I hit my head with my right hand really hard and it causes me headaches. It really worries me and gets painful. Sometimes, I will do it all day if I'm having a stressful time. It's by far my most painful and least wanted tic. I hate it.
With my Tourettes if someone touches my head i punch my head several times till it feels normal again. Like I Punch it my head. then when i was younger i use to hit my rib cage reall hard i guess it was more like a punch to but it was continually none stop
i take respridone i have add adhd bi polar ied odd manic depression and the respridone trukly does help...keep on inspiring people like you are your a great person.
Don't hate on the South Park, that's what brought me to looking up tourette's. =) I know a lot more about it now. I didn't know it existed before that.
I have MS and I have simaliar episodes. Its called Spaticity. I am currently taking Baclofen and it doesn't seem to work. What are your suggestions of any medicine that may help?
Mine is most usually where my arm jerks back, like I'm trying to elbow someone really hard, and it only happens to an annoying degree when I'm distressed. It happens once, sometimes twice in the actual movement, but if there's something solid behind me, it happens four to six times before stopping. As far as SI goes, it never bothered me, til my tutor had come over to talk to me one time, and then I started bashing the wall, almost started swearing, triggered off a few other tics.. very awkward
To me it's just words. My reaction is due to hightened attention from the origins, since it's sometimes quite loud. Other than that, it's nothing much, just a natural response. In fact, tourettes might be hard to deal with, but it does filter out all the persons that would not understand you anyway.
In the end all that will remain are the true friends.
I hope you can see on the bright side of this, like I do.
I don't have tourettes, but I can relate to some of the things you said in terms of impulse control. Occasionally, when I get worked up - sad, angry, even excited - I repeatedly slap my face and bang my head into walls without meaning to or wanting to. I yell 'stop' 'no' as I'm doing it trying to talk my body out of it, but it's like my hands aren't under my control... Needless to say my friends think I'm crazy
I Brian......... Have Tourette Syndrome and I do hurt myself alot! I used to burn myself with cigarettes. now I cut and inbed sharp objects into my skin. It is a form of release!
@c8kwalk You have tourettes,you are uniqe because of it as is everybody with this I have parkinsons this makes me uniqe,the world has a problem,every person on it has a little uniqe flaw but these flaws make us very different but we cant let people bring us down...hold your head up high and proud never feel bad because of a little flaw...
I Have Tourettes..some of my tics are hitting my head on a table, falling to the ground and then sliding like a penguin, kicking, punching, slapping, cussing, repeating thing I read, hear or say. I also will slap myself and hit myself in the fore head. Theres a lot more but Those are my some-what violent ones. I hate it when I hurt others.
Also, I have been self-harming for a few years. I wonder if my tourettes makes it harder to stop than it should be,..
Hello' Sometimes I hurt myself when I have seizures, but I don't consciously remember the experience. I take Dilantin and that pretty much prevents them from being full on seizures. The most common injury would be tongue biting. I've bumped my head a few times, and tweaked my shoulder a few times. This usually happens during sleep, but not always. Neurological disorders seem to be so complex, the mind is so mysterious, yet so familiar. You're gonna laugh, chanting, meditation, and yoga.
I have experienced problems with this for 10 years but more so recently. Right now the worst is when my arm muscles all tense up and then I jab them out and squeel. This especially hurts my wrists. I'm worried about developing joint problems or carpal tunnel or something. Do you have any other med suggestions? I've only tried one kind that was a blood pressure med but it didn't work.
I am glad u posted this. After watching the pattern of your videos, & comparing it 2 my experience, I really wonder if depression & SI, r at times the 1st symptom of a neurological problem. I was severe w/ my SI, a year after I quit, I was DX w/ MS. Just some interesting food for thought. There may be a link there that might need some research.
Yup if I'm sitting down and there's something behind my head like a wall or the back of the seat I bang my head on it. I also punch myself in the upper chest.
umm i never really noticed my tics i thaught they were just little twitches in my muscles but then i was getting worse like i started cutting n randomly move mostly my head moving like i shaking it sayin no or something....annd.. i still have to see a neurologist about it. i type all awkwered too like my fingers will move super fast then wont work... my legs will twitch n my torsou moves all weird, annnd yea i have really bad speach impetiment and studdering lol its kinda funny but its annoying
I only get ticks, alot about a year ago and it got me really mad bcs my finger would keep on jumping for fifteen minutes straight and once i got so mad i actually stupidly hit it with a hammer. It did nothing good, obviously, it was red and the tiniest bit blue and hurt but it was still twitching, i mean i no it doesnt sound that mad but once it goes on for a long time with multiple fingers it gets frustrating. I dont do that anymore and i have less ticks, but theyre not gone for good.
i dont have tourettes but i do have trichotillomania (where you involuntarily pull out hair) which is stemed off of the same gene that causes tourettes.
