I had to diagnose myself too.. so sorry you have it too.. Drs. don't listen.. they tell you you are crazy.. yes.. no one believes you .Mine hit my bladder hard.. yup.. all the same symptoms.. Igenex is the only one that really gives you a good diagnoses.
They think just a simple course of antibiotics will cure it.. NO it will not.. My current doctor does not believe in chronic lyme.. sad. False negs are the problem.
Please send an email to PBS and thank them for agreeing to air the Lyme documentary: Under Our Skin. This film is set to air next month. From what I am hearing, the IDSA is trying to stop PBS from showing this film. Please guys, let PBS know how much you appreciate them showing this remarkable documentary about Lyme disease. Go to the PBS website. Once there, click on: Contact Us next click on: Contact Your Local PBS Station. God bless
You are an amazing young lady. God Bless you. I am 40 and going through much of the same as you described minus being committed. It is terrifying at my age. I can't even imagine what this was like for someone your age. I still have not been diagnosed and only know what is making me ill because of ppl like you who have shared their stories. With all my heart I send love to you. Thank You! Shanda
Thank you for sharing..Im sorry for the pain u had to go through on all levels. Im newly diagnosed with lyme..in process of trying to treat it. Was happy to hear of Igenix, seems hard to find places who give u a proper blood work report. Heard that Teasel root tincture (its from a certain kind of thistle) has cured some people, also worm wood, and other herbs. Ozone treatment has cured others..thats the best I got out of my research so far..maybe it will help some. Best wishes to you!
Thank you for sharing..Im sorry for the pain u had to go through on all levels. Im newly diagnosed with lyme..in process of trying to treat it. Was happy to hear of Igenix, seems hard to find places who give u a proper blood work report. Heard that Teasel root tincture (its from a certain kind of thistle) has cured some people, as well as worm wood, and other herbs. Ozone treatment has cured others..thats the best I got out of my research so far..maybe it will help some. Best wishes to you!
Thank you for sharing..Im sorry for the pain u had to go through on all levels. Im newly diagnosed with lyme..in process of trying to treat it. Was happy to hear of Igenix, seems hard to find places who give u a proper blood work report. Heard that Teasel root tincture (its from a certain kind of thistle) has cured some people, as well as worm wood, and other herbs. Ozone treatment has cured others..thats the best I got out of my research so far..maybe it will help some. Best wishes to you!
Thank you for sharing..Im sorry for the pain u had to go through on all levels. Im newly diagnosed with lyme..in process of trying to treat it. Was happy to hear of Igenix, seems hard to find places who give u a proper blood work report. Heard that Teasel root tincture (its from a certain kind of thistle) has cured some people, as well as worm wood, and other herbs. Ozone treatment has cured others..thats the best I got out of my research so far..maybe it will help some. Best wishes
Funny how so many of us are from Wi, yet still Drs here deny that there is lyme here. I had one Dr tell me there is no documentated cases here. I just got up and walked out. It took me 15 years to get diagnosed. I hope you are getting better and can lead a functional life!
Thanks for sharing your story. You really went through hell, I am sure, with being sent to the mental hospital. You are a survivor and your gift is giving this information to others who can learn and be helped by you.
I think you are amazing for having been able to diagnose yourself while the doctors could not.
I think your Awesome!!! I have had Lyme for only 23 days. I'm taking my doxycycline and prednisone like im supposed to. But I can honestly say this sux way worse then anything I have ever experienced.. I think your an amazingly strong person!!!! Oh and a Cutie : )
So sorry you had to go thru this. I'm glad you are doing better now. I, too am from Wisconsin and I have Lyme disease. I was originally diagnosed with Fibromyalgia. I just started treatment thru a Lyme aware physician.
Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
your story breaks my heart. I am so sorry you had to go through all of this but glad you got out of the bug-house. They tried to put me in there several times. Sucks that WE have to be our own doctors. But at least we know our bodies better than anyone and so that is what i try to listen to while treating myself with alternative treatments at this point.
