out there like you did so that others might have an easier time dealing with their lifestyle changes. Thank you! What you've done is extremely admirable. Whether you've known it or not, there are so many students learning how to teach our patients from your example. You are touching many lives!
Thank you very much for this video!! I'm primary caregiver to my sister Michelle, who's been an ostomate for nearly 5 years. She's unable to do self-care due to significant special needs so I'm the one doing the ostomy care, with the occasional (and much appreciated) help from the March of Dimes. Your use of the tampons is an excellent idea and I'll try that during the next change. I've been using toilet paper, which obviously gets messy. I may try using more of the Cavillon spray too.
Thanks for the question. I have to be honest. There's no real science behind the order. I put the cavilon spray on last cause it's a liquid and it dries into a pasty covering. It took me a couple years of experimenting to come up with something that worked for me. And it does work terrific. I haven't had any significant skin irritation in two or three years. I remember how miserable it was to have redness around the ostomy site, so it gave me a good incentive to figure out something else. Ron
We realy appreciated your video! It's extremely helpful.We have some doubts : If the edges of this wafer are flexible?if your wafer has already adhesive and the blend of your wafer.
Thanks Ron, I just shared this with a new urostomate....I know she will appreciate the information. I liked that you enjoy the time during the changing just to let the stoma be free! (I have an iliostomy and know....I know)
Hi Ron, i admire your positive outlook so much! Hope you dont mind, but is it ok if i add you as a friend? Im kinda busy right now but i might need to talk to you later on.
Thanks Ron! My grandma is having one of these and we had no idea what to expect! We googled and googled and googled and I finally though MAYBE youtube? Anyway, we watched your video and feel much better educated than the doctor could ever make us feel! THANKS for your information and willingness to share! God bless you!
Fantastic video. Your voice has a calming effect. My new partner has a urostomy and i'm really interested to know about it so i can be supportive :) thanks so much for sharing!
Ron, I sincerely thank you for your video. My father recently has a urostomy. I just got him home from the hospital two days ago and we only had one appt with the the osotmy nurse. Your video is so helpful. Would you mind if I ask some more questions? Please advise. CS
Dear Ron, Thank you so much. I'm in nursing school, and this is the first video I've seen from a patient's perspective, which, when I think about it, is kind of crazy! Anyway, this was a great video and thank you so much for sharing your experience- I will be a better nurse for seeing this.
Thanks so much for maing this video. I am about to have surgery, urostomy. I currently have two nephrostomies and they are very difficult to take care of. I had been wondering what my stoma would look like and how I would care for it. Your video was very informative. Thanks again.
thank you for the video. My heart goes out to you. It seem like a pain to go through this every day. I am a Pharmacy student and this video helped me to understand what ostomy patients goes through. Again thank you for this very informative video
thanks for making this video, my father just had his bladder removed a few days ago and I know this video will be helpful to him. Thanks so much for taking your time to help others with this great video. Take care.
Sorry your mom is having problems. Sounds like she's having similar problems as I had. It was a real shock when the doctor opened up my stitches to reveal so much of, er, my innards. As the surgery wound heals, and the fluid starts to diminish, the ostomy gets SO much easier to take care of. The wafers will stick on much better and eventually she'll start to get three days from a wafer.
It's great though that nurses are coming to visit and help out. That's so important in the beginning.
@ostomitemate Thanks for the video. I'm a psych. tech. and I work on the medical side of the hospital. I change urostomy and colostomy bag and wafers all the time. However, the patients are dev. disabled and don't speak, so getting some information of how the patient feels is a great help.
Very helpful. Can you be available for advice, I am a little intimidated by having to do this procedure for my mother. Some of the items you use have not been offered by her insurance co. Of course I have been named the family nurse practitioner.
Are you still doing the ostomy care, or is your mother now doing it? I've looked after my sister Michelle's ostomy for nearly 5 years now. She's unable to do self-care due to significant special needs. The March of Dimes relieves me if she needs a change while I'm at work. They're a God-send. I hope everything's working out for you now, my friend.
