Hello, I was just watching the videos you have put on here, I can understand how awful some of it is for you because my daughter does similar to this ?post-ictal video. Do you know any more about her episode like this? Has she had any more? My daughter has had episodes like this, but without any arching or gagging before. We are desperate to know what might be going on.
@xxxAlphaxxx5 She did not pass out immediately. she was actually taken to the ER because this was in the middle of a cluster of seizures and she was hospitalized for those and pneumonia. we opened her shirt to ensure that she was breathing adequately because she tends to stop breathing during her seizures. And plus, it was really scary. This was the first time we had ever seen those types of seizures in her.
@8606Sassy Oh i see after watching it a few times more and ya , she looks like stunning there and looks dead ( sorry to say that ) but good to see she is alright. Does she just has seizure recently ?
No, she did not go into a complex partial seizure. She's in a phase called "postictal confusion". How long the postictal confusion lasts varies from person to person, and from seizure to seizure. You did a wonderful job with this recording; however, what would be even better is recording her having a seizure at the very moment when the seizure is taking place. And get her entire body in the picture, so her doctor can visualize everything that's going on. Again, you did a wonderful job.
Thank you for clearing that up. I wish I could have recorded the beginning, but i wasn't even the one recording. I was too busy freaking out. My sister grabbed the camera, family is really good about documenting stuff.
I'm trying to take the audio out, but Audioswap isn't working. It has some personal info i was hoping to take out. any ideas how?
@8606Sassy I don't know what all video programs you have on your computer. So let's see if we can work together on this, privately, starting with us trying to come into contact with each other. Would you happen to be a member of epilepsy.com ? I am, and my username on there is Spike. There is a chatroom available through epilepsy.com, and ways we could exchange email addresses, privately.
*HUGS!!!*
drunkenmonkey761 3 months ago
No child should have to go through this. By the way the video/music ripped my soul out through my eyes in form of tears... T-T
ASTr9fg 3 months ago
aww that's so sad! hold ON baby girl!!!
allstarz12186 3 months ago
bless your family i wish you guys well and in my case if i had a daughter like this id waste no time at all but god bless your family
sadbed23 3 months ago
wow that must be scary, You did an amazing job staying calm. How long did that stage last for. What happends during that stage?
jujub428 4 months ago
Hello, I was just watching the videos you have put on here, I can understand how awful some of it is for you because my daughter does similar to this ?post-ictal video. Do you know any more about her episode like this? Has she had any more? My daughter has had episodes like this, but without any arching or gagging before. We are desperate to know what might be going on.
Thanks
gillya1000 4 months ago
Poor baby's really out of it
MissMousegirl913 5 months ago
Let me know whenever you'd like, and I'll have no problem with deleting the video at your request.
EpilepsySupportGroup 1 year ago
Looks like the video ends up being on my channel, instead of my reply with a video as an attachment. I'm still new at the upload side of YouTube.
EpilepsySupportGroup 1 year ago
youtube.com/watch?v=DhQ5ffBfzwE
EpilepsySupportGroup 1 year ago
Here's a "no audio" version for you Sassy.
EpilepsySupportGroup 1 year ago
what is the music on this video?
bbe4ever 1 year ago
Did your daughter have epilepsy as a baby? Is there a reason that she has it? My daughter has it because she has Tuberous Sclerosis. How is she now?
amysarahh 1 year ago
Did she pass out ? and why do you open up her shirt for ?
xxxAlphaxxx5 1 year ago
@xxxAlphaxxx5 She did not pass out immediately. she was actually taken to the ER because this was in the middle of a cluster of seizures and she was hospitalized for those and pneumonia. we opened her shirt to ensure that she was breathing adequately because she tends to stop breathing during her seizures. And plus, it was really scary. This was the first time we had ever seen those types of seizures in her.
8606Sassy 1 year ago
Comment removed
xxxAlphaxxx5 1 year ago
This has been flagged as spam show
@8606Sassy Oh i see after watching it a few times more and ya , she looks like stunning there and looks dead ( sorry to say that ) but good to see she is alright. Does she just has seizure recently ?
xxxAlphaxxx5 1 year ago
No, she did not go into a complex partial seizure. She's in a phase called "postictal confusion". How long the postictal confusion lasts varies from person to person, and from seizure to seizure. You did a wonderful job with this recording; however, what would be even better is recording her having a seizure at the very moment when the seizure is taking place. And get her entire body in the picture, so her doctor can visualize everything that's going on. Again, you did a wonderful job.
EpilepsySupportGroup 1 year ago
@EpilepsySupportGroup
Thank you for clearing that up. I wish I could have recorded the beginning, but i wasn't even the one recording. I was too busy freaking out. My sister grabbed the camera, family is really good about documenting stuff.
I'm trying to take the audio out, but Audioswap isn't working. It has some personal info i was hoping to take out. any ideas how?
8606Sassy 1 year ago
@8606Sassy I don't know what all video programs you have on your computer. So let's see if we can work together on this, privately, starting with us trying to come into contact with each other. Would you happen to be a member of epilepsy.com ? I am, and my username on there is Spike. There is a chatroom available through epilepsy.com, and ways we could exchange email addresses, privately.
EpilepsySupportGroup 1 year ago