That's very sad, but your such a great mom for staying calm and being reassuring throughout. It probably helps him to be a little more comforted during these episodes. I am sorry that you have to watch your son have these, I can only imagine your pain.
I have a young son.. your voice was remarkably calm. I bet you were so scared. And two other little kids with you. Wow. That video was so scary even for me, a total stranger! You are an amazing Mommy!!
im so sorry my cousin is dying from many conditions will die at leaset in 3 years he is 2 and has epilepsy mental retardation and much more it sadens me im sorry Maddie age 12
link to the internet site of professor vincent Ramaekers in belgium, Liege, pediatric neuropsichiatric specialist.he is doing very interesting research on diet and carency linked and genetical linked autism... continue to love your kids like you are doing!
My daughter has these. Her's are a lot stronger. She has cut her face many times because she hits the floor so hard. They did start like Chase's when she was too. Our Neurologist just introduced us to the VNS Therapy. How is Chase doing now? :)
I was about to ask if you've tried the Ketogenic Diet-but I see you've taken out the gluten.. my niece has epilepsy since she was 5 mos old-she's now 5 and living a semi-normal life thanks to the Ketogenic Diet-before that there were too many for her to do anything. Now she's able to play at the park, go to school-all in moderation. Tiredness is a big issue with her-she has Mito disease...
I get this very often. Myoclonic seizures. When this happens I feel My body and mind is exhausted but as soon as I doze off , this jolting, jerking motion happens in my arms and or legs. Insomnia, stress and anxiety set in after a while and it becomes even more difficult to sleep making the seizures a little harder to deal with. To be honest I fear going to sleep.
Thanks for sharing this video, I have some of my Amy doing this as young as 5 months of age. i didn't know it was a seizure, i thought it was a behavior. it's people like you that will help future moms like me. I put many of Amy's videos on youtube now. She has Lennox Gastaut, we thought it was just autism with seizures. good luck and thank you again for this video. Christy
You are an angel. Not just for posting this to help other parents and caregivers tell the signs, but for staying so calm and patient for your other little one. I would have been freaking out. Nice one, mama.
I have this too. like what project said, its doesn't hurt just a little jerk in my hands. i don't really feel it, i just drop whatever im holding and when its over (usually in a few seconds) i just clench my fists very tightly and its done for.
aww what a precious little boy, you are so calm thru this if its the first time you see it, especially not knowing whats going on. my daughter has these and she has hurt herself alot because of falling while having them and its great to see those smiles throughout. my daughter has been tested for myoclonic epilepsy and came back negative and the docs are stumped as to why she is having them...best of luck to you! chase is adorable!!
I have this condition. I developed it over only the last few years and I'm 26 years old. Really, it doesn't affect my day-to-day life. They only show up if I'm jolted out of sleep or am just seriously tired. They don't hurt. Infact, it's literally a split-second loss of consciousness. I almost wouldn't even know it's happening aside from dropping whatever I might be holding. It's not every day and only lasts about 15 minutes when I get them. It's certainly unfortunate but not painful.
Oh wow I am so glad to hear that he does not really feel anything. He is non verbal and has no way of telling us anything so we always feel so bad for him afterwards. Sorry to hear that you have them too. We have gotten his under control by removing gluten from his diet. Almost 6 months seizure free! Thanks for the comment!
I am a nursing student studying seizures. Thank you so much for sharing your video, it gave me a much better prospective on myonclonic seizures. Thanks again.
@mdoss10 they do cause a lot of pain, in some people the head gets jerked around more quite violently. I hope you can get to the cause of his seizures.
@mdoss10 i got that too, do not worry, he will be fine, just monitor that he does not fall or anything like such, just respond like you would with any other child.
by the way: let your other child laugh at this, life is precious, and he will grow up with this condition, so it is better to see the funny side of it.
@project18726 I have this too. Junior Myoclonic Epilepsy. I found out when I was 17. I'm no 18. I found out by walking and having a seizure and my face smacking against pavement. Not as bad as yours though. I haven't blacked out.
@project18726 Me too. I've been wondering what it was for a couple of years now. I thought they were tics so we tested for TS, but this is much more accurate
You might want to look into Lyme disease and Lyme induced autism. I have these myoclonus episodes and I have LD. My son has LD and has ADHD and a spectrum disorder. My friend has two sons with LD one is Autistic and the other has Aspergers.
My baby was having this same type of seizures and in clusters and Dr.'s thought they were partial seizures but after a 24 hour EEG she was diagnosed with Infantile Spasms. She is now on Vigabatrin and it is working. Was this ruled out for your son? If they are caught early they can be treated early and is a better outcome.
