Does she do the self-hugging when she's excited or overwhelmed? I heard that's a common SMS trait. I'd like to see a video of it but I can't seem to find one.
I can see that yours also has biting marks on her hands.. I want to know is yours also easting all the time.. ? It just because my little sister, who by the way also has this syndrome, has grown really fat.. And she keeps eating, if you have the same probleme, how do you solve it.. P.S the boy who's tired of never having any food in the house.. -.-
My daughter is now 4 years older than she was in this video. She has not grown fat. I'm not sure why. She loves to eat but I make her play outside every day. She is even on medication that is supposed to make her fat. My advice is to make your SMS kid go outside every day and run around. I make her do things for herself. I am trying to stop catering to her.
Very Good Morgan, that's wonderful work! I'm now wondering if this is what my granddaughter, Kylie has! She can also spell with certain computer games, walked late, delayed speach, etc. Genetics had mentioned about a little DNA missing from her Y17 Chromosone, but never gave us anymore information, this was back in 2008. Please watch Kylie's videos on my channel and let me know what you think, I'd appreciate it very much. You have a beautiful daughter, God Bless you all.
Audrey, I watched Kylie's video. Excuse me while I sob over how beautiful your baby grandaughter is. I am Morgan's mom. The video I posted of Morgan is 3 years old now. She has grown. I can tell you that I do see some similar characteristics in facical features as Kylie is growing. I'm not sure that Kylie has Smith-Magenis Syndrome but I do have a lot of info if you wish to exchange email addresses. God bless your angel and mine.
Wow she's is one clever girl! My daughter also has SMS she is two years old, I have a couple of montages of her on here feel free to have a look! Thank you for sharing your video of Morgan it gives me lots of hope for our future, Lots of Love Emma and Grace x x
Wow, I"m impressed! I nanny two "normal" twin kids that are the same age as your daughter seems to be (5) and they don't know half of that!!! She's a cutie!
I am the care giver for a 26 year old male with SMS. I would like to talk to someone who has worked with SMS in adults. I have learned a lot in the last year and a half. The two biggest struggles are with food and video games. I have tried some of the chats but most people were having problems with potty training. He is a master manipulator and very destructive. It has been a struggle to figure out what is bad habits and what is SMS.
Hello, my daughter has SMS too and is going to be 18, I am interested in helping others and finding out more my self. I am starting a yahoo group for parents of SMS children. It will be under queenfairy1 yahoo groups.
Does she do the self-hugging when she's excited or overwhelmed? I heard that's a common SMS trait. I'd like to see a video of it but I can't seem to find one.
Abnormaldiversity 6 months ago
I can see that yours also has biting marks on her hands.. I want to know is yours also easting all the time.. ? It just because my little sister, who by the way also has this syndrome, has grown really fat.. And she keeps eating, if you have the same probleme, how do you solve it.. P.S the boy who's tired of never having any food in the house.. -.-
DownBeatTime 9 months ago
@DownBeatTime
My daughter is now 4 years older than she was in this video. She has not grown fat. I'm not sure why. She loves to eat but I make her play outside every day. She is even on medication that is supposed to make her fat. My advice is to make your SMS kid go outside every day and run around. I make her do things for herself. I am trying to stop catering to her.
woodstyleah 6 months ago
awww. my brother has smith megenis syndrome and sometimes its hard to deal withthe tantrums and he lovves to put his hands in his mouth lool ha
intelman100 1 year ago
Very Good Morgan, that's wonderful work! I'm now wondering if this is what my granddaughter, Kylie has! She can also spell with certain computer games, walked late, delayed speach, etc. Genetics had mentioned about a little DNA missing from her Y17 Chromosone, but never gave us anymore information, this was back in 2008. Please watch Kylie's videos on my channel and let me know what you think, I'd appreciate it very much. You have a beautiful daughter, God Bless you all.
CountrybyAudrey 1 year ago
@CountrybyAudrey
Audrey, I watched Kylie's video. Excuse me while I sob over how beautiful your baby grandaughter is. I am Morgan's mom. The video I posted of Morgan is 3 years old now. She has grown. I can tell you that I do see some similar characteristics in facical features as Kylie is growing. I'm not sure that Kylie has Smith-Magenis Syndrome but I do have a lot of info if you wish to exchange email addresses. God bless your angel and mine.
woodstyleah 1 year ago
Wow she's is one clever girl! My daughter also has SMS she is two years old, I have a couple of montages of her on here feel free to have a look! Thank you for sharing your video of Morgan it gives me lots of hope for our future, Lots of Love Emma and Grace x x
M2AG03 2 years ago
I was tested for this although I came back negative! Best wishes - suekosa
suekosa 3 years ago
Wow, I"m impressed! I nanny two "normal" twin kids that are the same age as your daughter seems to be (5) and they don't know half of that!!! She's a cutie!
coocoocarol 3 years ago
Thank you. She was 6 in that video. I have worked very hard with her.
cassiemjh 3 years ago
Okay, I'll check that out, thanks. Are you involved with the PRISMS SMS list?
cassiemjh 3 years ago
I am the care giver for a 26 year old male with SMS. I would like to talk to someone who has worked with SMS in adults. I have learned a lot in the last year and a half. The two biggest struggles are with food and video games. I have tried some of the chats but most people were having problems with potty training. He is a master manipulator and very destructive. It has been a struggle to figure out what is bad habits and what is SMS.
ussick 3 years ago
Hello, my daughter has SMS too and is going to be 18, I am interested in helping others and finding out more my self. I am starting a yahoo group for parents of SMS children. It will be under queenfairy1 yahoo groups.
queenfairy1 3 years ago