Added: 5 years ago
From: carrieml82
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  • I have heard nothing but bad things about Lupron, have you ever thought of trying the Endometriosis diet? I have started it and I find it very helpful, you can order it from Amazon.com

  • Finally, I have discovered a product that can help all of us, please check out my YouTube channel, spread the word, thank you all my friends.

  • Negative Ion of Winalite Anion UK & Vertigo, Breast Lumps, Myoma & Endometriosis

  • I'm 20, I found out I had endo when I was 16. I've been on the ortho evra patches since then and the pain is getting worse again since I've had surgery, but at least my period is normal again. It was all over the place before. This is a horrible horrible disease and they really need to find a better solution for it.

  • @burgandyblood i'm 21 and i found out i had it last year.

  • @MissMaddy881 aww i feel so sorry for you im only almost 14 and i dont reaslly want children but it must feel horrible that u cant even consider that option im probz gonna have them in future though

  • @TheButterPeanutJelly it's ok. i love kids and want some one day, so i'm hoping it's not that bad. i don't want a hysterectomy at 21!

  • It's so painful... it's hard to walk sometimes.

  • how does a person get diagnosed who doesn't have insurance?

  • @chinadoll2405 the only way to be properly diagnosed with enometriosis is through a laproscopic surgery.

  • @chinadoll2405 *endometriosis

  • Lupron did not help me, I was still hurting, bleeding, etc.... I know where you are comin from

  • You aren't supposed to take the lupron for longer than six months. It does severe bone damage etc. I am on it right now for my endometriosis treatment, until I get my laparoscopy surgery. DON"T take anymore. My ultrasounds, catscans, and all my blood tests were normal, but I still have endometriosis and I am going in for surgery so they can burn all of the endometriosis growths off. Get off the lupron shot, PUSH FOR LAPAROSCOPY surgery... DON'T GIVE UP, DON"T LET THEM PUSH YOU AROUND

  • I did just have a baby in January of this year and my endo has not come back since then(at least not symptomatic) I have heard that having a baby sometimes causes a hormone change in your body and the endo stays away(definitely not always) that would be super cool if thats the case with me but we will see

  • You aren't supposed to take the lupron for longer than six months. It does severe bone damage etc. I am on it right now for my endometriosis treatment, until I get my laparoscopy surgery. DON"T take anymore. My ultrasounds, catscans, and all my blood tests were normal, but I still have endometriosis and I am going in for surgery so they can burn all of the endometriosis growths off. Get off the lupron shot, PUSH FOR LAPAROSCOPY surgery... DON'T GIVE UP, DON"T LET THEM PUSH YOU AROUND

  • @carrieml82 all the women in my family have endometriosis and every one of them has said that after giving birth they never had an endometriosis related problem again. I know with some women it can be prevalent but from what I have heard, the vast majority of the time the endometriosis does not come back after childbirth.

  • @DraoiSidhe think i also have endometriosis or something related. only thing i have pain. & bleeding heavy during mens. period. i due for appt. 1month. think i need surgery. is it painful pls replay thnks letty

  • @leticiag78 fortunatly a week before I was schedualed for the laproscopic surgery I found out that I am pregnant so I had to cancel it. So I am unsure if its painful or not. but people I have talked to have given me several different answers (yes, no, for the first few days) I guess it depends on the person.

  • for the record. I ended up with a total of 9 shots. it never did work at all. I was bleeding nonstop the whole time and had terrible migraines the entire time I was on Lupron and continue to have them since(that was 3 years ago) I had never had migraines before. The only thing that has ever helped me so far has been surgery.

  • my name is Jennifer and i have been in and out of the hospital for the past week finally finding out that my pain and my weird discharge is for Endometriosis. I have another apt. on Mon. to talk about what they can do for my pain for now because it has stopped me from doing every day activities!! I think maybe you should look at getting surgery, that is what i am looking to do! I WILL NOT put extra hormones in my body.

  • I'm so sick of taking drugs for pain. I'm like a walking pharmacy. I'm compelled to just have them take the damn thing out. But my condition isn't "severe" enough for the procedure. Ugh.

    Take skull cap. It's a natural supplement that can be used for pain, and isn't big on the side effects like doctors are so quick to dope you up with. I hate doctors.