Yes those were ruled out. They were myoclonic seizures. He is now 2 1/2 and doing great with no meds. We discovered that gluten foods were causing him to have the seizures. Our next step is to test him for celiac disease. We got the official diagnosis of Autism back in July so we are now doing all the possible therapies we can handle. Hope your little baby gets better!
My son Luke has these same movements. He'll go for an MRI and 24 hour video EEG next week. He is up to 75 mg of Topamax daily, but it's not helping so far. (he's 12 months...22 lbs). I am worried about West Syndrome. Did they rule out West Syndrome for Chase? Luke is doing this in clusters....about twice or three times a day. Saying a lot of prayers. He is a true miracle baby. Just anxious for the seizures to stop.
We never tested for West Syndrome. After all the meds we tried they all made him worse. We discovered glutens were part of the cause of his seizures. My prayers are with your family.
ive heard of west its the same cond as my daughter except it has more siezure types my daughter used to be 22lbs and is now 19lbs after 6 months sucks good luck my best is with you xxx
My baby has tuberous sclerosis which causes seizure and autism and delays...she has seizures but is developmentally normal. Have you every heard of tuberous sclerosis? It is a genetic disease but can also occur spontaneously. Keppra is not working anymore for her....
Keppra made Chase go crazy on us. WE only tried it for a few days. I have not heard of tuberous sclerosis but of course now I have to look it up. After getting the official autism diagnosis I have taken a break from researching his seizures but I know there is something more going on in his lil brain. My prayers are with you all.
I have a friend whose son has TS , he was on the ketogenic diet for a year and his seizures stopped , and his development improved hugely . He is now off diet and pretty much seizure free as long as he does not have too much sugar or white carbs. Its worth looking at for your daughter . Good luck
My baby is 1 and is doing the same thing. She is going for a 24 hour EEG tomorrow. She also closes her left eye. They come in clusters just like your son too. Is he on medicine now? My daughter is on Keppra because she has complex partial seizures also which the medicine controls but now this seizure....hopefully all is well with your son..
We tried numerous meds and they all made him crazy or worse. We are now medicine free and seizures are under control as long as we keep the glutens out of his diet. Next we are testing for celiac disease. Take care of your precious baby.
He's so cute :) My daughter does something very similar to this, and I thought it was really odd, so I videoed it and brought it to the pediatrician, whom said it looked like a seizure. Does he get really sleepy after he has alot of jerks?
YES!! He would sleep for hours afterwards. He was sleeping 20 plus hours a day for several months. Which explains why he was not developing. We now have an autism diagnosis and undergoing lots of therapy. Get a 24 hr EEG and stay on top of the doctors. Keep me posted on your daughter.
im sorry.. i understand his siezures and what you are going through my daughter has fits.. but i advise if this were to happen again no matter what is happening lie him in the recov persition on the floor.. im not judging you just handing a little bit of guidance as that is very dangerous my heart goes out to you x
Thank you for your advice. We are still learning everyday with this lil man. We have gotten an official autism diagnosis and the seizures are mostly under control. My prayers are with your family.
@mdoss10 My autistic son also has these types of seizures, usually upon awakening. Sometimes, they progress into tonic clonic. Emergency meds diastat or IM lorazepam are helpful. But my son is 21 now, so when he has these, they are quite hard to control, so I hope your little one grow out of them! Not sure why my autistic son has seizures. Research shows about 30 % of autistic population has seizure disorder of some type. Blessings to you and your little one. How is he don't now? is he on meds?
@mandy4eva2k7 ah no during seizure lieing him in recovery position would do nothing, if he is in safe place at time of seizure let him go for it, its after that you would do that.
Our eldest daughter also has myoclonic epilepsy. Hers is pretty unresponsive to treatment and now she has ASD et al. Recently started the ketogenic diet which has significantly reduced her seizures and improved her co-morbidities. Diet is not as bad to implement as it sounds, BTW. Like you I work in clinical research. Nothing prepares you for this. My heart goes out to you & your family.
We went in to get an eval for the ketogenic diet but my son has an allergy to diary. And with his sensory processing disorder he will not eat anything unless it is crunchy and white. The nutritionist advised us to try other things first. IN the meantime we discovered that glutens were causing his seizures. As long as he stays away we are seziure free. As soon as there is a slip up he has small spells again. I feel for you with the diet as we are gluten and casien free and limited textures.