I'm a nursing student, and we will be starting clinicals this week, and your video really helped me understand how to do the care, rather than trying to understand it from the book..thanks, i really hope all is well for you, take care.
hey thanks for posting the video i am a fellow urostomate i have mine for 15 years and you have given me some great tips i am wondering what is your opinion of hollister products
thanks for great vid lots of tips i just had that done a month ago and feel better everyday but not sure how hard i can push it you say you jog and work hard at work how many weeks after did you wait before being active with no worry of surgery again
it took me a long time (over a year) to get where I was comfortable doing some of these things. The jogging/running has been very tricky. I started very slow, and have peaked at between 25 and 30 minute runs. I probably could go further, but the small wafer covers I use (rather than the bag) are small and don't hold much. But they work spectacularly.
The one thing that gave me more confidence than anything was when I started free yoga classes twice a week.
Doctors have been performing ostomies for decades, and I've been fortunate enough to have a reasonably normal life. I run along Town Lake, I go to the gym, I work in a fairly (physically) grueling job.
It has taken 2 years of hard work to get to this point. The first months after surgery were not easy at all. I didn't even look at my stoma for days. Just couldn't. Then, a few months later, something happened - my fear of having a stoma disappeared, and has stayed gone ever since.
I've been a colostomate since 2004, when I lost my leg due to cancer (rear end) and I've gotten used to the colostomy change 2 times per week. I never had a urostomy and I am a paraplegic since birth. Very interesting instructional video. Thanks for sharing with us.
Hello, I'm a nursing student at PCC in Oregon. Were studying ET nursing and your video really helped me to "see" what the materials look like and how you change the bag. I found it very helpful and i'm sure other people whom have to have ostomies or who are new at having one would really appreciate to see this video. Thanks for sharing :)
Thank you. This was very helpful. My father might get urostomy soon and it is a good idea to see exactly what that is.
1armine 1 month ago
Hi I have a colostomy at present & they are talking about doing a Urostomy so listening to you changing your bag was very interesting. Best wishes
dfazackle 1 month ago
Thank you so much. Heading for my first urostomy pt in home care tomorrow but now I know I will be stopping to by Tampax !
233911969 2 months ago
thank you very much for posting this.
gotshirts 2 months ago
Love it! I have been a nurse for 28 years and will be posting this for our staff to watch so that they understand how to do this better and also suggest it to our pts for them to become more confortable.
rexyrn 3 months ago
Hello! Thank you for this great video.. My daughter's husband is just home from the hospital. We live across the country from them . They are really struggling tonight with leakage, etc. I am an RN, but cannot much help to her this far away. I just emailed you to her in the hopes that your willingness to share your expertise will be of assistance to them. Many Blessings,
Penny Hummel
pennyh53 3 months ago
Thank you so much for this wonderful video. I'm a nursing student and it is so overwhelming to have to teach care to a patient when you have never really seen it before yourself. I have a patient who is post operative for this tomorrow and this was just awesome. All the best to you, thanks :)
kmissfarm 3 months ago
Ron, Thank you so much for the informative video! You take such great care of your urostomy. I am in nursing school and found this very helpful for caring for my patients in clinical. You presented it very well. Best of luck to you :)
scoot0415 5 months ago
Thanks for a video that shows real life techniques to cope with the results of this procedure. I am a scrub tech who has done hundreds of diversion procedures & am now in nursing school & it was so helpful to see things from a long term post-op view particularly the patients quality of life. Thanks again!
Applebotum3089 5 months ago
This has been flagged as spam show
Thank you for The Video, I am getting my bladder removed on the 6th and I am a Bit scared about the Whole thing at 47. You made me feel better =)
runwiththewild 6 months ago
Comment removed
runwiththewild 6 months ago
The first couple months was hardest, getting used to having an ostomy and the mechanics of changing it. Also, right after my surgery, the surgical incision created lots of fluid as it was healing, which made it difficult for the wafer to adhere to the skin. Most of my initial problems were temporary and went away with time and experience.
bryannemeczek 7 months ago
My dad is currently facing this procedure as he has just been diagnosed with bladder cancer that has advanced into the bladder muscle. Thank you so much for your video it is very informative. I was wondering, if you don't find this question too personal, but what is/was the most difficult part of this procedure?Thanks again for this video!!
