Fibromyalgia, pain, discrimination, Dr St. Amand,

[Megpieballew]

Yes!! I used to love grocery shopping and cooking!...Up until the last two years, ive always played the guitar and sang also, and for last two years I have not done any of the things i loved .. Makes me so furious when people dont understand whats its like to suddenly not be able to do any of the things you used too.. Im still working , and my goodness , its getting so hard to work lately.. I hope they find a cure cuz I feel as if I am losing it,.

[cottoncandypoms]

Go to this website and watch a video of a girl who was healed by God after suffering many years with fibromyalgia. awmi.net click on healing testimonies, Niki Ochenski . Great !

[mcertonio]

@cottoncandypoms Are you well yet? are all of your prayers answered? Opps everyone was supposed to die according to all the FAKE GOD people. If god healed all--None of us would be ILL, There would be no famine, ETC___-- I believe doing unto others.

I treat people well ALWAYS. And I do not judge--Get it?

[Hertsman50]

@thealmightyels you see doctors are a bunch of over paid under worked low life cunts who are paid mega bucks by the pharmaceutical companies to hand out drugs like sweets. Only you can cure yourself. Good luck.

[Hertsman50]

Okay fibro warriors another tip I will share with you all. Baking soda, yes baking soda. This will help your joints, Google it.

[Hertsman50]

@thealmightyels I can understand your anger but don't take it out on me. Save it for the doctors who have let you down big time. Get well soon.

[Hertsman50]

@thealmightyels keep taking the meds..hopefully they will kick in soon.

[Hertsman50]

@thealmightyels you of all people should know that doctors are a complete waste of time...lol You don't need to be a doctor in order to help someone? So replying to your comment means I'm a troll and bored? You replied to my comment so I guess you're bored...lol I was doing a search on fibro and found this site. Lots of people are incorrectly diagnosed with Fibro. If my advice has helped anyone then I'm pleased. You sound very upset, obviously your meds are not working, I understand. Get well.

[Hertsman50]

@thealmightyels Fibromyalgia is just a silly name used by doctors who are too fucking stupid to diagnose your condition. I have lived in pain for many many years and these stupid cunt doctors told me it was Fibromyalgia. Well to all the people on here I'm going to do you a fucking big favour. More than any cunt doctor has ever done for me. Do your research like I did. I have found the cause of my issue is eggplant foods. Cut out tomatoes, potatoes and anything containing Solanine. Google it.

[MyFuckdapolice]

watching your videos has shown me that at least i'm not the only person with this insideous illness and severe side effects. I'm male, from England aged 46 and i've been unable to work since 2004 due to Fibro and HepatitisC. I used to be self employed in construction, very very active lifestyle. Now I feel like a lepper, that no one believes me because i'm not bleeding from every orifice. I admire your resilience, you have given me hope, thank you :-)

[MisTreeeGirl]

I can help! Look me up Aprile Plummer. I became an Author this year. My mom has it too. I got this book The cure for all diseases. You need to build a zapper, we all work on unique frequencies. This can be built by a 9 volt battery. I am here to help Gaia and the people here. I am a lightworker - Wrote a book on spirituality! We're all one & awakening as one! Namaste. I am on Facebook.

[mcertonio]

I have A friend that had The surgery for Chiari AND IS MUCH WORSE!

FM/CFS Generally is A VIRUS. I went to DR. Nancy Klimas,

Please read her Info. I will post more soon. Any Injury, Surgery

Can AND DID make my condition worse.

[yucca133]

I understand everything that you are saying. I have had a diagnosis of fibro since 1990 when it was first recognized as an 'official disease.' There are days that it is pure hell to be alive. It does feel like an awful flu a lot of the time. I have lost relationships with two of my children partly due to them saying I just want people to feel sorry for me. Mornings are the worst. Medications are not very helpful. I hope you post about your experience with St. Armand portocol. Thanks

[chazkelly]

To ALL. Ask your doctor to have you evaluated for Chiari Malformation Type I. Many people with Fibromyalgia, chronic fatigue etc. have a skeletal deformation that almost always is missed. All it takes is a simple MRI and it can be corrected with decompression surgery. Look it up. It could be your answer.

