@xXJeezItsOnlyMeXx how ever long she lives is how long she is going to live. what a stupid and insensitive question that dose not matter in the slightist. She could alraedy be past her life expecancy or maybe she will have a normal life spane, but should we treat her differently because of it? and if she dose have a shorter then normal life span and she is geting close to that or past it do you realy need to remind these brave parents that their beautiful little girl is going to die soon?
@xXJeezItsOnlyMeXx but its non of your concern and like I said bringing it up only reminds the people that love her she will die soon. Just before you as a question like that just think about if it was your daughter and some just asked you that, empathy its a good thing.
She is still alive. NPC is a genetic disease in which a protein is missing that breaks down cholesterol. Instead the cholestrol stores in healthy tissue, which destroys it. Gabi is mainly affected in the brain, which has a global impact. She has seizures, cannot walk, hasn't spoken in years, and spends a lot of time sleeping. When she is awake, she pretty much just stares at the ceiling and doesn't respond to anyone or anything. She now gets her nutrition and medicine through a g-tube.
wow. I heard about this in passing but this video is quite affecting. My eyes are burning with tears. I did some volunteering with an Alzheimers organization and lost my Grandad to it a couple of years ago.
Thank you for watching. NPC is called "childhood alzheimers" since the effect it has on the brain is so similar. I pray you never know anyone with this horrible disease, but I am grateful that these videos are helping get the word out this it exists. Maybe another family will be spared the 4 years of diagnostics we had to endure.
My best friend lost her son before his first birthday to a muscle disease and i still think how hard that had to be for her and even more so the fact that she knew it was coming his whole short lived life. It brings tears to your eyes just thinking about it, let alone living it. I hope God brings you mercy in your lives and this all makes sense one day
I am scared right now over something as simpe as my child breathing with a wheeze from a virus for the first time out of all five and it makes me think about people like you everytime i come anywhere near a situation of powerlessness whether it be mine or someone else's.
It's true. And without hope, you crash. I never know how important hope was until we didn't have any left. You just begin not to care about anything & it's very hard to get out of bed each day.
This video is hard to watch without knowing ANY details. Just the feeling of knowing your kids could be sick and there be nothing that you know of to do for them is all it takes to make it the worst thing you could go throuh. I am soooo sorry for these parents and this child. I thank God EVERY day that my five children are in great health but I never stop feeling for those who's aren't. I couldn't even imagine and my heart goes out to you and anyone else in your shoes. .
The only thing I can think of that would be worse than knowing that your child is going to die is not knowing where your child is. To have a missing child, to me would be worse. This sounds so horrible, but I wish this were cancer. Dr.s know how to fight cancer. She would at least have a chance. What she has is a death sentence. And living with that every day, watching her lose more of herself every day, having your heart break more every day, is simply hell on earth.
Best wishes to the parents and their family, tremendously hard workers these folks, good on you. If a medal could go to parents these people would get it.
Your daughter was damaged from the vaccines she had. Get educated immediately !!!!.
Go and watch the 11 episodes, first called "09 Andrew Moulden En 01 de 11" on youtube.
Also watch everything you find with "Barbara Loe Fisher" but make sure to see this one in particular "Barbara Loe Fisher on Alex Jones Tv 4/6:Vaccine Oversight Now!" It's time for the truth to surface.
Your daughter needs massive detoxification no more treatments from doctors. Any medication will make her sicker not better.
Call the School of Natural Healing and ask to talk to David Christopher, Master Herbalist. The number is:
1-800-372-8255. Explain to him her situation and he will help you to recover your daughter.
What you should start to do immediately: dry brush all her body with a natural hair brush, and after that shower her well. Use only Castile soap to wash her. Have her soak 1 hour every day in a tub of water with Emsom salt (2c) for heavy metal detox.
Part I: While I appreciate what I presume is your well-intentioned input, vaccines did not cause this disease. I've been watching my daughter live with NPC and know the disease. Do you? If you did, you'd know it is a genetic condition. Prior to diagnosis, we did investigate vaccines because we did have concerns that they had played a part in her difficulties. However, it's simply not the case.
Part II: As far as "detoxification", she's been through chelation and the only medication she takes is for her seizures. She is certainly not suffering from over-medication. I have no doubt that some children do suffer similar difficulties from vaccination , but that doesn't mean NPC is caused by vaccines. You may want to get educated about this disease if you are that interested in it. If not, please don't go around making claims if you haven't taken the time to do the research.
Yes, she is still alive. Her overall health is good, although her functional abilities have continued to decline: such as swallowing, balance, and motor skills.