@mdoss10 We are on the GFCF diet for 6 years now. My dd was having seizures. We removed the dairy and the seizures stopped! We were so happy she didn't need seizures meds. Several years later she did need some seizure meds but we bought her years without them to grow without them. I am GLAD you son's seizures are under control! Good luck with the diet!
An autism dx is tough for me to accept after seeing this video. He is clearly interacting with his siblings. I have not seen myoclonus in young children before, so I can't say what's normal. He seems to have sudden, jerky movements like I have with my own myoclonic seizures, but perhaps slower. I can't explain why he holds his arms out like he does. He also blinks his eyes, which is what I think I do but never realized before this video. G-d help you and your family.
I am a nursing student & I have great professors, so if you ever want to chat, feel free to drop me a message on here! Ill be glad to ask my profs for any info you might need!
Thank you so much for your thinking of us. We have finally found a neurologist that understands what we are going through with our little man. But I will keep you in mind as thinsgs come up.
Sorry but I now more about epilepsy and autism than you could ever imagine knowing. This past year has been an amazing learning curve for us especially since my medical training is in cardiac and lung disease for clinical research trials for the NIH. So to call us dumb parents really is dumb on your part.
It is scary, but it doesn't cause any brain damage & there is no significant risk, unless it persists for a very long time. I have Temporal Lobe Epilepsy & Myoclonic seizures are the only seizures that plague me today. I'm so sorry he has to endure this! I hope your neurologist is as empathetic & caring as mine is! Thank you for sharing this! Spreading awareness can be as simple as talking to a friend or uploading a YouTube video!
Thank you for your comment. We have been through several neurologists that just wanted to label and medicate him. He was just diagnosed with Autism and through that we have found the most amzing neurolgist that truly understands him. We are now testing for celiac disease since he seems to have seizures when he ingests gluten foods. Everyday is a learning day for us!
That's so good to hear! As a mom, I couldn't imagine the frustrations of having to deal with the "Label, Stamp & Seal" doctors when it comes to your child! I'm so thankful that you have a competent neurologist! Autism is a tough pill to swallow, but as someone who's worked with children of all types, Autistic children are such a wonderful gift!
We have found that the wheat causes him to have a series of myoclonic jerk seizures. He does have a dairy allergy but the wheat did not come up as an allergen using the iGe test. WE have not doen the iGg test which shows certain sensitivities.
my son has celiac disease and autism and has multiple types of seizures. At your sons age it was febrile-focal. Was med & seizure free for 9 years. (became gluten free during that time) last year when he turned 14, terrible gran mals began. I have found that B-6 (P5P) has been a blessing as we have tried 7 different meds and are currently on 4. When the B-6 was introduced and higher fats (gluten free bacon) in the AM and mid day they significantly decreased.
I get the same thing. But it only happens when Im falling asleep on my chair. maybe 4-5 times a day. I think its a side effect of my wellbutrin though
This looks like infantile Geffron-Zonson syndrome, have you spoken to your GP or, as someone underneath asked, a pediatric neurologist? What's his diet like? Ask your pediatrician if his urinary potassium is under 60 mmol/d.
Personal message me if you like, i'm a Nuclear Cardiologist based in the UK, but a good friend of mine from college is a Neuropathologist, I could ask him a few questions for you if like/need.
this must be so scary for you and your little boy. he is just adorable! please please be careful what you feed him, give organic natural foods. i truly believe dairy is the root of most health problems. cows milk is not natural for a human body!
My son has a Myclonic Seazure, and Doctors has put him on Keppra, while it has only been 4 days I did not notice any difference, how long does it take after chiled is put on medication to actually see some improvement?
I had a daughter who has this and she's four now almost five now, this brought back so many memories. My two year old went through this as well. Bless his heart! If you want to talk just click my screen name! *hugs*
Chase is such a dear little chap. I hope that the medication is helping a lot. Bless his heart. We care for a young man with Lennox Gastaut Syndrome (LGS). Best wishes and bye for now.
I also have JME and was diagnosed at 15, the typical age of onset (from what you've responded, doesn't sound like JME.)
SO SO glad that meds are working for Chase! I have been incredibly lucky with meds as well and haven't had to tinker with them much. My seizures typically occured during sleep, so i don't know it's happening and they absolutely exhause me. I wish you the best of luck, you guys will get through this!
He does have the absence seizures. The therapist pointed out that he does these facial seizures when he gets overwhelmed. He has been dignosed with Sensory Processing Disorder which might explain why he gets them when stressed.
