I made a video that is on the front page of my channel called 'ditalydo' that is of my nine year OLD WITH C/F SHE OIS VERY EXCITED TO FIND THAT THERE ARE OTHERS ON HERE WITH HER DISEASE SHE HAS NEVER KNOWN ANYONE WITH IT SO PLZ SUBSCRIBE TO ME SO SHE CAN CONVERSE WITH YOU ALL OR AT LEAST ENJOY YOUR VIDEOS THANK YOU...DEANNA AND SADIE
You are a warrior with a great sense of whats important, I look up 2 u & will remember ur words & ur strength & awesome outlook & gifts always! How inspiring u r!!! I am about to be taking care of a family member with cf... I am also about to get every person I can involved in finding a cure. This is my 1st day so I have a ways to go but my networking abilities r endless & I know I can make an impact even if its a small one! This will b my way to deal & heal daily<3
I have been going through problems in my file, but after I saw this video, I realized how little are my problems compared to people with CF. I wish you all the best, and hopefully in the very near future, they will find a cure. God bless you!
Cool video... I got diagnosed at 16 and I believe if I made it from 0 to 16 years without major problems, I can take on CF and kick it in its fucking face, and live normally... You can also do it guys!!!
i've been searching for a vid that explains what exactly is cystic fibrosis, haven't found it. Please add some medical info for those who doesn't have a clue
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
how cool, I love the video and the song! just love it. My baby daughter has CF. enough said. this was positive and fabulous!!! I have a 7 yr old son, and he is watching this positive video, thank you. it is difficult for him to understand.
thank you to all who have posted videos and the ones who have posted comments. my fiancee has cf. and for the most part is able to live a normal ife. we go into the hospital about twice a year. she has been sick since right b4 christmas. this is the worst flare up she has had. and it is really hard on us. but to hear these stories helps us deal with it. thank u so much. you are all in my prayers and i would love to hear from any of you
Hi im 43 and have cf since i was born, im also diabetic. I cope very well with my cf,i get iv's about twice a year (usually at home), via a portacath. At times it is hard but mostly not too bad, if you have to cope you do. The one thing that helps me cope most is my boyfriend who is only 23, toyboys couldn't beat them lol!
There is a great project to increase DONOR AWARENESS that ends Septemebr 1, 2008. American Express (credit card company) will fund the project with the most votes and I would LOVE for it to be the DONOR AWARENESS project.
It was written by an 18 yr old girl that received a transplant and is living with CF cystic fibrosis.
GOOGLE IT. It is called Member Project "Second Chances" Mobile Organ Donation Awareness.
Please VOTE FOR IT, pass the word to everyone and increase DONOR AWARENESS!
i agree with o0PinKFisH0o. we were chosen to do this one thing in life. i want a cure, though. i have people that love me. i cant let them down. my best friend, allie, had 2 cousins with CF. one of them has died. i never knew him, but i bawled. i cant let her down. i cant let my mom down. i dont know how she would cope. she literally FORCED the doctors to put me in the hospital, because she knew there was something wrong with me. they didnt beleive her, but turned out, i had CF. i need to stay!!
Do anyone notice how we people with CF are lucky? We have been "chosen" to change the perception of life of people around us. We have been chosen as we are strong enough to bear this disease for the well of teaching people we meet in their life. We change their life, we make them strong as we become an inspiring example for them.
Did you even think about it?
Don't bring me a cure for my CF, I don't want it. I'll die in 6 years if I have to, but I want to keep changing people's life.
@o0PinKFisH0o I'm sorry. but i understand what you mean, I have CF too. but why can't we both have the disease, change peoples lives, BUT HAVE A CURE TOO? I want to live. We deserve to live. We deserve to be normal. We didnt do anything to get this. I understand theres a reason we have this we dont know God's reason for this. I also know that I wouldn't be who i am without this disease. but. i want to be normal. we can change peoples lives on our own. we dont have to be at death's door to do it.
@o0PinKFisH0o maybe that's your opinion, but you know, nobody who has cf asked for it. they are afraid to die early, not to have a future, and for their family and friends it's will be terrible as well.
people with cf aren't chosen for anything, but they and the people around them are convicted to suffer. you call that lucky?
