I recovered. The highlights: Fluoride sits in your pineal gland, slowing down melatonin production. If you stop sleeping, you'll never recover. I went on the raw food diet. My PH went up to 6.6. (my lowest was 4.5 yikes! At 8 oclock, all our lights are turned off. From 10-12 oclock, your liver does magnificent work. If you have any questions, please ask. I wish someone could have told me all this, instead of experimenting over and over. Also feel free to look at my blog about my experience.
At 15 in the middle of my GCSE's. It's a hard illness to cope with. I've had CFS for over 7 years now after get pneumonia in both my lungs and being in rehab in hospital for half a year when I was only 7. I have had CFS since and the hardest thing of all is people ignoring me at school. Because I haven't been I they think I am being mean or horrible and ignoring them which I'm not! I have tried B12's therapy, a strict programme and change in diet and nothing is working. Now I am failing my GCSE
I have had M.E for 1 year and 1 month now it is horrible you can only do things for so long before you get wiped out with fatigue. I was on a medication that made me throw up for 3 months. It destroyed my immune system and I now have M.E. I am only 22 years old and my life has just begun, I can pretty much throw it all down the drain now, I am screwed.
I am 22 years old and I used to cycle 80 kilometers everyday without fail and it made me so so so fit. I was put in a mental hospital because I was on a medication that gave me restlessness for a whole year where I couldn't sit still for even a second. Then they put me on another medication that made me throw up for the whole 3 months I was in there, thus destroying my immune system, thus giving me M.E which I have had for over 1 year now.
@apocalist420 Last year I was put on a antipsyhcotic medication and it gave me restlessness to the point where I could not sit still for even a second. I went through this for a whole year until I came off the medication and was put on another that made me throw up for 2 and a half months. By that time due to stress I had developed chronic fatigue syndrome and I have had for 10 months. I hope I get to the point where I can go for a 30minute walk everyday.
@1marknz Serotonin syndrome? Do you have muscle twitches and spasms all over? Pressure caused "numbishness" (numbness localized to the area of pressure) and increasing pain? (from micro-circulatory dysfunction.) These symptoms are more characteristic of viral cardiomyopathic ME/CFS and if you don't have them, it might point another direction such as above. Which med was it?
Please be careful when listening to people like Dr Charles Shepherd. I'm sure he does have great experience of M.E/CFS, but easy to lose hope completely listening to such negative people. I attended his talks years ago and left feeling totally helpless (his book -Living With M.E.??? who wants to live with M.E?? How about recovery from M.E?). This IS a recoverable condition, whatever age, length of illness, severity.. I have and continue to see many people with this condition recover completely!
My cfs is strange. I got stressed out last year and now this year I have cfs. I have 2nd stage cfs where the tiredness goes up and down. I have had this for 7 months now and I am wondering when I am going to get better. I am taking vitamins eating healthy and it isn't working sometimes if I am lucky I will have 3 days in a row where I am awake and then I get tired on the 4th day and the hell starts all over again. I can drive my car but when will i get better?
im sorry but i have cfs and i am not severley effected but it has completely affected my live! i understand its frustrating to but jjust because they are not as ill as you does not mean they are not very unwell and affected. i have all the sympothy in the world for you having it that severe but cfs has many different severitys!
im sorry but i have cfs and i am not severley effected but it has completely affected my live! i understand its frustrating to but jjust because they are not as ill as you does not mean they are not very unwell and affected. i have all the sympothy in the world for you having it that severe but cfs has many different severitys!
You feel a bif CFSed too? Does that mean you cannot get out of bed, you shake uncontrollably, you scream with pain when a thin cotton sheet touches you, you cannot speak or open your eyes? That is what the illness means to me: I'm one of the 200 000 severely affected ones in the UK.
I think what you mean is you get a bit tired, & think that is all CFS is. I'd love to be able to do the dishes ... or anything other than lay in a darkened room with no sound or light, all day every day.
@shedevil50337 it depends on the degree of the illness, no one can make such a categorical statement... not even doctors who know and (try to) do research about this illness... There are so many types for this disease, what we ALL need is RESEARCH! to find a test to diagnose this illness, its degree of severity and an appropriate treatment...
I recovered. The highlights: Fluoride sits in your pineal gland, slowing down melatonin production. If you stop sleeping, you'll never recover. I went on the raw food diet. My PH went up to 6.6. (my lowest was 4.5 yikes! At 8 oclock, all our lights are turned off. From 10-12 oclock, your liver does magnificent work. If you have any questions, please ask. I wish someone could have told me all this, instead of experimenting over and over. Also feel free to look at my blog about my experience.