Danielle, this is the best video so far, but I hate reliving her declining health. I don't ever want her to go. I am always praying for her. You are such a wonderful mom.
You have a very beautiful daughter, she's a little angel! I hope something can be done for her. It must have been awful, seeing her go through all this. Lots of love to you all. xxxx
As far as her physical size, she is her chronological age. Developmentally and as far as daily skills, she is approximately one year old. She has forgotten everything she learned, including walking and talking. Thanks for taking the time to watch one of our videos.
She has actually been having more difficulty. Her balance has worsened, she experienced her first grand mal seizure on May 12th, and she seems to be having some occasional difficulty with swallowing. Thanks for becoming aware of Niemann-Pick. I hope it never touches the life of anyone you know.
Yes, and we continue to take her to school and allow her participate in everyday life to the extent that she can. She loves being around others even though she tires easily. I pray you are right and a cure is found ... and quickly. She had a setback this week as she had a seizure on Tuesday morning. We have spent that last 3 days in the hospital, but she hasn't had another. So her health and safety are of even more concern now.
So sweet... I just hope the cure is found. I think also that if you stimulate her everyday it will retard the progress of the disease... that's what they usually do to alzeimre's patients.
I struggle with this question every single day. How can a loving and compassionate God allow this to happen to a sweet, innocent child? I don't have the answers. But I do consider this child to be a gift from God because she is the most wonderful blessing in my life. I don't know what I would be without her. She is everything to me and has been a blessing so many others - - family, friends, and strangers alike. She is simply amazing.
My heart weeps a river of tears, yet she is such an inspiration. She embodies the strength of the human spirit, and brings out in us the profound compassion and love that we all possess for one another. Despite her struggle, she is living an eminently meaningful life. God or whatever force has sent her to this time and place for a reason, and when revealed in its fruition, it will be more amazing and beautiful than we can ever hope to presently imagine...
let me try to help with an answer. God allows this because without bad things in the world, there wouldnt be good things either. You need evil to appreciate good. I feel bad for this girl, and i wish her the best, but in my own personal opinion, i think she is very lucky because she will have an easier time in the afterlife than in this mortal world.
Hiya my brother has that condition its very painful to watch he was just talking a few months ago but we think hes forgotten how hes fulltime wheelchair now!
We all cry, Danielle, when we watch these. And I cry when I design them. If we don't cry for Gabi, it would mean that we don't love her. And we all know that's not the case. Gabrielle has many angels.
very beautiful young lady. such a tradegy, my thoughts and prayers go out to her and her family. cherish every moment u have with her. god bless!!!
NEWYORKJETSFAN4LIFE 6 months ago
how could anyone dislike this video, 4 people don't have a heart. :(
PhoenixZebra 7 months ago
This has been flagged as spam show
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umayanarosy 1 year ago
Prayers for the whole family, very difficult for "everyone"...God bless and keep you strong!
Meknz7 1 year ago
such a beautiful little girl, i can not imagine what her parents are going through :( in my prayers now though
yaoigirl83 1 year ago
For me the best video!
I pray for gabi ever since I met her story left a great mark in my heart!
Already it is inappropriate but I could tell you the name of the song?
Kisses and I hope Gabi this better! =)
Sorry for my English
carinamena 1 year ago
@carinamena
Thank you! Not inappropriate at all - - it's How Do You Love, by Collective Soul.
gabrielle824 1 year ago
How Long Is She Going To Live?
xXJeezItsOnlyMeXx 1 year ago
@xXJeezItsOnlyMeXx how ever long she lives is how long she is going to live. what a stupid and insensitive question that dose not matter in the slightist. She could alraedy be past her life expecancy or maybe she will have a normal life spane, but should we treat her differently because of it? and if she dose have a shorter then normal life span and she is geting close to that or past it do you realy need to remind these brave parents that their beautiful little girl is going to die soon?
fireflygirl246 1 year ago
@fireflygirl246 o_o It was just a question...jeez
xXJeezItsOnlyMeXx 1 year ago
@xXJeezItsOnlyMeXx but its non of your concern and like I said bringing it up only reminds the people that love her she will die soon. Just before you as a question like that just think about if it was your daughter and some just asked you that, empathy its a good thing.
fireflygirl246 1 year ago
She is still alive. NPC is a genetic disease in which a protein is missing that breaks down cholesterol. Instead the cholestrol stores in healthy tissue, which destroys it. Gabi is mainly affected in the brain, which has a global impact. She has seizures, cannot walk, hasn't spoken in years, and spends a lot of time sleeping. When she is awake, she pretty much just stares at the ceiling and doesn't respond to anyone or anything. She now gets her nutrition and medicine through a g-tube.
