Me on my ventilator in the van and in the house IN MY CHAIR

[Counterbrilliance]

Do you have a muscle atrophy disorder or were you injured somehow, just asking out of curiosity.

[alin0steglinski0]

@Counterbrilliance Hi Counterbriliance, its kind of a muscle disorder and kind of not

i have Cerebral Palsy and Rett Syndrome. :)

wanna know more? feel free to pick my brain.

[ADKIc3mAnX36O]

My father was on the vent like this and he didn't make it wish he would have

[alin0steglinski0]

@ADKIc3mAnX36O prayers for your grievance. sorry about your loss

[ADKIc3mAnX36O]

@alin0steglinski0 Thanks I hope you get better soon and get off this thing someday if your still on it I mean it helps for some people in 01 it saved my fathers life but in 06 it couldn't. But take care

[alin0steglinski0]

@ADKIc3mAnX36O my disorder the ventilator is designed to help me stay healthy. it is not necessarily like if i go off i die. its there to keep me healthy

[ADKIc3mAnX36O]

@alin0steglinski0 Oh okay just want to ask you something I seen you have it on your throat my dad had it like that but can you talk well with no problems ? Just want to know

[alin0steglinski0]

@ADKIc3mAnX36O i can talk fine if i hold it closed and if i am on my vent i can talk fine too

[ADKIc3mAnX36O]

@alin0steglinski0 Oh I just always wanted to know cause my father couldn't cause he had a heart attack and he was brought back but we never seen him move or anything after that

[alin0steglinski0]

@ADKIc3mAnX36O you sure it wasn't a serious stroke?

[ADKIc3mAnX36O]

@alin0steglinski0 No it was a heart attack but when they got him back he was in shock and then they did some test to check the Brain waves they just couldn't find any then he got another heart attack but they couldn't bring him back at the second

[alin0steglinski0]

@ADKIc3mAnX36O don't know what to say about that then

[ADKIc3mAnX36O]

@alin0steglinski0 @alin0steglinski0 Oh okay Thanks for chatting with me and I really hope you get better.

Take care.



[alin0steglinski0]

@ADKIc3mAnX36O thanks :)

[alin0steglinski0]

@ADKIc3mAnX36O that would be a coma then

[ADKIc3mAnX36O]

@alin0steglinski0 Yes but Isn't there a medication that let's the patient comeback from a coma ?

I forgot the name of that drug but It brings them back I think

Why didn't we ask the doctors for that

[alin0steglinski0]

@ADKIc3mAnX36O rarely do medications bring people back from comas once they are in a coma it is up to their own body to fight it off.

[ADKIc3mAnX36O]

@alin0steglinski0 My dad got a heart attack then 7 days later another but the second the doctors couldn't do anything they tried CPR for 1 hour but I mean why would someone go into a coma after a heart attack they brought him back after 2 minutes he was in ICU so he has a vent and everything shouldn't he had come back okay ?

Sorry if I'm asking a lot

[alin0steglinski0]

@ADKIc3mAnX36O not necessarily. how long was he in a coma

[ADKIc3mAnX36O]

@alin0steglinski0 well till the day he passed away he got a heart attack on June 30th 06 and a second heart attack in July 9th but in that time he was in what the doctor told us a vegetable state

[alin0steglinski0]

@ADKIc3mAnX36yeah so then he was a veggie for over a month... once you hit a month most veggies don't come back

[ADKIc3mAnX36O]

@alin0steglinski0 No he was for 7 days cause it was June30th when he was in that state and July9th he passed while being on that state

[ADKIc3mAnX36O]

@ADKIc3mAnX36O I mean 9 days

[cap12206]

Your a cute kid. I wish you all the best of luck.

[alin0steglinski0]

@cap12206 thanks so much cap 12206

[ThePlv100]

jiiihaa, go on baby :-)

[bursheim]

You have a VEST machine? me too, I do it twice a day for 20 mins at a time. I think they help a lot. I just hit 775 hours this morning.

[alin0steglinski0]

@bursheim i wish i could get mine back... unfortunately it caused a pump problem with my baclofen pump so now i am back to old style deep suction

[alin0steglinski0]

@alin0steglinski0 it felt quite good to use i like the pressure as i am autistic

[justintex1]

what brand is your chair? very nice vedio

[alin0steglinski0]

@justintex1 Permobil C400

[gutbuster72]

I like you chair! My seat in my Peterbilt doesn't quite relicline as much as yours.

[alin0steglinski0]

thanks gutbuster!

[Hyperdude0123456]

MORE STRAPS! you should be crowned king of the straps. :D

[alin0steglinski0]

i love straps. yeah i agree! :D

if i could id have two maybe 3 harnesses on my chair and loads other straps all with electronic tighteners. i love having them tight.

[hmdrrt]

Wow man I haven't heard a voice that loud ever on my pts! You got skills!

[alin0steglinski0]

thanks hmdrrt! I am like chris reeves someone said since i can speak while on a rate

[alin0steglinski0]

AND MORE STRAPS!

[alin0steglinski0]

eh why