Everyone here, seriously , check out global Alopecia mission. It is a group of people who are working towards funding research for this condition. It has just been registered as a non profit organisation/ charity and it is do empowering to know that we are doing something!! It's time we realised that it's ok to want our hair back and the cure will come if we push for it. The research fairies don't exist . Let's do it !!
My girlfriend who I have known for over 7 months,and have been with for almost 4 months has alopecia.I actually got her to change her hair style :) to a longer/burgundy colored wavy wig.she looks beautilful!
A mi se me esta cayendo el pelo, y tu sabes mejor que nadie como duele y siento mucha tristeza en mi corazón, y tendre que raparme la cabeza, y no tengo idea como ponerme los pañuelos en la cabeza. Bueno gracias por compartir tu experiencia de vida.
im and 15 and I actually have the same thing iv'e had it since i was in 2nd grade and my hair is coming back in but its failing back out so this would be my 5th time it falling out and i recently just told everybody because alot of people started making funn of me and it was hurting me so bad i lost all my eyelashes and eyebrowes and its hard on a girl that has this but you just have to be strong bout it because God did it to make us all stronger.!(:
Yes Alopecia is very challenging. My hair grew back once in the past 9 years. It lasted for about 2 years but then began to fall out again and now I just have patches which (like Danielle) I just shave off. Personally, I felt liberated when I told people instead of hiding but it's very personal. I love the freedom that my scarves give me. They have changed my life. I wish you the best of luck. Be strong!
wow.. i know exactly how you feel. I have had alopecia since I can remeber and there were good times and then there was the bad. It is so hard to just get through the regular daily things that others take for granted. thank you for posting!
those with alopecia spots on the HEad go see a dermatologist and ask him to apply Squaric Acid on the hairless spots. I had these spots on my head and i started going to a Dr. in Manhattan in July and Now we are in Oct and 80% of the hairless spots have filled in. Google Squaric Acid and you will see a detailed explanation of this drug. I do have other spots on my face, eyebrows, chest, arm, ass. I used Pure cinnomin oil on the spots on my arm, i do see progress,
i have lost my all hair..head to toe..also my eyebrows hair..eyelesses and also private part here. please give me good suggestion... my like like a hell
I am 24 and have alopecia since I was 19 years old, mine too has grown back from alopecia universalis to totalis twice and fallen out again. I wear wigs and but I struggle to find natural looking ones. I know how hard it is to have it grow back and fall out again, all the same trauma you went through before. Never stop giving up hope that someday it will grow back because there is no proof it doesnt!
Initially my eyebrows and lashes fell out but they grew back when my hair came back after 5 years. Now my hair is falling out again and my eyelashes have fallen out on one eye but not the other! It's disconcerting but there is nothing I can do. I hope this helps.
im 17 and my hair fall out when i was about 15... now its back with a lot of treatments... but now i found a patch that is getting me worried.. going to the doctors and see what he says!
My Alopecia is similar to yours at this point. I have hair in the front and hardly any hair in the back. Try and be positive. My hair did grow back a few years ago but is actively falling out now. I wish you the best!
youre beautyfull! i also have alopecia for about 2,5 years now, the back of my head is now bold i only have hair in the front and side, i've ordered a part wig...
i hope it's in time...it's falling out very quickly now...
Everyone here, seriously , check out global Alopecia mission. It is a group of people who are working towards funding research for this condition. It has just been registered as a non profit organisation/ charity and it is do empowering to know that we are doing something!! It's time we realised that it's ok to want our hair back and the cure will come if we push for it. The research fairies don't exist . Let's do it !!
allypallyable 3 months ago
My girlfriend who I have known for over 7 months,and have been with for almost 4 months has alopecia.I actually got her to change her hair style :) to a longer/burgundy colored wavy wig.she looks beautilful!
ilovecerealnmonsters 8 months ago
A mi se me esta cayendo el pelo, y tu sabes mejor que nadie como duele y siento mucha tristeza en mi corazón, y tendre que raparme la cabeza, y no tengo idea como ponerme los pañuelos en la cabeza. Bueno gracias por compartir tu experiencia de vida.