How is your niece doing with her seizures? We finally having him on 120 mg of Topamax and are only seeing them every few days. Plus he has finally started responding and babbling to us.
how is he now,we have our niece having seizure also but the problem is we dont know the right medication to prevent her twiching in times her seizure attack.were in manila and we dont know how we get the right doctor the right medication that could help us,the child is also getting worse
We started noticing them back in June and had his MRI and EEG done back in Jusly to confirm that he has myoclonic and tonic seizures. Found out that glutens cause them to get worse.
U need to respond to this. Its not good for the child to.have so many seizures, respond immediately
nikpooja 2 weeks ago
awh he's so cute XD aaah :P hope he is ok!
misswilline 1 month ago
That's very sad, but your such a great mom for staying calm and being reassuring throughout. It probably helps him to be a little more comforted during these episodes. I am sorry that you have to watch your son have these, I can only imagine your pain.
Shannonbrolin11 2 months ago
poor little man was his head hurting afterwards cos he kept holding it x
donna201121 4 months ago
I'm 16 and am just getting these very recently, kind of annoying, especially when I am peeing, for obvious reasons.
This doesn't affect my every-day-life tho.
TheDezmona 4 months ago
I hope your baby is doing better.
EllieDachshi 5 months ago
Aww, such a cute baby, hope all goes well, my prayers go out to him and you and your family :)
VicFirthBeast7 5 months ago
This seizure usually leads to mental retardation 90% of the time in newborns. They are also occur rhythmically.
syedrasheed23 6 months ago
obv was a seizure, hes totally out of it, and rhythmic jerks, also his eyes go roll into the back of his head when he jerks .
emilyexorcismzombie 6 months ago
get your hands up to the sound
mcarnteydied 7 months ago
dats sad =[
marcos0wnzu 8 months ago
You were so calm whilst taping this,so kudos to you as a mother.
I have these,I was diagnosed with epilepsy nearly 10 years ago and myoclonic jerks are annoying,but not painful at all.
You get a "funny" feeling while it happens and maybe a tingly feeling running from your head through your arms and hands.
When you have myoclonic seizures they don't involve the whole of the brain so he's conscious while it's happening and can tell what's going on.
DirtxInxThexGround 8 months ago
I have a young son.. your voice was remarkably calm. I bet you were so scared. And two other little kids with you. Wow. That video was so scary even for me, a total stranger! You are an amazing Mommy!!
LucyShy 9 months ago
Maybe he feels something from where he's touching at the back of his skull. Maybe his neck?
dadiddlydooda 11 months ago
OMG, poor darling... it's going on and on. He's so cute. I hope he's much better now.
indefat 11 months ago
im so sorry my cousin is dying from many conditions will die at leaset in 3 years he is 2 and has epilepsy mental retardation and much more it sadens me im sorry Maddie age 12
17mjackson1 11 months ago
that was a sezure he was not responding because it was a sezure i think tonic clonic
17mjackson1 11 months ago
link to the internet site of professor vincent Ramaekers in belgium, Liege, pediatric neuropsichiatric specialist.he is doing very interesting research on diet and carency linked and genetical linked autism... continue to love your kids like you are doing!
TheKrista56 1 year ago
My daughter has these. Her's are a lot stronger. She has cut her face many times because she hits the floor so hard. They did start like Chase's when she was too. Our Neurologist just introduced us to the VNS Therapy. How is Chase doing now? :)
cbsbtjzack 1 year ago
This comment has received too many negative votes show
lol these r funny
NinjaOfTheDarkz 1 year ago
it should be gone when he's growing up.. :) he is cute btw
chococheese90 1 year ago
I know this must be distressing but telling a child thats its not funny, the child does not understand what is happening.
Ajames60 1 year ago
I was about to ask if you've tried the Ketogenic Diet-but I see you've taken out the gluten.. my niece has epilepsy since she was 5 mos old-she's now 5 and living a semi-normal life thanks to the Ketogenic Diet-before that there were too many for her to do anything. Now she's able to play at the park, go to school-all in moderation. Tiredness is a big issue with her-she has Mito disease...
mnat28 1 year ago
Kuddos to you for bringing this condition to light. Forever grateful!
NIKWITHHERFINEASS 1 year ago
i commend you!! your were so calm i would have ripped my head off, im in tears watching him struggle....awws
luvfunnyflix 1 year ago
Aw what a cute little guy
sheldonmurphy1 1 year ago
I was wondering if I can use this video for a first aid class because I am doing a project on seizures
ninjaloove 1 year ago
I get this very often. Myoclonic seizures. When this happens I feel My body and mind is exhausted but as soon as I doze off , this jolting, jerking motion happens in my arms and or legs. Insomnia, stress and anxiety set in after a while and it becomes even more difficult to sleep making the seizures a little harder to deal with. To be honest I fear going to sleep.
