The Many Faces of Huntington's Disease

[SuperNewYorkie]

This made me sad and cry... Stick together as a family! Wish you all the best! And live life to its fullest...

[TwittyWhit07]

My neice is 17 and was diagnosed with juvenile huntingtons a couple of years ago...shes my brave star...her video is on my page.... xx love to you all

[starpojke]

Regarding families with HD having children: My father emigrated from Europe in the 1920s and I never met any of his relatives. He became symptomatic in his 60s and wasn't diagnosed until in his 70s. By then I had five children, completely unaware of HD or the potential impact on myself or my children. I suspect this is a relatively common situation in the US. Every family situation is different. Judgmental comments almost always indicate ignorance and/or misplaced malice.

[SumthinMstBAvailable]

@starpojke I get what your saying here. A lot of people have no idea it run's in the family. I hate it when people make assumptions on a situation they know nothing about.

[197810230427]

Ich schreibe mir selber, ein ehemaliger Freund leidet darunter." Arme Sau"<<<<<<.

[197810230427]

Wegener-Granulomatose, heftig, jetzt verstehe ich. ????????!!!!! innerhalb von etwa 6 Monaten zum Tod,mächtig viel Cortison hm, und Chemo. Der Arme muss kanns schön kämpfen.

[197810230427]

Ich suche etwas über Morbus Wegener, ich selbst bin nicht betroffen. ???????

[hestmedvest]

alyssasarehott247: Hate to brake it to you mate, HD does in VERY rare cases effect chilren as well. Atm there is about 35 registred known cases worldwide. One of those were a guy i used to take care of. (I worked there)

Normally people shows symptoms between the age of 30 - 35.

[Taken5791]

Yeah i heard that its very rare. My cousin is effected bad from it she showed signs at 17 shes now 21 and is getting worse everyday.

[jym092000]

I know 35 cases off the top of my head just in the united states and that doesnt even touch those I know of having this disease as a child.

[latasharp]

Thanks for the video. May God bless all of those who are affected by this disease, may he strengthen you and comfort you in your time of need. I pray that there may one day be a cure and that many lives will be saved. My love and blessings to you all!

[KismetDividan]

I am terribly sorry for your loss. I know it hurts. It doesn't make sense... Sending warm hugs to you. I wish we'd both (and all you others) never have heard of this disease. The video is beautiful, and it reached deep into my heart. Thank you for sharing something so deep and personal and beautiful (all the beautiful memories of your father, and family). I hope your sons are negative. there's always that 50 percent chance. I know the fear of waiting to find out. my son's positive.

[wiccaress]

im really sorry to hear all this

To be honest,id never heard of it b4 till i recently found a freind on YT,an even still i did not know how bad it affects or can be carried down in the family so easely..what a sad desise to have for those with it an the others around them to

again..sorry for your loss..an thankyou for the info

godbless x

[justbored78]

im so sorry sweetheart. i know this is nothing like huntingtons, but i recently lost a freind to periferal neuraapathy, she was thousands of miles away, but i could hear her drift away on the phone. its so hard. God Bless!

[ericajewell07]

I am osryr so your lose. HD is in my family also.

[hairyfatslobpig]

I am very sorry for your loss, may they continue to smile forever.

[LeanaJo76]

I'm so sorry for you lose...May God bless you and your family...

Love,

Leana Jo

[FYVKVKVKVKVKVK]

Retarded?? What a rude, ignorant comment. It may seem selfish to have children knowing HD is in the family but if you have the belief that your children will live a good 40 years before they become sick, if they do at all, and if you have faith that the medical community will have treatments or even a cure by then, it makes quite a bit of sense why people would continue to have children. It is a very basic desire for most people to have a family of their own and hope for the best.

[angelfersky]

you are saying you have the belief that your children may live 40 years, that is bull!my cousin is 6 years old now and has the HD symptoms for 2 years..the doc gives him another 5 years to live..you`d really do that to your kid? i'd never had kids if my test were positiv there are other ways having children!!why wait for any cure if you know how to eliminate the cause!

[FYVKVKVKVKVKVK]

I am very sorry about your cousin. I had a sister that died very young of HD also. I am just saying that the average age of onset is when a person is middle aged. That is why some people take the risk and have children ...hoping for the best. It is not bull that people with HD live to be 40 and beyond.Some have many CAG repeats which causes an early age of onset, like your cousin. That is really horrible. No I would not do that to my kid if I knew they would get juvenile hd...of course not.

[aceabyss]

angel let me enlighten you on your ignorance. The are 2 different types of HD. One is Juvenile Onset Huntington's Chorea and the other is Adult Onset. Both are inherited, My family has Adult Onset HD therefore proving that fyvkvkvkvkvkvk is absolutely correct. Also, testing for HD is fairly new. The disease is still vastly misunderstood in the medical profession today due to lack of knowledge and research of and about HD.

[alyssasarehott247]

okay I hate to brake it to you , but kids dont show simptoms of Huntingtons Disease untill there at least 18. And my dad has Huntingtons Disease and he is 42 and still living. So dont go talking if you have no clue.

[angelfersky]

i guess you´d better stop talking, it´s obvious that YOU did not do your homework sister... under 18 years kids definately DO HAVE symptoms. it is called Juvenile HD, the youngest patient is just 2 years old.So please check out the search on you tube and get yourself a clue or two!!!

[angelfersky]

I know what i talk about, my brother has HD and he is 30. His son also inherited HD, symptoms started 2 years ago....He was 5 Years at that time.He is 7 now and attached to wheelchair because he cannot walk anymore...

Alyssa do you need more proof than that?