paticosantos 11 months ago
hi,
im and 15 and I actually have the same thing iv'e had it since i was in 2nd grade and my hair is coming back in but its failing back out so this would be my 5th time it falling out and i recently just told everybody because alot of people started making funn of me and it was hurting me so bad i lost all my eyelashes and eyebrowes and its hard on a girl that has this but you just have to be strong bout it because God did it to make us all stronger.!(:
kayandkass12 1 year ago
@kayandkass12
Yes Alopecia is very challenging. My hair grew back once in the past 9 years. It lasted for about 2 years but then began to fall out again and now I just have patches which (like Danielle) I just shave off. Personally, I felt liberated when I told people instead of hiding but it's very personal. I love the freedom that my scarves give me. They have changed my life. I wish you the best of luck. Be strong!
beaubeau1031 1 year ago
you are beautiful.
luanabenifei 1 year ago
wow.. i know exactly how you feel. I have had alopecia since I can remeber and there were good times and then there was the bad. It is so hard to just get through the regular daily things that others take for granted. thank you for posting!
Myshellybell 1 year ago
she is beautiful and i feel so sorry..and for pervs who say dude dont say that on youtube..im a girl and im not lesbo i know she is married..lol
peeweemama123 1 year ago
she is beautiful
peeweemama123 1 year ago
those with alopecia spots on the HEad go see a dermatologist and ask him to apply Squaric Acid on the hairless spots. I had these spots on my head and i started going to a Dr. in Manhattan in July and Now we are in Oct and 80% of the hairless spots have filled in. Google Squaric Acid and you will see a detailed explanation of this drug. I do have other spots on my face, eyebrows, chest, arm, ass. I used Pure cinnomin oil on the spots on my arm, i do see progress,
ezat77@aol.com if you wantt
zackcraig6 1 year ago
i have lost my all hair..head to toe..also my eyebrows hair..eyelesses and also private part here. please give me good suggestion... my like like a hell
Nirmal Rawat, India
soulofclown 1 year ago
Thank you for your kind words!
beaubeau1031 1 year ago
I am 24 and have alopecia since I was 19 years old, mine too has grown back from alopecia universalis to totalis twice and fallen out again. I wear wigs and but I struggle to find natural looking ones. I know how hard it is to have it grow back and fall out again, all the same trauma you went through before. Never stop giving up hope that someday it will grow back because there is no proof it doesnt!
ps. you do have a nicely shapped head! :)
shellymcowen 1 year ago
My husband has this and its over 10 years now, how did u get your eyelashes back?or they didn't fall at all.
sarakhattak 1 year ago
HI Sara:
Initially my eyebrows and lashes fell out but they grew back when my hair came back after 5 years. Now my hair is falling out again and my eyelashes have fallen out on one eye but not the other! It's disconcerting but there is nothing I can do. I hope this helps.
beaubeau1031 1 year ago
im 17 and my hair fall out when i was about 15... now its back with a lot of treatments... but now i found a patch that is getting me worried.. going to the doctors and see what he says!
dont feel like going though the pain again! :/
MissSuky93 1 year ago
thnx....same to you.
Ellen
modeforever 1 year ago
Hi Ellen from Holland:
My Alopecia is similar to yours at this point. I have hair in the front and hardly any hair in the back. Try and be positive. My hair did grow back a few years ago but is actively falling out now. I wish you the best!
beaubeau1031 1 year ago
youre beautyfull! i also have alopecia for about 2,5 years now, the back of my head is now bold i only have hair in the front and side, i've ordered a part wig...
i hope it's in time...it's falling out very quickly now...
all the best!
Ellen from Holland...
modeforever 1 year ago
the alopecia is horrible
ernestofanes 1 year ago
THANKS FOR WATCHING!
beaubeau1031 2 years ago
It makes you feel in control!!!
beaubeau1031 2 years ago
WTG girl. Your so right about the shaving. I have Alopecia Areata which has caused most of my hair to fall out like Univarlis. I also shave my head.
You look amazing!
PurdyBear1 2 years ago