When i'm having my tics, i feel a lot of tension. Really a lot. I also feel a lot of tension before i hurt myself. So, ik think both my tics en SI are ways to lose that tension, and so the meet eachother at that point. The tension i can't cope with...
I'm proud & inspired about your comment of commitment of never to smoke weed, don't let it slip, ever! Because you'll regret it, stay true to your promise hun, your so beautiful! Take care x
I started researching this exact thing a few months ago...It is so weird how tourette's, self harm, and eating disorders have something in common. Also, trichotillomania is in this same catagory of self harm..they are all related. I read that it might have to do with neuochemical receptors in the brain., and a certain imbalance of a hormone.
Hmm... interesting - I'll have to do some reading on Tourettes and the MRI's.
Tip: I'm not sure how things are in Canada, but when I've had MRI's done, I have asked for a copy of the actual MRI. They don't charge here and they burn a CD-rom for you w/the images & a program. You can ask before the MRI and they give you the disc when they're done. Useful to bring to future visits w/other docs.
Also, if you don't mind me asking - have you felt any less likely to SI on the new meds?
so far ive just been arranging that copies be sent to all my doctors.
With the tics that made me SI, I dont have most of them anymore, but I dont think it was a result of the medication, My tics change and evolve constantly, so i think its due to that.
@idranktheseawater - I have a neuro that has been with me for several years, but when you get sent to "yet another specialist", it's easier to have the CD on you. :-) Also, I've had things happen like getting a letter in the mail "we're closing our office"... YIKES! Not to mention that it's useful to track such things as imaging over yrs, but you might not still be w/same doc. And the INTERPRETATION of the images is JUST THAT! Others might interpret differently! Lessons learned by me.
Actually, 2 clarify - my neuro said I have Tourettes, but it's more likely tourettism b/c of the adult onset. To complicate matters, my kids have SI behaviors (head banging), BUT, they also have Lyme. Genetic or autoimmune. I'd say Tourettism for us b/c of my adult onset. Unfortunately, my Lyme treatment is on hold for a long time. My basal ganglia IS affected. I'm really glad to hear that yours is NOT! :-)
I hope that we can all get to the bottom of this junk!
Aspergers is also associated with tourettes because both disorders are neurological and people with AS tend to do repetitive behaviors anyway so I find that interesting.
Btw I love the video. Really clear and had good points.
Have you always HAD tics? Did they start recently? I'm asking b/c Tourettes is a childhood disease. "Tics may appear up to age 18, but most typical age of onset is 5 to 7" They say it's genetic, but can't name a gene.
It could be Tourettism as autoimmune processes may affect tic onset. Speculated causes are from dysfunction in cortical & subcortical regions, the thalamus, basal ganglia & frontal cortex
Have you had an MRI? Damage to your basal ganglia is SERIOUS!
It's a HARD, HARD to movie to watch... but it's such a GREAT movie b/c it DEALS with such hard issues. Most of the charactors in the movie are composites based loosely on real world people. I thought you might be interested b/c the movie portrays someone who is a cutter.
I am *SO* GLAD to hear that the new meds are working! :-D
Tourettes + SI. What you say makes sense: w/OCD, compulsive behaviors such as skin picking, hair plucking, & nail biting can certainly progress to the point of self-injury.
Re: Arm twisted, I had this too
Sounds more like dystonia???
PS Just a note to others if they are not familiar with these meds: Seroquel and Risperidone are anti-psychotic medications. However, they can (and are) used "off-label" to control movement disorders.
i been on risperidone for a while now, replaced geodon with it. im also on paxil cr, for depression and anxiety. im feeling more to do self injury and it tires me to not hurt myself. i think i am bipolar but i still dont know yet. my diagnosis is general anxiety disorder with depression and some self injury.
Ok, so I totally get how Self Injury can be a characteristic in the sense that you tic and like hit yourself or bang part of your body on something, but like, my parents looked up a bunch of stuff about Tourettes online (because we think that I may have Tourettes) and it said something about people scratching themselves due to their Tourettes. Now they have this idea that my Self Injury is because of it. But I can't tell them that i don't think it is. Kind of frustrating...
