I have CHD it's only ASD though so it's not quite as severe as these kids. My best friend has CHD and right now is having trouble. She has heart failure and might have to get a heart transplant.
I sure wish I knew how to make a video and post it...My daughter was born with VSD and a ASD 21 years ago....I will never forget how traumatic this was for her as well as me....I am forever grateful of her doctors and nurses...Medical Technology has come so far...SHE has come so far!!! I was blessed with my first grandbaby 11 months ago!!
I have a daughter born with Truncus Art. and pulm. stenosis. she had surgery at 10 days old and is now 7 years old. She has wonderful doctors and is a big fighter. I hate that these children go thru so much in their young lives. This is a wonderful video and god bless all the children and to the parents stay strong.
Thank you for the video. I pray daily the media picks this up.. Our son has had over 26 blood transfusions they told us he was good as dead.. Guess what GOD spared his life. March 6th of 08 our baby got a heart transplant he is 7 months old. Still have all the feeding tubes. Everytime I see these videos I cry.. To see our blog you may visit.
Carepages TrentonHoward.. Bless all our sweet CHD BABIES WE LOVE YOU
thank you for this beutiful video. it brings hope to someone like me thats just in the beginning of this journey. my son was 5week old before anyone noticed something was wrong whit his heart and now he is diagnosed whit several CHD among them is DILV, hypoplastic left ventrikel, VSD and pulmonal stenoses. has had his first surgery of atleast 3. he has a video in here also. it brings much hope and comfort to see the joy and smiles from other chd kids
I enjoyed this very much as I am a proud heart mom. My daughter is only 7 months and had heart surgery 6 onths ago. I too would like the name of the song and the artist as I would like a copy. It was perfect.
Brave Children! Stronger then most adults!.Thank gosh for medical advances! My Aunty Wendy who passed away at 5 months old and Unlce Ian born premature were born back in the late 50's where they did not have todays medical standards to help them. Sadly there is no photos of there existence. Lilike there is no baby pictures of my healthy mom and her healthy siblings.
my baba has Transpositional arteries, pulmonary stenosis, and a large vsd. he had his first op on xmas eve at 7 wks.. its beautiful to see these fighters later in life and strengthening to me. THANK YOU.
My son Jayden was born with a CHD called Tetralogy of fallot. he had surgery at 12 weeks and is doing wonderful. He is a wonderful little boy with alot of spirit and courage.
My daughter Adelle was born with HLHS (single atrium, single ventricle, mitral atresia, and aortic atresia. She was a superstar every day of her life. On October 18th, 2007 15 days after her entrance into this world our daughter, Addie, passed away.
Great video, my son is in the hospital right now for CHD. He was born 8/26/07 with aortic stenosis, mitral regurgitation and stenosis with pulmonary hypertension. He had open heart surgery on 10/2 and awaits another surgery. I love the song you chose as well, Casting Crowns "Praise You in the Storm". It has been such a blessing to me. We know how you feel, being parents of a CHD child...God bless you.
Thanks for sharing this video. I have a Grandson(20 mths old) that will be having the Fontan in April of 2008. It's great to see that so many young children do so well, after heart surgery.
It's amazing what these kids go through and how they handle it with such strengh and courage. My son is 8 and still fighting chd hopefully someday the surgiers will end.. Thank you for making such a great video
this is great i have a heart defect and i like seeing how other children are doing now that i am adult with CHD its very nice to see how the surgery has improved
I have CHD it's only ASD though so it's not quite as severe as these kids. My best friend has CHD and right now is having trouble. She has heart failure and might have to get a heart transplant.
ackrandom1 4 months ago
Hi my mom posted this video i am the child in the video named madalyn.
panzer9802 11 months ago
I had chd as a baby, I know how these kids feel. Keep spreading the message about chd and hopefully someday no one will have to live with this.