[TheTabitha28]

I am dealing with fibromyalgia and keep hitting a concrete door when it comes to trying to get any help. I have a 9 year old son and they want me to sign him to the state saying that maybe I am "mental". Thank you for openening up with this and getting it out, I don't have anything to help with pain or any of that. They have taken me off of everything. All I can do is sit and cry when my son is not looking and hope that one day people wake up and see that this is real. Thank you- Tabitha

[danie11e74]

Hi there, I was dd with FMS 15 years ago. I have seen it all and done it all. Some have worked but only for a short amount of time. I can tell you that people equate Fibro to being hit by a Mack truck and well I am a real life testimate that FMS is worse because I was hit by a Mack truck in 08'. I was at a "stable" 3-4 on the pain scale with meds on board when the accident happened and now for over two years have been a 7-8. I am on pain patches and the codones and am still in bad shape. Anywa

[mcertonio]

AND WORDEY-- Its not me that sickens you, it is FM or XRFM

Juicing did not cure HIV & will not cure FM.

WE NEED RESEARCH!

[wordey123]

@mcertonio LOL youre are so crazy. I never said juice to cure yourself. No wonder your diets didnt work, you do ONE thing and think it'll fix you. And I dont dislike you, I like you, you got spunk. I'm just another internet person putting thoughts and influences in your head. And I agree, more research would be great :) Share the love.

[TheJohnlennongirl]

Hi! Thanks for posting. I too have fibromyalgia, rheumatoid arthritis, osteoarthritis, and carpal tunnel. The worst as well as the pain is the fibro fog and chronic fatigue that seems to hit me out of no where. In the summer I seem to do much better. In the winter I live through hell. I appreciate your video and I agree with your political statements. Thanks again for posting.

[mcertonio]

@TheJohnlennongirl Thank You, Keep Trying!

[Butsahurtin]

Biteme CottonCandy

I am so glad you have the answer.

Didn't think about nutrition?

I going now to go it lunch and some spinach and bull shit. Bull Shit is very high in protein and it is also good for chapped lips.

For lips: smear around on outer ring of lips.

It actually doesnt cure chapped lips it just keeps you from licking them.

[mcertonio]

@Butsahurtin GO BABY GO! I AM SOOO SICK of

People taking advantage of People THAT ARE TRULY SICK!

I looked at the LYING website, She can bite me

After She looks up XRMV, A retro-virus LIKE HIV,

Studies have been hidden by Cleveland Clinic.

Most FM/ME have it, Red Cross will No longer take blood

Because It is A virus!

[mcertonio]

@Butsahurtin YOuU are TOO funny I like an acerbic wit!

[cottoncandypoms]

This is caused by inflamation . Sugar and vaccines are the are number one causitives. Then other toxins in your food and environment. Go to dr. mercola's website it is his last name plus a dot com. For eye opening facts about vaccines go to (all one word) think twice . com Drugs are only a temporary help. Nutrition and reducing your inflamation causes is your hope.

[mcertonio]

@cottoncandypoms -Just when YOU think you can manage, A NEW symptom will come AND tear

Up your world! To Give Advice--You are taking A soul in your hand: If you are wrong your hand can CRUSH Soul! ((cr) FHM-- When you Know Everything advise, If not Do not judge, Show compassion. (cr) FHM.

I have been sick & SICKER for years, Yet I Do not give advice--Unless asked for.

[Hertsman50]

@cottoncandypoms totally agree, every one on here has a food intolerance. There is no such thing as fibromyalgia, just a silly name that doctors use because they are too stupid or lazy to work out the problem. That website sounds good but I hope you're not making money out of the misery on this channel? I will check out that website and see if anything Mercola says makes sense, I will let you know what I think.

[xmyheartpokmyi]

@Hertsman50 you are a complete moron.

[Hertsman50]

@xmyheartpokmyi thanks

[Hertsman50]

that doctor mercola website is fucking shit. He is just trying to sell you stuff that you don't need...lol You have got to be having a laugh right??? All the advice he gives has been copied and pasted from other websites spouting the same old shit...lol I already use VCO but that information is available on just about any Fibro site. You should be ashamed of yourself coming on here and trying to sell products for this Mercola idiot who couldn't give a fuck about anyone. You are not helping.

[mcertonio]

Sorry, It is the XRMV virus, It is like HIV!

I have ALWAYS STATED FM is like HIV in the 1980's

No research, Hidden truth AND lots of JUDGEMENT

[elusivedreams620]

Part 1. I understand your anger and frustration. I went through it too. Only those who live with FMS know what it's like to live it day after day. It's all-pervasive and unrelenting; it has the capability of robbing us of our lives. But there IS help. However, it's incumbent upon us to educate ourselves and be our own advocate. And, with any luck, on one of our "good" days, we will find the strength and energy to go out and find that help.

[mcertonio]

@elusivedreams620 hello, i have been sick most of my life.

There are mant degrees of "FM" AND I HAVE educated myself

As well as OPENING my mind and not making judgements

on A person through A 7 minute video. That was my 1st &

I got comments & people thanked me 4 being open.