Do you feel that not telling them will prevent you from getting the help you need? Like that you would need certain therapies that have nothing to do with tourettes?
I finally go to see the neurologist tomorrow. I just hate that I can't explain that to them, but I have this feeling that he's gonna ask me about it. They always do...
And I want my mom to go with me cuz I have a hard time explaining things, but I'm afraid he'll ask me about it and I'll have to try to explain it with her in there, and that just scares me...
I've been a silent fan of yours for quite some time now and I just wanted to say that I'm so glad that you're doing better. I'm bipolar so I understand what a relief it can be to find a med that works and I'm really hoping that you won't have any negative side effects. You just look like you're feeling so much better. If you ever want/need to talk, feel free to contact me anytime.
@jenalicousss If pot was effective I'm sure they'd have a drug out on the market like they do for glaucoma. I can only conclude that it doesn't work for this, unless you know something I don't
@jenalicousss - I can only speak for the US, but pot is illegal in many areas here. Also, by smoking pot... if they ever find evidence of it in your blood or urine (even if taken at a routine dr's visit), you will be considered a substance abuser and access to any controlled substances for any future legitimate reasons will be severely limited, if not eliminated. i.e. narcotic pain meds. Would you want to come out of surgery and have them say: "here's a tylenol"!?!? Food for thought...
I have tics to hit, kick, bite and scratch myself and bang my head.
And I also have coprolalia, though I use a special mouthpiece, a "Sylencer" to muffle it, called a court stenographer's mask.
When I have bad self-hitting tics, I put a washcloth in a hat and jam it down on my head to hopefully minimize the pain, and a weighted shoulder wrap to protect my torso...somewhat. It's completely infuriating to hurt oneself without any control over it.
@idranktheseawater Whatevr , don`t smoke weed,can make paranoia worse.Infact I thought I was hallucinating can you see elmo,he`s not waving is he?No really if you have a fall,let us know,never know might even give you my mobile .Just ask.realizing my shakes are when I wake and is need for meds.Yesterday was in a bad way,music,comedy you name it was`nt having much affect on me,but your Vid cheered me up .Don`t worry be happy ?
@idranktheseawater Already is,off to view the once in a 48year event ,yep The harvest moon is out tonight ,and its gonnae be bright ,its alignment with the sun makes it so bright farmers can harvest .So by the light of a silvery moon !No I am not going to go all hairy and start hollowling .AAoooooowl!
@idranktheseawater Well my day was fine,stargazing went well jupiters moons viewed brilliantly .hair did grow a bit . I know its of topic ,just curious, have you ever been to ecosse.Not trying to do your head in, its just ,its doing my head in ,you seem so familiar .Otherwise ,I`m truly gone nuts,and should`nt even be yapping on .Maybe my memories playing tricks on me,or my secure position has left me for a moment because of the full moon .
It's pretty cool that Risperidone helps you! I used that 2 years ago and I started having really bad "electric-shock-passing-outs", and a "extremely tired-can't sleep" condition. With no positive effect at all. For me, worst thing I ever took :P
Good to see meds working ,however has anyone noticed that some branded meds from different Pharmacies are made by different drug companies and differ in affectiveness .i say this because I went to a different pharmacy last month and the brand was different and ,felt different .So went back to conventional pharmacy and found meds brand there better.Really mean it, I don`t like the number 10.I`m off to bang my head against a wall then:)see If it makes me speak as friskly french as you..meeoow !
It's awesome that you found a medication that seems to be helping.
I took it on and off for my Tourette's, when I was in a sort of tic episode to calm down...and then it just put me to sleep, but had to stop it when I started to have dyskinesia...not fun...
Risperdal does have side effects, and it's important to know what they are in case you have them. Most people just get sleepy and gain weight...but some do get worse side effects. I really hope it works for you!
I don't have Tourettes but i have watched a documentary on YouTube about it! It was called Teenage Tourettes Camp. Some of them had tics that harmed them. One would enen try to jump out of a moving car!
I watched a documentary thing on self injury, and there was a girl with tourettes that explained how her tourettes would frustrate her so much because she had no control of it, cutting was her only way of feeling a sence of control..i found it pretty interesting.
