Multiple Sclerosis: Trigeminal Neuralgia in MS

[1997everything]

I was diagnosed not long ago and the pain, you can't describe how bad it is the best I've ever done was a ice pick repeatedly stabbing into my face while electricity was surging through it. No one understands in less they are a sufferer they think your overreacting.

[globalpreparation]

Unless you've experienced this, you truly can't imagine the pain! It really is like a spear that goes through your head, the back of your eyes, your teeth, jaws, even head. It makes me want to grab a gun and end it all!

[jatiajul]

Thank you for the clip, you are so sweet to share with us! Have a great day!

[HerbalJah]

I don't have MS but I do have T.N. and I get the worst attacks of pain in the middle of the night that wake me up in intense pain that hurts so bad ill start punching the fridge or a desk in a desperate attempt to release natural endorphin's. After the "episode" comes the 2-3hours of dulling, mind-disturbing pain. And yes the green sticky substance is very helpful for calming down after the flare ups or w/e you wanna call this ridiculously intense pain..

[LotusReach]

I had trigeminal neuralgia for 10 long miserable years, it was absolute AGONY. You are locked into HELL with it. One day I tried chinese acupunture. It was an IMMEDIATE SUCCESS and I was cured. I have have been pain free for 9 years now. How I bless those needle in my face the chinese doctor put in.

[JumpRopeQueen]

Wow! I understand! I understand! This is what I go thru as well! The pain is so excruciating that it makes you want to jump off a building and be done with it! People truly do not understand what we go thru...Besides the trigeminal burning pain, there's the occipal pain that kicks in and all you want to do is to pierce the skull with a pick and yank out the pain!!It wrecks your life..it's wrecked mine! and the best you can do is to deal with it on a minute by minute basis! Stay srong!

[TheMausicle]

Going through a bout of TN right now. I cried my eyes out all night because the pain was just so horrible. It's lessened a bit now, but the pain beat me down so badly I needed to rewatch this video as a reminder that it will go away. All I can do is hope that my MS specialist will put me on some medications that work next week and just wait for this to go away.

[eight08boi]

i know your pain.just got dx two weeks ago.it finally came out of my neuros mouth.my attack lasted for four months.now its back.i also have arthritis also.believe in faith.dont let it consume you.try not to let this disease have you.i wish you the best and god bless you.

[Bionuker]

I hate it how I need to click "like"..

This disease is horrible, I wish you the best.

[tuganbar]

Oh dear! Feel well, feel better please teslagirlM!

[LYNXVAL]

I am so sorry you are in soo much pain! I wish I could help you! My sister in law is newly diagnosed!

[jabela1985]

i been living with t n for 7 years

[ilubiatchez]

I feel so bad fir you hope you feel better :/

[JeanieS73]

Thank you for saying what i am trying to show my friends and are scared to *hugs*

[holobody]

LDN stops MS progress. Thousands and myself have been free of attacks for years solid since starting using it. Then you can get better control of life.

[thera1010]

I have MS and started with TN. I couldn't put my teeth together so taped a baby's dummy in my mouth at night so I got some sleep . Never known pain like it. I read the side effects of painkillers, wasn't too impressed and decided to try traditional acupuncture with much success. It eased almost staright away. Not completely gone but only getting moderate shocks occasionally and that was after one treatment got 3 more to go. Also been reading about the link with gluten. Worth a try folks.

[bectrek]

Thank you for being so open. I went to my neuro with TN (I have MS) He accused me of being drug seeing when I told him Tylenol did not help. I hate to wish evil on people but I wish he could spend 1 day in my body. The pins, needles, knives we constantly feel. I'm not a violent person, but I wanted to punch him.This from someone who is supposed to care for us. Lovely....I hope you are doing well today.

[TheSuzy51]

Hello from Cape cod, Massachusetts,

I have had MS since 1988 and thought I had seen the worst and then the TN hit. I feel your pain and I am sorry that you are feeling it. When it first happened I could not speak without electric shocks. With the medication I can mostly tolerate it.

