Yeah I'm 25yrs old with CF... 26 this year! I'm just coming round to the fact that I can accept my fate, a shorter life... but I've already packed so much stuff in already - good and bad lol, that I'm starting to just be happy to be alive... I think this is because I haven't had hospitalization for IV's since I was 8yrs old and my health is slowly declining and I know IV's are in the post... but I'm constantly fighting it, and I seem to be beating the odds! But - CF needs to be Cure Found... :)
I just found out that my friend Has CF.... I'm posting this on my Facebook every week now so others can learn about this... so maybe one day the really can be a CURE!
Brave people. Had it been me, I would have given up living along time ago. I guess the reason here is that I was born healthy and so to think of something like this makes me see life isn't worth living, or maybe I'm just a coward. Either way I hope them strength and happiness.
@teawead I almost did give up living between age 16-23... many depressive spells and a few suicide attempts, but in the last few years I've became happy again... CF is not gonna stop me living my life, mentally or physically - I've realized it's quality, not quantity of years that really matters :)
If you can't afford a new Hill-Rom Vest System, consider a used or refurbished one with a warranty. Available from a small Colorado company called AffordableMedEquipment 303 776 6007.
@TylerKostyshyn fail troll..fails, you're the only pussy I see here.Those people have more courage than you'll ever know in your lifetime. Stop being a keyboard coward and growup.
I have cystic fibrosis and the blonde girl is how i feel sometimes. Luckily i am able to go to school and everything else. I'm real lucky so far. <3 love all my cfers known and unknown
@amycurecf2girls Any risk is too big. Life is all downside risk. The nonexistent are in peace there's no reason to bring them to this shit hole. NOBODY should have children no matter who they are. Parents need to begin pointing the fingers at themselves, because if not for their own selfish needs to play "adult" none of this pain would be going on. I wish parents like you would begin campaigning for Antinatalism and bring awareness that life is a stupid imposition. All pain's a waste.
Why are parents having children when they know they are putting them at risk to go through all of this. No one should impose life and eventual death on child but especially if you know you are carrying a gene like this. Learn about Antinatalism. Every bit of pain is caused by ignorant people who think there is anything good about reproducing.
@land9631 were not put our kids at risk its a 1 n 4 chance that they get CF. and me n my husband didnt even know we was carriers so shut your face how dare u put blame on us we blame ourselves enough as it is
i am 15 i have cystic fibrosis and i dont fuckin care if i die in 25 or anything like this until now i am very well with my health but yeah you always think whats how if you dont have it and if you go in to the hospital for a treatment you are so weak but fuck it i want to have fun with my friends and end it like this if i die in early age just like the guy in the top comment said soz for my english i am from greece
my sister has been really unwell recently and has been in the hospital for the last 5 weeks her blood infection is high and has made her really weak and she needs to be well enough for the operation. doctors are rushing her to get better for her transplant evaluation by next monday! if she's not well enough for the transplant evaluation she will be refused and there wont be another evaluation as were running out of time!!!. blog.aisling.co PLEASE follow and give her your motivation and support!
@oliverjumelle my sister just dies from this 2 days ago.. she did everything she could.. but she took control and decided enough was enough... rest in peace aisling.
@deckoland i share your pain. we are both heartbroken. my condolances to you! do you mind me asking what age your sister was? rip to aisling your sister and rip to laura
A very heartfelt thank you goes out to a certain young lady who was not afraid to spread awareness and share what it was like to experience her daily struggle with Cystic Fibrosis.
You would have been 30 today. God bless you Siobhan.
@Requiem4Defeat77 when did siobhan pass away?:( my amazing cousin lauren lost her cf battle last december and this video makes me think of her because she looked and sounded just like siobhan
@marleeelaina It would not doubt it that your cousin may have appeared remarkably similar to her. The symptoms of people that have CF or any chronic debilitating illness can vary on an enormous scale, but are often very much alike when you look into their hearts and see their different perspective on life. I'm saddend to hear that you lost your cousin last year, but i'm also glad you were able to have the gift of having her in your life and being able to share how amazing she was.
a girl i know died from this last week at 23. im in ireland and im 24. i remember times when she didnt ride the school bus for weeks because she was ill or in hospital. she was i very pretty girl. im heartbroken because i had a huge crush on her at the time of her death.
I's amazing how much determination and tenacity you see in these individuals who persevere and stand up to this Illness on a daily basis.It astonishes me when perfectly healthy people lament and complain "I had to drive 5 miles with no A/C!" or "I had to stand in line for a whole 45 min, i'm gonna die!" meanwhile people with CF are saying on the inside"I can't breathe" or "Why Can't I just be normal" and yet they will come and greet you with a smile. I have so much respect for these people!
Don;t take your organs to the grave ... in the uk you can become an organ donor online. please support an opt out system in the UK .......... fight the RCN who are against it.
I am 18 and living with CF. My parents were told I wouldn't live to be past 16 years of age. Yet here I am!! CF makes you a stronger person. We know what it's like to feel like crap every single day, but the good Lord keeps us on this earth to bring His name glory until He's ready to take us home. I can't wait.
@CFtoria Life is a terminal disease, so in that, Cystic Fibrosis is a terminal disease. But terminal is described as not having adequate treatment or a cure. Cystic Fibrosis treatments are increasing every day, and the treatments that are being found (VX-770) are a step closer to a cure, every day, and the treatment is keeping people alive decades longer. The Cystic Fibrosis Foundation describes it as chronic.
@mhanley92 I guess it's all a matter of what you think is the definition of Terminal is. I grew up learning it's terminal because in the end (right now) it'll kill. But if there are new cures found, we will live longer and happier. The reason I am told it is terminal is because the treatment is not a cure, and sadly, you will still die (most likely) from CF even with it. To me, if you get treatment, but you still dieyoung, that wasn't very adequate treatment. But the future may be different.
I hav cf. i pray that if i die i dont want any one to go staight for my disease "oh it was her disease" and not try to solve the problem! every morning i wake up and are just happy that i am alive. COME ON PEOPLE HELP KIDS LIKE MY FIGHT FOR OUR LIVES BY WALKING THE GREAT STRIDES OR DONATIONS!
I am a 12 year old girl with Cf i know how it feel to have this crappy disease. i have both lung and digestive system issues idk about reproduction. I know how the blonde girl feels i am in and out of the hospital every month or every other. My parents hav considered a lung trasplant but we will probably save that till i am 16. i know one thing it is true that alot of people with Cf wish they were normal and people who are just fine hav taken life for granted!
Im 27 waiting for my double lung transplant.. Im terrified yes.. But if not for my cf i wouldnt be who i am today. I have friends and loved ones n i have made an impact in other peoples lives. To all those who share this disorder never give up no matter how hard it gets.
18 year old with cystic fibrosis, genuinely scared about my future. i don't smoke and have gave up drugs (cocaine etc) going to try and do all my medicine daily and gym 3 times per week, i have been trying a course of Testosterone IM injections and found that it does help with energy,appetite and weight.
In September 2012, 4 friends will try to defy all odds in a unique cycling challenge. Cycling from Hastings to Barcelona and Back! 2000 Miles, 7 days, Non-Stop! All to raise £50.000 for Cystic Fibrosis Trust.
Sad how young people that do not have any terminal illness take their lives for granted and want a perfect fairytale lifestyle and those who are afflicted know that a shot at any normal lifestyle would be a fairytale but most of those wishes are never granted.
In Australia, we are taught about Cystic Fibrosis in our High School Human Biology course. I believe if more people can become aware and educated about CF, as they are through school and videos like these, i'm sure many will be inspired to help fund and find a cure, it's not long now, live in the reality that there will be a cure soon.