  • I have endo and my dr gave me naproxen (aleve) and it works for me thank god. If you havent tried it you should. I only take it when I start to feel pain. And 10 mins later it's gone. I hope that helps!!

  • thanx ciresbx

  • Dominiquec21...over the counter pills won't do anything for you. Vicadin or better will help. It's what my girlfreind takes to help her with her endo.....There isn't a test anyone can give you to determine whether you have it or not. A specialist can determine through examinations n consults whether you have it

  • i just found out today i have endo.. my sister and mom dont have it but my cousins do .. my one cousin had a hysterectomy.. scared... can anyone please tell me what to take for the pain? because motrin, advil and asprin and tylenol dont work...

  • @DominiqueC21 Hi, I take Ibuprofen 800. It was prescribed by my Gyno.

  • I get a severe and sharp pain in my lower abdomen from time to time. It's rather severe but only last a few seconds and then I may not experience it again for a few days or even a few weeks. This is happening for the last two years. Can anyone tell me what test I can take to detect endometriosis? I've had tests for infections which detected nothing. The pain isnt as bad as what I have heard others describe but I understand that some people may not experience much pain.

  • @shatterdwing they only way they can diagnose it is a laptrascoptimy. good luck.

  • im concered that i have this... ive been havin alot of pain... my bf parents think that its this... i need help what do i do..........

  • I have severe endometriosis also. I'm only 13 and I've been dealing with it for years (early bloomer-lucky me). my doctor put me on Birth control to stop my period completely. I had my period for 5 weeks straight and very bad pains. I stopped that and I still get very bad pains and miss school a lot. I'm not sure what to do, and I'm missing out on way to much. Anyone have any recommendations?

  • I had severe endo, was put on Depro-Provera for 6 months...total relief and symptoms subsided (heavy bleeding, pain) Then after getting off Provera, was also diagnosed with Fibroids, so now on Depro-Provera which is every 3 months, no pain, no periods, complete relief. It has maintained and subsided some of the fibroids, which is good cause I don't want another surgery; side effects though include some more-than normal hair loss and headaches, but much rather deal with that than severe pain.

  • meant now on Depro-Provera and was on Depro-Lupron for 6 months.

  • hey, im just getting investigate to see if i have endometriosis. But this morning i came on my period and i keep getting severe sharp wave pains. It was this bad that i couldnt even walk up the stairs. I have an appointment at 10.50 n im not to sure what to expect. would she tell me to go to the hospital but put me on yet more painkillers that might not work??? is anyone else suffering with the same kinda pain during a period??

    kind regards

  • ive had endo for 10 yrs and im sick of the pain so im having a hysterectomy on 8-10-09 im so scared im only 29 omg i was on lupron 5 times o dont do it, it will make u crazy

  • I did a hysterectomy at 38 and afterwards did a year of Lupron (post hyster 5 years). This was a huge help. Been off of it and endo is back (still have one ovary). I want to go back on the Lupron. I felt really pretty good then.

  • @gkygrl Did the hysterectomy help? Why did you have to be put on lupron...I'm getting ready to have a hysterectomy next month for my endo. its been a rollercoster ride having pain all the time IIve had two surgery with no relief.

  • @Angrygumballl the hyfsterectomy helped tremendously for me. I still had the one ovary and it started to get cysts and cause more endo to develop -- so I went on Lupron for a year. The Lupron put me into to menopause and took the pelvic pain away. I did a year of it and they would not do any more Lupron because of bone loss. I DID end up having my final ovary, endo inplants and appendix removed in Oct 2009 and went on a low dose hormone patch to stop hot flashes.....

  • @Angrygumballl (cont). I stopped the hormone patch because I felt that familiar pelvic pain. I have been off the patch for 2 months now and although I have about 30-40 hot flashes a day I deal with that. My doc and I will revisit the HRT patch in December. By then ALL endo should be gone. Obviously there were some microscopic inplants. But short answer, yes ... they hyster made my life bearable and I would do it again if I had to - I feel better in than ever in that regard.

  • hi everyone, for those that have endo, is there any history of endo in your family. like does ur mom or sister have it too?

  • I had severe Endometriosis and was continually in hospital. I was put on various drugs, but none stopped it. I had a full hysterectomy /ooperectomy 4 years ago. I was put on hormone replacement tablets , then the pain started again so I came off them. I have ben on them on a lower dose for about a year.When the pain comes back I come off them for a week or so.

