I have seizures too. I have had them for 40 years. it is certainly sad this happen to this poor lovely girl. Have you asked your doctor about the kentogenic diet?
I do a ketogenic diet for many reasons, here are some things that are real important for ME, in making this diet effective. 1. High level of ketones 2. Restrict carbs to very low levels, less than 20g. 3. Restrict protein levels to body requirements 4. Restrict fluid intake, this will increase ketone concentration. 5. Eat a SLIGHTLY subcaloric diet. 6. I eat a large percentage of calories from fat, about 70%.
I use MCT's, (coconut oil) occasionaly, but that stuff is rough on the gut.
Some of things I have observed while following a high fat/low carb diet: The higher the ketosis (within reason, I am non diabetic so dka is not a problem)=the better I feel, less hunger, better sense of well being, more energy, less cravings, to name a few. I have heard people say that if they are in ketosis, the level does not matter, that is definitely NOT the case for me. The ketogenic diet for me is hard at first, it takes me about 3 weeks just to feel normal. I also limit water & protein.
No meds were working for a bit then she had somethin bad happen at hospital and started all new seizures. On klonopin, Topamax, depakote, and still over 50 a day until we started diet. shes doing so good.
For Baybeblue she has g tube in her belly so I have to mae a liquid formula that is just the pure form of protien and fat. If a kid ate real food its much harder.
Yes her name is Baybeblue. Everything thought it was crazy at first but now it sooo fits her. If I call a hospital Iv only been to once I can say Hi Im Baybeblues mom and they remember her. Having an unusual name has been a blessing through all this confusion. It was my favorite color, now it belongs to her so I love PINK.
Thank yal for sharing these videos. Youll be in my families prayers.
jayoli23 5 months ago
i just wanna hold her
untill it stops it breaks my heart i wanna cry
likeagsixx 6 months ago
it was the longest 2 mins for I just I wish It stops
basmahnon 9 months ago
What causes the seizures? Is it congenital or environmental? Is it epilepsey?
upluteajack 11 months ago
I have seizures too. I have had them for 40 years. it is certainly sad this happen to this poor lovely girl. Have you asked your doctor about the kentogenic diet?
duvexy 11 months ago
She is so pretty. How is she doing now?
goofygal19 1 year ago
she's so sweet...feel so sorry for you...
museinter 1 year ago
beautiful child how old is she now?
cyhalynne 1 year ago
THATS SO SAD I HAD ONE
2pimp4umtz 1 year ago
what a precious baby ! Oh lord help us find a cure. They can put man on the moon but not a cure for epilepsy,
flcherrybomb 1 year ago
what a beautiful girl, must b hard 4 u both xx
mariamorningstar 2 years ago
This has been flagged as spam show
I do a ketogenic diet for many reasons, here are some things that are real important for ME, in making this diet effective. 1. High level of ketones 2. Restrict carbs to very low levels, less than 20g. 3. Restrict protein levels to body requirements 4. Restrict fluid intake, this will increase ketone concentration. 5. Eat a SLIGHTLY subcaloric diet. 6. I eat a large percentage of calories from fat, about 70%.
I use MCT's, (coconut oil) occasionaly, but that stuff is rough on the gut.
tickyul 2 years ago
Hi,Um Yea Can You Die From Haveing a seizure like that: a tonic one,
Pikachu860 2 years ago
This has been flagged as spam show
Some of things I have observed while following a high fat/low carb diet: The higher the ketosis (within reason, I am non diabetic so dka is not a problem)=the better I feel, less hunger, better sense of well being, more energy, less cravings, to name a few. I have heard people say that if they are in ketosis, the level does not matter, that is definitely NOT the case for me. The ketogenic diet for me is hard at first, it takes me about 3 weeks just to feel normal. I also limit water & protein.
tickyul 2 years ago
does she by any chance have a lazy eye because at the first moment her eyes are in different direction?
A7X72 2 years ago
she has cortical vision but when she has seizures her eye balls shake and go all over.
cynderella1978 2 years ago
she is such a beautiful person she is so cute i'm praying for her and your familey have a good thanksgiving
evewalleghost 2 years ago
she is beautiful
evewalleghost 2 years ago
she's so cute
ShabbaMama 2 years ago
She is beautiful xx It must be horrible for you and her.
Is her condition getting any better
KittyGal1994 2 years ago
quite a long seizure, good idea having her on oxygen.
DJuggz06 2 years ago
why does she have seizures
evewalleghost 2 years ago
does it hurt them when they have one ?
snappyloveslaura 2 years ago
No i got hit in the temple with a baseball and went into seizure and you dont even knoe itds hapening
megalake24 2 years ago
No. I had one. And btw, who would put this up?
Sk8terBoibabe 2 years ago
not at all
Rreynaertt 2 years ago
sorry...Baybeblue??
pixie1310 2 years ago
Was meds not working? Is her name really babyblue??
pixie1310 2 years ago
No meds were working for a bit then she had somethin bad happen at hospital and started all new seizures. On klonopin, Topamax, depakote, and still over 50 a day until we started diet. shes doing so good.
cynderella1978 2 years ago
wHAY DO THEY EAT ON THIS DIET? i KNOW it's high fat low carbs, right?
pixie1310 2 years ago
For Baybeblue she has g tube in her belly so I have to mae a liquid formula that is just the pure form of protien and fat. If a kid ate real food its much harder.
cynderella1978 2 years ago
Yes her name is Baybeblue. Everything thought it was crazy at first but now it sooo fits her. If I call a hospital Iv only been to once I can say Hi Im Baybeblues mom and they remember her. Having an unusual name has been a blessing through all this confusion. It was my favorite color, now it belongs to her so I love PINK.
cynderella1978 2 years ago
@cynderella1978 that is awesome!
cyhalynne 1 year ago
Brain chip - CHECK MY SITE
bpyjktgiuk 2 years ago
this is good news...hopefully this will continue to work, and she' ll have no more. She's absolutley BEAUTIFUL! A complete angel pie!
munkyhunny210 2 years ago