My friend has CF. I've known her since seventh grade, it's been about 8 years now and she's still alive at the age of 21. I never knew the extent as to how bad her condition was until 3 years ago.
to all of those with cf, there is hope. a cure is very near. until then stay strong and positive, for you have cf...cf does not have you. i am 26 yrs old with cf and run/exercise daily, training for a marathon. it is a must if we want to beat this disease. stay strong cf'ers.
hi i am 16, 17 in three days and have had CF my whole life. Its so heart breaking to see that there are so many CF kids/teens/adults who are so sick from cf. This video made me cry, and it is really eye opening. The saddest thing about it is that there are so many people who have no idea what Cystic Fibrosis is, and i am so sick of explanning it when people ask because people don't no what it is. its about time that people were aware about the struggle that we have to go through everyday!
I am a 22 year old with CF and I am sick and tired of watching my CF friends dying at such a young age from a disease that is not their fault. It's why I find smokers disgusting. Why are they killing the one organ that is vital for life, and that so many young people like myself would make better use of. It's harder then it seems, dealing with a genetic disease. We just have to pray for a cure and fight for our lives. I wouldn't wish it on my worst enemy. So donate your money and organs for CF!!
Everyday you spent with him, he knew you loved him and he WAS taken very good care of by you. He knew you were there and you should feel good that you were there to keep him strong and deal with his illness as strong as he did. You are a strong man and you make Mike Tyson look like a mouse!
i have cystic fibrosis and im 15 yrs old i havnt had any lungstransplant but i do go to the hospital alot and i do get sick but im fighting to live longer im only 15 i wanna be 39 and still b alive PLEASE FIND A CURE FOR CF !
I wanted to cry when the blonde hair girl in the hospital really started to cry, she is so scared, I just wanted to reach through and hug her...I am sending prayers
I was told I have 6 years left to live. I'm 18. I refuse to go into a hospital. I've only been once when I was in middle school. I want to to remember my short life as having fun with friends and family not doctors. I punched the doctor that told me I was going to die. I don't want to know when or why. I just want to be happy and if it ends, it ends. Death is inevitable. I don't fight in a hospital I fight for memories of friends and family. Remember me as the person I am, not what I died from.
@cjoy57 please don't give up. why arent you on the transplant list?. i know siobahn is scared in this video but there will come a point where it will give you a chance ... a 50 per cent chance to live is good for us and siobahn is not here anymore. she waited too long and her new lungs never came.. what is your fev1?. please if you need any help or advice, you can write to me. i know what you are feeling but life is a beautiful thing. Don;t give up xx
Hello Everyone .. I am 39 YO Male from Long island NY
I have CF And had a Double Lung Transplant Done March 9th 1999 ...
I am happy to say that I have Near Perfect PFT's ... and feel great for the past 12 years ..I was Followed in NYC St. Vincents ... By Dr. Jack Jacoby ( who Also Had CF) .. I Told Him I want to have it done since i saw my brother die of CF ,,, So He arranged a Meeting for me to see the TX coordiantor at the Hospital of the University Of PA. Willielt1@aol.com
I have Cystic Fibrosis and i found out when i was 5 months old and was put into the hospital for 2 months i almost died! My mom and dad try their hardest 2 do whatever they can do 2 help. Ofc i do 2. I have so many doctors and hospital visits and treatments. i have had it for 13 yrs. and hate it but i thank my doctors and mom and dad that im still EVEN ALIVE!! im so thankful!!
I have struggled with severe mental illness and horrible prescription drug addiction - including a very long, ongoing process of withdrawal - but this helps put it all in perspective. My struggles are not physically life threatening, and I know I will eventually succeed, no matter how hard it is. These people don't. Certainly my own suffering has helped me relate to them and all others like them, and create sadness and disgust at the insane greed and selfishness I see in people as well.
I am sorry you are suffering, I am 23 also a sufferer of chronic depression and OCD and know I will succeed to it one day, I think mental illnesses are no different than physical ones, as its an imbalance in the brain. I might sound morbid, but I know I will either start abusing pills or drugs or alcohol and overdose or just do suicide, I fight like a monster, yet nothing has made the Serotonin levels normal for years.
No government funding? That is insane!! This was so beautiful, so sad, so heartbreaking, so vulnerable! You are all so wonderful and I pray that there is a cure for this disease! All of you, please know that God sees every tear you cry, He knows every hair on your head, He knew your name as you were knit in your mothers womb! God knows the cure for this disease..PRAY PRAY PRAY!!!!!
Can anyone tell me what is a best case scenario for people with this affliction? I just learned that a newborn family member of mine has this and there is too much info to sift through. What is the deal with this?
don't be scared, ive got CF and im 15. It take a hell of alot of physio and determination to keep on top of it, but it is possible. I'm healthy at the moment, i'm playing all the sport i can fit into a week, and im blessed enought o have many friends. The hospitalized patients in this video are probably the worst case scenario that a person affected by CF can have. All i can say is, as he/she grows up, don't keep him/her in the dark about the consequences of Cf. They need to know what it will
@MrGrevy (ran out of characters) They need to know what it will take to stay well, and from my experiences, it takes a hell of alot of physically hard work. Although CF certainly doesnt have a positive impact on a persons life, i have made great bonds with my physiotherapists and doctors. If you want to see probably a best case scenario CF patient, google Nathan Charles; he's a rugby union play here in australia who has CF. He's an inspiration :)
@MrGrevy don't be scared, ive got CF and im 15. It take a hell of alot of physio and determination to keep on top of it, but it is possible. I'm healthy at the moment, i'm playing all the sport i can fit into a week, and im blessed enought o have many friends. The hospitalized patients in this video are probably the worst case scenario that a person affected by CF can have. All i can say is, as he/she grows up, don't keep him/her in the dark about the consequences of Cf.
man i cried hardcore watching this..im just glad that i gave my fiance a great last year..and gave not only him but myself a chance to experience true love.. gosh i miss his so much! RIP JONATHAN ARLEDGE...
ps- they make cf'ers sound like they cant do much.. they can do whatever ever other person can do.. and i never saw jonathan as sick i saw him as my loving goofball of a boyfriend(fiance).. we will find a cure!
I'm 14 and have Cystic Fibrosis. I'm going through lots of treatments and difficulties, but I just want to live the happiest life I can no matter how short it is! So keep fighting everyone, cus we can get through this! :D
Heya, im a person from ireland with CF and were doing a facebook event to raise awarness of Cystic Fibrosis (the most important part) but also to get a Guinness World Record, if ye all could join and spread the word it would be great. just type into facebook "make cystic fibrosis aware by trying to break a world record". All support would be very greatful
your not supposed to tell anyone what your wish is, thanks alot she better not have jinxed it. bless up and respect to them all, i was diagnosed at 6 months old, managed a reasonably normal childhood with only 2-3 admissions for i.v's a year up until i was 17 then its got worse and worse, im 22 and have to do nightfeeds and overnight oxygen and am in hospital around every 2 months. i also have cystic fibrosis related diabetes so on top of nebulisers and all my tablets and phsyio i have to bm
i have Cystic Fibrosis, I play musical instruments to stay healthy from it, i play the Tuba, Baritone, Euphonium, and the Valve trombone. I have been sick 2 times(hospitalized) in my life thanks to my instruments, I say to myself all the time, I will not let the CF beat me, It may be hard for me to run, or do anything involving breathing but it wont win, my brother died because of this and it wont beat me
To everyone living with CF; don't stop fighting. Don't give up, don't give in, beat all odds! To everyone who knows someone, close or not to you with CF; encourage them, be there for them when they need you most, and make everyone moment and memory with them last forever! Hopefully one day there is a cure for this horrible disease. RIP to my friend Ashley, who died fighting in August, at the age of 14. Love you Ash! <3
Medical discoveries suggest that symptoms of cystic fibrosis (thick mucus etc.) develop only in conditions of tissue hypoxia (low oxygenation of cells). You can get these studies if you search for "cystic fibrosis oxygen cells". Clinical experience of Russian MDs testify that cystic fibrosis is reversible if you know how to breathe correctly (for maximum body oxygenation) 24/7. Success.