PamelaViktoria 10 months ago
At 15 in the middle of my GCSE's. It's a hard illness to cope with. I've had CFS for over 7 years now after get pneumonia in both my lungs and being in rehab in hospital for half a year when I was only 7. I have had CFS since and the hardest thing of all is people ignoring me at school. Because I haven't been I they think I am being mean or horrible and ignoring them which I'm not! I have tried B12's therapy, a strict programme and change in diet and nothing is working. Now I am failing my GCSE
TheChocolateCheese 1 year ago
This video has given me hope as I have had M.E for just over a whole year now. I feel a lot better listening to this advice. THANKYOU!
nz804 1 year ago
I have had M.E for 1 year and 1 month now it is horrible you can only do things for so long before you get wiped out with fatigue. I was on a medication that made me throw up for 3 months. It destroyed my immune system and I now have M.E. I am only 22 years old and my life has just begun, I can pretty much throw it all down the drain now, I am screwed.
nz804 1 year ago
I am 22 years old and I used to cycle 80 kilometers everyday without fail and it made me so so so fit. I was put in a mental hospital because I was on a medication that gave me restlessness for a whole year where I couldn't sit still for even a second. Then they put me on another medication that made me throw up for the whole 3 months I was in there, thus destroying my immune system, thus giving me M.E which I have had for over 1 year now.
nz804 1 year ago
I have uploaded a video of myself
1marknz 1 year ago
@apocalist420 Last year I was put on a antipsyhcotic medication and it gave me restlessness to the point where I could not sit still for even a second. I went through this for a whole year until I came off the medication and was put on another that made me throw up for 2 and a half months. By that time due to stress I had developed chronic fatigue syndrome and I have had for 10 months. I hope I get to the point where I can go for a 30minute walk everyday.
1marknz 1 year ago
@1marknz Serotonin syndrome? Do you have muscle twitches and spasms all over? Pressure caused "numbishness" (numbness localized to the area of pressure) and increasing pain? (from micro-circulatory dysfunction.) These symptoms are more characteristic of viral cardiomyopathic ME/CFS and if you don't have them, it might point another direction such as above. Which med was it?
synapse131 1 year ago
Please be careful when listening to people like Dr Charles Shepherd. I'm sure he does have great experience of M.E/CFS, but easy to lose hope completely listening to such negative people. I attended his talks years ago and left feeling totally helpless (his book -Living With M.E.??? who wants to live with M.E?? How about recovery from M.E?). This IS a recoverable condition, whatever age, length of illness, severity.. I have and continue to see many people with this condition recover completely!
Gashb 1 year ago
My cfs is strange. I got stressed out last year and now this year I have cfs. I have 2nd stage cfs where the tiredness goes up and down. I have had this for 7 months now and I am wondering when I am going to get better. I am taking vitamins eating healthy and it isn't working sometimes if I am lucky I will have 3 days in a row where I am awake and then I get tired on the 4th day and the hell starts all over again. I can drive my car but when will i get better?
TheMarknz101 1 year ago
im sorry but i have cfs and i am not severley effected but it has completely affected my live! i understand its frustrating to but jjust because they are not as ill as you does not mean they are not very unwell and affected. i have all the sympothy in the world for you having it that severe but cfs has many different severitys!
dubstepfeind 1 year ago
im sorry but i have cfs and i am not severley effected but it has completely affected my live! i understand its frustrating to but jjust because they are not as ill as you does not mean they are not very unwell and affected. i have all the sympothy in the world for you having it that severe but cfs has many different severitys!
dubstepfeind 1 year ago
Amen shedevil... There is nothing more offensive than when someone's like "I must have CFS too cause I needed to take a nap yesterday!" GRRR
faeridream 1 year ago 2
You feel a bif CFSed too? Does that mean you cannot get out of bed, you shake uncontrollably, you scream with pain when a thin cotton sheet touches you, you cannot speak or open your eyes? That is what the illness means to me: I'm one of the 200 000 severely affected ones in the UK.
I think what you mean is you get a bit tired, & think that is all CFS is. I'd love to be able to do the dishes ... or anything other than lay in a darkened room with no sound or light, all day every day.
shedevil50337 2 years ago 7
@shedevil50337 it depends on the degree of the illness, no one can make such a categorical statement... not even doctors who know and (try to) do research about this illness... There are so many types for this disease, what we ALL need is RESEARCH! to find a test to diagnose this illness, its degree of severity and an appropriate treatment...
SashenkaFr 1 year ago
this is a very good and apt view of cfs/me
moonwitch1981 2 years ago 6