So how is your relationship with your family after they did that to you? Having you committed...
Come Monday, I might be suffering the same fate. It's a long story, but I am so sick right now, and that's the last thing I need--especially when I'm gradually becoming worse.
hi. sorry for the delay in responding. i sincerely hope you don't suffer the same fate. i know there are too many lymies out there who have endured something similar; it's really tragic, really maddening.
my relationship with my family is.. tenuous at best. my grandparents committed me, and now they're getting old, struggling with age/illness/alzheimer's, so it's hard to be angry at them. though i think maybe i've sublimated the anger, i'm not sure. anyway. message if you'd like to talk.
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar's Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look back@what ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of "Raw-Garlic a day.Only thing that helped Texas Dar !
so happy to see us survivors coming forward with the facts about Lyme disease. From one Lyme survivor to another we will win this war on Lyme disease. Sharing our story's people will wake up one day.
wow! I was tested and we went through Igenex too . Your story moved me so much. You've been through so much even before you were diagnosed. Everyone has their story, but yours touched me so much. I think you're really cool. It's glad that you have gotten better. I think people need to hear that, I needed to hear this.
You are so strong, thanks so much for sharing your story.
I had to diagnose myself too.. so sorry you have it too.. Drs. don't listen.. they tell you you are crazy.. yes.. no one believes you .Mine hit my bladder hard.. yup.. all the same symptoms.. Igenex is the only one that really gives you a good diagnoses.
They think just a simple course of antibiotics will cure it.. NO it will not.. My current doctor does not believe in chronic lyme.. sad. False negs are the problem.
ADDIElilqueenie 9 months ago
Please send an email to PBS and thank them for agreeing to air the Lyme documentary: Under Our Skin. This film is set to air next month. From what I am hearing, the IDSA is trying to stop PBS from showing this film. Please guys, let PBS know how much you appreciate them showing this remarkable documentary about Lyme disease. Go to the PBS website. Once there, click on: Contact Us next click on: Contact Your Local PBS Station. God bless
ecftube 10 months ago
You are an amazing young lady. God Bless you. I am 40 and going through much of the same as you described minus being committed. It is terrifying at my age. I can't even imagine what this was like for someone your age. I still have not been diagnosed and only know what is making me ill because of ppl like you who have shared their stories. With all my heart I send love to you. Thank You! Shanda
FloridaSalon 1 year ago
Thank you for sharing..Im sorry for the pain u had to go through on all levels. Im newly diagnosed with lyme..in process of trying to treat it. Was happy to hear of Igenix, seems hard to find places who give u a proper blood work report. Heard that Teasel root tincture (its from a certain kind of thistle) has cured some people, also worm wood, and other herbs. Ozone treatment has cured others..thats the best I got out of my research so far..maybe it will help some. Best wishes to you!
GourmetGopi 1 year ago
This has been flagged as spam show
Thank you for sharing..Im sorry for the pain u had to go through on all levels. Im newly diagnosed with lyme..in process of trying to treat it. Was happy to hear of Igenix, seems hard to find places who give u a proper blood work report. Heard that Teasel root tincture (its from a certain kind of thistle) has cured some people, as well as worm wood, and other herbs. Ozone treatment has cured others..thats the best I got out of my research so far..maybe it will help some. Best wishes to you!
GourmetGopi 1 year ago
This has been flagged as spam show
Thank you for sharing..Im sorry for the pain u had to go through on all levels. Im newly diagnosed with lyme..in process of trying to treat it. Was happy to hear of Igenix, seems hard to find places who give u a proper blood work report. Heard that Teasel root tincture (its from a certain kind of thistle) has cured some people, as well as worm wood, and other herbs. Ozone treatment has cured others..thats the best I got out of my research so far..maybe it will help some. Best wishes to you!