Reading the studies cited at the bottom of that site you're referencing, there may be something to be said about low-grade cases of CF being able to lessen with that. NONE of the studies cited from peer-reviewed journals said anything about human testing of this hypothesis in humans - the closest was in mice with engineered CF getting WORSE under low-oxygen conditions, but never BETTER under high-oxygen conditions.
CFTR expression is controlled by tissue hypoxia in a dose dependent manner, both ways. All available medical evidence yell that minute ventilation in CF is above the roof. You can google for "cystic fibrosis hyperventilation".
If you ask CF people, they say breathing more is good! The real problem is that the medical community does not deal with hyperventilation. There is no a single trial where doctors could normalize breathing. Most CF people die from respiratory complications...
I can ONLY imagine how difficult this is, and appreciate your sharing this part of yourself with everyone...May God Bless you and give you some measure of health and GOOD DAYS!
my dad died of cf when i was 2 and i still miss him alot but now i feel a littel bit better becasue my grandfather started a cf foundtion in new york at beth isrial now we can start finding a cure for cf
My 18 year old daughter has Juvenile Huntington's disease,a degenerative terminal illness.It's taking her mentally and physically over time.I have to help her with every need now.You can fight your disease hun,never give up.xx
Johanna Johnson, my future wife, lost her battle with C.F. This past Saturday. She had a double lung transplant 3 years ago and began to suffer chronic rejection these past 6 months. She was a senior at the University of Alabama. I am told that C. F. Patients rarely make it out of there teens, Jo was 30 this year. Through it all, she never gave up, living one day to the next. I prefer to think of her the way she lived, strong, never yielding, and in the grace of god. I miss you my Lady!
i was told i wasnt goin to make it passed 2 and then 8 and then when i was 10 they thought i was goin to die from CF. im 17 years old now and i still dont relize how close i could be put in the hospital and die, im blessed to be in such a good condition and i need to contiunue to fight.
Can someone tell me where this video was made? The girl in the hospital looks exactly like my daughter, Jenny, who had CF and passed away 2 years ago 2 weeks after her second transplant. She had her first transplant when she was 22 but started rejecting them 3 years later. In those three years she got married, moved to Florida with her husband and continued working on her College degree.
my name is nikita and my partner is adam he has cystic fibrosis . he s 28 and i value every day with him hes amazing so strong . it is a huge worry when he goes into hospital and every day of his life . my heart goes out to all the people with cf seeing somebody that you love ,struggling with this illness is heart breaking.
This is a very sad but amazing video. I am the mother of an 18 year old daughter with CF. Please help us find a cure for this disease before it is too late. PLEASE become an organ donor.
If this upset you please make sure you are a registered organ donor. why creamate or bury organs which can offer a second chance for young people like siobahn ...... why not do something good for somebody else after you have gone. you are not going to need those organs :( RIP Siobahn x
I hope every person in this world gets Rid of CF! I am a biology student! i was going through some informations about Cf so yes this video came up! tears were rolling down my cheeks!! I hope Almighty Allah will help everyone whose suffering from this!!!
I hope every person in this world gets Rid of CF! I am a biology student! i was going through some informations about Cf so yes this video came up! tears were rolling down my cheeks!! I hope Almighty Allah will help everyone whose suffering from this!!!
My cousin, 27, died from CF in December. She talked the exact words of the girl in this video. She always talked about how she wanted to get her new lungs and travel and get married. Sadly, she died due to respiratory failure. She didnt have enough time to get the new lungs.
This video really made me cry hearing the words spoken and dreams. <3
@c140pilot do not listen to them. those people are desperate because of a reaon. they didnt take care of themselves. its wrong. i have it and theres a good chance of turning 60 if you want to. this is some shit!
@Geibaby37 Hey, guess what jackass? CF can develop more rapidly in some individuals. So before you tell me and others who aren't doing that great that it's OUR fault, you go fuck yourself?
I have this! Just found out last month. I'm 18 years old, and fighting hard! This is a great video, and it reminds me how blessed I am to still be up and kicking. Lots of hospital visits and treatments, but I'm ALIVE and thankful. Keep workin', CF buddies. We got this.
@Republican21 How did you manage to survive that long without treatment?! Im only 15 and am in the hospital constantly. In fact im in the hospital righht now typing this. Im very curious....please tell me how you did that...
this made me bawl my eyes out!! although i dont have CF i do have a rare mitochondrial disorder!! it breaks my heart to see others suffer!! god bless you all!
nopt everybody with CF dies young, I would know. I have CF, I am 14, I am 130 pounds, I have never been in the hospital for my lungs, and I am hoping I stay this way for a while. Yet again I have a very very weird mutation...and I dont like hearing that people die from it SOOO young because some people dont and it makes me very very depressed...
@1unikinz1 I have CF. I also have a mild mutation, and at your age I also had never been hospitalized. It wasn't till I was 17 that it really hit me, and I had to be hospitalized for the first time. Take it from me: Even though you probably feel almost completely normal, don't get lazy with your treatments as I did. Keep at it strong as if you were sick. It will really help in the long run. I'm 24 btw.
@DerDoenerLando Cystic Fibrosis is a disease that is inherited that could cause thick, sticky mucus which would build up in the lungs and digestive tract. This is one of the most common inherited lung diseases in not only children, but also young adults which could lead to an early death.
This is so depressing. My friend has CF. When some other kids were talking about CF who had no idea what it was I told them that it could kill people and they told me my friend has it and when I said I know they called my friend over and I felt really bad because we never talk about it. The kid went "are you gonna die because she said you're gonna die", wow that made me angry. They continued to write that my friend was going to die soon, I'm still trying to contain myself
@gorilarat24 Kids can be so cruel, but there's no excuse for this type of behavior. These kids are NOTHING MORE THAN IGNORANT BULLIES who are looking for attention. Little do they realize they could die tomorrow by being hit by a bus! Correct the kid who quoted you by saying that everyone eventually dies whether they have CF or not. BTW, I was dually diagnosed with CF and diabetes at the age of 16 and will be 51 in May! Tell your friend to keep her chin up and be proud of who she is! :)
@packleader38 I've got CF and I honestly cannot describe how I feel about smokers. Most of them are given lungs which are perfectly healthy but they go and mess it up by knowingly wrecking them. I've never smoked in my life and my lungs are worse than theirs. It hurts inside and kind of makes it seem like they are being selfish and disrespectful.
@Twirler1995 I know how you feel. I get so aggravate when I see perfectly healthy teenagers and adults slowly throw away their life. Yet I am here doing everything I can to live but It is just not enough.
@packleader38 Like I said before, It aggravates me! Here I have something that I initially have no control over, yet I do what I can to stay healthy. But now there are a lot of people that do have a choice, but just throw it away by smoking. Honestly, It is not fair.