God bless,

Susan

[AWDESIGNS8]

ITS OK HOW ARE YOU TODAY 2011 .EVERY ONE IS DIFFERENT IN THERE MS I KNOW PEOPLE WHO DONT EVEN HAVE THAT . IT WILL BE OK HOPE AND GOD IS WITH YOU LOVE APRIL

[teslagirlM]

@AWDESIGNS8 SEVEN years with MS and still going strong. :)

[AWDESIGNS8]

@teslagirlM you do look like your going strong . can you walk and do things like that. any smytoms like tingling or balance trouble

[k15361]

WEEEDDDD!!!!!!!

[teslagirlM]

@k15361 Yes

[afartherroom]

This was very brave, and very hard to watch. I don't have MS, but I do suffer from TN. I've linked quite a few people to it. It helps, I think, for them to understand where I'm coming from when I say, I can't make it, I'm having an attack, no, I don't want you to come over and sit with me, thank you, but it won't help me, I...thank you so much that's very kind but no.

Thank you for making it, and for making it public.

[terialbert1]

Learning about MS in Nursing School. Thank you for your honest information. It is tragic you have this horrible disease, but I am thankful I can learn about it and better assist my patients. God Bless You and ALL who suffer!

[teslagirlM]

@terialbert1 Thank you, and please remember in your studies and career, to have empathy, NOT sympathy. Now, go make a difference. :)

[Renegaid444]

You and I share an identical lifestyle. I was diagnosed with MS in 2001, but started having TN symptoms shortly after my mother died in 1997. As hard as it was to diagnose MS, the TN diagnosis didn't come until 2004, until then TN was misdiagnosed as sinusitis and mistakenly got 2 nasal endoscopies. My dentist told me I was grinding my teeth and realized I was grinding my teeth during TN pain spasms. My TN episodes are much like yours' , have you experienced so much pain you get the shakes?

[teslagirlM]

@Renegaid444 I was always told I was grinding my teeth, or had TMJ. They even filed down my back teeth! I have indeed gotten the shakes from pain. I am sorry that you have as well. I do grind my teeth when my face is in pain, partly because it goes into my teeth. I am sorry you get this crap too.

[Renegaid444]

@teslagirlM Oh you poor girl!

Most of my pain is sinus related (I had two nasal endoscopies prior to the diagnosis of TN...then discovered the endoscopies were NOT a good idea). If I adhere to a plan to keep my sinuses clear the TN is much better, what I eat is important too! I stay away from chocolate, beer, and try to get as organically vegetarian as I can get. I have MS as well, but I find with the TN I don't really get the time to think about MS.

[xnieax]

thanks for this video. I met someone with MS a couple of years ago, and back then, I didnt understand why she was crying all of a sudden. I thought she was just getting emotional, but watching this vid gives me a bigger picture of the condition. Thank you.

[teslagirlM]

@xnieax Thank you for posting. It means a lot. I have screamed in front of people, and then had to joke about it later, when they admitted I scared them! Thanks again.

[herbalcamper1]

hi hun i can so relate to this vid and my heart goes out to you. i usually end up on the floor dribbling with my tn i dont suffer with ms thank god . as this vid is 2 years old i wish you luck with this evil condition.and yes weed works a treat for pain its a pity our gvt. is so myopic about it. im fed up with their drugs and the not so pleasant side effects im due a trip to the surgons for decompression surgury soon NHS willing then i hope i can get on with my life wish me luck

[MusicIsEndlessXD]

I absolutely admire your breavery in making this video. The past week ive been suffering with the type of pain you are talking about. Im only 17 and this is the first time its been this bad. Although im sure it is not half as bad as yours. Mines is only on the left hand side of my face but I am in tears when washing my hair or even touching my face because of the pain. I also just ordered your book and cannot wait to read it! Hope all it well. Gillian x

[david0000ish]

i am so sorry for you.my girlfriend has the same pain you have in the same way,GUEST WHAT I GROW FOR HER. GOD bless you

[wingedthynges]

Dear one, thank you so very much for sharing this. I'm a little choked up right now as my last relapse included TN that felt like a blowtorch burning the right side of my face right off my skull for the better part of a week. It was brutally similar to your experience. I'm a rather tough girl when it comes to physical pain but I was reduced to the fetal position almost praying for sweet death to end the torture. Keep hanging in there, sister, you're not alone!