I do not have Tourettes, but I do self injure myself. I do have some of the behaviors you mentioned, like the smacking your leg, I do that a lot. I generally try to hit something near by. But often times, it's my leg I hit, and there have been many many times I have left bruises.
I don't have Tourettes, but this was definitely interesting to learn! Glad to know your tics are improving! Also great to see you doing so well! You look so bright and enchanting in this video!
I'm starting to think maybe I should look into this. I have tics, and I do impulsive stupid shit (si, ed, and so on) but when I tic I don't hit anything, i just break my neck in a jerking motion.
love the british accent at the beging lol and my friend has tourettes but doesnt self harm but does always bang his legs againsts something till they are bruised :( xXx
I hit my head with my right hand really hard and it causes me headaches. It really worries me and gets painful. Sometimes, I will do it all day if I'm having a stressful time. It's by far my most painful and least wanted tic. I hate it.
partlycloudyholiday 1 week ago
With my Tourettes if someone touches my head i punch my head several times till it feels normal again. Like I Punch it my head. then when i was younger i use to hit my rib cage reall hard i guess it was more like a punch to but it was continually none stop
turtlekid44 1 week ago
i take respridone i have add adhd bi polar ied odd manic depression and the respridone trukly does help...keep on inspiring people like you are your a great person.
travnkrisy 2 months ago
god damnit dude just take painkillers or anti anxiety meds.
it fixes tourettes and all that silly shit
modshroom 2 months ago
Thx for your videos, helps me undestand a friend of mine who has tourettes,,,,BTW you're gorgeous,,,,,,
Riyun72 3 months ago
Don't hate on the South Park, that's what brought me to looking up tourette's. =) I know a lot more about it now. I didn't know it existed before that.
dadandevasing 3 months ago
Cool chick :-)
rickyleedavis1 3 months ago
I think I have tourettes... :/ im scared
thatjesssgirl 3 months ago in playlist More videos from idranktheseawater
I have MS and I have simaliar episodes. Its called Spaticity. I am currently taking Baclofen and it doesn't seem to work. What are your suggestions of any medicine that may help?
phoen1xvine 3 months ago
@phoen1xvine
I only know what works for tourettes
Im taking risperidone and that's been working well for me
idranktheseawater 3 months ago
@idranktheseawater thanks i will ask my doctor if that may help!! Love your videos!!
phoen1xvine 3 months ago
Mine is most usually where my arm jerks back, like I'm trying to elbow someone really hard, and it only happens to an annoying degree when I'm distressed. It happens once, sometimes twice in the actual movement, but if there's something solid behind me, it happens four to six times before stopping. As far as SI goes, it never bothered me, til my tutor had come over to talk to me one time, and then I started bashing the wall, almost started swearing, triggered off a few other tics.. very awkward
WesJanson10 3 months ago
To me it's just words. My reaction is due to hightened attention from the origins, since it's sometimes quite loud. Other than that, it's nothing much, just a natural response. In fact, tourettes might be hard to deal with, but it does filter out all the persons that would not understand you anyway.
In the end all that will remain are the true friends.
I hope you can see on the bright side of this, like I do.
It's hard, but it's all we've got, yes?
We only have one life.
Tygger307 3 months ago
do ever take muscle relaxant?
supervd 4 months ago
@supervd
nope
idranktheseawater 4 months ago
Dont know how many of these I've commented on.... But geeze. Who is this girl? She's beyond inspiring.
jamiehouse73 4 months ago
@jamiehouse73
;)
Thank you
idranktheseawater 4 months ago
my friend wears roller blade wrist guards when hes ticking...maybe it will help you.
TheTricklisted 4 months ago
@TheTricklisted
Thats a really good idea....
idranktheseawater 4 months ago
when i have a tick, i bend over pull my nutsac out about a foot and a half and i start to pucker my anus out like a butterfly fluttering its wings.
Adam9496 4 months ago
I don't have tourettes, but I can relate to some of the things you said in terms of impulse control. Occasionally, when I get worked up - sad, angry, even excited - I repeatedly slap my face and bang my head into walls without meaning to or wanting to. I yell 'stop' 'no' as I'm doing it trying to talk my body out of it, but it's like my hands aren't under my control... Needless to say my friends think I'm crazy
thislifeisstolen 5 months ago
your a very stroung woman
sbros1342 6 months ago
I Brian......... Have Tourette Syndrome and I do hurt myself alot! I used to burn myself with cigarettes. now I cut and inbed sharp objects into my skin. It is a form of release!
c8kwalk 7 months ago
@c8kwalk You have tourettes,you are uniqe because of it as is everybody with this I have parkinsons this makes me uniqe,the world has a problem,every person on it has a little uniqe flaw but these flaws make us very different but we cant let people bring us down...hold your head up high and proud never feel bad because of a little flaw...