I also haveCF. I'm 26. I feel very lucky in that I'mmarried, something Ithought I would never live long enough to do. It absolutely kills me to see the younger kids with this disease, knowing that most will never have anopportunity at a normal life, too many willnot even reach 18. One this I want to say is: Don't pity us, pity the people that love and have to watch what this disease hurt us. Both my family and my wife live in constant fear that they wil lose me too soon, so pray for them.
i have cf and im 17. ive been healthy overall but there are some days when i have 0 hope or when i hurt really bad. please let there be a cure soon. we need it so bad. this suffering needs to stop.
i have cf and i had a transplant 6 years ago in may it went great i was only in hospital for 10 days all up. but i say now to ppl looking at transplant think so hard i enjoyed mine but a year into it i got sick breathers went from 3Ltrs to .8 in a 24 hour period and i was given three months to like and that was 3 years ago and not im on oxygen 24/7 but that doesnt slow me down i still party drive and have fun im not 25 and loveing life. just remember stay positive :)
my daughter has c/f and has no friends with it i found this outlet we have vlogs of whole family but would love for you to sub. so she sees others with her ailment im ditalydo on u tube
this was so sad....I hope the little gal who said her lungs were shot got her transplant and is doing better...I have chronic severe asthma and know how bad not breathing well is...when I see people smoking, it sickens me that people take their health and life for granted.....and the dad who could not help his son...well, I know even tho you could not save him, you would have traded your life for his...God Bless and keep all of you.
I always have such a hard trouble making myself do all my medications and treatments...i wish i was a little more consistent
BryceD546 11 hours ago
Yeah I'm 25yrs old with CF... 26 this year! I'm just coming round to the fact that I can accept my fate, a shorter life... but I've already packed so much stuff in already - good and bad lol, that I'm starting to just be happy to be alive... I think this is because I haven't had hospitalization for IV's since I was 8yrs old and my health is slowly declining and I know IV's are in the post... but I'm constantly fighting it, and I seem to be beating the odds! But - CF needs to be Cure Found... :)
harKazoid86 2 days ago
I just found out that my friend Has CF.... I'm posting this on my Facebook every week now so others can learn about this... so maybe one day the really can be a CURE!
whyusogay 2 days ago
Brave people. Had it been me, I would have given up living along time ago. I guess the reason here is that I was born healthy and so to think of something like this makes me see life isn't worth living, or maybe I'm just a coward. Either way I hope them strength and happiness.
teawead 5 days ago
@teawead I almost did give up living between age 16-23... many depressive spells and a few suicide attempts, but in the last few years I've became happy again... CF is not gonna stop me living my life, mentally or physically - I've realized it's quality, not quantity of years that really matters :)
harKazoid86 2 days ago
This has been flagged as spam show
If you can't afford a new Hill-Rom Vest System, consider a used or refurbished one with a warranty. Available from a small Colorado company called AffordableMedEquipment 303 776 6007.
TheHighcountrybear 6 days ago
Can someone give the name of the first song that played at 0:30 ?
hustla1609 1 week ago
This has been flagged as spam show
Biggest fucking pussies i have ever seen, go to the gym fags. stop coughing. fucking DDR loving faggot college queers
TylerKostyshyn 1 week ago
@TylerKostyshyn fail troll..fails, you're the only pussy I see here.Those people have more courage than you'll ever know in your lifetime. Stop being a keyboard coward and growup.
PastDolGoal 1 week ago
@PastDolGoal i forgot to sign off youtube at my friends house. it wasnt me
TylerKostyshyn 1 week ago
I have cystic fibrosis and the blonde girl is how i feel sometimes. Luckily i am able to go to school and everything else. I'm real lucky so far. <3 love all my cfers known and unknown
jmacjr101 1 week ago
This has been flagged as spam show
@amycurecf2girls Any risk is too big. Life is all downside risk. The nonexistent are in peace there's no reason to bring them to this shit hole. NOBODY should have children no matter who they are. Parents need to begin pointing the fingers at themselves, because if not for their own selfish needs to play "adult" none of this pain would be going on. I wish parents like you would begin campaigning for Antinatalism and bring awareness that life is a stupid imposition. All pain's a waste.
land9631 2 weeks ago
Comment removed
land9631 2 weeks ago
fuck this is sad, i need a smoke
imgordonfreeman 2 weeks ago
My best friend and her younger sister have CF. Thank goodness for research and many, many people donating, they are able to be happy and healthy. <3
homegirlaslice 3 weeks ago
My aunt actually died from Cystic Fibrosis about 4 years ago.. seeing other people go through what she went though is soo sad):
SsHhAaUuNnA14 1 month ago
Why are parents having children when they know they are putting them at risk to go through all of this. No one should impose life and eventual death on child but especially if you know you are carrying a gene like this. Learn about Antinatalism. Every bit of pain is caused by ignorant people who think there is anything good about reproducing.
land9631 1 month ago
@land9631 were not put our kids at risk its a 1 n 4 chance that they get CF. and me n my husband didnt even know we was carriers so shut your face how dare u put blame on us we blame ourselves enough as it is
amycurecf2girls 2 weeks ago
RIP Siobahn ... she reminds me of me :0(
EIizabethx 1 month ago 2
@EIizabethx she died? =( that's so sad
jmacjr101 1 week ago
i am 15 i have cystic fibrosis and i dont fuckin care if i die in 25 or anything like this until now i am very well with my health but yeah you always think whats how if you dont have it and if you go in to the hospital for a treatment you are so weak but fuck it i want to have fun with my friends and end it like this if i die in early age just like the guy in the top comment said soz for my english i am from greece
cukGRAFFITISTREET 1 month ago
my sister has been really unwell recently and has been in the hospital for the last 5 weeks her blood infection is high and has made her really weak and she needs to be well enough for the operation. doctors are rushing her to get better for her transplant evaluation by next monday! if she's not well enough for the transplant evaluation she will be refused and there wont be another evaluation as were running out of time!!!. blog.aisling.co PLEASE follow and give her your motivation and support!
deckoland 1 month ago
@deckoland my friend died from this last week
oliverjumelle 1 month ago
@oliverjumelle my sister just dies from this 2 days ago.. she did everything she could.. but she took control and decided enough was enough... rest in peace aisling.
deckoland 1 month ago
@deckoland i share your pain. we are both heartbroken. my condolances to you! do you mind me asking what age your sister was? rip to aisling your sister and rip to laura
oliverjumelle 1 month ago
@oliverjumelle thankyou, no not at all.. she was 20.. ;)
deckoland 1 month ago
soo young! rip to her. and to laura age 23
oliverjumelle 1 month ago
this is so sad it makes you take a step back and think about what you have in life!!!
msyoungmoneyfan11 1 month ago
She looks GOOD!
WildManChrisVEVO 1 month ago
@WildManChrisVEVO Never judge a book by the cover.
Doctoratkins 1 month ago
A very heartfelt thank you goes out to a certain young lady who was not afraid to spread awareness and share what it was like to experience her daily struggle with Cystic Fibrosis.
You would have been 30 today. God bless you Siobhan.
Requiem4Defeat77 2 months ago
@Requiem4Defeat77 when did siobhan pass away?:( my amazing cousin lauren lost her cf battle last december and this video makes me think of her because she looked and sounded just like siobhan
marleeelaina 1 month ago
@marleeelaina 6/24/08
Requiem4Defeat77 1 month ago
@marleeelaina It would not doubt it that your cousin may have appeared remarkably similar to her. The symptoms of people that have CF or any chronic debilitating illness can vary on an enormous scale, but are often very much alike when you look into their hearts and see their different perspective on life. I'm saddend to hear that you lost your cousin last year, but i'm also glad you were able to have the gift of having her in your life and being able to share how amazing she was.
