Living with Lupus, Hope and Faith

[kacklebird2]

Amy, I think you and your family need to be the voice for Lupus. Your pics, videos, etc definitely speak for how Lupus affects those who suffer with it. I pray that you're doing better. You've been through one long and rough road. I too have Lupus and it certainly does turn someone's life upside down.

[ny922]

your an awesome lady to share this with us I am honored to have you as a freind it's amazing how this illness can change your life so drasticly . praying for a cure ... Luv ya

Aida

[jansteveryan]

You are amazing. I really felt that your story could talk for so many people fighting

with the sever symptoms of Lupus. Thank You.

[Maehailey]

This is Sam from LFA.. You did such a wonderful job. You my friend are a true inspiration to all of who are suffering with this horrible monster..You are a beautiful person inside and out lady. What a wonderful family you have. Thank you for sharing. ♥hugs

[alexavaldovinos]

i have lupus too, and i hope that some day we can find the cure for lupus..and i wish to you the best this christmas merry christmas and happy new year

[GMPNY]

You are a brave person. God is not done with you yet! You are to teach the world how to survive while living with adversity and still being able to give love and continue on and have FAITH. Your family is waht it is not for you but because of you :-) Faith gives hope with no hope there is little faith and you have BOTH! God Bless you and your wonderful family :-) Merry Christmas!

[Kacklebirdkathy]

My heart just aches for you. You are one of the strongest people that I have ever seen :)

[salcedo199]

your amazing you lived through so much.i hope you the best.,i have lupus to and i found this video to let me know some things that could happen if i am not carefull on some things,thank you

sincerly, , victor

[Spunkyjessi1985]

Being another lupus sufferer, I must say you picked an absolutely perfect song. It's frustrating seeing so many people know so very little about lupus. Thank you for spreading the message.

[angelusa73]

Thank you so much for sharing your experience about living with lupus. I have MS and I have been learning many things about your disease too.

Watching your video, I see that you have a lot of courage, strengh, faith and love for your family and for life. I will keep you in my prayers and I wish you the very best.

Warm hugs,

Angela

[AmyTx]

i wish you the best too..I strive for my family..sometimes for me parenting comes from my bed since some days are harder than others..the pain is horrible but you push through it

[angelusa73]

I know what you mean and I admire you very much for pushing through it and for not giving up!

Have a good evening and take good care,

hugs

Angela

[askfoxy]

my sister has lupus and isn't taking the proper medication :( im afraid she'll pass soon she has 5 kids

[AmyTx]

Before I got really sick in 2005 and had all my strokes I wasnt taking any medications when i should have for fear it would make me feel worse..I will Never ever miss my meds again,,you should have her watch this..no one is invinceable even me.. I have alot of heartache but I also have alot of momentum to keep going.. I do it for my kids..

[fedeverapura]

Chi abbraccia la Sua Croce, abbraccia il Cristo. Il Signore ci conceda sempre di essere costanti amanti di ogni Sua Speciale Benedizione e di saperla riconoscere anche quando dovesse comportare dolore.

Complimenti per il video e cordialissimi Auguri di Ogni Bene e Felicità in Cristo Vivo.

[61Surya]

God bless you and your family ♥★♥

[61Surya]

God bless you

[rajooy]

God bless you

you are stronger than me

It brought me to tears especially when you mentioned suffering from AVN in both hips.

I'm suffering AVN in one hip and in many times I lose my spirit and just stay home and keep eating and gaining more wieght over the weight I allready gained because of the prednisolone intake.

Whenever I felt down I will watch this I need to be stronger

I need to be stronger

I need to be stronger

[AmyTx]

you can do it when you get bad results do what you can to fix it the best you can..I get scared alot too having lupus but i keep getting better and stronger..granted some days the mental aspects of lupus get me down. i want to see my kids grow up.. god bless and take care

[99thDimension]

Watching videos like this is real life, fighting for life one day at a time and more importantly living life to the fullest. What I see is a loving family facing the battle together. Respect comes from the understanding of what you are enduring and the blessing of the strength of your family. Thank you.

[AmyTx]

thanks so much it is a daily battle that I take on full force..i just dont want to take my life for granted anymore I have been given a second chance..

thanks again

[puglover50]

Such a moving video..I have to check out your other ones...

[SergioBernardoAlmi]

Great Video. Thanks for sharing take care

[Michellemlm]

Amy... I'm so so proud of you and of this video! You are so amazing. for those of you who aren't familiar with Amy's story, please watch her other videos as well.. She is so strong, she beat the odds and she is still here with us even when the doctors gave up hope... she didn't.

She's amazing... and now, she's not only holding onto strength and hope for herself, but also for you and those you know who may suffer from this horrible disease. Thank you Amy! ~M.

[99thDimension]

Thanks for the link Michellemln.

[61Surya]

Thanks you for sharing this video

Have a nice tuesday

God bless you

Tiziana

[massimonesei]

grazie tiziana per condividere quetso vidoe dio benedica queste persone ciao massimo

[brownsexyslim]

Great Video. Thanks for sharing. I have been living with Lupus for several years. I was diagnosed in 2003.

[BabyIGotsYou]

you have a beautiful family and an inspirational story. i hope that - if the time comes - i can be as strong and as hopeful as you have remained throughout your experience of SLE.

thank you for sharing this video

best wishes, x

[tawnyachipmunk]

thank you for the awesome post. I too have SLE & the prednisone I was placed on has caused AVN as well for my hips. I feel you on the pain & all the crap. I too have drastically changed in appearance. One day I truely hope we will have a cure SOON! I hate the pain....

[chocara1]

Bless you.

[AmyTx]

I do know that they sometimes review your case and if your still the same or have had changes for the worse they can't take it from you. You should have a disability case worker I would try to call them and talk with them. I have been on disability for 2 years and haven't come across this issue yet..

[stodd32]

I am a 36 year old male with SLE it destroyed my kidneys at age 16 since I then i have had 2 kidney transplants and all the side effects from prednisone,and tons of health issues the government is trying to take my disability frome me and I have only worked for about 3 months 16 years ago I cant work but uncle sam just dont care anyone else have this problem thanks for the video.

[WillowDove40]

Thank you! This is a very well done video! Sending healing love and light to you and your family.