KingFire2112 6 months ago
Very well explained!!!
c8kwalk 7 months ago
:| gosh one time i kept hitting my head against the wall behind me and my dad looked at me like "what the **** are you doing" and i tried to stop :|
xSummertwilightxx 7 months ago
I Have Tourettes..some of my tics are hitting my head on a table, falling to the ground and then sliding like a penguin, kicking, punching, slapping, cussing, repeating thing I read, hear or say. I also will slap myself and hit myself in the fore head. Theres a lot more but Those are my some-what violent ones. I hate it when I hurt others.
Also, I have been self-harming for a few years. I wonder if my tourettes makes it harder to stop than it should be,..
MsTwitch223 7 months ago
Hello' Sometimes I hurt myself when I have seizures, but I don't consciously remember the experience. I take Dilantin and that pretty much prevents them from being full on seizures. The most common injury would be tongue biting. I've bumped my head a few times, and tweaked my shoulder a few times. This usually happens during sleep, but not always. Neurological disorders seem to be so complex, the mind is so mysterious, yet so familiar. You're gonna laugh, chanting, meditation, and yoga.
1123krb 8 months ago
I have experienced problems with this for 10 years but more so recently. Right now the worst is when my arm muscles all tense up and then I jab them out and squeel. This especially hurts my wrists. I'm worried about developing joint problems or carpal tunnel or something. Do you have any other med suggestions? I've only tried one kind that was a blood pressure med but it didn't work.
OnACornflake 8 months ago
@OnACornflake
I take Risperodone and it works well for me
idranktheseawater 8 months ago
prozac...risperidone those rang a bell. ive been there..and still am
Cerbyo 9 months ago
I am glad u posted this. After watching the pattern of your videos, & comparing it 2 my experience, I really wonder if depression & SI, r at times the 1st symptom of a neurological problem. I was severe w/ my SI, a year after I quit, I was DX w/ MS. Just some interesting food for thought. There may be a link there that might need some research.
DarkSweetDutch 9 months ago
Yup if I'm sitting down and there's something behind my head like a wall or the back of the seat I bang my head on it. I also punch myself in the upper chest.
Largestina 11 months ago
@Largestina Dam the chest, how hard do you punch yourself? I punch walls and such at varying degrees of strength.
ellimist6 10 months ago
umm i never really noticed my tics i thaught they were just little twitches in my muscles but then i was getting worse like i started cutting n randomly move mostly my head moving like i shaking it sayin no or something....annd.. i still have to see a neurologist about it. i type all awkwered too like my fingers will move super fast then wont work... my legs will twitch n my torsou moves all weird, annnd yea i have really bad speach impetiment and studdering lol its kinda funny but its annoying
princessbitch221 1 year ago
I only get ticks, alot about a year ago and it got me really mad bcs my finger would keep on jumping for fifteen minutes straight and once i got so mad i actually stupidly hit it with a hammer. It did nothing good, obviously, it was red and the tiniest bit blue and hurt but it was still twitching, i mean i no it doesnt sound that mad but once it goes on for a long time with multiple fingers it gets frustrating. I dont do that anymore and i have less ticks, but theyre not gone for good.
TinkerBelle246 1 year ago
i dont have tourettes but i do have trichotillomania (where you involuntarily pull out hair) which is stemed off of the same gene that causes tourettes.
treyweeeee 1 year ago
When i'm having my tics, i feel a lot of tension. Really a lot. I also feel a lot of tension before i hurt myself. So, ik think both my tics en SI are ways to lose that tension, and so the meet eachother at that point. The tension i can't cope with...
Does that make any sense to you?
wicje 1 year ago
@wicje
Yes, it does. I understand.
idranktheseawater 1 year ago
I'm proud & inspired about your comment of commitment of never to smoke weed, don't let it slip, ever! Because you'll regret it, stay true to your promise hun, your so beautiful! Take care x
millieeek 1 year ago
I started researching this exact thing a few months ago...It is so weird how tourette's, self harm, and eating disorders have something in common. Also, trichotillomania is in this same catagory of self harm..they are all related. I read that it might have to do with neuochemical receptors in the brain., and a certain imbalance of a hormone.
sdclub100 1 year ago
im glad your tics are doing better :)
laurenG1814 1 year ago
Hmm... interesting - I'll have to do some reading on Tourettes and the MRI's.