Requiem4Defeat77 1 month ago
a girl i know died from this last week at 23. im in ireland and im 24. i remember times when she didnt ride the school bus for weeks because she was ill or in hospital. she was i very pretty girl. im heartbroken because i had a huge crush on her at the time of her death.
oliverjumelle 1 month ago
I's amazing how much determination and tenacity you see in these individuals who persevere and stand up to this Illness on a daily basis.It astonishes me when perfectly healthy people lament and complain "I had to drive 5 miles with no A/C!" or "I had to stand in line for a whole 45 min, i'm gonna die!" meanwhile people with CF are saying on the inside"I can't breathe" or "Why Can't I just be normal" and yet they will come and greet you with a smile. I have so much respect for these people!
Requiem4Defeat77 2 months ago
IF CYSTIC FIBROSIS WAS A MAN I WOULD TEAR HIM LIMB FROM LIMB!!!!!!!!!!!!!!!
Requiem4Defeat77 2 months ago
AH.... 240p......we meet again
natedogg23m 2 months ago
RIP Siobahn .....
Don;t take your organs to the grave ... in the uk you can become an organ donor online. please support an opt out system in the UK .......... fight the RCN who are against it.
ElizabethRx 2 months ago
Rip Brian Larsen <3
Jflymax 2 months ago
This has been flagged as spam show
When the boy's dad started to cry, I wanted to go over to America and comfort him.<3
Nommerr 2 months ago
Comment removed
Nommerr 2 months ago
I am 18 and living with CF. My parents were told I wouldn't live to be past 16 years of age. Yet here I am!! CF makes you a stronger person. We know what it's like to feel like crap every single day, but the good Lord keeps us on this earth to bring His name glory until He's ready to take us home. I can't wait.
froggyj24 2 months ago
This has been flagged as spam show
@froggyj24: There is a naturopathic approach for cystic fibrosis on my channel in the comment section.
4chango 2 months ago
=[
DrSatan187 2 months ago
@mhanley92 Cystic Fibrosis is a terminal disease.
CFtoria 2 months ago
@CFtoria Life is a terminal disease, so in that, Cystic Fibrosis is a terminal disease. But terminal is described as not having adequate treatment or a cure. Cystic Fibrosis treatments are increasing every day, and the treatments that are being found (VX-770) are a step closer to a cure, every day, and the treatment is keeping people alive decades longer. The Cystic Fibrosis Foundation describes it as chronic.
mhanley92 2 months ago
@mhanley92 I guess it's all a matter of what you think is the definition of Terminal is. I grew up learning it's terminal because in the end (right now) it'll kill. But if there are new cures found, we will live longer and happier. The reason I am told it is terminal is because the treatment is not a cure, and sadly, you will still die (most likely) from CF even with it. To me, if you get treatment, but you still dieyoung, that wasn't very adequate treatment. But the future may be different.
CFtoria 2 months ago
I hav cf. i pray that if i die i dont want any one to go staight for my disease "oh it was her disease" and not try to solve the problem! every morning i wake up and are just happy that i am alive. COME ON PEOPLE HELP KIDS LIKE MY FIGHT FOR OUR LIVES BY WALKING THE GREAT STRIDES OR DONATIONS!
sassyalek1 2 months ago
I am a 12 year old girl with Cf i know how it feel to have this crappy disease. i have both lung and digestive system issues idk about reproduction. I know how the blonde girl feels i am in and out of the hospital every month or every other. My parents hav considered a lung trasplant but we will probably save that till i am 16. i know one thing it is true that alot of people with Cf wish they were normal and people who are just fine hav taken life for granted!
sassyalek1 2 months ago
Im 27 waiting for my double lung transplant.. Im terrified yes.. But if not for my cf i wouldnt be who i am today. I have friends and loved ones n i have made an impact in other peoples lives. To all those who share this disorder never give up no matter how hard it gets.
manystylezz1 2 months ago
18 year old with cystic fibrosis, genuinely scared about my future. i don't smoke and have gave up drugs (cocaine etc) going to try and do all my medicine daily and gym 3 times per week, i have been trying a course of Testosterone IM injections and found that it does help with energy,appetite and weight.
potnoodle12 3 months ago
I was diagnosed with Cystic Fibrosis in August of this year. I made a video promoting Cystic Fibrosis awareness, if you're interested:
/watch?v=9yhNDgZoW4Q
CameroMichael 3 months ago
This has been flagged as spam show
In September 2012, 4 friends will try to defy all odds in a unique cycling challenge. Cycling from Hastings to Barcelona and Back! 2000 Miles, 7 days, Non-Stop! All to raise £50.000 for Cystic Fibrosis Trust.
Please visit: Barcelona Boomerang. com Thankyou!
frellaification 3 months ago
Comment removed
frellaification 3 months ago
and this is one of the reasons why I never feel bad for myself about anything.
UntilWeMeetAgainVic 3 months ago
Sad how young people that do not have any terminal illness take their lives for granted and want a perfect fairytale lifestyle and those who are afflicted know that a shot at any normal lifestyle would be a fairytale but most of those wishes are never granted.
vilane421 3 months ago
In Australia, we are taught about Cystic Fibrosis in our High School Human Biology course. I believe if more people can become aware and educated about CF, as they are through school and videos like these, i'm sure many will be inspired to help fund and find a cure, it's not long now, live in the reality that there will be a cure soon.
RozieeeKay 3 months ago
My friend has CF. I've known her since seventh grade, it's been about 8 years now and she's still alive at the age of 21. I never knew the extent as to how bad her condition was until 3 years ago.
TatteredandTorn728 3 months ago
This has been flagged as spam show
I am glad to welcome you on a site of association of healthy children ” 65 blue roses
google
1956cf 3 months ago
to all of those with cf, there is hope. a cure is very near. until then stay strong and positive, for you have cf...cf does not have you. i am 26 yrs old with cf and run/exercise daily, training for a marathon. it is a must if we want to beat this disease. stay strong cf'ers.
wirunnr26 3 months ago
diagnosed at 6, still fighting the good fight in my 20s, keep up the the fight and the hope :)
iatemeatwad 3 months ago
my cousin has this i just wish there was a cure :'(
jodieshropshire 4 months ago
everyone wants to go to heaven but no one wants to die
beetz15s 4 months ago
i dont have cf i have cancer and its sad when people has to go though all the is so sad
16naisya 4 months ago
hi i am 16, 17 in three days and have had CF my whole life. Its so heart breaking to see that there are so many CF kids/teens/adults who are so sick from cf. This video made me cry, and it is really eye opening. The saddest thing about it is that there are so many people who have no idea what Cystic Fibrosis is, and i am so sick of explanning it when people ask because people don't no what it is. its about time that people were aware about the struggle that we have to go through everyday!