RebelTactics 1 year ago
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gulf2345 1 year ago
your baby is so cute! hope he's better!
heartrock83 1 year ago
Is that the 1st time you saw him do that? You didn't freak out? If that were my kid I would've screamed!
ShonPhoenix 1 year ago
hes such a cute little baby
3000megafan 1 year ago
Thanks for sharing this video, I have some of my Amy doing this as young as 5 months of age. i didn't know it was a seizure, i thought it was a behavior. it's people like you that will help future moms like me. I put many of Amy's videos on youtube now. She has Lennox Gastaut, we thought it was just autism with seizures. good luck and thank you again for this video. Christy
girlchristian1 1 year ago
You are Super Mom
andersondexter 1 year ago
You are an angel. Not just for posting this to help other parents and caregivers tell the signs, but for staying so calm and patient for your other little one. I would have been freaking out. Nice one, mama.
m8trxd 1 year ago
I have this too. like what project said, its doesn't hurt just a little jerk in my hands. i don't really feel it, i just drop whatever im holding and when its over (usually in a few seconds) i just clench my fists very tightly and its done for.
mrmcpistole 1 year ago
he so cute.... poor baby
hisguhfrmtx 1 year ago
aww what a precious little boy, you are so calm thru this if its the first time you see it, especially not knowing whats going on. my daughter has these and she has hurt herself alot because of falling while having them and its great to see those smiles throughout. my daughter has been tested for myoclonic epilepsy and came back negative and the docs are stumped as to why she is having them...best of luck to you! chase is adorable!!
nicoleywoleypoley 2 years ago
I have this condition. I developed it over only the last few years and I'm 26 years old. Really, it doesn't affect my day-to-day life. They only show up if I'm jolted out of sleep or am just seriously tired. They don't hurt. Infact, it's literally a split-second loss of consciousness. I almost wouldn't even know it's happening aside from dropping whatever I might be holding. It's not every day and only lasts about 15 minutes when I get them. It's certainly unfortunate but not painful.
project18726 2 years ago
Oh wow I am so glad to hear that he does not really feel anything. He is non verbal and has no way of telling us anything so we always feel so bad for him afterwards. Sorry to hear that you have them too. We have gotten his under control by removing gluten from his diet. Almost 6 months seizure free! Thanks for the comment!
mdoss10 2 years ago 5
I am a nursing student studying seizures. Thank you so much for sharing your video, it gave me a much better prospective on myonclonic seizures. Thanks again.
8262tina 2 years ago
@mdoss10 they do cause a lot of pain, in some people the head gets jerked around more quite violently. I hope you can get to the cause of his seizures.
gregorypell1 1 year ago
@mdoss10 i got that too, do not worry, he will be fine, just monitor that he does not fall or anything like such, just respond like you would with any other child.
by the way: let your other child laugh at this, life is precious, and he will grow up with this condition, so it is better to see the funny side of it.
nestorrfortuna 1 year ago
@project18726 I have this too. Junior Myoclonic Epilepsy. I found out when I was 17. I'm no 18. I found out by walking and having a seizure and my face smacking against pavement. Not as bad as yours though. I haven't blacked out.
canammx1 1 year ago
@project18726 Me too. I've been wondering what it was for a couple of years now. I thought they were tics so we tested for TS, but this is much more accurate
yjadalyn1 6 months ago
@project18726 Same here!
nnazarowski 2 months ago
He is sooo precious. Gorgeous little boy. And the others are adorable as well. They obviously have no idea what is going on, but it's cute.
AylaRainbow08 2 years ago
very common with autistic kids, some more serious than others. they really need to figure out what causes this
akitaakita2 2 years ago
Sad to see such a young kid go through something like that. I hope you can find some sort of treatment for this.
(I must add- He has the most beautiful smile at the end!)
shaynapulley 2 years ago
This Is So Hard To Watch Does He Have OMS??? Neuroblastoma Tumor
ShadowWolvesX 2 years ago
My cousin has west.
I wish you the best of luck.
Our children can win the battle,
just believe :)
XDinexitaXD 2 years ago
You might want to look into Lyme disease and Lyme induced autism. I have these myoclonus episodes and I have LD. My son has LD and has ADHD and a spectrum disorder. My friend has two sons with LD one is Autistic and the other has Aspergers.