auburnfan2323 8 months ago
If you like this try looking at the Gastronaut puppet video
andy03976 10 months ago
Thank you so much for your informational video. My mom was just diagnosed w/bladder cancer and is about to go through surgery. I live in MN she in DE so this is extremely tough for me. I want as much info as I can digest before going home for her surgery. You have been very helpful. Thank you so much.
torymn 11 months ago
am helping a new patient, thank you for the info.Very helpful
ldmercy 11 months ago
Thank you so much. My husband is having an RC next week and this is a big help to me.
mooshanddump 1 year ago
Thankyou for this i have not met anyone else with a urostomy before and i have mines exactly like yours . i want to use your kind of technics on changing but i do not have the plastic wafer that you are using i am using an older version called simpla urostomy pouches and the only other protection is the wafer flange extentions. but i am suffering from leaks beacause my stomack crease's while sitting, driving , or even sleeping. next thing i know i am covered in my own urine,
Tambo74 1 year ago
To Ron or any other others who may know... How often do you have to change the wafer? And how long does the bag last before you have to get a new one?
kb1686 1 year ago
Hi Ron, thanks for posting this. Your positive attitude is a nice change.
rbuccin 1 year ago
Dear Ron, I have a 70 yr old close family friend who had his bladder removed 8 days ago so has a urostomy bag. He is very anxious about life after "the bag". I really appreciate your positive attitude and honesty. You have informed us that you can still be active with a urostomy and that it's not the end of life ! The tampons are handy! These are importsant details for some of your viewers. I will be passing this on to my friend. It is most encouraging and informative. Blessings, Mares:)
maresin10 1 year ago
Great video! I'm a pre-med undergrad surfing through various ostomy vids just to learn about them. The stoma is bigger than I would have imagined. Cool to see it in real life! Is this an example of the ileal conduit procedure? Thanks for sharing!
rmcdaniel423 1 year ago
thank you this videos is very higly educational and would i personally thanks you for this video.. i served youtube about a few years ago and had issue coming to learn more about this.. thank yoiu good bless and if you have more videos please post them up i a huge fann thanks
MANNYCENT20 1 year ago
Thanks for the great video! My mom had an illeostomy last summer, but now she is dealing with the beginnings of fungal problems. We are going to use your method to nip this thing in the bud, luckily she has some Nystatin at home. Thanks again for the tips!
GoIndyGal 1 year ago
Your video seems helpful for those that need it. I've had my bag since birth, 49 years ago
60twiley 1 year ago
thank you for posting this video....I am awaiting ILEAL CONDUIT Urostomy...I lost my bladder fuction when I was 19years old...I am now 35...after 16 years of suffering with wetness 24-7 I have finally found a urologist that can help me...we have desided to take this step...I was so scared but you showing me what it looks like i am not as scared thank you
chewiejessica 1 year ago
I want to say thank you so much for sharing, My surgery will be in a few days and that helps so much!
lhopoate 2 years ago
Thanks so much- I work as a nurse in a rehab facility and this helps our new staff understand better what our residents need.
mekimi75 2 years ago
Thank you for sharing. I am a nursing student and this gives me a better understanding especially from the patients perspective. God Bless
purplefred1 2 years ago
I've had a urostomy since I was a baby, and it's great to see how someone else copes with a wafer change. Products have improved so much over the years, in terms of reliability and ease of use. Very helpful video!
ostomouse 2 years ago
Thank you so much, Ron. You made my nursing lab tomorrow much easier!!! Wish you the best!
821loveforever 2 years ago
Thank you so much for sharing this! I work as a medical transcriptionist and this video really brought me into the patient's realm. God Bless You and Continue to Keep You.