I'm 12 with CF and i hope every body keeps fighting and can u check out this video " Cloe cotton trust fund " the fund is dedicated to my freind who died with C.F unfurchantle i was'nt able to be there wen the video was made but my freinds with C.F was check it out plz xx
DO A WEB SEARCH ON:
charles h. miranda OR:
charlesthepoet2003
THANKS.
charlesthepoet2004 7 months ago
This has been flagged as spam show
I made a video that is on the front page of my channel called 'ditalydo' that is of my nine year OLD WITH C/F SHE OIS VERY EXCITED TO FIND THAT THERE ARE OTHERS ON HERE WITH HER DISEASE SHE HAS NEVER KNOWN ANYONE WITH IT SO PLZ SUBSCRIBE TO ME SO SHE CAN CONVERSE WITH YOU ALL OR AT LEAST ENJOY YOUR VIDEOS THANK YOU...DEANNA AND SADIE
ditalydo 11 months ago
@o0PinkFish0o
You are a warrior with a great sense of whats important, I look up 2 u & will remember ur words & ur strength & awesome outlook & gifts always! How inspiring u r!!! I am about to be taking care of a family member with cf... I am also about to get every person I can involved in finding a cure. This is my 1st day so I have a ways to go but my networking abilities r endless & I know I can make an impact even if its a small one! This will b my way to deal & heal daily<3
Ryde4aCure2cf 1 year ago
I have been going through problems in my file, but after I saw this video, I realized how little are my problems compared to people with CF. I wish you all the best, and hopefully in the very near future, they will find a cure. God bless you!
munzerxo 1 year ago
This has been flagged as spam show
im 16 with cf:) here is my story 65pinkroses.blogspot.com/
hellokittylove31394 1 year ago
im 16 with CF keep fighting!!
jesssallison 1 year ago
Keep fighting
Fight2Exist 1 year ago
im 12 and I Have CF!!!!!! Fight For your Life
newmoonprinces 1 year ago 2
I don't feel lucky, further more I would gladly take a cure...
kalava182 1 year ago
Cool video... I got diagnosed at 16 and I believe if I made it from 0 to 16 years without major problems, I can take on CF and kick it in its fucking face, and live normally... You can also do it guys!!!
Zeroprobabilityvids 1 year ago
I have CF its not nice i started tube feeding not to long ago ;( but you learn to live with it i suppose
kakkadragon12 1 year ago
i've been searching for a vid that explains what exactly is cystic fibrosis, haven't found it. Please add some medical info for those who doesn't have a clue
TavoC20 1 year ago
This has been flagged as spam show
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
wasupitswill 2 years ago
I have CF too.
NatalieGlendenning 2 years ago
Beautiful. I understand the struggle, sorrow, and journey. I have Cf and will be 50 in 2 months.
cfer1960 2 years ago 4
i have cf and it sucks im always a step behind people on the wrestling team and its hard as hell to keep up
wanaswag 2 years ago
truly moving. check out the life of Bob Flanagan. he lived with CF until he was 44. needless to say he was a performance artist.
Cockoblock 2 years ago
great video; my niece passed from CF at age 27, keep working and hoping for a cure.
kryan364 2 years ago
hay there guys my name is dustin i have cf it hasnt been verry hard but guys all i got to say is god helps i pray some times and he will help
dustin900mil 2 years ago
i just had a mucus drainage surgery cause i have CF
Aquademond4 2 years ago
What a beautiful movie there. I am 22 and have CF and had a double lung tx when I was 16 and am now in rejection.
Once again, beautiful video. Very emotional.
vamp666babe 2 years ago
how cool, I love the video and the song! just love it. My baby daughter has CF. enough said. this was positive and fabulous!!! I have a 7 yr old son, and he is watching this positive video, thank you. it is difficult for him to understand.
kiwichickster 2 years ago
i just got out of the hospital because of it! im 3
1moe7 3 years ago
13*
1moe7 2 years ago
thank you to all who have posted videos and the ones who have posted comments. my fiancee has cf. and for the most part is able to live a normal ife. we go into the hospital about twice a year. she has been sick since right b4 christmas. this is the worst flare up she has had. and it is really hard on us. but to hear these stories helps us deal with it. thank u so much. you are all in my prayers and i would love to hear from any of you
csemt07 3 years ago
Hi im 43 and have cf since i was born, im also diabetic. I cope very well with my cf,i get iv's about twice a year (usually at home), via a portacath. At times it is hard but mostly not too bad, if you have to cope you do. The one thing that helps me cope most is my boyfriend who is only 23, toyboys couldn't beat them lol!
Angie43a 3 years ago
My cousin age 27 just passed from it after two lung transplants and giving birth to a CF free baby girl who is now six.
kylesbby 3 years ago
My husband is 26 and has CF. CF patients are amazing! Fight hard and breathe easy!
budsoldest 3 years ago
There is a great project to increase DONOR AWARENESS that ends Septemebr 1, 2008. American Express (credit card company) will fund the project with the most votes and I would LOVE for it to be the DONOR AWARENESS project.
It was written by an 18 yr old girl that received a transplant and is living with CF cystic fibrosis.
GOOGLE IT. It is called Member Project "Second Chances" Mobile Organ Donation Awareness.