gabrielle824 1 year ago
wow. I heard about this in passing but this video is quite affecting. My eyes are burning with tears. I did some volunteering with an Alzheimers organization and lost my Grandad to it a couple of years ago.
hellsing3000 1 year ago
Thank you for watching. NPC is called "childhood alzheimers" since the effect it has on the brain is so similar. I pray you never know anyone with this horrible disease, but I am grateful that these videos are helping get the word out this it exists. Maybe another family will be spared the 4 years of diagnostics we had to endure.
gabrielle824 1 year ago
My best friend lost her son before his first birthday to a muscle disease and i still think how hard that had to be for her and even more so the fact that she knew it was coming his whole short lived life. It brings tears to your eyes just thinking about it, let alone living it. I hope God brings you mercy in your lives and this all makes sense one day
blueserenityab 1 year ago
I don't know that I will every understand how it makes sense to have my sweet baby suffer every day, and then die without having any chance at life.
gabrielle824 1 year ago
I am scared right now over something as simpe as my child breathing with a wheeze from a virus for the first time out of all five and it makes me think about people like you everytime i come anywhere near a situation of powerlessness whether it be mine or someone else's.
blueserenityab 1 year ago
It's true. And without hope, you crash. I never know how important hope was until we didn't have any left. You just begin not to care about anything & it's very hard to get out of bed each day.
gabrielle824 1 year ago
This video is hard to watch without knowing ANY details. Just the feeling of knowing your kids could be sick and there be nothing that you know of to do for them is all it takes to make it the worst thing you could go throuh. I am soooo sorry for these parents and this child. I thank God EVERY day that my five children are in great health but I never stop feeling for those who's aren't. I couldn't even imagine and my heart goes out to you and anyone else in your shoes. .
blueserenityab 1 year ago
The only thing I can think of that would be worse than knowing that your child is going to die is not knowing where your child is. To have a missing child, to me would be worse. This sounds so horrible, but I wish this were cancer. Dr.s know how to fight cancer. She would at least have a chance. What she has is a death sentence. And living with that every day, watching her lose more of herself every day, having your heart break more every day, is simply hell on earth.
gabrielle824 1 year ago
This is the most moving video I have ever seen. She is a little angel. This breaks my heart.
mydancetv 2 years ago
I agree ... she is truly an angel. Thank you for watching and taking a moment to comment.
gabrielle824 2 years ago
UHH
cocogreen24 2 years ago
Best wishes to the parents and their family, tremendously hard workers these folks, good on you. If a medal could go to parents these people would get it.
sap5270 2 years ago 6
Comment removed
Collielover1234 2 years ago
who sings this song
aarontheone1 2 years ago
Collective Soul
gabrielle824 2 years ago
Your daughter was damaged from the vaccines she had. Get educated immediately !!!!.
Go and watch the 11 episodes, first called "09 Andrew Moulden En 01 de 11" on youtube.
Also watch everything you find with "Barbara Loe Fisher" but make sure to see this one in particular "Barbara Loe Fisher on Alex Jones Tv 4/6:Vaccine Oversight Now!" It's time for the truth to surface.
Your daughter needs massive detoxification no more treatments from doctors. Any medication will make her sicker not better.
gigiontube 2 years ago
Your daughter needs to be in a special diet.
Call the School of Natural Healing and ask to talk to David Christopher, Master Herbalist. The number is:
1-800-372-8255. Explain to him her situation and he will help you to recover your daughter.
What you should start to do immediately: dry brush all her body with a natural hair brush, and after that shower her well. Use only Castile soap to wash her. Have her soak 1 hour every day in a tub of water with Emsom salt (2c) for heavy metal detox.
gigiontube 2 years ago
Part I: While I appreciate what I presume is your well-intentioned input, vaccines did not cause this disease. I've been watching my daughter live with NPC and know the disease. Do you? If you did, you'd know it is a genetic condition. Prior to diagnosis, we did investigate vaccines because we did have concerns that they had played a part in her difficulties. However, it's simply not the case.
gabrielle824 2 years ago
Part II: As far as "detoxification", she's been through chelation and the only medication she takes is for her seizures. She is certainly not suffering from over-medication. I have no doubt that some children do suffer similar difficulties from vaccination , but that doesn't mean NPC is caused by vaccines. You may want to get educated about this disease if you are that interested in it. If not, please don't go around making claims if you haven't taken the time to do the research.
gabrielle824 2 years ago
She's really cute. God bless you and your family.
Fryitonapanandstuff 2 years ago
Is she still alive....?