Akkita 2 years ago
So informative. Thank you so much. My husband will probably have to get rid of this d____ Foley and have this procedure done.. Freedom!!!!
bunnysjazz 2 years ago
I had a foley for almost EIGHT months, and one of the happiest days of my life was when I had an infection in my urethra and my doctors removed the foley and put in a supra-pubic catheter. I had that catheter for another six months before I had my bladder removed at MD Anderson. If your husband has the surgery, you'll probably want to get some opinions about your surgeon. Apparently, the skill of your surgeon makes a big difference in how well the patient adapts to the stoma. Best of luck!
bnem44 2 years ago
Im and RN student and your video was very informational. Just wanted to say thanks!
apdc05 2 years ago
I am an RN student. One of my instructors stumbled across your video and recommended it to us for further learning. It was very thorough and quite helpful. It is not easy to put yourself out there like you did so that others might have an easier time dealing with their lifestyle changes. Thank you! What you've done is extremely admirable. Whether you've known it or not, there are so many students learning how to teach our patients from your example. You are touching many lives!
TheRNstudent 2 years ago
Thanks for the info.. I feel much better about my forthcoming operation
MarketResearchVideos 2 years ago
Thank you very much for this video!! I'm primary caregiver to my sister Michelle, who's been an ostomate for nearly 5 years. She's unable to do self-care due to significant special needs so I'm the one doing the ostomy care, with the occasional (and much appreciated) help from the March of Dimes. Your use of the tampons is an excellent idea and I'll try that during the next change. I've been using toilet paper, which obviously gets messy. I may try using more of the Cavillon spray too.
dotmacis 2 years ago
hi, thank you for sharing, i just wondered why you chose that particular order of putting on your sprays and powders.
i like the cavilon spray but surely it would prevent your other stuff from working to spray it on top of other stuff
JoeOldfield 2 years ago
Thanks for the question. I have to be honest. There's no real science behind the order. I put the cavilon spray on last cause it's a liquid and it dries into a pasty covering. It took me a couple years of experimenting to come up with something that worked for me. And it does work terrific. I haven't had any significant skin irritation in two or three years. I remember how miserable it was to have redness around the ostomy site, so it gave me a good incentive to figure out something else. Ron
bnem44 2 years ago
Hi, your video shows that we urostomates can share the information around the world.
Thank you very much.
GEORUSHI 2 years ago
Awesome video Ron. This will help out so much with my consumers. You did a wonderful job. Thank you so much!
shanafl 2 years ago
Dear Sir:
We realy appreciated your video! It's extremely helpful.We have some doubts : If the edges of this wafer are flexible?if your wafer has already adhesive and the blend of your wafer.
Thank you very much,
Solange
novadente 2 years ago
Thanks Ron, I just shared this with a new urostomate....I know she will appreciate the information. I liked that you enjoy the time during the changing just to let the stoma be free! (I have an iliostomy and know....I know)
ceraau 2 years ago
Hi Ron, i admire your positive outlook so much! Hope you dont mind, but is it ok if i add you as a friend? Im kinda busy right now but i might need to talk to you later on.
Thanks.
Sophia
sophiawho 2 years ago
Thanks Ron! My grandma is having one of these and we had no idea what to expect! We googled and googled and googled and I finally though MAYBE youtube? Anyway, we watched your video and feel much better educated than the doctor could ever make us feel! THANKS for your information and willingness to share! God bless you!
djlovesmelinda 2 years ago
Fantastic video. Your voice has a calming effect. My new partner has a urostomy and i'm really interested to know about it so i can be supportive :) thanks so much for sharing!
soniagnew 2 years ago
Great video, I learnt a lot. Thank you.
edd500 2 years ago
Ron, I sincerely thank you for your video. My father recently has a urostomy. I just got him home from the hospital two days ago and we only had one appt with the the osotmy nurse. Your video is so helpful. Would you mind if I ask some more questions? Please advise. CS
cindyspear 2 years ago
Dear Ron, Thank you so much. I'm in nursing school, and this is the first video I've seen from a patient's perspective, which, when I think about it, is kind of crazy! Anyway, this was a great video and thank you so much for sharing your experience- I will be a better nurse for seeing this.
kntucker 2 years ago
Thanks so much for maing this video. I am about to have surgery, urostomy. I currently have two nephrostomies and they are very difficult to take care of. I had been wondering what my stoma would look like and how I would care for it. Your video was very informative. Thanks again.
worriorbookwyrm 2 years ago
Hi Ron! I'm a nursing student, this will help me out a lot tomorrow!! that is so good of you to post this video. thank you!!
mirandaid 2 years ago
thank you for the video. My heart goes out to you. It seem like a pain to go through this every day. I am a Pharmacy student and this video helped me to understand what ostomy patients goes through. Again thank you for this very informative video
oung77 3 years ago
thanks for making this video, my father just had his bladder removed a few days ago and I know this video will be helpful to him. Thanks so much for taking your time to help others with this great video. Take care.
mariahkay3 3 years ago
Great informative video, I am a nursing student and seeing your video was the best tutorial on ostomy care. Thanks a lot.
aizhatai1 3 years ago
Hey!