Tip: I'm not sure how things are in Canada, but when I've had MRI's done, I have asked for a copy of the actual MRI. They don't charge here and they burn a CD-rom for you w/the images & a program. You can ask before the MRI and they give you the disc when they're done. Useful to bring to future visits w/other docs.
Also, if you don't mind me asking - have you felt any less likely to SI on the new meds?
NH4x4Jeep 1 year ago
@NH4x4Jeep
Thats an interesting idea with the cd rom
so far ive just been arranging that copies be sent to all my doctors.
With the tics that made me SI, I dont have most of them anymore, but I dont think it was a result of the medication, My tics change and evolve constantly, so i think its due to that.
idranktheseawater 1 year ago
@idranktheseawater - I have a neuro that has been with me for several years, but when you get sent to "yet another specialist", it's easier to have the CD on you. :-) Also, I've had things happen like getting a letter in the mail "we're closing our office"... YIKES! Not to mention that it's useful to track such things as imaging over yrs, but you might not still be w/same doc. And the INTERPRETATION of the images is JUST THAT! Others might interpret differently! Lessons learned by me.
NH4x4Jeep 1 year ago
@idranktheseawater - Re: WHATEVER the reason for not feeling compelled to SI... I always tell my docs - I'm PERFECTLY FINE with GOOD NEWS! :-D
So, I'm glad to hear that for you! YAHOO!
NH4x4Jeep 1 year ago
Actually, 2 clarify - my neuro said I have Tourettes, but it's more likely tourettism b/c of the adult onset. To complicate matters, my kids have SI behaviors (head banging), BUT, they also have Lyme. Genetic or autoimmune. I'd say Tourettism for us b/c of my adult onset. Unfortunately, my Lyme treatment is on hold for a long time. My basal ganglia IS affected. I'm really glad to hear that yours is NOT! :-)
I hope that we can all get to the bottom of this junk!
NH4x4Jeep 1 year ago
Aspergers is also associated with tourettes because both disorders are neurological and people with AS tend to do repetitive behaviors anyway so I find that interesting.
Btw I love the video. Really clear and had good points.
BrainDeadIntellect 1 year ago
Have you always HAD tics? Did they start recently? I'm asking b/c Tourettes is a childhood disease. "Tics may appear up to age 18, but most typical age of onset is 5 to 7" They say it's genetic, but can't name a gene.
It could be Tourettism as autoimmune processes may affect tic onset. Speculated causes are from dysfunction in cortical & subcortical regions, the thalamus, basal ganglia & frontal cortex
Have you had an MRI? Damage to your basal ganglia is SERIOUS!
I was told I have Tourettes
NH4x4Jeep 1 year ago
@NH4x4Jeep
I did just get my results for my MRI. My basil ganglia is fine. I was surprised to hear that, but apparently tourettes doesnt show up on an MRI.
I havent always had this, but there are cases of adult onset. They are more rare and not enough research has been done on it.
idranktheseawater 1 year ago
Have you seen the movie "To Save a Life"?
It's a HARD, HARD to movie to watch... but it's such a GREAT movie b/c it DEALS with such hard issues. Most of the charactors in the movie are composites based loosely on real world people. I thought you might be interested b/c the movie portrays someone who is a cutter.
NH4x4Jeep 1 year ago
I am *SO* GLAD to hear that the new meds are working! :-D
Tourettes + SI. What you say makes sense: w/OCD, compulsive behaviors such as skin picking, hair plucking, & nail biting can certainly progress to the point of self-injury.
Re: Arm twisted, I had this too
Sounds more like dystonia???
PS Just a note to others if they are not familiar with these meds: Seroquel and Risperidone are anti-psychotic medications. However, they can (and are) used "off-label" to control movement disorders.
NH4x4Jeep 1 year ago
i been on risperidone for a while now, replaced geodon with it. im also on paxil cr, for depression and anxiety. im feeling more to do self injury and it tires me to not hurt myself. i think i am bipolar but i still dont know yet. my diagnosis is general anxiety disorder with depression and some self injury.
the story of my life
tboy221 1 year ago
Ok, so I totally get how Self Injury can be a characteristic in the sense that you tic and like hit yourself or bang part of your body on something, but like, my parents looked up a bunch of stuff about Tourettes online (because we think that I may have Tourettes) and it said something about people scratching themselves due to their Tourettes. Now they have this idea that my Self Injury is because of it. But I can't tell them that i don't think it is. Kind of frustrating...