Lucykathryn1994 4 months ago
I am Eric, 52 Years Old with CF AND type 2 Diabetes and still KICKING :)
HANG IN THERE Fellow Cf'ers :)
CTdigitalPhotog 4 months ago
thank you everyone for your wonderful posts. I pray for everyone with this disease God Bless you all, may we find a cure soon, very soon!!1
kryan364 4 months ago
I am a 22 year old with CF and I am sick and tired of watching my CF friends dying at such a young age from a disease that is not their fault. It's why I find smokers disgusting. Why are they killing the one organ that is vital for life, and that so many young people like myself would make better use of. It's harder then it seems, dealing with a genetic disease. We just have to pray for a cure and fight for our lives. I wouldn't wish it on my worst enemy. So donate your money and organs for CF!!
hotpopslollipop 5 months ago
Everyday you spent with him, he knew you loved him and he WAS taken very good care of by you. He knew you were there and you should feel good that you were there to keep him strong and deal with his illness as strong as he did. You are a strong man and you make Mike Tyson look like a mouse!
medicbr549 5 months ago
Your a beautiful girl and I wish you the best in dealing with your disease.
medicbr549 5 months ago
i have cystic fibrosis and im 15 yrs old i havnt had any lungstransplant but i do go to the hospital alot and i do get sick but im fighting to live longer im only 15 i wanna be 39 and still b alive PLEASE FIND A CURE FOR CF !
SuperGABRIELLA13 5 months ago
Heard about this in biotechnology class in 5th gtade
zedleppelin99 5 months ago
I wanted to cry when the blonde hair girl in the hospital really started to cry, she is so scared, I just wanted to reach through and hug her...I am sending prayers
badasskitty888 5 months ago 23
@badasskitty888 She's just a big attention whore.
TheTexanAtheist 1 week ago
@TheTexanAtheist Let's see you take a day with CF little boy!
Requiem4Defeat77 1 week ago
This is a heartbreaking disease...
58windsong 5 months ago
my cousin recently passed away from CF. he was 22 years old. but he fought until the very end. i hope they find a cure for CF.
mayaetjubjub 6 months ago
please find a cure.
heislegendddddddd 6 months ago
I was told I have 6 years left to live. I'm 18. I refuse to go into a hospital. I've only been once when I was in middle school. I want to to remember my short life as having fun with friends and family not doctors. I punched the doctor that told me I was going to die. I don't want to know when or why. I just want to be happy and if it ends, it ends. Death is inevitable. I don't fight in a hospital I fight for memories of friends and family. Remember me as the person I am, not what I died from.
cjoy57 6 months ago 10
@cjoy57 please don't give up. why arent you on the transplant list?. i know siobahn is scared in this video but there will come a point where it will give you a chance ... a 50 per cent chance to live is good for us and siobahn is not here anymore. she waited too long and her new lungs never came.. what is your fev1?. please if you need any help or advice, you can write to me. i know what you are feeling but life is a beautiful thing. Don;t give up xx
ElizabethRx 2 months ago
@cjoy57 gay
Dannyisgreatful 1 month ago
Hello Everyone .. I am 39 YO Male from Long island NY
I have CF And had a Double Lung Transplant Done March 9th 1999 ...
I am happy to say that I have Near Perfect PFT's ... and feel great for the past 12 years ..I was Followed in NYC St. Vincents ... By Dr. Jack Jacoby ( who Also Had CF) .. I Told Him I want to have it done since i saw my brother die of CF ,,, So He arranged a Meeting for me to see the TX coordiantor at the Hospital of the University Of PA. Willielt1@aol.com
willielt1e39 6 months ago
I have Cystic Fibrosis and i found out when i was 5 months old and was put into the hospital for 2 months i almost died! My mom and dad try their hardest 2 do whatever they can do 2 help. Ofc i do 2. I have so many doctors and hospital visits and treatments. i have had it for 13 yrs. and hate it but i thank my doctors and mom and dad that im still EVEN ALIVE!! im so thankful!!
kidraul3 6 months ago
1 in 4 people here in Ireland carry the gene for Cystic Fibrosis, it's so so scary
cathywhoopwhooplike 6 months ago
I have struggled with severe mental illness and horrible prescription drug addiction - including a very long, ongoing process of withdrawal - but this helps put it all in perspective. My struggles are not physically life threatening, and I know I will eventually succeed, no matter how hard it is. These people don't. Certainly my own suffering has helped me relate to them and all others like them, and create sadness and disgust at the insane greed and selfishness I see in people as well.
squamish4244 6 months ago
@squamish4244
I am sorry you are suffering, I am 23 also a sufferer of chronic depression and OCD and know I will succeed to it one day, I think mental illnesses are no different than physical ones, as its an imbalance in the brain. I might sound morbid, but I know I will either start abusing pills or drugs or alcohol and overdose or just do suicide, I fight like a monster, yet nothing has made the Serotonin levels normal for years.
DianaBanana1775 5 months ago
No government funding? That is insane!! This was so beautiful, so sad, so heartbreaking, so vulnerable! You are all so wonderful and I pray that there is a cure for this disease! All of you, please know that God sees every tear you cry, He knows every hair on your head, He knew your name as you were knit in your mothers womb! God knows the cure for this disease..PRAY PRAY PRAY!!!!!
diamondgirl828 6 months ago
Can anyone tell me what is a best case scenario for people with this affliction? I just learned that a newborn family member of mine has this and there is too much info to sift through. What is the deal with this?
MrGrevy 6 months ago
don't be scared, ive got CF and im 15. It take a hell of alot of physio and determination to keep on top of it, but it is possible. I'm healthy at the moment, i'm playing all the sport i can fit into a week, and im blessed enought o have many friends. The hospitalized patients in this video are probably the worst case scenario that a person affected by CF can have. All i can say is, as he/she grows up, don't keep him/her in the dark about the consequences of Cf. They need to know what it will
OllieLikesWalking 6 months ago
@MrGrevy (ran out of characters) They need to know what it will take to stay well, and from my experiences, it takes a hell of alot of physically hard work. Although CF certainly doesnt have a positive impact on a persons life, i have made great bonds with my physiotherapists and doctors. If you want to see probably a best case scenario CF patient, google Nathan Charles; he's a rugby union play here in australia who has CF. He's an inspiration :)
OllieLikesWalking 6 months ago
@MrGrevy don't be scared, ive got CF and im 15. It take a hell of alot of physio and determination to keep on top of it, but it is possible. I'm healthy at the moment, i'm playing all the sport i can fit into a week, and im blessed enought o have many friends. The hospitalized patients in this video are probably the worst case scenario that a person affected by CF can have. All i can say is, as he/she grows up, don't keep him/her in the dark about the consequences of Cf.
OllieLikesWalking 6 months ago
man i cried hardcore watching this..im just glad that i gave my fiance a great last year..and gave not only him but myself a chance to experience true love.. gosh i miss his so much! RIP JONATHAN ARLEDGE...
ps- they make cf'ers sound like they cant do much.. they can do whatever ever other person can do.. and i never saw jonathan as sick i saw him as my loving goofball of a boyfriend(fiance).. we will find a cure!
brand1818 6 months ago 2
God they make us CFers sound like we're extremely sick & disabled. I was diagnosed when i was 1 and can do everything my healthy peers can do.
wharsmypancakeshoe 6 months ago
I have my donor card. Just in case. They can take my lungs, they can take whatever they want, I won't be needing any of it.