SimStationStudio 2 years ago
Yes, she is still alive. Her overall health is good, although her functional abilities have continued to decline: such as swallowing, balance, and motor skills.
gabrielle824 2 years ago
Danielle, this is the best video so far, but I hate reliving her declining health. I don't ever want her to go. I am always praying for her. You are such a wonderful mom.
sandypifer 2 years ago
bless your daughter and your family! She looks so precious, shes georgeous! I will keep Gabrielle and your family in my prayers. :)
EasyBakeSmiles 2 years ago
You have a very beautiful daughter, she's a little angel! I hope something can be done for her. It must have been awful, seeing her go through all this. Lots of love to you all. xxxx
SweetAsMapleSyrup 2 years ago
did she really turn bk into a infant or is she 8 and acts like a infant i am quite confused i hope shes ok x
156sjc 2 years ago
As far as her physical size, she is her chronological age. Developmentally and as far as daily skills, she is approximately one year old. She has forgotten everything she learned, including walking and talking. Thanks for taking the time to watch one of our videos.
gabrielle824 2 years ago
It's like the end of Binjamin Button.
joslynandy 2 years ago
She has actually been having more difficulty. Her balance has worsened, she experienced her first grand mal seizure on May 12th, and she seems to be having some occasional difficulty with swallowing. Thanks for becoming aware of Niemann-Pick. I hope it never touches the life of anyone you know.
gabrielle824 2 years ago
You and me both. Thank you for taking the time to watch and comment.
gabrielle824 2 years ago
I hope there is a cure found for her. this is so sad.
nancydrewbessie 2 years ago
I'm so sorry for Gabrielle. I hope she gets better and a cure is found for her deseise.
God bless
xox
StarlightProduction1 2 years ago
Yes, and we continue to take her to school and allow her participate in everyday life to the extent that she can. She loves being around others even though she tires easily. I pray you are right and a cure is found ... and quickly. She had a setback this week as she had a seizure on Tuesday morning. We have spent that last 3 days in the hospital, but she hasn't had another. So her health and safety are of even more concern now.
gabrielle824 2 years ago
So sweet... I just hope the cure is found. I think also that if you stimulate her everyday it will retard the progress of the disease... that's what they usually do to alzeimre's patients.
CanisLupus1987 2 years ago
what a sweetheart hugs and kisses she is going to beat this
d103cc 2 years ago
Thank you for your kind words of encouragement!
gabrielle824 2 years ago
they say there is a god and there IS 1 u may not belive it but i do,AND IN THE BIBLE GOD LET US HAVE OUR OWN FREE WILL!
stupidpeople17 2 years ago
And how can they say there is a God?
brainjesus 2 years ago
I struggle with this question every single day. How can a loving and compassionate God allow this to happen to a sweet, innocent child? I don't have the answers. But I do consider this child to be a gift from God because she is the most wonderful blessing in my life. I don't know what I would be without her. She is everything to me and has been a blessing so many others - - family, friends, and strangers alike. She is simply amazing.
gabrielle824 2 years ago
My heart weeps a river of tears, yet she is such an inspiration. She embodies the strength of the human spirit, and brings out in us the profound compassion and love that we all possess for one another. Despite her struggle, she is living an eminently meaningful life. God or whatever force has sent her to this time and place for a reason, and when revealed in its fruition, it will be more amazing and beautiful than we can ever hope to presently imagine...
brainjesus 2 years ago
"How can a loving and compassionate God allow this to happen to a sweet, innocent child?"
I think God protect many people from unthought of things. She could have been a misscarriage that God blessed her enough to have life.
Azucarada911 2 years ago
let me try to help with an answer. God allows this because without bad things in the world, there wouldnt be good things either. You need evil to appreciate good. I feel bad for this girl, and i wish her the best, but in my own personal opinion, i think she is very lucky because she will have an easier time in the afterlife than in this mortal world.
drgonboyx 2 years ago
Hiya my brother has that condition its very painful to watch he was just talking a few months ago but we think hes forgotten how hes fulltime wheelchair now!
DizWiz19 3 years ago
oh no...
what disease is this?
I'm so sorry for you! She's so very cute!
mimizu1111 3 years ago
omg i cried........awwe ur an angel!
coolcrystal1997 3 years ago
I will pray for a miracle for little Gabrielle! Waht a beautiful little angel she is; God bless you all! Heartbreaking video!
txstoryteller 3 years ago
We all cry, Danielle, when we watch these. And I cry when I design them. If we don't cry for Gabi, it would mean that we don't love her. And we all know that's not the case. Gabrielle has many angels.
GiseleVeilleux 3 years ago 4
And what do you say to a family in this situation? There are no words. Prayers, love, support, but now words......
prbj 3 years ago 2