[teslagirlM]

@wingedthynges Thank you and you please hang in too! The way mine has turned sometimes is that I get a stab out of nowhere and scream out. I did this twice a few days ago whilst at work. People got scared. i think many people don't realise that pain is part of MS for many MANY people. i wish you well. :)

[KSTdancer]

This is EXACTLY what I have been experiencing for the last few days! It stops for a few hours and then starts again. I can't find anything that helps and it's absolute agony but I think it's starting to let up. This is the worst pain I have experienced with my M.S. Thank you for posting this.

[TheYaom]

I am sorry my heart goes out to you and my prayers.... I suffer from neck pain and sometimes gives me headaches that really make me stay in bed all day feeling dizzy and crappy..... the pain eventually goes away by itself

I am wondering if any type of physical therapy can help you....

[HisbellsEnd]

You are so awesome... and I love how through it you mention how even though you feel like shit your still glamorous... I just want to hug you up... God bless you hun & thank you for all the videos you make and not hiding anything to sugar coat it. Your the best!

[ringgiant1]

I can still remember the night I woke up with my first bout almost ten years ago. I don't think anyone who has never had an episode truly understands the pain and intensity of this condition. My teeth hurt, my eyes, my sinuses, my glands, my head, and often times I would get so ill from it I thought I would surely die. Luckily turns out I had a nico lesion in my jaw bone. I have had several surgeries. The medicines for this condition are terrible. Neurontin is not too bad though.

[teslagirlM]

@ringgiant1 Thank you for sharing this. I know there are a few types of surgery that can help. As for me, I don't tend to get it often enough to warrant surgery, but I do eat marijuana if it gets as bad as it did in this video. I was on Neurontin for a while, but it made me too lethargic. I wish you pain free days, weeks, and years ahead!

[PandorasEmptyBox]

I suffer bouts of pain that last for 20mins to well over an hour. As you & other TN sufferers know it completely exhausts you! My pain starts in a single tooth, It quickly spreads to my lower jaw & lower teeth, then cheek bone, Higher teeth, top of my nasal passage then my eye socket & lastly my head. I believe this is the case for most TN sufferers but I have heard of people experiencing it on both sides of the face! Its often referred to as "The Suicide Disease" You can understand why!

[Rsoul71]

Oh man,

feel so sorry !

Me too have this TN for 10 Years and there

is nothing you can do but taking some hard

med.

[andyffer]

do not waste your time with natural remedies. Get help from a doctor. Perhaps Gamma Knife?

[dbm37dbm]

Hi, I also get TN but haven't had a bout since finding Homeopathic Hypericum - get from any health store. (I am also a naturopath) - my pain was GONE within half an hour. My last bout was five years ago.

[44bugaboo]

I've had what you're experiencing. For a few years I've had sharp intense and severe pains in right side of face-cheek-eye areas extenuating up to my head & lasted for a few moments at a time, then relief, then more suffering 30 min later...making me think it was possibly migraines.though I never had the auras that migraine sufferers complain of.then thought it was a nerve in my upper teeth. I had those teeth removed and have not had any problems since. Though I hear this can relapse.

[hinkyponky]

I think this video was an incredibly brave thing to post - I suffer with MS and have TN so can appreciate it - TN is like MS, everyone's TN manifests itself in a different way - hope things go well for you

[jesterspace]

Coincidence.. I'm going through a TN exacerbation at the moment too.. and when you mentioned your 'cure'.. I was administering the same treatment. :)

[angelrocks2009]

i suffer with TN and i have attacks quite often, just started a two step approach with meds to see if that works i often get asked you don't look like you are in pain but i am which really gets on my nerves

[handipeep]

marlo,

sending you big hugs...you are amazing for sharing this. i wish i were there in my jamz w/ you so you wouldn't be suffering alone ... but i think you can tell that you aren't really alone - so many of us here can relate. thank you for your bravery and willingness to share your MS truth.

Hang in there,

your friend

KC

[nasrin42]

Hi dear Marlo thanx 4 replying. my GP says i have got shingles still taking gabapantins and lots of pain killers and somtimes morphin. i has helped a little bit i get pain but they r not very sharp but still i amnt sure shingles r the main reasom.and finally how r u these days? my ms looks like it is in remision .i dont take any medisine 4 ms

[nasrin42]

thank you for sharing,i got ms and TN ,do you thike having a surgery is posibll for ms suffers

[teslagirlM]

I am sorry you have this crap. I do indeed think that surgery is a possibility for anyone who has it bad, and often. thank you for posting. stay in touch!