Jazmynicole89 1 year ago
@Jazmynicole89
I understand your dilema
Do you feel that not telling them will prevent you from getting the help you need? Like that you would need certain therapies that have nothing to do with tourettes?
idranktheseawater 1 year ago
@idranktheseawater
No. They have never understood my issues, and I just think this is a way for them to"explain" them. You know what I mean?
I have been in therapy and all that stuff for Self Injury (haven't done it for like 5 months now)...
I mean, i just don't see how my Self-Injury can be related to this...
I can see how it can be related in the general sense... but like I said... I know why I did it (in a way) and it wasn't just a compulsive thing.
Jazmynicole89 1 year ago
@Jazmynicole89
I get what you mean
idranktheseawater 1 year ago
@idranktheseawater
I finally go to see the neurologist tomorrow. I just hate that I can't explain that to them, but I have this feeling that he's gonna ask me about it. They always do...
And I want my mom to go with me cuz I have a hard time explaining things, but I'm afraid he'll ask me about it and I'll have to try to explain it with her in there, and that just scares me...
Jazmynicole89 1 year ago
I've been a silent fan of yours for quite some time now and I just wanted to say that I'm so glad that you're doing better. I'm bipolar so I understand what a relief it can be to find a med that works and I'm really hoping that you won't have any negative side effects. You just look like you're feeling so much better. If you ever want/need to talk, feel free to contact me anytime.
girrl88 1 year ago
you just need to smoke some pot...
jenalicousss 1 year ago
@jenalicousss If pot was effective I'm sure they'd have a drug out on the market like they do for glaucoma. I can only conclude that it doesn't work for this, unless you know something I don't
ChannelingusIV 1 year ago
@ChannelingusIV - yup, they DO have a "pot" pill... It's called Marinol. It seems to be as controversial as pot itself by both sides.
Smoking pot would do nothing to stop involuntary movements.
NH4x4Jeep 1 year ago
@jenalicousss - I can only speak for the US, but pot is illegal in many areas here. Also, by smoking pot... if they ever find evidence of it in your blood or urine (even if taken at a routine dr's visit), you will be considered a substance abuser and access to any controlled substances for any future legitimate reasons will be severely limited, if not eliminated. i.e. narcotic pain meds. Would you want to come out of surgery and have them say: "here's a tylenol"!?!? Food for thought...
NH4x4Jeep 1 year ago
FYI: may contain triggers for tics...
I have tics to hit, kick, bite and scratch myself and bang my head.
And I also have coprolalia, though I use a special mouthpiece, a "Sylencer" to muffle it, called a court stenographer's mask.
When I have bad self-hitting tics, I put a washcloth in a hat and jam it down on my head to hopefully minimize the pain, and a weighted shoulder wrap to protect my torso...somewhat. It's completely infuriating to hurt oneself without any control over it.
voxnihili281 1 year ago
@voxnihili281
That's intense.
I sympathize
thank you for telling me that
idranktheseawater 1 year ago
@idranktheseawater Whatevr , don`t smoke weed,can make paranoia worse.Infact I thought I was hallucinating can you see elmo,he`s not waving is he?No really if you have a fall,let us know,never know might even give you my mobile .Just ask.realizing my shakes are when I wake and is need for meds.Yesterday was in a bad way,music,comedy you name it was`nt having much affect on me,but your Vid cheered me up .Don`t worry be happy ?
gringoboy9 1 year ago
@gringoboy9
I wont smoke weed. Never have. Dont intend to.