squamish4244 6 months ago
I'm 14 and have Cystic Fibrosis. I'm going through lots of treatments and difficulties, but I just want to live the happiest life I can no matter how short it is! So keep fighting everyone, cus we can get through this! :D
ZetaAdele 7 months ago
Heya, im a person from ireland with CF and were doing a facebook event to raise awarness of Cystic Fibrosis (the most important part) but also to get a Guinness World Record, if ye all could join and spread the word it would be great. just type into facebook "make cystic fibrosis aware by trying to break a world record". All support would be very greatful
zackyv08 7 months ago
tragic
carol1swag 7 months ago
your not supposed to tell anyone what your wish is, thanks alot she better not have jinxed it. bless up and respect to them all, i was diagnosed at 6 months old, managed a reasonably normal childhood with only 2-3 admissions for i.v's a year up until i was 17 then its got worse and worse, im 22 and have to do nightfeeds and overnight oxygen and am in hospital around every 2 months. i also have cystic fibrosis related diabetes so on top of nebulisers and all my tablets and phsyio i have to bm
ketium 7 months ago
I will also say, I refuse to do the vest...It doesn't do nearly as much as playing my instruments
DQMfan100 7 months ago
i have Cystic Fibrosis, I play musical instruments to stay healthy from it, i play the Tuba, Baritone, Euphonium, and the Valve trombone. I have been sick 2 times(hospitalized) in my life thanks to my instruments, I say to myself all the time, I will not let the CF beat me, It may be hard for me to run, or do anything involving breathing but it wont win, my brother died because of this and it wont beat me
DQMfan100 7 months ago
To everyone living with CF; don't stop fighting. Don't give up, don't give in, beat all odds! To everyone who knows someone, close or not to you with CF; encourage them, be there for them when they need you most, and make everyone moment and memory with them last forever! Hopefully one day there is a cure for this horrible disease. RIP to my friend Ashley, who died fighting in August, at the age of 14. Love you Ash! <3
071796angel 7 months ago
One day I will discover a cure for CF. I really promise.
ashthegreat 7 months ago 43
Medical discoveries suggest that symptoms of cystic fibrosis (thick mucus etc.) develop only in conditions of tissue hypoxia (low oxygenation of cells). You can get these studies if you search for "cystic fibrosis oxygen cells". Clinical experience of Russian MDs testify that cystic fibrosis is reversible if you know how to breathe correctly (for maximum body oxygenation) 24/7. Success.
artour2006 7 months ago
@artour2006
Reading the studies cited at the bottom of that site you're referencing, there may be something to be said about low-grade cases of CF being able to lessen with that. NONE of the studies cited from peer-reviewed journals said anything about human testing of this hypothesis in humans - the closest was in mice with engineered CF getting WORSE under low-oxygen conditions, but never BETTER under high-oxygen conditions.
Slarivet 7 months ago
@Slarivet
CFTR expression is controlled by tissue hypoxia in a dose dependent manner, both ways. All available medical evidence yell that minute ventilation in CF is above the roof. You can google for "cystic fibrosis hyperventilation".
If you ask CF people, they say breathing more is good! The real problem is that the medical community does not deal with hyperventilation. There is no a single trial where doctors could normalize breathing. Most CF people die from respiratory complications...
artour2006 7 months ago
I can ONLY imagine how difficult this is, and appreciate your sharing this part of yourself with everyone...May God Bless you and give you some measure of health and GOOD DAYS!
lindabphoenix 8 months ago
How can 5 people dislike this? It's mean, I have CF, 13 years old and fighting.
hellodoofen1 8 months ago 2
@hellodoofen1: Have you thought about a naturopathic approach?
4chango 2 months ago
my dad died of cf when i was 2 and i still miss him alot but now i feel a littel bit better becasue my grandfather started a cf foundtion in new york at beth isrial now we can start finding a cure for cf
jamiefoxx121 8 months ago
Comment removed
jamiefoxx121 8 months ago
My 18 year old daughter has Juvenile Huntington's disease,a degenerative terminal illness.It's taking her mentally and physically over time.I have to help her with every need now.You can fight your disease hun,never give up.xx
Blondie1973pdb 8 months ago
@Blondie1973pdb: There certain herbs and supplements she can take that will slow down her neurodegenerative genetic disorder.
4chango 2 months ago
My friend Taylor has this and we just did the CF walk yesturday in HB. Lets all hope for the people with CF that there is going to be a cure!
teddyvo2000 8 months ago 2
Johanna Johnson, my future wife, lost her battle with C.F. This past Saturday. She had a double lung transplant 3 years ago and began to suffer chronic rejection these past 6 months. She was a senior at the University of Alabama. I am told that C. F. Patients rarely make it out of there teens, Jo was 30 this year. Through it all, she never gave up, living one day to the next. I prefer to think of her the way she lived, strong, never yielding, and in the grace of god. I miss you my Lady!
Rubiousity 8 months ago
i was told i wasnt goin to make it passed 2 and then 8 and then when i was 10 they thought i was goin to die from CF. im 17 years old now and i still dont relize how close i could be put in the hospital and die, im blessed to be in such a good condition and i need to contiunue to fight.
bigboo9 8 months ago
Can someone tell me where this video was made? The girl in the hospital looks exactly like my daughter, Jenny, who had CF and passed away 2 years ago 2 weeks after her second transplant. She had her first transplant when she was 22 but started rejecting them 3 years later. In those three years she got married, moved to Florida with her husband and continued working on her College degree.
pilkern1 8 months ago
my name is nikita and my partner is adam he has cystic fibrosis . he s 28 and i value every day with him hes amazing so strong . it is a huge worry when he goes into hospital and every day of his life . my heart goes out to all the people with cf seeing somebody that you love ,struggling with this illness is heart breaking.
madzzadzz 8 months ago
Comment removed
madzzadzz 8 months ago
Comment removed
madzzadzz 8 months ago
This is a very sad but amazing video. I am the mother of an 18 year old daughter with CF. Please help us find a cure for this disease before it is too late. PLEASE become an organ donor.
aurorabelleyoho 9 months ago
If this upset you please make sure you are a registered organ donor. why creamate or bury organs which can offer a second chance for young people like siobahn ...... why not do something good for somebody else after you have gone. you are not going to need those organs :( RIP Siobahn x
ElizabethRx 9 months ago
Sadly Siobhan Ryan (womanin the hospital) passed not long after this interview from CF.. she was only 26.. R.I.P
NXTGENHD 9 months ago
I hope every person in this world gets Rid of CF! I am a biology student! i was going through some informations about Cf so yes this video came up! tears were rolling down my cheeks!! I hope Almighty Allah will help everyone whose suffering from this!!!
diva891 9 months ago
I hope every person in this world gets Rid of CF! I am a biology student! i was going through some informations about Cf so yes this video came up! tears were rolling down my cheeks!! I hope Almighty Allah will help everyone whose suffering from this!!!
diva891 9 months ago
My cousin, 27, died from CF in December. She talked the exact words of the girl in this video. She always talked about how she wanted to get her new lungs and travel and get married. Sadly, she died due to respiratory failure. She didnt have enough time to get the new lungs.
This video really made me cry hearing the words spoken and dreams. <3
Prayers for all!
marleeelaina 9 months ago
arent there artificial lungs?
hikerdude4000 9 months ago
@hikerdude4000 u got a million dollars?
papstbenni 9 months ago
this made me cry, you are all in my prayers <3
SadEyedDreamer 9 months ago
i have cf mine is not that bad but i pray with all my heart and i am 9 years old
CaileyLoveProduction 9 months ago
God bless you all. My big brother has Cystic Fibrosis and i could never imagine a day without him he is 19 and he is battling CF
flyingpigsintutus1 9 months ago
My big brother has Cystic Fibrosis and he is 19, i could never imagine not having my big brother in my life, god bless you.
flyingpigsintutus1 9 months ago
My Friend Tovah has this is is so sad. :(
itsgottabebitchinnn 9 months ago
I know a four year old with cystic fibrosis, he was hospitalized 2 days ago, and is now getting a stomach feeder and such. ):
Rawrieatsharpies 9 months ago
my friend died today from this diesese :(
kityokoro 9 months ago
@kityokoro you'll pull through sometime and forget
hikerdude4000 9 months ago
@kityokoro sorry to hear about your friend. Katie
kryan364 4 months ago
this is very sad, having this disease. I am doing my biology ISU on CF and i am very happy that i picked this <3
TechnoLove3 9 months ago
i know 3 people who had CF but they underwent surgery and had lungs transplant. now they're doing great. i hope all people who has CF will survive.
miagabayan10 9 months ago
Thank you for helping me understand this disease better.
c140pilot 10 months ago
@c140pilot do not listen to them. those people are desperate because of a reaon. they didnt take care of themselves. its wrong. i have it and theres a good chance of turning 60 if you want to. this is some shit!