Best,

Marlo

[bensfriendsorg]

Hello, we were in touch several months ago about a group I had create for TN sufferers world-wide. The site has grown to hundreds and I am trying to spread the word via the video just posted. Hope all is well. Ben

[teslagirlM]

Hi Ben! it's great what you are doing. Did you post a video response? I dont see it yet? Please have a look. Though, i am partly blind some of the time! LOL!

Marlo

[bensfriendsorg]

Let me post a video response now.

Ben

[xfactorscum123]

people with TN need to be totally sure before they have sergery on there face for TN because some of the nerves can grow back making it worse i drink camamile tea for my TN sometimes i have to be away from people coz stress makes it worse

[spiritualityminded07]

Thank you for sharing this and how you feel when you suffer pain. I have TN brought on by my MS and yes the pain is so deep. I know how you feel, but you still have to try and be positive.

Keep smiling and stay well xxx

[teslagirlM]

Thank you for your post. I am sorry that you feel this pain too. I will keep smiling and I hope you do as well.

I like your user namer by the way.

Marlo

xx

[xfactorscum123]

you could try camamile tea thats a good painkiller

[Lesliegilda]

I have TN. I am going to have MVD soon, but I want to talk to the doctor to check if I have MS.

[QuiglysMom]

Icepick through the eye socket. Do I ever know the feeling!

Hang in there... And remember, Pain is evidence of life! My best friend, a Japanese national tells me that all the time. I always say back to him that it wouldn't take anywhere near as much pain to make me firmly convinced.

[CuQeeMartin2009]

I get this with the M.S. also. It hurts so darnd bad it is tough to explain. The pain

behind my right eye gets unbearable. I know EXACTLY what this is.

[xfactorscum123]

it feels like pressure you feel like your eyes goin to burst out i have TN artheritus and tinitus all of which keep me awake most nights what makes it worse is the cold weather try a warm of cold towel on your eye it helps mine and camamile tea is a painkiller bananas are good for pain to

[haiqin]

I cried when I watched this. But I'm glad you posted it, because even though I haven't had such excruciating pain, there have been many bad times with my MS. Though I like to stay positive, it is important to know that we all do suffer at times, and we come through it.

Hang in there, kiddo!

[gambitwolvie01]

Thank you so much for sharing your pain with the world! I am a 41 year old mom who suffers from TN and have since 1999, I also have Autoimmune Hepatitis and am getting ready to go to an MS Clinic for testing to see if in fact what I do have is Multiple Sclerosis. I cant get Painkillers stronger than Tramadol either, every doctor where we live thinks all ppl who are in search of painkillers are addicts, not so, if they had to live one day with the pain we endure they would understand!

[xfactorscum123]

you need to get a book called food cures by joy bauer it tells you foods that have natural pain killers in for example bananas are pain killers and ginger are painkillers

[puggster]

i can sypithise totaly

ive got a few conditions myself

menires, maltracking knee caps, and when i had lateral releases done in mt knees it left the left thigh numb which eventualy turned very painfull i think its called malegria parathesis or sommit anyways i had an operation to fix it 2 weeks ago and the pain is constaint and very bad and i got prescribed gabapentin for the nerve pain,

i also had bells palsy which gave me extreme facial pain when the nerve was growing back,

[me1712]

weak vicodin and i need something stronger, do you have any advice about talking to doctors and helping them understand how we feel? THANK YOU -Jason

[teslagirlM]

Hi Jason,

I am sorry that you are suffering. I suggest to tell the doctors that you think you have TN and wouldn't you be better off on a drug like Tegretol or Gabapentin. Another alternative is medical marijuana. I would show your mom and boyfriend the definition of TN on Wikipedia, because it puts forth the point that the pain can be EXCRUCIATING. Maybe insist that you see a neurologist. that is what you really need. Make them refer you to one. I hope this helps.