LedByTheLamb 2 years ago
Awh, I hope he's ok! He's so cutee :)
JohnPetrucciness 2 years ago
My baby was having this same type of seizures and in clusters and Dr.'s thought they were partial seizures but after a 24 hour EEG she was diagnosed with Infantile Spasms. She is now on Vigabatrin and it is working. Was this ruled out for your son? If they are caught early they can be treated early and is a better outcome.
amysarahh 2 years ago
Yes those were ruled out. They were myoclonic seizures. He is now 2 1/2 and doing great with no meds. We discovered that gluten foods were causing him to have the seizures. Our next step is to test him for celiac disease. We got the official diagnosis of Autism back in July so we are now doing all the possible therapies we can handle. Hope your little baby gets better!
mdoss10 2 years ago
My son Luke has these same movements. He'll go for an MRI and 24 hour video EEG next week. He is up to 75 mg of Topamax daily, but it's not helping so far. (he's 12 months...22 lbs). I am worried about West Syndrome. Did they rule out West Syndrome for Chase? Luke is doing this in clusters....about twice or three times a day. Saying a lot of prayers. He is a true miracle baby. Just anxious for the seizures to stop.
nixadrewski 2 years ago
We never tested for West Syndrome. After all the meds we tried they all made him worse. We discovered glutens were part of the cause of his seizures. My prayers are with your family.
mdoss10 2 years ago
ive heard of west its the same cond as my daughter except it has more siezure types my daughter used to be 22lbs and is now 19lbs after 6 months sucks good luck my best is with you xxx
mandy4eva2k7 2 years ago
My baby has tuberous sclerosis which causes seizure and autism and delays...she has seizures but is developmentally normal. Have you every heard of tuberous sclerosis? It is a genetic disease but can also occur spontaneously. Keppra is not working anymore for her....
amysarahh 2 years ago
Keppra made Chase go crazy on us. WE only tried it for a few days. I have not heard of tuberous sclerosis but of course now I have to look it up. After getting the official autism diagnosis I have taken a break from researching his seizures but I know there is something more going on in his lil brain. My prayers are with you all.
mdoss10 2 years ago
I have a friend whose son has TS , he was on the ketogenic diet for a year and his seizures stopped , and his development improved hugely . He is now off diet and pretty much seizure free as long as he does not have too much sugar or white carbs. Its worth looking at for your daughter . Good luck
mondiboule 2 years ago
My baby is 1 and is doing the same thing. She is going for a 24 hour EEG tomorrow. She also closes her left eye. They come in clusters just like your son too. Is he on medicine now? My daughter is on Keppra because she has complex partial seizures also which the medicine controls but now this seizure....hopefully all is well with your son..
amysarahh 2 years ago
We tried numerous meds and they all made him crazy or worse. We are now medicine free and seizures are under control as long as we keep the glutens out of his diet. Next we are testing for celiac disease. Take care of your precious baby.
mdoss10 2 years ago
He's so cute :) My daughter does something very similar to this, and I thought it was really odd, so I videoed it and brought it to the pediatrician, whom said it looked like a seizure. Does he get really sleepy after he has alot of jerks?
abbysmommy1216 2 years ago
YES!! He would sleep for hours afterwards. He was sleeping 20 plus hours a day for several months. Which explains why he was not developing. We now have an autism diagnosis and undergoing lots of therapy. Get a 24 hr EEG and stay on top of the doctors. Keep me posted on your daughter.
mdoss10 2 years ago
aww the baby is jstt sooooooo cuteeeeeeeeeeeeeeeee...... i hope he gets better.....
kinav07 2 years ago
im sorry.. i understand his siezures and what you are going through my daughter has fits.. but i advise if this were to happen again no matter what is happening lie him in the recov persition on the floor.. im not judging you just handing a little bit of guidance as that is very dangerous my heart goes out to you x
mandy4eva2k7 2 years ago
Thank you for your advice. We are still learning everyday with this lil man. We have gotten an official autism diagnosis and the seizures are mostly under control. My prayers are with your family.
mdoss10 2 years ago
its ok i understand i was their when she was 2 and half months old she has a rare but serious condition called dravets xx
mandy4eva2k7 2 years ago
@mdoss10 My autistic son also has these types of seizures, usually upon awakening. Sometimes, they progress into tonic clonic. Emergency meds diastat or IM lorazepam are helpful. But my son is 21 now, so when he has these, they are quite hard to control, so I hope your little one grow out of them! Not sure why my autistic son has seizures. Research shows about 30 % of autistic population has seizure disorder of some type. Blessings to you and your little one. How is he don't now? is he on meds?
