Sublymation's Lyme Vlog #20 (Candid Emotional Discussion About Having Lyme)

[027daisy]

Hang in there girl, I have lyme too. Its such a messed up disease

[bkabse]

Thank you... I totally relate with your tears and frustrations, your need to get out of the house and play in the creeks, to be heard by the bureaucratic doctors, and how we take every piece of the day as one moment. God Bless you Sie!

[mu2freighter]

Subscribed. I just commented on your earlier video, and watching this one really speaks to me. I was DX'd with MS in 2006 and have been knocked into a power wheelchair. Looking through your symptom list I see a lot of parallels along with anomalies. I've been advised to get checked for Lyme although I'd assumed that was covered with the blood work, spinal tap and MRIs done. Don't assume eh? I too have seen the friends and family head for the hills when I got disabled. They really don't get it.

[lilydud]

Bless your heart, when I listened to this it makes me want to reach out and hug you like I would my own 29 years old daughter suffereing the same. She was a nurse, now not working. We see a Dr that treats and test for Lyme next Monday. We don't know if Carrie has Lyme, but her Neurologist and yours could be the same person. How can even sleep at night. Not only are they not willing to help, but not willing to help you find someone who can.

[Sublymation]

@lilydud Sad this story seems so common among Lyme people. I just don't understand how the medical community can just shut the door in our face and not even blink an eye. Just astonishing.