Mark, I am a little confused by the title of this. It has nothing to do with CCSVI. I have had the CCSVI treatment 1/25/2011 and it is working great with me. Perhaps your would be more accurate to re title this video. All the best to you my friend.
Thanks for sharing Mark. I know there are trials going on still here in the states with stem cell transplants using the chemotherapy and not just injecting your stem cells back into your body. Did you see any change after the treatment and if so how long did they last? I agree CCSVI looks very promising but stem cell has a natural interest as well. Thanks for going against the flow!
@0302isis My pleasure, thanks. I really felt good, but coming back from where I'd been, must have been elation. I have no regret's, that was all that was offered at that time. Now I believe MS has slowly progressed, did this do anything, I don't believe so now, but I tried. Stem cell repair may help existing damage, so further work would be good. As long as this type of therapy is avoided, it was dangerous. my stem cells were used to avoid rejection, they were altered dramatically. Stay well.
Mark, Thank You for sharing this with us. Hope your feeling better soon...
An Aussie MS'er travelled overseas to a prominent Stem Cell Centre of Excellence and had this done also... But alas it didn't work at all... Just another persons experience.. Take Care and Thanks again. :) ...
We need to see positives & negatives. I hope this helps you to make an informed decision. Why haven't some done follow-ups???????????? I am still happy that I tried & will ,keep trying. This made sense at least.
Mark, I'm so sorry youre not feeling well. Interesting video. I'm wondering whether it was you I spoke to about 10 or so yrs ago on the phone about this stem cell transplant. I was looking into having it done too but after speaking to who ever it was I was completely turned off. They said they nearly died & that it was an horrendous experience. Did many people have the procedure?
Hi, I may have been??I feel the news report over sensationalized, but at least we saw something was tried. The problem was we were desperate, 5 other people were in the trial and it was stopped due to o/s mortality. It was terrible being so effected by chemo, look at my first video, this may shed some light. I spoke to so many people, they were so desperate for assistance. I only posted this video as I don't want people to think this is something new. It is over 11 years old.
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vancouverislandbass 3 months ago
I knew I was looking at it the wrong way, sorry.
irishblessings1 6 months ago
@irishblessings1 Sorry too, thanks.
MrMarkafisher 6 months ago
Mark, I am a little confused by the title of this. It has nothing to do with CCSVI. I have had the CCSVI treatment 1/25/2011 and it is working great with me. Perhaps your would be more accurate to re title this video. All the best to you my friend.
Thanks, Bill
irishblessings1 6 months ago
@irishblessings1 Sorry, but I wanted people to see this as my journey to ccsvi, what I had done in lead-up to #3 angio & how deceptive the link was.
MrMarkafisher 6 months ago
Thanks for sharing Mark. I know there are trials going on still here in the states with stem cell transplants using the chemotherapy and not just injecting your stem cells back into your body. Did you see any change after the treatment and if so how long did they last? I agree CCSVI looks very promising but stem cell has a natural interest as well. Thanks for going against the flow!
0302isis 7 months ago
@0302isis My pleasure, thanks. I really felt good, but coming back from where I'd been, must have been elation. I have no regret's, that was all that was offered at that time. Now I believe MS has slowly progressed, did this do anything, I don't believe so now, but I tried. Stem cell repair may help existing damage, so further work would be good. As long as this type of therapy is avoided, it was dangerous. my stem cells were used to avoid rejection, they were altered dramatically. Stay well.
MrMarkafisher 7 months ago
thank you for highlighting this.. i am very skeptical of ms treatments glorified on tv nowadays..
god bless
MsMezzaa 8 months ago
@MsMezzaa Yeah, we've got to be weary, what sells papers. I disliked the link, how can they lie, or weren't the facts given again.
MrMarkafisher 7 months ago
I appreciate the awareness you are spreading mate.
Blessings to you and yours.
Mark
irishbear76 8 months ago
@irishbear76 Thanks Mark, the game is on, I'm in it to win it, or something like that. Hope all is good, see you.
MrMarkafisher 8 months ago
Thanks Mark, very interesting to say the least. I do hope you get to feeling better!
Andrea
MSVlogSupport 8 months ago
@MSVlogSupport Thanks Andrea.
MrMarkafisher 8 months ago
Mark, Thank You for sharing this with us. Hope your feeling better soon...
An Aussie MS'er travelled overseas to a prominent Stem Cell Centre of Excellence and had this done also... But alas it didn't work at all... Just another persons experience.. Take Care and Thanks again. :) ...
LouLou3078 8 months ago
@LouLou3078 Yeah, it was a case of miss & miss unfortunately. But I had to try, it showed my intolerance to go with the flow.
Keep well.
MrMarkafisher 8 months ago
Thanks for sharing Mark... Get well real soon.
MSBunnyCuddles 8 months ago
@MSBunnyCuddles Thanks, 11 years ago sounds a long time hey.
MrMarkafisher 8 months ago
We need to see positives & negatives. I hope this helps you to make an informed decision. Why haven't some done follow-ups???????????? I am still happy that I tried & will ,keep trying. This made sense at least.
Mark
MrMarkafisher 8 months ago
Comment removed
rickileeway 8 months ago
Mark, I'm so sorry youre not feeling well. Interesting video. I'm wondering whether it was you I spoke to about 10 or so yrs ago on the phone about this stem cell transplant. I was looking into having it done too but after speaking to who ever it was I was completely turned off. They said they nearly died & that it was an horrendous experience. Did many people have the procedure?
Take care Mark.
rickileeway 8 months ago
@rickileeway
Hi, I may have been??I feel the news report over sensationalized, but at least we saw something was tried. The problem was we were desperate, 5 other people were in the trial and it was stopped due to o/s mortality. It was terrible being so effected by chemo, look at my first video, this may shed some light. I spoke to so many people, they were so desperate for assistance. I only posted this video as I don't want people to think this is something new. It is over 11 years old.
MrMarkafisher 8 months ago
thx for the update Mark. Hope you start feeling better soon.
christinedavi 8 months ago
Thanks Mark
curmudgeonine 8 months ago
Good on ya Mark :) Kerri
kezzcass 8 months ago