[jym092000]

wish Id have read this earlier! all 3 of my children have Juvenile Huntingtons disease.sorry from the bottom of my heart to say its VERY TRUE. its cruel and unkind at very least but the youngest at 12 yrs old has LATE STAGE,been ill since preschool!6 mos is youngest case I believe today!wish it were a mistruth BUT its not that simple!!!

[KismetDividan]

Hate to break it to you, but my son is 10 and he's displayed symptoms for 7 years. It's called Juvenile Huntington's Disease.

[hndvic]

unfortunatley huntingdons disease has now shown in childern of 12 years old and is getting progressivley younger showing symptoms in younger people all the time with modern reserch the symptoms may be more obvious but is still heartbreaking

[SumthinMstBAvailable]

@alyssasarehott247 . . . Ignorance in it's true form.

[andrewmcfadyen07]

my mum has hd aswell and ive been tested

[sabraelluver]

I'm srry about ur fam...I'm losing mine rite now to this disease to. Me, my lil sis, my dad, and my older sis have it.

[konfolut]

Why u people dont care about health. If one person is sick then HOW, for God's sake, HOW U CAN RISK SB'S ELSE LIFE and make a baby! It is horrible! No education, no awareness. How people can be so selfish and crash life of people who they create! If i was a baby of so stupid parents i would sue them!

[tommymxmi]

You have no idea what your talking about. Most of the people that have the gene dont know its even in the family most the time until its too late. so dont judge what you dont know. this disease is a very devistating disease. This disease has also been hidden in familys so people dont know they are even at risk until its too late. These people arent selfish at all. They are loving moms and dads and how dare you judge them for something they have no power over.

[konfolut]

I have no idea what i am talking about... right... and last week i had seminar about HD. If ur grandpa was sick and his sister and ur father too, then how is that possible u were not aware of high possibility of having mutation in ur own nuclei?

[aceabyss]

In that decade, in the United States it was know as "Saint Vitus´ dance" It was recently discovered that people with HD in Salem, were the witches the hunted. A break though in 1840's medicine noticed it was genetic, and they renamed it "chronic hereditary chorea." In 1872, George Huntington, who it is currently named after, did really groundbreaking research on HD. In 1910 they figured out about the brain detriotation. Then in 1970, they discovered that cells in the body die too.

[wiccaress]

to Konfolt

u r a complete dickhead..who has no clue..do you think that people enjoy this desise an if they go on to have children wether they new or not..do you not think that the worst thing for them would be to see them suffer.?.You could say why do people with cancer in family go on to have kids.?as that also go,s down in family,depending on how unlucky u r,an i for one no that.i think u should run along an go find some inner peice an empathy..bitterness makes ya all twisted you idiot!

[jym092000]

konfolut possibly if you read the woman who walked into the sea you might understand the dynamics and social stigma not to mention many myths that exsist about HD and JHD alike which do NOT exclude HD families.People in Hd families are brought into the world with the same hopes love and dreams as any other person.Understanding and education is evolving yet as is learning about the disease.so please read the book if you can!

[MercurySenshi]

My mom has HD. I tried reading that book and it was so dry i could not get into it. I tried for 3 weeks.

[coltskid18]

and oh by the way, my dad didnt get tested, and he had me. He's still alive and so am I. you have no idea what you are talking about.

[konfolut]

GOSH, u people are really retarded. U R HEALTHY coz u are LUCKY. You should be happy that ur dad was not tested and u r all healthy. But when you know that in ur family 10 died of HD so hell how u can risk to have kids for ur own fun? THIS I MEAN HERE. If u r aware and have kids then u risk somebody's whole life coz of ur need to have kids. THIS I MEAN!

[Donfratelli]

My Sister Has Been Cleared Of HD And Im 13 Years Old And Yet To Have The Test. I Dont Know If My Sister Not Having HD Gives Me A More Likely Chance Of Having Huntingtons But I Dont Blame My Parents For Having Me. I Just Dont.

[aceabyss]

ok dipshit. you obviously are very uneducated so let me enlighten your childish mind. this will be in 3 parts since i can not post alot of words for your small mind to read all at once. HD has remained misdiagnosed for years as Parkinson's or Alzheimer's disease first of all. second of all The earliest recognition in history of HD was in the 16TH century. That's when Paracelsus, a scientist saw the signs and called HD, Chorea.

[aceabyss]

In 1987, they find the gene, that's when they started doing predictive testing and pre-natal scanning. In 1993, they found the CAG repeats. My children all of our children were born BEFORE any definitive tests were available.

[wiccaress]

Well done..i see you shut that evil ignorante small minded dickhead up..

wishing you an your fam all the health an happyness in the world\

hug x

[Britty33]

your ignorance sickens me.... you have no idea what you are talking about!!!! Coming from someone who is living with the 50/50 odds i resent everything you have said!

[SumthinMstBAvailable]

@konfolut 1 in 3 aren't aware they have huntingtons or that it runs in the family. So I would think very carefully before you throw your opinions out like that. Clearly that seminar wasn't that great. Let's hope you've educated yourself better in the time frame that has elapsed.

[batmancubfan]

God bless you and your family.

[momskippers]

I too lost my Dad, my brother and sister have HD. Can you forward this to Oprah. I am trying to get on her show to raise awareness and $. I know a cure can be found if we had the research $.

[MultiModality]

My mother-in-law has HD and my wife is setting the stage for her to move in with us. I figured I better learn about the disease. It was a real eye opener.

I thought I would post a link to my research for anyone that wants to read more about it. It's free, or course.

helium dot com/tm/554418/huntingtons-dise­ase-known-huntington

REMOVE THE WORD "DOT" AND REPLACE WITH A PERIOD TO GET TO THE WEBSITE