CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
I love watching your videos- I wish I had known you when i was first Dx 20 years ago! I am getting the angio done this year and cannot wait- I am having a flare and not too happy about it, THO im finding it more of a nuisance, knowing i finally have hope! :) Keep making your wonderful videos Kathleen :)
Hi Kathleen, beautiful and love as always! I am curious what is going on with veins below the waist - or rather, veins that directly relate to legs. My friend just underwent venoplasty and I was hoping they would work on the veins directly in the legs given her physical presentation but that did not happen. I have contact info for our friend in Canada who was airlifted to NY and appears similarly, but haven't found direct info re leg veins - advice? direction? Thank you~!!
Way to go Kathleen. Thanks so much for what you do. I sure wish I had seen this 5 years ago! But, I'm so thankful that my liberation day is Friday! Yahoo!
Kathleen, you are doing a wonderful service to the citizens of the world with MS. I had the procedure done by the same doctor Irishbear76 had his done. My venogram showed a 70% stenosis in my right jugular but it was not treated. Only my left jugular was treated and it had 80% stenosis. I have the CD of my 3 dopplers and my venogram, is there some where I can take it or send it and maybe be treated by another physician?
BRAVO Kathleen!! You are goooood :) I will repost as well. Information is what is needed. Not lack of information, which the majority of neurologists fail to divulge. Yes, options and choices have to be presented with honesty and truth. Unfortunately we are at a time where this still is an issue. Soon I HOPE the job will be done and we all can sleep better knowing CCSVI is an option as well! Thanks for this video :) XOXO
All your videos are terrific. And this one offers great information on MS and now what?
I just wanted to add that the clinic where I had my CCSVI procedure, the Doctor said there is no need for a pre-test. Schedule the MRV and if stenosis is found it will be treated at the same time. The clinic, Doctor & Staff was great. And I am feeling better. Again many thanks!
@88whynot - This is one of the things I've been waiting to hear. It has seemed to me a waste of time and money to "pre-screen" and why not go straight in with the catheter venography? Can you PM me with your doctor's info, please? Thanks in dvance!!
Thank you for the info!
0302isis 5 months ago
This has been flagged as spam show
CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 11 months ago
I love watching your videos- I wish I had known you when i was first Dx 20 years ago! I am getting the angio done this year and cannot wait- I am having a flare and not too happy about it, THO im finding it more of a nuisance, knowing i finally have hope! :) Keep making your wonderful videos Kathleen :)
coldmountainpix 11 months ago
Hi Kathleen, beautiful and love as always! I am curious what is going on with veins below the waist - or rather, veins that directly relate to legs. My friend just underwent venoplasty and I was hoping they would work on the veins directly in the legs given her physical presentation but that did not happen. I have contact info for our friend in Canada who was airlifted to NY and appears similarly, but haven't found direct info re leg veins - advice? direction? Thank you~!!
birdsaflyin 1 year ago
Another great video! Thank you. ~Nancy
cowboystew 1 year ago
My primary care doctor/studied neurology, yelled at me when I brought up CCSVI.
msj4d3 1 year ago
plz call me i did round 2 see double allot plz call me
MrDOZER1224 1 year ago
I loved the 'Get up Stand up" dance video you made before. I hope you'll do another some day.
Thanks for all the great MS / CCSVI videos you've made.
Imforron 1 year ago
Way to go Kathleen. Thanks so much for what you do. I sure wish I had seen this 5 years ago! But, I'm so thankful that my liberation day is Friday! Yahoo!
MsHopeforhealing 1 year ago
Kathleen, you are doing a wonderful service to the citizens of the world with MS. I had the procedure done by the same doctor Irishbear76 had his done. My venogram showed a 70% stenosis in my right jugular but it was not treated. Only my left jugular was treated and it had 80% stenosis. I have the CD of my 3 dopplers and my venogram, is there some where I can take it or send it and maybe be treated by another physician?
trosper 1 year ago
Kathleen, this video may have saved another life today :) Thank you once again for putting this together :) love you Tessa xo
Gtlr123 1 year ago
Much love and peace to you
Jayne
jayne4ccsvi 1 year ago
BRAVO Kathleen!! You are goooood :) I will repost as well. Information is what is needed. Not lack of information, which the majority of neurologists fail to divulge. Yes, options and choices have to be presented with honesty and truth. Unfortunately we are at a time where this still is an issue. Soon I HOPE the job will be done and we all can sleep better knowing CCSVI is an option as well! Thanks for this video :) XOXO
SHIRLEYRENSHAW 1 year ago
Very informative and truthful video! Thanks Kathleen!
karirokker 1 year ago
<3 u K ;o)
SRainbolt 1 year ago
Good video with an honest approach.
No1dubbycop 1 year ago
Nicely done again Kathleen xo
BrendaRaven1 1 year ago
kathleen what medication are you on? I'm thinking of taking LDN and Fumaric Acid together because both are good at halting the progression..
watzgoodinthe711 1 year ago
All your videos are terrific. And this one offers great information on MS and now what?
I just wanted to add that the clinic where I had my CCSVI procedure, the Doctor said there is no need for a pre-test. Schedule the MRV and if stenosis is found it will be treated at the same time. The clinic, Doctor & Staff was great. And I am feeling better. Again many thanks!
88whynot 1 year ago
@88whynot - This is one of the things I've been waiting to hear. It has seemed to me a waste of time and money to "pre-screen" and why not go straight in with the catheter venography? Can you PM me with your doctor's info, please? Thanks in dvance!!
QuickQuix 1 year ago
good one Kathleen!
christinedavi 1 year ago