[me1712]

My mom keeps trying to throw me in rehab for 30 days locked up...yeah that'll help the stress level and pain (which is not going to fix the pain. I told her rehab is only for people who want off...I want on and i'm a 30 yr old guy that looks 18 so it is hard to get a doctor that will prescribe a large enough does to even dull the pain let alone give me a couple hour relief. I lost my car, theres no where i can walk to work. My bf calls me a drug addict everyday because my doctor only gives

[me1712]

the long term effects that are not studied enough because it's "not profitable" for them. We have a rare disease that gives us the same amount of pain in one day than most people will never feel their whole lives, this is not fair to us. I had a good job before and i lost it from this.

[me1712]

I'd really appreciate an opertunity to talk to you about everything i've been through and i need advice on explaining this to my mother and boyfriend. My TN started in Fall 2005. As of July 2007, i was fired from my job because I had used a lot of time to visit Doctors, endos, ent's with no luck. I'm not sure if u know this yet but the type 2 tn that i have is the equivilant amount of pain terminal patients feel...but we are not terminal...yet there is research i will frwrd you that tells the

[me1712]

Tesla,

I'm in bad need of advice. It took me years of going to dentists, having 2 root canals, one extraction which the doctor botched and broke off a piece of bone root in my mouth so he had to do a gum surgery. I live a rural area in the united states, with the U.S. healthcare syst. I cannot find any dr that has experience with TN. My mom thinks i'm making it up just to try and get pain killer (which i am trying desperately to get but I am 28 years old and i look like i'm an 18 yr old teen

[itzbabyphat921]

i wish i could be there for u, i hate seeign you cry one day all your pain will disspapear god bless u

[teslagirlM]

Thank you for your kind words! Bless you!

Marlo

[teslagirlM]

thanks for your comment : )

I hope that through your medical studies, you do something great. There are people who suffer every day with this. I am one of the lucky ones, as it happens only when my MS flares up.

Bullet points don't really cut it, do they? LOL

Marlo

[dantjekorantje]

thx 4 inviting me! hugs

[CaliCousin]

I admire and appreciate these videos. You are giving valuable information and, most importantly, giving people the feeling that they are not alone. Thank you for reaching out to others this way, Marlo.

[teslagirlM]

Thank you. I wanted people to see that I cannot always laugh, but one must soldier on anyway.

[leonharts]

What a horrible disorder... I give you my heart and prayers. May God help you with your pain! My mom has this disorder and I want to cry whenever i see her in pain... she' sonly developed it VERY RECENTLY!

[teslagirlM]

thanks for your prayers. I am quite lucky that it doesn't happen all the time for me.  I will keep your mom in my prayers as well and please remember there are treatments and support for this!

Marlo

[carlogiovanni]

I'm inspired that in a moment like that you wanted to capture it to later share. What treatments are you on for NL? Is surgery an option? How long has it been happening to you? I never heard of it until now, but it sounds and looks truly hideous. I really love how upbeat and positive you are in most of your videos but that would never detract from my understanding of the difficulties you face each day.

[teslagirlM]

Thanks. I almost didn't put the video up. I had my camera all set the night before so that I could do a lovely vlog about I forget what. Then I woke up like that, and I thought, 'maybe this is the video I was meant to do today,' so I just rolled the tape. I never let anyone I know see me like that and I felt it was time that people see another side of MS. I don't get it often enough to opt for surgery, but it has been part of my symptoms since 2005. So many people have it, I'm sorry to say.

[oldcourtbray]

thank you for doing that video.I could never understand that pain. I naver found a doctor that helped me like you just have.All I do be TOLD is thats just your MS.

[teslagirlM]

That is completely unacceptable that they told you that, I hope that you will be on their arse and tell them that you want to be treated for TN. I am glad that this vid helped you in some way. Now you need to do something about it. Keep me posted!

Marlo

[M00NWINK]

Hi I have MS since 1998 and in the past 2 yeaars have been sudderinf with EXACTLY what you describe here. I have been given antidepressssants and pain meds the neuro says go the the eye doc. eye doc says go to nneuro . pc doc says not my specialty, rheumo says not my dept go to eye doc. and the cycle continues. thanks for putting yourself out there!