GourmetGopi 1 year ago
Thank you for sharing..Im sorry for the pain u had to go through on all levels. Im newly diagnosed with lyme..in process of trying to treat it. Was happy to hear of Igenix, seems hard to find places who give u a proper blood work report. Heard that Teasel root tincture (its from a certain kind of thistle) has cured some people, as well as worm wood, and other herbs. Ozone treatment has cured others..thats the best I got out of my research so far..maybe it will help some. Best wishes
GourmetGopi 1 year ago
'
why NO closed captioned on this video about lyme disease,,,
i want to read this closed captioned on this video
bestamerica 1 year ago
Funny how so many of us are from Wi, yet still Drs here deny that there is lyme here. I had one Dr tell me there is no documentated cases here. I just got up and walked out. It took me 15 years to get diagnosed. I hope you are getting better and can lead a functional life!
whereisthekarma 2 years ago
Thanks for sharing your story. You really went through hell, I am sure, with being sent to the mental hospital. You are a survivor and your gift is giving this information to others who can learn and be helped by you.
I think you are amazing for having been able to diagnose yourself while the doctors could not.
BuggedbyMPD 2 years ago
I think your Awesome!!! I have had Lyme for only 23 days. I'm taking my doxycycline and prednisone like im supposed to. But I can honestly say this sux way worse then anything I have ever experienced.. I think your an amazingly strong person!!!! Oh and a Cutie : )
r1ckr0b 2 years ago
So sorry you had to go thru this. I'm glad you are doing better now. I, too am from Wisconsin and I have Lyme disease. I was originally diagnosed with Fibromyalgia. I just started treatment thru a Lyme aware physician.
maebutler1 2 years ago
You are an amazing person.
skunkfromtheashes 3 years ago
This has been flagged as spam show
Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
ecftube 3 years ago
your story breaks my heart. I am so sorry you had to go through all of this but glad you got out of the bug-house. They tried to put me in there several times. Sucks that WE have to be our own doctors. But at least we know our bodies better than anyone and so that is what i try to listen to while treating myself with alternative treatments at this point.
artsyfart66 3 years ago
So how is your relationship with your family after they did that to you? Having you committed...
Come Monday, I might be suffering the same fate. It's a long story, but I am so sick right now, and that's the last thing I need--especially when I'm gradually becoming worse.
I'm glad things worked out for you though! :)
TheMoney28 3 years ago
hi. sorry for the delay in responding. i sincerely hope you don't suffer the same fate. i know there are too many lymies out there who have endured something similar; it's really tragic, really maddening.
my relationship with my family is.. tenuous at best. my grandparents committed me, and now they're getting old, struggling with age/illness/alzheimer's, so it's hard to be angry at them. though i think maybe i've sublimated the anger, i'm not sure. anyway. message if you'd like to talk.
heiwalove 3 years ago
What an amazing story
RaiseCFSawareness 3 years ago 3
Hang in there girl and know your not alone..fight the bite;-)
alicat4377 3 years ago 3
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar's Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look back@what ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of "Raw-Garlic a day.Only thing that helped Texas Dar !
texasdar 3 years ago 2
Heather. Thank you for sharing your story! You give people like me hope that I can get well again!
shandymonte 3 years ago 2
Thank you so much for telling your story.
soltice57 3 years ago 2
so happy to see us survivors coming forward with the facts about Lyme disease. From one Lyme survivor to another we will win this war on Lyme disease. Sharing our story's people will wake up one day.
blackroze2200 3 years ago 2
thanks so much JD. your story moved me, too. i would love to be friends. :)
heiwalove 3 years ago
wow! I was tested and we went through Igenex too . Your story moved me so much. You've been through so much even before you were diagnosed. Everyone has their story, but yours touched me so much. I think you're really cool. It's glad that you have gotten better. I think people need to hear that, I needed to hear this.
You are so strong, thanks so much for sharing your story.
I hope we can be friends <3 JD
JadyDavisTV 3 years ago 2