Geibaby37 9 months ago
@Geibaby37 Hey, guess what jackass? CF can develop more rapidly in some individuals. So before you tell me and others who aren't doing that great that it's OUR fault, you go fuck yourself?
rymawh 7 months ago
I have this! Just found out last month. I'm 18 years old, and fighting hard! This is a great video, and it reminds me how blessed I am to still be up and kicking. Lots of hospital visits and treatments, but I'm ALIVE and thankful. Keep workin', CF buddies. We got this.
Republican21 10 months ago 28
@Republican21 Hahahaha, yeah fucking right, cystic fibrosis dosen't suddenly develop as you age retard.
Trollz0Be0Trollin 6 months ago
@Republican21 How did you manage to survive that long without treatment?! Im only 15 and am in the hospital constantly. In fact im in the hospital righht now typing this. Im very curious....please tell me how you did that...
Horsegal143 3 months ago
Ive had a kidney infection for 7 years and I'm 10
brianini29 10 months ago
this made me bawl my eyes out!! although i dont have CF i do have a rare mitochondrial disorder!! it breaks my heart to see others suffer!! god bless you all!
weenz05 10 months ago
my girlfriend has cf and shes in the hospital, allways scares me a litttle when ever people say they die younger
zagqazzig 10 months ago
that sux for people who have CF thanks God my lungs are heathly
GloryToGod211 10 months ago
nopt everybody with CF dies young, I would know. I have CF, I am 14, I am 130 pounds, I have never been in the hospital for my lungs, and I am hoping I stay this way for a while. Yet again I have a very very weird mutation...and I dont like hearing that people die from it SOOO young because some people dont and it makes me very very depressed...
1unikinz1 10 months ago 3
I HAVE CF TOO!!!! I agree
hannahterashow 10 months ago
@1unikinz1 I have CF. I also have a mild mutation, and at your age I also had never been hospitalized. It wasn't till I was 17 that it really hit me, and I had to be hospitalized for the first time. Take it from me: Even though you probably feel almost completely normal, don't get lazy with your treatments as I did. Keep at it strong as if you were sick. It will really help in the long run. I'm 24 btw.
Jordanime 10 months ago
@DerDoenerLando Cystic Fibrosis is a disease that is inherited that could cause thick, sticky mucus which would build up in the lungs and digestive tract. This is one of the most common inherited lung diseases in not only children, but also young adults which could lead to an early death.
xoLoveQuotesxo 11 months ago
Sry I'm german. What is CF? :o
It sounds bad :(
DerDoenerLando 11 months ago
@DerDoenerLando Cystic Fibrosis
GloryToGod211 10 months ago
This has been flagged as spam show
Come soon online to chat with bbw naneedj.info
adithaish 11 months ago
Just lost one of my bestfriends just two weeks ago to CF..
goodgollymrsholly 11 months ago
This is so depressing. My friend has CF. When some other kids were talking about CF who had no idea what it was I told them that it could kill people and they told me my friend has it and when I said I know they called my friend over and I felt really bad because we never talk about it. The kid went "are you gonna die because she said you're gonna die", wow that made me angry. They continued to write that my friend was going to die soon, I'm still trying to contain myself
gorilarat24 11 months ago
@gorilarat24 Kids can be so cruel, but there's no excuse for this type of behavior. These kids are NOTHING MORE THAN IGNORANT BULLIES who are looking for attention. Little do they realize they could die tomorrow by being hit by a bus! Correct the kid who quoted you by saying that everyone eventually dies whether they have CF or not. BTW, I was dually diagnosed with CF and diabetes at the age of 16 and will be 51 in May! Tell your friend to keep her chin up and be proud of who she is! :)
pads41 9 months ago
Everything will be alright! Be positive and all of you will have lots and lots of years to live a happy life.
Bless you
joaopires15 11 months ago
i'd like to hear how cystic fibrosis suffers feel about smokers
packleader38 11 months ago
@packleader38 I've got CF and I honestly cannot describe how I feel about smokers. Most of them are given lungs which are perfectly healthy but they go and mess it up by knowingly wrecking them. I've never smoked in my life and my lungs are worse than theirs. It hurts inside and kind of makes it seem like they are being selfish and disrespectful.
Twirler1995 10 months ago
@Twirler1995 I know how you feel. I get so aggravate when I see perfectly healthy teenagers and adults slowly throw away their life. Yet I am here doing everything I can to live but It is just not enough.
kimy927 10 months ago
@packleader38 Like I said before, It aggravates me! Here I have something that I initially have no control over, yet I do what I can to stay healthy. But now there are a lot of people that do have a choice, but just throw it away by smoking. Honestly, It is not fair.
kimy927 10 months ago
I also haveCF. I'm 26. I feel very lucky in that I'mmarried, something Ithought I would never live long enough to do. It absolutely kills me to see the younger kids with this disease, knowing that most will never have anopportunity at a normal life, too many willnot even reach 18. One this I want to say is: Don't pity us, pity the people that love and have to watch what this disease hurt us. Both my family and my wife live in constant fear that they wil lose me too soon, so pray for them.
markmathisen13 11 months ago
i have cf and im 17. ive been healthy overall but there are some days when i have 0 hope or when i hurt really bad. please let there be a cure soon. we need it so bad. this suffering needs to stop.
Riley1516 11 months ago
i have cf and i had a transplant 6 years ago in may it went great i was only in hospital for 10 days all up. but i say now to ppl looking at transplant think so hard i enjoyed mine but a year into it i got sick breathers went from 3Ltrs to .8 in a 24 hour period and i was given three months to like and that was 3 years ago and not im on oxygen 24/7 but that doesnt slow me down i still party drive and have fun im not 25 and loveing life. just remember stay positive :)
pammybaby4u 11 months ago
@pammybaby4u To here people like you, gives me hope, Thank you and God Bless
Metalmanmania357 11 months ago
This has been flagged as spam show
ditalydo
i made a video about my
little ones c/f this morning come to my channel and check it out (ditalydo
ditalydo 11 months ago
This has been flagged as spam show
ditalydo
i made a video about my
little ones c/f this morning come to my channel and check it out (ditalydo
ditalydo 11 months ago
This has been flagged as spam show
ditalydo (1 second ago) Spam
i made a video about my
little ones c/f this morning come to my channel and check it out (ditalydo
ditalydo 11 months ago
plz sub. to me my family blogs are about us all but my 9 year old has it
ditalydo 1 year ago
my daughter has c/f and has no friends with it i found this outlet we have vlogs of whole family but would love for you to sub. so she sees others with her ailment im ditalydo on u tube
ditalydo 1 year ago
This has been flagged as spam show
this was so sad....I hope the little gal who said her lungs were shot got her transplant and is doing better...I have chronic severe asthma and know how bad not breathing well is...when I see people smoking, it sickens me that people take their health and life for granted.....and the dad who could not help his son...well, I know even tho you could not save him, you would have traded your life for his...God Bless and keep all of you.
longfilly 1 year ago