[teslagirlM]

I guess it's like anything else. Some people are not good at their jobs and don't get things done. I am very lucky to have a smart doctor and incredibly astute MS nurse. They continuously amaze me. i am glad to hear that you are sorting out this out and breaking their cycle! It sounds like you are getting on the right path and I am delighted for you. I am glad this vid helped. I will keep in touch with you! keep up the fight!

Marlo

[takkjk]

A week ago I had never heard of trigeminal neuralgia. Now I know more about it than I ever wanted to know. I just left the hospital after 5 days on a morphine pump, trying to control the most unbelievable pain I could ever imagine. I have given birth to 10 pound babies, and suffered migraines off and on for years, and would rather go through either of those things a hundred times than endure one more day of TN pain. Right now I am on tons of meds, but am grateful for any relief I can get.

[teslagirlM]

It's amazing to me how fast life can change from one day to the next. I have never had a baby, but I get what you are saying. I hope people read that and understand more about TN. Are the doctors talking about doing any type of surgery? They have come a long way with it.

I am sending you healing, as not to sound like a hippy chick, but I believe humans can put out energy to help one another.

Feel better! I wish you no more pain! Let me know how it goes.

Marlo

[cujojila01]

Good for you on you pain control I understand i go to pain clinic i use fentanaly for my pain control. i give you 5 stars for even setting anything up for showing what you go through my gosh you a great women i been in bed 2 days loosing great amount of wt in pain and sick. may i ask, have you ever had social anxiety with yours i was a registered nurse isolated 3 years now just mom stops by to help once 2 days or so. but i am progressively become scared of people do you know anything about this

[teslagirlM]

thank you for your comment. I don't know much about social anxiety, except I'll share this. I have had mild to severe depression, even before I had MS and all this pain. I know that pain changes you. You can't be the same person after feeling chronic pain, however, you can stop it from making you fearful. Pain is an isolating thing? why? because many people cannot understand what you are going through, but remember many DO understand. I turn pain and fear of more pain into anger, which (cont..)

[teslagirlM]

I find that anger and spite make me get out and do more things. The more you get out, the more you'll keep getting out. tell yourself today is the day I stop getting scared of people. Today is the day I use my strength that is inside me!

I imagine you are also seeking a councellor of some sort? this would be good, as they are trained professionals.

I am a stranger, and I believe in you, so believe in yourself!

I'm sending you light right now,

Marlo

[DoctorlaNa]

this pain is exactly what I'm suffering from .. but I don't have an MS ..

The worse thing in TN is emotional feeling .. and because of pain you will be so depressed :(

thanks for sharing ..

[teslagirlM]

Thank you for posting. I am sorry that you have this kind of pain too. i agree about the depression, but at the very least we can find solace in knowing we are not alone. Having said that, pain IS draining. I am not the same person I was before I started feeling so much pain. I think it made me a little crazier, actually. ; )

[dmplaura]

I'm just finding this video now. I've been through type 1 and type 2 TN. Type 1 being the stabbing shooting pain that's centralized to 1 area, type 2 being the atypical version (which I experience almost constantly now, for the last 2-3 months). Weather pressure changes trigger mine, so do hormones. Ultimately the MS is the evil behind it. I wake up feeling fine, 30min to 1h later, the pain starts, and it's there daily. The only drug I've been having success with is Clonazepam.

[teslagirlM]

You know, it's funny what you say about weather pressure, because I definitely feel this sets it off many times. Thanks for telling us about Clonazepam. I wish you a happy pain free new year!

[lastpat]

Hiya. I am glad the mighty green option worked for you.

My herbalist advises, no dairy or wheat...plus, I try to eat organic. Booze kills me. I cant use my arms properly...my hands dont know where my head is.

Did you hear about the new leukemia drug that seems to be doing wonders. Folk wheelchair bound can walk. Minimal side effects. I am waiting for that...

Good Luck.

Kylie

[teslagirlM]

Hi Kylie,

I think your herbalist has the right idea. I think dairy and wheat are proven to flare up all kinds of diseases. I am a great lover of cheese, so I find it very hard to give up dairy LOL!

Which Leukemia drug? Is it alemtuzumab (campath)?

Thanks for posting and sharing info! Happy New Year!