Sorry your mom is having problems. Sounds like she's having similar problems as I had. It was a real shock when the doctor opened up my stitches to reveal so much of, er, my innards. As the surgery wound heals, and the fluid starts to diminish, the ostomy gets SO much easier to take care of. The wafers will stick on much better and eventually she'll start to get three days from a wafer.
It's great though that nurses are coming to visit and help out. That's so important in the beginning.
ostomitemate 3 years ago
@ostomitemate Thanks for the video. I'm a psych. tech. and I work on the medical side of the hospital. I change urostomy and colostomy bag and wafers all the time. However, the patients are dev. disabled and don't speak, so getting some information of how the patient feels is a great help.
dogtag58 1 year ago
your video is really cool. every other video is very cold and "medical". Nicely done.
pinkandgeek 3 years ago
Very helpful. Can you be available for advice, I am a little intimidated by having to do this procedure for my mother. Some of the items you use have not been offered by her insurance co. Of course I have been named the family nurse practitioner.
tommy86712 3 years ago
Are you still doing the ostomy care, or is your mother now doing it? I've looked after my sister Michelle's ostomy for nearly 5 years now. She's unable to do self-care due to significant special needs. The March of Dimes relieves me if she needs a change while I'm at work. They're a God-send. I hope everything's working out for you now, my friend.
dotmacis 2 years ago
I'm a nursing student, and we will be starting clinicals this week, and your video really helped me understand how to do the care, rather than trying to understand it from the book..thanks, i really hope all is well for you, take care.
xxpaparayxx 3 years ago
oh man i don't know wat to say....but you are one strong man
thanks for the info
good luck
arabicdude01 3 years ago
hey thanks for posting the video i am a fellow urostomate i have mine for 15 years and you have given me some great tips i am wondering what is your opinion of hollister products
brandie1983 3 years ago
thanks for great vid lots of tips i just had that done a month ago and feel better everyday but not sure how hard i can push it you say you jog and work hard at work how many weeks after did you wait before being active with no worry of surgery again
mackraceing 3 years ago
it took me a long time (over a year) to get where I was comfortable doing some of these things. The jogging/running has been very tricky. I started very slow, and have peaked at between 25 and 30 minute runs. I probably could go further, but the small wafer covers I use (rather than the bag) are small and don't hold much. But they work spectacularly.
The one thing that gave me more confidence than anything was when I started free yoga classes twice a week.
bnem44 3 years ago
they are talkign about having me get one of those and i'm not that thrilled about it
suzlbar 3 years ago
Doctors have been performing ostomies for decades, and I've been fortunate enough to have a reasonably normal life. I run along Town Lake, I go to the gym, I work in a fairly (physically) grueling job.
It has taken 2 years of hard work to get to this point. The first months after surgery were not easy at all. I didn't even look at my stoma for days. Just couldn't. Then, a few months later, something happened - my fear of having a stoma disappeared, and has stayed gone ever since.
bnem44 3 years ago
I've been a colostomate since 2004, when I lost my leg due to cancer (rear end) and I've gotten used to the colostomy change 2 times per week. I never had a urostomy and I am a paraplegic since birth. Very interesting instructional video. Thanks for sharing with us.
anton19542001 3 years ago
Hey, that's a great instructional video and an attitude that many new ostomates might need to see and hear!
sewsilly3 3 years ago
Hello, I'm a nursing student at PCC in Oregon. Were studying ET nursing and your video really helped me to "see" what the materials look like and how you change the bag. I found it very helpful and i'm sure other people whom have to have ostomies or who are new at having one would really appreciate to see this video. Thanks for sharing :)
mslau1893 3 years ago