  • Well i just found out in June of 2009 (Monday 8) that i hav endometriosis. and for now i have to do the shots

  • Hi Carrie, I just found your video while doing a search on Dr. Reich, an endo specialist. Like you, I went through the Depo Lupron shots.. for me, 9 months, and like you, double doses. Please do a search on Dr. Reich and see what he has to say about it. I have been suffering with severe stage 4 endo since 1994. Had a laparotomy and four laproscopic surgeries. Had to have IVF in order to conceive. I've been there. Since I see that this video is old, I hope that this message finds you pain free.

  • I suffered for years, then started on Zoladex injections, which will stop your periods completely and shrink the endo cells. When I was diagnosed I decided I would try anything until I found something that worked, and luckily Zoladex was not too far down the list. Some of my endo friends will not try treatments as they `don't like chemicals/don't want an operation'. Well, I'm not a fan of either, but I hated the endo more. It's a question of making the right choices.

  • and i for one am not selfish...i just hope one day thre is a cure...im just glad that maybe i can have support from women like u to get thru this complicated issue in my life..love Maria

  • i feel somewhat better that im not alone..that i wasnt the only one going thru this continuous process of meds..surgeries...treatment after treatment..but im scared of the process that somehow face..and that isa hyster....i want o have children...i want o be a mother ..but i want to do it the right way..i hate when the doctors tell me if i should have children...when in reality i dont have a husband to do that w/...i would think its selfish to bring some1 in this world to get rid of pain...

  • i had a lot of the same symptoms. i found a new dr and found out i have polycystic ovarian disorder. all the endo treatments made it worse. it's possible to have both disorders. we are now talking about a hysto. i've been asking for that since i was 18. hope it all works out for you

  • I am 42 and had a hysterectomy (leaving one ovary) in 2003. It was discovered at the time of surgery that I had Grade IV endometriosis. About 10 days ago I began Lupron because my endometriosis is kicking up again and I have a large ovarian cyst (and surgery is too risky). I'll look forward to (hopefully) some relief and am staying positive.

  • I am 28 years old and I also have endo, I also had the lupron shot right after my surguery in December of 2006. The lupron didnt help only the first month then after that i started bleeding again. The onlu thing helps me with pain is either aleve or vicodene. I have had two surgerys. the ony thing i would suguest to stop the bleeding is to get on birth control pills and take 2 a day oone int morning and at noght. but be careful they can make you really sick.

  • I know that it is hard to stay positive when it seems like nobody really understands. But all of us women out there with endometriosis are with you. I was diagnosed with endometriosis 2 years ago. I had surgery 2 times in the 1st year. I got my 6th lupron injection 3 weeks ago (3.75 mg). I don't know what to expect when menopause is over...I am almost afraid to go off the lupron and face my pain again.I hope all is well with you. I truely feel your pain. Keep positive.

  • wow ur story sounds like mine. i was on that shot too for over 3 months didnt help and i'm going for a Hysterectomy aug 24 gonna add u ok. good luck hun

  • I have had this pain for almost ten years, and with the lupron for at least 5 years. I've had 6 surgeries so far, and the last one was two weeks ago, mi doctor removed my uterus, because my endometriosis grew into a tumor of a kilo and a half. I'm in bed right now, recovering from the surgery. Maybe my story is not helping, I wish I had an answer. But I just wanted you to know that I feel exactly what you're going through.

  • I had the shot and moved to a implant that is monthly that stoped my period i also take HRT to combat side effect it works pretty well i get a bit dizzy and a little bit of pain around my period time but no bleeding

  • I am 16 I have endo. I was diagnosed with it back in 2005. I feel your pain. look on my youtube profile for my myspace link and you can find some if for and contact me there.

  • I wish you the best of luck!! Actually the medication I get is very different from your but you can always count on me. The only cure for my case is taking out my uterus but I don't feel like doing it for now. So let's keep fighting against it. Be strong!!! Love, Fran

  • I remember taking Lupron shots - I had them in the hip at first and changed to arm, also - sorry shot stings so bad :( Wishing you lots of good luck and praying just meds alone are enough for you! Working out is good for you because sweating causes detoxification and that detox should help with your endometriosis!

  • did it start working after you switched to the arm?

  • oh yes it did make a "good" difference - that is true that is more intramuscular with it in the arm

  • well thats encouraging then

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