Added: 2 years ago
From: jmercedes90
Views: 1,432
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  • I CAN RELATE SO MUCH TO THIS GIRL. God bless you. I have galactosemia too. <3

  • yes you can collect on galactosemia. my daughter has it and she collects. it is a life long disease and causes serious mental problems.

  • No you do not collect a SSI check normally if your child has this- it is a rare orphan disease they do not even recognize everything because no one knows about this- not even doctors unless you are one of the few specialists.

  • there are theories that say that the tiny particles that cannont be digested end up attaching to the brain. this makes the brain heavier on 0ne side which will cause brain damage, alsheimers later in life, may i ask you if you are able to collect some sort of ssi check for this desease??

  • Thank you for posting this video. My youngest daughter who has 2 years of age has classic galactosemia. It's great to see videos here on youtube concerning this subject.

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