CDFoakley 1 year ago
@mandy4eva2k7 ah no during seizure lieing him in recovery position would do nothing, if he is in safe place at time of seizure let him go for it, its after that you would do that.
stopbeingnasty 1 year ago
omg that is soo scary...i have never seen a kid having a seizure before but my cousin has epilepsy......
DaRebelbabe 2 years ago
Our eldest daughter also has myoclonic epilepsy. Hers is pretty unresponsive to treatment and now she has ASD et al. Recently started the ketogenic diet which has significantly reduced her seizures and improved her co-morbidities. Diet is not as bad to implement as it sounds, BTW. Like you I work in clinical research. Nothing prepares you for this. My heart goes out to you & your family.
drjohnhowell 2 years ago
We went in to get an eval for the ketogenic diet but my son has an allergy to diary. And with his sensory processing disorder he will not eat anything unless it is crunchy and white. The nutritionist advised us to try other things first. IN the meantime we discovered that glutens were causing his seizures. As long as he stays away we are seziure free. As soon as there is a slip up he has small spells again. I feel for you with the diet as we are gluten and casien free and limited textures.
mdoss10 2 years ago
@mdoss10 We are on the GFCF diet for 6 years now. My dd was having seizures. We removed the dairy and the seizures stopped! We were so happy she didn't need seizures meds. Several years later she did need some seizure meds but we bought her years without them to grow without them. I am GLAD you son's seizures are under control! Good luck with the diet!
gfcfmomofmany 1 year ago
An autism dx is tough for me to accept after seeing this video. He is clearly interacting with his siblings. I have not seen myoclonus in young children before, so I can't say what's normal. He seems to have sudden, jerky movements like I have with my own myoclonic seizures, but perhaps slower. I can't explain why he holds his arms out like he does. He also blinks his eyes, which is what I think I do but never realized before this video. G-d help you and your family.
CyborgNinja7 2 years ago
may god help you :) !
wish all the best for ur family :)
alhammadi666 2 years ago
I am a nursing student & I have great professors, so if you ever want to chat, feel free to drop me a message on here! Ill be glad to ask my profs for any info you might need!
Muze226 2 years ago
Thank you so much for your thinking of us. We have finally found a neurologist that understands what we are going through with our little man. But I will keep you in mind as thinsgs come up.
mdoss10 2 years ago
omg.
that was so scary.
dumb parents.
learn epilepsy today!!!
60moments 2 years ago
Sorry but I now more about epilepsy and autism than you could ever imagine knowing. This past year has been an amazing learning curve for us especially since my medical training is in cardiac and lung disease for clinical research trials for the NIH. So to call us dumb parents really is dumb on your part.
mdoss10 2 years ago
It is scary, but it doesn't cause any brain damage & there is no significant risk, unless it persists for a very long time. I have Temporal Lobe Epilepsy & Myoclonic seizures are the only seizures that plague me today. I'm so sorry he has to endure this! I hope your neurologist is as empathetic & caring as mine is! Thank you for sharing this! Spreading awareness can be as simple as talking to a friend or uploading a YouTube video!
Muze226 2 years ago
Good luck little guy! Your family loves you & it's not as scary when Momma's there to take are of you!
Muze226 2 years ago
Thank you for your comment. We have been through several neurologists that just wanted to label and medicate him. He was just diagnosed with Autism and through that we have found the most amzing neurolgist that truly understands him. We are now testing for celiac disease since he seems to have seizures when he ingests gluten foods. Everyday is a learning day for us!
mdoss10 2 years ago
That's so good to hear! As a mom, I couldn't imagine the frustrations of having to deal with the "Label, Stamp & Seal" doctors when it comes to your child! I'm so thankful that you have a competent neurologist! Autism is a tough pill to swallow, but as someone who's worked with children of all types, Autistic children are such a wonderful gift!
Muze226 2 years ago
I heard somewhere that some types of epilepsy and also autism can be related to certain severe food allergies. Is that what you have found?
CalifaJohn 2 years ago
We have found that the wheat causes him to have a series of myoclonic jerk seizures. He does have a dairy allergy but the wheat did not come up as an allergen using the iGe test. WE have not doen the iGg test which shows certain sensitivities.
mdoss10 2 years ago
my son has celiac disease and autism and has multiple types of seizures. At your sons age it was febrile-focal. Was med & seizure free for 9 years. (became gluten free during that time) last year when he turned 14, terrible gran mals began. I have found that B-6 (P5P) has been a blessing as we have tried 7 different meds and are currently on 4. When the B-6 was introduced and higher fats (gluten free bacon) in the AM and mid day they significantly decreased.
dailytrials 2 years ago
I get the same thing. But it only happens when Im falling asleep on my chair. maybe 4-5 times a day. I think its a side effect of my wellbutrin though
CreedChrist 2 years ago
This looks like infantile Geffron-Zonson syndrome, have you spoken to your GP or, as someone underneath asked, a pediatric neurologist? What's his diet like? Ask your pediatrician if his urinary potassium is under 60 mmol/d.