[lizzy890]

This video made me cry a bit too...

I know what you feel. The potato peeling, the screw driver in the eyes. I too have optic neuritis and I experience sensations in my eyes very often...it's scary and painful. I can't imagine what it must be like to feel pain in the face. At times, I feel as though something lies behind my face, it's somewhat painful but it's bearable for me. I wish you better days, please don't cry, it hurts to see you cry.

Lots of love, hugs.

-Liz

[teslagirlM]

A big hug back to you! I am sorry you get so much pain with the optic neuritis. You do not deserve any of this crap, Liz!

Thanks for your well wishes! Not to worry, sometimes a good cry is needed!

wishing you love and light,

Marlo

[mikejmbj]

Omg you are soooo brave .. i have watched your videos and wanted to give you a big (hug) I am in the middle of tests for MS i think your really brave

Rach xxxx

[teslagirlM]

Hi Rach, Thank you very musch. I am not brave though. I save that for firefighters and the like. I suppose you must be having an MRI, etc. I wish you much luck and strength! Keep in touch! I'll take the hug, too!

Thanks,

Marlo

xx

[Britton001]

I feel for you. My mom was diagnosed with Trigeminal Neuralgia a few months ago. She also cried at times because the pain is so bad. She was just out to the Mayo Clinic in Minnesota for the 4th time. They did biopsies and CT scans. She has a non cancerous lesion in her left nasal cavity, but they said that isn't causing the pain. They have her on Gabapentin. It worked great until she went back out to the Mayon clinic, but she's in a lot of pain again.

[teslagirlM]

Thanks for commenting. I am sorry that all of this is happening to your mom. The Mayo Clinic has an excellent reputation, of course, so I am sure she is well looked after there. I've been reading about a surgery that does not cut the nerve, which seems quite successful. I wish your mom to be pain free and healthy.

[jordandossett]

Thank you for sharing. I have been struggling sharing but sometimes just linking to you helps my friends/family understand.

[teslagirlM]

Thank you, Jordan. Your comment means a lot to me. I am very glad that this video has helped in some way.

Marlo

[tube4625]

green leafy thing is medical marijuana?

yes/no

thanks

[teslagirlM]

yes

[teslagirlM]

but I should mention a doctor did NOT prescribe it, although many, many doctors recognise the unparalleled analgesic effect of it. There is research in London that will eventually separate the hallucinogenic part of cannabis and put the pain managing part in a pill form. It is probably a step up from Sativex spray, if you have heard of that.

[dufberna]

Hi! there, brave Woman indeed,i think people should be aware of the pin involved with illness, that very often nobody sees as people hide there pain a lot ,good for you and i will say a pryer for you.

Bernie Gifted and learning

[teslagirlM]

Hi Bernie,

Thank you. I will say a prayer for you as well. It all helps! Glad to see another Kate Bush fan, by the way. ;)

[vbeachy]

Thanks for this video Tesla, I think too often people like to glance over the bad stuff. I DO have a positive attitude about MS; I am positive MS sucks.

[teslagirlM]

I agree. Well said!

[KerryMakis]

darling look up Gerson Therapy....It cures MS.....truely...please look it up

[teslagirlM]

Thank you. I will indeed look into this. I do believe that we have the power to heal ourselves.

[bvaleriea]

Thank you for being able to put what I have felt on video. I am not able to video but while we are all different, you did capture the feelings and thoughts that go along with this fight we do each day, sometimes in armour of smiles and sometimes in agony of tears.

[teslagirlM]

I am sorry that you get this too. I am taking guitar lessons and had the camera set up to show off how well I'm doing after only two weeks playing. LOL. I am usually in no state of mind to record myself in pain and not willing to show how crap I can look. But then I thought, 'other people suffer with this too, so I am going to share it.' I wish you pain free days ahead!

[bbcalifornia]

Thanks for showing this side of MS. Too often we suffer in silence, not wanting to burden our support circle and not wanting to admit when the pain is too great to "gut it out". Sometimes the pain can be overwhelming, and to see you brave enough to share the bad days gave me strength. Glad to see you are feeling better.

[teslagirlM]

Thank you for posting and for your kind words.

It is true, we do suffer in silence too often. Be well.