You don't know my pain level or The facts about anything

In my life. I do this not rehearsed just shared

15,000 comment & 6 negative. I am 43 & disabled

I look bad in this video-I AM IN THE MOMENT

[mcertonio]

@elusivedreams620 I HAVE LOOKED & READ & Been to TOO many Dr.'s

What have you done? I have Thank You' from 1000s for truth

And it is NO DREAM! It is A reality that I have lost MY LIFE.

Before you espouse MORE ignorance , i started A different life because

I Want to help others not make the same mistakes!

[elusivedreams620]

Part. 1 I understand your frustration and your anger. I've been there. Only those who have FMS know what it is like to try to live with this condition day in and day out. It is a life-changing condition that is insidious and all-pervasive and has the potential to rob us of our lives. There is no current cure for it - there isn't even a definitive test for it - but there IS help. However, it's incumbent upon you to educate yourself and be your own advocate. Then find the strength to go find it.

[mcertonio]

@elusivedreams620 I have seen MANY DRs, Tried every diet

Spent $1000's at FIBRO & FATIGUE-RIP OFF AND tried the GUIFENENSEN for A year-- I see I need to

Tell my entire story because my life has been extraordinary.

[wordey123]

@mcertonio Dont say you tried every diet cause you havnt... You drank almond milk and ate nuts and wondered why you felt like siht. Youre ruining hope for others with fibro like me who are in the process of healing it with raw food, fasting, and juicing... You sicken me. You claim to do a diet that fixes it but you do it wrong, look at you.. Youre overweight, you couldn't have done any diet. Sorry to be mean but you make the condition look so depressing with no hope!!!

[mcertonio]

@wordey123 Hi Punk! I have been most of my life AND NOT trying to disuade others from TRYING ANYTHING That may give relief. I am overweight in that video, i had just had A hysterectomy, Readmitted 2 weeks

Later with Pain that nearly gave me a heart attack, Then D/X w/ RSD! I also gained weight after The

Lyrica & The Neurotin before that. I am 44, Symptomatic since 23, Actually since birth.

I have comments from over 5000 Peeps That THANK ME for truth, ACTIVISM, Blogs. Open your

Mind-Wordy

[mcertonio]

@wordey123 You are too stupid to be mean! You watched A moment in A life, Where I shared

My truth of THAT MOMENT! Try making A video, See if you get 1000's of comments.

Now TRY TO UNDERSTAND THIS: Do not watch me, Change The channel, Fuck Off

[Hertsman50]

@wordey123 I don't know what is wrong with the people on here? I tried to give a few tips and got my head chewed off..lol As you say the woman in this video is over weight so obviously her diet is wrong.

[mcertonio]

@elusivedreams620 WELL SAID! It is very frustrating!

[dissone1]

Hi, it is 2010, and i am watching you. I live in the uk, and i too have exactly the same symptoms as you. I am suffering just like you. And do you know what, nobody gives a shit in this country. Doctors are reluctant to agree with consultants in this country. I get diagnosed, by an expert, to be knocked back by another.

I can not wash my hair or shower, somedays i can not even walk. i have to drag my butt up and down the stairs. i have had this fms since january 2009. I was involved in an RTA.

[dkrolls]

YOU WILL GET THERE!!! It works.

I was in bed for 2 years and can now run 10 miles EVERY DAY. God, that protocol is hell, but WOW when you get to the other side it is a miracle!!! You are about to get a new life that is so amazing you will cry at the sunrise. The gratitude is so strong you will think you were touched by God himself. And I'm an atheist. LOL. I video-taped my trip to hell and came out to heaven. But now I'm so healed I just cannot find the time to upload it.

[mcertonio]

@dkrolls What is A miracle? Another person pushing another

Pill, Water, noni, Gui, There is no cure for those of us

That REALLY have it. Read about The ZRMV retro virus like HIV

Then get back to me! Cleveland Clinic in FL wont treat FM/ME

Because the truth they have been HIDING!

[dkrolls]

YOU WILL GET THERE!!! It works.

I was in bed for 2 years and can now run 10 miles EVERY DAY. God, that protocol is hell, but WOW when you get to the other side it is a miracle!!! You are about to get a new life that is so amazing you will cry at the sunrise. The gratitude is so strong you will think you were touched by God himself. And I'm an atheist. LOL. I video-taped my trip to hell and came out to heaven. But now I'm so healed I just cannot find the time to upload it.