Personal message me if you like, i'm a Nuclear Cardiologist based in the UK, but a good friend of mine from college is a Neuropathologist, I could ask him a few questions for you if like/need.
Thanks.
No1RobLoweFan 2 years ago
I can't find a darn thing online about Geffron-Zonson -- is it new? Where can I read more on it?
insaintraining 2 years ago
Have you had him checked out by a pediatric neurologist? I would suggest it.
tydees 2 years ago 8
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bpyjktgiuk 2 years ago
this must be so scary for you and your little boy. he is just adorable! please please be careful what you feed him, give organic natural foods. i truly believe dairy is the root of most health problems. cows milk is not natural for a human body!
natesmom2244 2 years ago
Poor, sweet child. I hope these get treated with meds, so he doesn't have to suffer these anymore.
I know it's upsetting to have your other kids laugh at it - it's just that they don't understand. Laughter is just a typical reaction.
DylanandLukesmum 2 years ago 14
Whats so scary about it? hehhehehe
this is really creepy
VampireFreakKe 2 years ago
such a beautiful child suffering from this really hurts me. does he feel anything bad after?
crazylexi15 3 years ago 3
aww hes adorable!!! <3
mirr91 3 years ago 2
My son has a Myclonic Seazure, and Doctors has put him on Keppra, while it has only been 4 days I did not notice any difference, how long does it take after chiled is put on medication to actually see some improvement?
tummysink72 3 years ago
yes it looks like a seizure most of the time they dont even know its going on. have the doctors told you any thing?
1993melymely 3 years ago
I had a daughter who has this and she's four now almost five now, this brought back so many memories. My two year old went through this as well. Bless his heart! If you want to talk just click my screen name! *hugs*
Littlebrwneyemomma 3 years ago
Hello.
Chase is such a dear little chap. I hope that the medication is helping a lot. Bless his heart. We care for a young man with Lennox Gastaut Syndrome (LGS). Best wishes and bye for now.
paulcopeland 3 years ago
What is JME? Do you remember what is going on during these seizures. He just passes out for hours afterwards.
mdoss10 3 years ago
JME-Juvenile Myoclonic Epilepsy
I also have JME and was diagnosed at 15, the typical age of onset (from what you've responded, doesn't sound like JME.)
SO SO glad that meds are working for Chase! I have been incredibly lucky with meds as well and haven't had to tinker with them much. My seizures typically occured during sleep, so i don't know it's happening and they absolutely exhause me. I wish you the best of luck, you guys will get through this!
blutigr7 3 years ago
Ive had these seizures, it started when I was 18. I have JME.
courtneylvgirl 3 years ago
I don't think its absence seizures.
Firewall2153 3 years ago
No this particluar seizure is a myoclonic seizure.
mdoss10 3 years ago
What did the MRI and the EEG show?
I am wondering about a complex partial seizures. Look at the fencing posture.
JME is very easy to control and won't affect his develoment.
He is such a cute child.. Many kisses to him!!
Firewall2153 3 years ago
He does have the absence seizures. The therapist pointed out that he does these facial seizures when he gets overwhelmed. He has been dignosed with Sensory Processing Disorder which might explain why he gets them when stressed.
mdoss10 3 years ago
He also seems to zone out a bit after he comes out of the convulsions, does he also have absent seizures?
PinkSander 3 years ago
we also notice that chase and kimberly my niece,have d same seizure,kimberly she is almost 3 yrs.old now but she cant even say asingle word
zalthee 3 years ago
How is your niece doing with her seizures? We finally having him on 120 mg of Topamax and are only seeing them every few days. Plus he has finally started responding and babbling to us.
mdoss10 3 years ago
how is he now,we have our niece having seizure also but the problem is we dont know the right medication to prevent her twiching in times her seizure attack.were in manila and we dont know how we get the right doctor the right medication that could help us,the child is also getting worse
zalthee 3 years ago
We started noticing them back in June and had his MRI and EEG done back in Jusly to confirm that he has myoclonic and tonic seizures. Found out that glutens cause them to get worse.
mdoss10 3 years ago
How long has you been having those?
HorseCaak 3 years ago