JonathanRagsdill 1 year ago
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kinubabe 1 year ago
Awesome! 5 Stars....:) Karen
SuperSunshine34 2 years ago
I sure wish I knew how to make a video and post it...My daughter was born with VSD and a ASD 21 years ago....I will never forget how traumatic this was for her as well as me....I am forever grateful of her doctors and nurses...Medical Technology has come so far...SHE has come so far!!! I was blessed with my first grandbaby 11 months ago!!
buttercup907 3 years ago
I have a daughter born with Truncus Art. and pulm. stenosis. she had surgery at 10 days old and is now 7 years old. She has wonderful doctors and is a big fighter. I hate that these children go thru so much in their young lives. This is a wonderful video and god bless all the children and to the parents stay strong.
lcat1201 3 years ago
Thank you for the video. I pray daily the media picks this up.. Our son has had over 26 blood transfusions they told us he was good as dead.. Guess what GOD spared his life. March 6th of 08 our baby got a heart transplant he is 7 months old. Still have all the feeding tubes. Everytime I see these videos I cry.. To see our blog you may visit.
Carepages TrentonHoward.. Bless all our sweet CHD BABIES WE LOVE YOU
Exxonmickeymouse 3 years ago
To see all the kids happy and growing brings lots of hope. Thank you !!
Mom of Alex (TGA)
aga60154 3 years ago
thank you for this beutiful video. it brings hope to someone like me thats just in the beginning of this journey. my son was 5week old before anyone noticed something was wrong whit his heart and now he is diagnosed whit several CHD among them is DILV, hypoplastic left ventrikel, VSD and pulmonal stenoses. has had his first surgery of atleast 3. he has a video in here also. it brings much hope and comfort to see the joy and smiles from other chd kids
MiriamDk 3 years ago
I enjoyed this very much as I am a proud heart mom. My daughter is only 7 months and had heart surgery 6 onths ago. I too would like the name of the song and the artist as I would like a copy. It was perfect.
blubarryyumyum 3 years ago
Brave Children! Stronger then most adults!.Thank gosh for medical advances! My Aunty Wendy who passed away at 5 months old and Unlce Ian born premature were born back in the late 50's where they did not have todays medical standards to help them. Sadly there is no photos of there existence. Lilike there is no baby pictures of my healthy mom and her healthy siblings.
sylviesangels 3 years ago
my baba has Transpositional arteries, pulmonary stenosis, and a large vsd. he had his first op on xmas eve at 7 wks.. its beautiful to see these fighters later in life and strengthening to me. THANK YOU.
Would love to know who the musics by. very apt.
dmsjlloyd 3 years ago
My son Jayden was born with a CHD called Tetralogy of fallot. he had surgery at 12 weeks and is doing wonderful. He is a wonderful little boy with alot of spirit and courage.
Moodyzblu 3 years ago
My daughter Adelle was born with HLHS (single atrium, single ventricle, mitral atresia, and aortic atresia. She was a superstar every day of her life. On October 18th, 2007 15 days after her entrance into this world our daughter, Addie, passed away.
AddiesMamma 4 years ago
Great video, my son is in the hospital right now for CHD. He was born 8/26/07 with aortic stenosis, mitral regurgitation and stenosis with pulmonary hypertension. He had open heart surgery on 10/2 and awaits another surgery. I love the song you chose as well, Casting Crowns "Praise You in the Storm". It has been such a blessing to me. We know how you feel, being parents of a CHD child...God bless you.
cnahonaker 4 years ago
Thanks for sharing this video. I have a Grandson(20 mths old) that will be having the Fontan in April of 2008. It's great to see that so many young children do so well, after heart surgery.
nursescarels 4 years ago
Wonderful video! :-)
S. mom to TOF kid E.
Sonule 4 years ago
I love this video, I am a former CHD patient and know how these children feel. I hope everyone keeps spreading the message.
JonathanRagsdill 4 years ago
It's amazing what these kids go through and how they handle it with such strengh and courage. My son is 8 and still fighting chd hopefully someday the surgiers will end.. Thank you for making such a great video
crazyne1469 4 years ago
its just so sad that there is so many babies born out there with CHD and like my son and yet it isnt widley known about
digitalbliss 4 years ago
this is great i have a heart defect and i like seeing how other children are doing now that i am adult with CHD its very nice to see how the surgery has improved
Fruitymonkey88 4 years ago
Great video!
ydaniel 4 years ago
Keep spreading the word... the video is beautiful.
ashaelarain 4 years ago