Living with Multiple Sclerosis - CCSVI Follow-up.mpg

[Richie979]

I don't think tysabri is available for all ms patients in Britain? The NHS seems to think it's too expensive for the results it gets over here? So if I want to get it I will have to pay full price for it? Such is life?

[laurenvparrott]

@Richie979 Oh gosh, I really don't know about the finances of the drug - I hope you're feeling well!

[MrLeooreo]

it comes to CCSVI, the interests of the neurologists and the societies are best served by having CCSVI marginalized, by not funding any CCSVI treatment research, and by lobbying the government to not allow any treatment of impaired venous drainage in persons with MS despite the obvious health hazard such a condition represents. The reasons for such actions are straightforward.

[violetmatthers]

I Agree with you! I have been on Tysabri for 3 years and I have had a couple exaserbations, however My MRI's have shown ZERO new lesions! so I am doing pretty well on Tysabri. And I think CCSVI is wonderful, and after some more research ??? who knows. But regardless I will continue on Tysabri even If Iever get the Zaboni Zap! :) take care sweetie , Love Violet

[laurenvparrott]

@violetmatthers Hi Violet! I agree with you!

[senna691]

hello love ya video can you email me please

[nappycloud9]

Got Liberation 7 days ago today. Been on most ms drugs except Tysabrii, even did Novantrone. I feel wonderful, brand new since CCSVI, check out my Youtube channel. Liberation is real! No more drugs for me~

[laurenvparrott]

@nappycloud9 Congratulations!! I am so happy for you! I will be looking at your channel!

[teslagirlM]

I totally agree with you, Lauren. You have been very clear in both videos. I know it is hard when people look to you for answers and you are just trying to say what works for you, and to keep an open mind. You are doing a great job spreading awareness and helping people, but you also can't be held responsible if people get the wrong idea. know what I mean?

As i say, you have been very clear (as always) in your videos. Thanks for all the information!

Marlo

xx

[laurenvparrott]

Hi Marlo! Oh my gosh you made my day!! Thank you so much for saying this! You're right, I just want to help people and not tell them what to do...I just explain what works for me. Thank you so much again!

[moostamoo1]

@teslagirlM Hi Marlo!! just read your book found it a fantastic read!!

and I've been watching your video's for a while Lauren!! I Hope ur ok and I totally feel the same about CCSVI I have my name down for the doppler scan in Glasgow and Poland so watch this space!! TC guys!! x x x

[moostamoo1]

@teslagirlM

Hi Marlo, I have read ur book and was inspired by ur attitude its the way to deal with ms!! and Lauren I watched ur videos when I first got dx you are also amazing in the way in which you deal with ms, I too think CCSVI is the way forward I have a doppler scan booked in glasgow and poland whichever is sooner!! wish us all luck!

[angelusa73]

Cara Lauren,

I agree with you (and you know that it's hard for me to take drugs!!!) and I would not stop taking Tysabri (not yet) because I want to continue to improve and I want to keep my body strong and healthy so I can better prepare for the future. You were very clear and I never thought for a second that you were telling us to stop taking them. There is a lot more research that we need to do and it's ok to dream and to be excited about it while we take our drugs :)

Keep up the good work!

[laurenvparrott]

Grazie Angela! You are the best!! Tanti Baci!!

[irishbear76]

It is my strong opinion that even if the LIberation Procedure is made available in the near future that the interferons and Tysabri and (hopefully the new oral drugs!) will be kept as an adjunct therapy.

In theory, the procedure would stop the autoimmune process; however, it could return with changes in the stent, cholesterol etc...

I agree with you Lauren. NO ONE SHOULD STOP THEIR CURRENT REGIMEN. Now is the time for informing others and advocating for CCSVI research.

great vid.

Mark

[laurenvparrott]

Thank you Mark! You are so intelligent and I love hearing you and talking to you! I agree with that - the interferons/Tysabri/ORAL DRUGS!! will be kept as an adjunct therapy, I can't wait for more research to be done!!

Take care!

Lauren :)

[2BinCali]

Thank you so much again for the great information!!!!!!!!!

~Doreen

[laurenvparrott]

Thanks for writing Doreen!

[NikiBoBicki]

That is great advice Lauren :)

Sorry for being so overly cautious in my responses to your previous video.

I too am hopeful.

[laurenvparrott]

Thank you! That's ok, I'm cautious too!

[MSVlogSupport]

Hi Lauren,

I totally agree, do not stop taking your medications. There is a long way to go and more research to be done.

What we want is to have more studies done all over the US and the rest of the world.

We want more funding for this to be done. That is why we have to be proactive in spreading the word about CCSVI.

Thank you Lauren!

[laurenvparrott]

Exactly! I totally agree!

[7mumfred7]

Lauren, a very sensible video.

All you have to do is to look around YouTube for the chiropractors, cranio-sacral and other therapists, herbalists and nutritionists claiming to cure MS and other Chronic Progressive Diseases (like Crohns) to know at least suspect that this new "cure" is likely an ego-trip by some arrogant anti-social jerk. Remember also the world's leading clone researcher in Korea - he couldnt wait, and fabriacted all the human data. That is almost 50% of medicine. SAD !!

[laurenvparrott]

Thank you Steve! Yeah I know, that's why I'm just going to stay on my medication and wait for more test results to come in!

[medad1]

I really hope that CCSVI is the REAL cause of MS, in this case, finding a cure drug could be very soon

Thanks Lauren for your care & efforts

Mody :)

[laurenvparrott]

Hey Mody! I hope so too!!

[vbeachy]

Great video, Lauren, and I, too, am staying on Tysabri for now. I cannot, nor would I, minimize the positive effect Tysabri has had on my life. I am out of a wheelchair, for heaven's sake, and THAT is certainly the most significant thing that has happened to me, healthwise, since I started taking the drug.

That being said, CCSVI, is, indeed, very, very exciting for those with MS.

[laurenvparrott]

Thank you so much Vern! You have no idea how much I appreciate your comment! I feel the exact same way :)

[ThePennygirl]

Ive no Inus. No health care! what do you know that is out there for folks in the US can we get?

Please any answers welcomed!

[laurenvparrott]

I'm assuming you have MS right? If you're on medication you can talk to the drug company and they can help you. You can also talk to the MS Society. I hope this helps!

[muzzleray]

great vid L, it's honest and upfront, not much of your style of substance out there, pls keep up the posts

[laurenvparrott]

Thank you so much! That is so kind of you!

[tazscott14]

Dear Lauren,

Who told you to make this video? From what I know, Tysabri is not a life long medication.

Good luck,

Bill

[7mumfred7]

Thats a bit outrageous. Obviously nobody except Lauren herself told her to make the video.

[laurenvparrott]

Thank you so much Steve - you are so right!

[laurenvparrott]

Hi Bill - No one told me to make this video. I was responding to the people who sent me emails about being confused about the whole thing. I personally know people who have been on Tysabri for over 5 years and are doing great - I'm hoping for the best of everything.