Please VOTE FOR IT, pass the word to everyone and increase DONOR AWARENESS!
organdonor5 3 years ago
When you get to the American Express Member Project home page type UZHKO0 into the search box...it will take you right to it.
Come on people, $1.5 million could be AWARDED for ORGAN DONOR AWARENESS if we can win the VOTE!
PLEASE TAKE THE TIME AND PASS THE WORD.
organdonor5 3 years ago
i agree with o0PinKFisH0o. we were chosen to do this one thing in life. i want a cure, though. i have people that love me. i cant let them down. my best friend, allie, had 2 cousins with CF. one of them has died. i never knew him, but i bawled. i cant let her down. i cant let my mom down. i dont know how she would cope. she literally FORCED the doctors to put me in the hospital, because she knew there was something wrong with me. they didnt beleive her, but turned out, i had CF. i need to stay!!
puggable 3 years ago
hi everyone I am 28 soon to be 29 I too have cf. stay strong and positive
hammondchar 3 years ago
Do anyone notice how we people with CF are lucky? We have been "chosen" to change the perception of life of people around us. We have been chosen as we are strong enough to bear this disease for the well of teaching people we meet in their life. We change their life, we make them strong as we become an inspiring example for them.
Did you even think about it?
Don't bring me a cure for my CF, I don't want it. I'll die in 6 years if I have to, but I want to keep changing people's life.
o0PinKFisH0o 3 years ago 11
@o0PinKFisH0o I'm sorry. but i understand what you mean, I have CF too. but why can't we both have the disease, change peoples lives, BUT HAVE A CURE TOO? I want to live. We deserve to live. We deserve to be normal. We didnt do anything to get this. I understand theres a reason we have this we dont know God's reason for this. I also know that I wouldn't be who i am without this disease. but. i want to be normal. we can change peoples lives on our own. we dont have to be at death's door to do it.
breakindwn 1 year ago
@o0PinKFisH0o Thats insprationsal.. I dont have CF but Wow... Your brave and very Inspiring :)
FillionDollarSmile 1 year ago
@o0PinKFisH0o maybe that's your opinion, but you know, nobody who has cf asked for it. they are afraid to die early, not to have a future, and for their family and friends it's will be terrible as well.
people with cf aren't chosen for anything, but they and the people around them are convicted to suffer. you call that lucky?
papstbenni 1 year ago
@o0PinKFisH0o oh no! i accidently pressed thumbs down i'm sorry! i meant to press thumbs up! i'm sorry clumsy me :/
and thanks for being so positive about everything and i'm sorry you have such a terrible disease:( keep going strong
HurricaneHaleyBailey 1 year ago
This is a beautiful video, thank you for sharing.
vayde 3 years ago
i'm 20 with CF.. keep fighting everybodyy
gilnastixtwist 3 years ago 15
I'm 12 with CF and i hope every body keeps fighting and can u check out this video " Cloe cotton trust fund " the fund is dedicated to my freind who died with C.F unfurchantle i was'nt able to be there wen the video was made but my freinds with C.F was check it out plz xx
toueys95 3 years ago
sorry gueys i ment " chloe cotton trust fund " thanx xx
toueys95 3 years ago
I'm from Australia, I am turning 21 in 2 weeks and have CF. This video was really good, very inspirational and teary at the same time. :)
vamp666babe 3 years ago 2
thanks you ım from turkey
yuvatepe 3 years ago
I have 2 nephews with C.F. they are 9 and 3 years old. Every year we do the Great Strides walk. Your video was awesome. It brought me to tears.
publicistshannon 3 years ago
I have a four year old boy with CF, I love seeing people out there raising awareness... I loved your video.
LindyLouWhoWylie 4 years ago 3
this is really powerful
i hope my memory of the boy i knew will stay with me forever!
if you are wondering what i am on about please watch my video called jack hall and is on my channel
sparkie3222 4 years ago
Great video, my heart goes out to all the strong and brave people with cf.
charliecaz 4 years ago 2
Its a great video, my son has cf and he is 13 years old.
sdtj02 4 years ago 3
i also have cf i am 18 now i was diagnosed at birth
mustangfan6918 4 years ago
Awsome! I was crying on my keyboard almost. Where can I learn more about what I can do to help?
pilotflame 4 years ago 4
quite alot of things
just type it in on somewhere like google and im sure you will be able to help!!!
sparkie3222 4 years ago 2
Another way you can help: forward the video to friends! Raise awareness by helping CFF get out the word.
marlavball 4 years ago
Wonderful video! It is really great to see all the different kinds of YouTube videos featuring CF. Keep up the good work, CysticFibrosisUSA!
CharityTubeTV 4 years ago 3