I know what being in a bad way with this kind of thing feels like. I hope today will be better for you.
idranktheseawater 1 year ago 7
@idranktheseawater Already is,off to view the once in a 48year event ,yep The harvest moon is out tonight ,and its gonnae be bright ,its alignment with the sun makes it so bright farmers can harvest .So by the light of a silvery moon !No I am not going to go all hairy and start hollowling .AAoooooowl!
gringoboy9 1 year ago
@idranktheseawater Well my day was fine,stargazing went well jupiters moons viewed brilliantly .hair did grow a bit . I know its of topic ,just curious, have you ever been to ecosse.Not trying to do your head in, its just ,its doing my head in ,you seem so familiar .Otherwise ,I`m truly gone nuts,and should`nt even be yapping on .Maybe my memories playing tricks on me,or my secure position has left me for a moment because of the full moon .
gringoboy9 1 year ago
@gringoboy9
Never been
idranktheseawater 1 year ago
@idranktheseawater I`ll blame the full moon.Off topic again ,but what the heck,seen as you are a sci fi buff ,which film would you rate as your best.
gringoboy9 1 year ago
@gringoboy9
Stargate
I know I said that b4, but it's totally stargate
If you're wanting to be talking about just random stuff, you can send the messages to my pm box.
idranktheseawater 1 year ago
@idranktheseawater smoking marijuana realy helps
vipe906781 5 months ago 6
It's pretty cool that Risperidone helps you! I used that 2 years ago and I started having really bad "electric-shock-passing-outs", and a "extremely tired-can't sleep" condition. With no positive effect at all. For me, worst thing I ever took :P
variadLog 1 year ago
Good to see meds working ,however has anyone noticed that some branded meds from different Pharmacies are made by different drug companies and differ in affectiveness .i say this because I went to a different pharmacy last month and the brand was different and ,felt different .So went back to conventional pharmacy and found meds brand there better.Really mean it, I don`t like the number 10.I`m off to bang my head against a wall then:)see If it makes me speak as friskly french as you..meeoow !
gringoboy9 1 year ago
@gringoboy9
It's awesome that you found a medication that seems to be helping.
I took it on and off for my Tourette's, when I was in a sort of tic episode to calm down...and then it just put me to sleep, but had to stop it when I started to have dyskinesia...not fun...
Risperdal does have side effects, and it's important to know what they are in case you have them. Most people just get sleepy and gain weight...but some do get worse side effects. I really hope it works for you!
-Voxina
voxnihili281 1 year ago
Is French your first language? What do you think in? Is it kilometer or kilometre in Canada? Does it bother you how most font have capital i
Aaron5of13 1 year ago
@Aaron5of13
I learned both languages at the same time, but when it comes to writing im better in English. I think in both languages, but mostly English.
Kilometre and kilometer depends on where you are in the country.
idranktheseawater 1 year ago
i have tourettes and it is hard to live with but you have to.
emochick892 1 year ago
ELLO hahaha
SADCRYINGDOLFIN 1 year ago
I don't have Tourettes but i have watched a documentary on YouTube about it! It was called Teenage Tourettes Camp. Some of them had tics that harmed them. One would enen try to jump out of a moving car!
cutiegrl416 1 year ago
I watched a documentary thing on self injury, and there was a girl with tourettes that explained how her tourettes would frustrate her so much because she had no control of it, cutting was her only way of feeling a sence of control..i found it pretty interesting.
FELICIAHOR 1 year ago
I do not have Tourettes, but I do self injure myself. I do have some of the behaviors you mentioned, like the smacking your leg, I do that a lot. I generally try to hit something near by. But often times, it's my leg I hit, and there have been many many times I have left bruises.
zdamagedsoulz 1 year ago
i'm so glad to know things are looking up!
wavesofgraceb 1 year ago
I don't have Tourettes, but this was definitely interesting to learn! Glad to know your tics are improving! Also great to see you doing so well! You look so bright and enchanting in this video!
xangirl88 1 year ago 2
Respirodon is a good one :3 I was on that for a lil while, and my little brother was on that too. So, good med ^^
RhayvenBlood 1 year ago
@RhayvenBlood
Why did you go off of it? Does it stop helping after a while?
idranktheseawater 1 year ago
@idranktheseawater
Can't afford my meds, and my doctor didn't have any samples :/ So, on a different one that -does- help, but I really dont like taking ;P
RhayvenBlood 1 year ago
I'm starting to think maybe I should look into this. I have tics, and I do impulsive stupid shit (si, ed, and so on) but when I tic I don't hit anything, i just break my neck in a jerking motion.
lovethewiccan3fl 1 year ago
ha ha ha typical britsh accent lol! :) likes it! :) well done :).. hope you are well :) x
GiNbO91 1 year ago
I just wanted to say you look so healthy and glowing in this video!xxx
Ilovebobbetty 1 year ago 16
love the british accent at the beging lol and my friend has tourettes but doesnt self harm but does always bang his legs againsts something till they are bruised :( xXx
CutterNamedNina 1 year ago