[tatertotlily]

Im in my own hell....Thanks for posting this video...It ruining my life,,,my boyfriend doesn't understand why i don't want to have sex,,,he takes it personal..IIf i do have sex I will be down with off the charts pain...it sux....It so really weird listening to your video..its like i am talking...every word you say is exactly how I feel and all my words... I wish people could understand how bad this pain is ,,,,

[mcertonio]

@tatertotlily I KNOW! My script is 2 BIG glasses of wine & if you

Can have "A HAPPY ENDING"  The endorphins are good for you LOL.

Just when you think you have made yourself understood, You get

A comment that sets it back, RIGHT!

KEEP TRYING

[tatertotlily]

@mcertonio you said it... lol endorphins  If I can only get to the point where i can damn do it..lol Did last weekend...and also going to new Doc..on same pain meds but she added mussel relaxers...that seems to help...TG... But they are giving me a off the charts skull cramp,,, Can't win...

[moonwitch1981]

also a suffer and was woundering if you have an update on how you are doing now, hope you don't mind me asking : )

[ValerieLumley]

I am a recovered fibromyalgic who understands this condition from the inside and back out again. FMS symptoms can be taken as the cause of this condition and lead you on a wild goose chase. Symptom management will not cure it, but can make you feel a little better, but this is not curative. Do not give up from failed hope and keep going for a cure. It can happen!!!

Valerie Lumley, Recovered Fibromyalgic and author of

"Curing Chronic Fibromyalgic - Choosing What Works"

[riverlaken]

Hey Michelle,

I just got back my blood test results, I think I have this FM. I have to wait over 1 month to see a roumatoligist ( musle doctor) and I know your not a doctor, although I though I would ask you.

MCH : 31.8 High not normal level

AST/SGOT : 13 Low not normal level

ANA : Negative >20

All other blood test are in normal levels. Do you know anything about this?

Thank you, for sharing information about FM.

Take good care!!

[mcertonio]

@riverlaken The Roum. WILL HAVE NO IDEA, IF THEY

Are A Dick You will feel worse. FM is from the brain

Please see my facebook post/blog. DO NOT TAKE

LYRICA OR CYMBALTA, Stay off Pain meds As long as possible.

SEE AS FEW DR's as possible. Read new findings & educate

NOTHING Drs give us help, Read comment from people like U.

Blood test means nothing.

[mcertonio]

@riverlaken I have been sick for 20 years now. Blood tests will

Come back normal, There is new INFO FINALLY!

Go to FACEBOOK. There is alot of support and easy to talk.

And alot of INFO.!

Hold ON

[christen20200]

I have fibromyalgia and im not as bad off yet im only 25 and i suffer and it only gets worst by the day my wrist and arms everything on my body hurts so im very sorry to hear that u have it also.

[mcertonio]

@christen20200 STAY AWAY from Drs, NO Surgeries, Limit stress

My Hysterectomy was last straw. Advil 2 A day twice, NO LYRICA

NO CYMBALTA, Our brains need dopamine new findings

Are on my Facebook Page. FHM!

[logiqclothing]

how is the protocol going for u is it working ?

[bensonmeds]

Once again: do not dispair. Follow the link of this email and you'll be more than surprised. I'll talk to you later.

[bensonmeds]

There is a certain hope. I have the treatment and I can help. Follow the link of this email and see what can offer to you. Worth trying it.

[lydialunacy]

we all look like were fine...but we are FAR from fine. no one knows pain like we as fibro patients do. i did 6 years of gymnastics, 3 years of track soccer and basketball. 2 karate. and alot of other sports...now i can barely stay in class. and i cant remember shit either. i can barely open a car door. I FEEL YOUR PAIN. NO ONE BUT FIBRO PATIENTS WILL EVER KNOW WHAT REAL PAIN IS. IT IS REAL. WE ARENT FAKING IT. WE ARE AND WILL ALWAYS BE WORSE THEN CANCER PATIENTS BECAUSE WE SUFFER EVERYDAY

[mcertonio]

I finally found A EUROPEAN website That states Are life is worse than MS, Lupus, Aids Cancer, I will post it. AND for all the haters it was from A NOBEL PEACE DR.

[mcertonio]

@lydialunacy See my Facebook page, New Brain Info.

I am working on A channel on Oprahs Tv, Will need all

support.

[troubleswipp]

St. Amands protocol was the first treatment i tried. Sorry to say that, it didnt work for me at all.

[ladytrish51]

was watching this while rubbing icy hot on my rt knee... and all i kept thinking was yup.. this is me... Im right pretty much in my bed.. have my computer set up rt next tome.. I sure am in pain hell today yet again.. sleep is non existant.. also have ddd.. which adds even more pain.. and trying to cope with diabetes.. what a a flipping mess... there are days when ya just cry.. all day.... oh and i forgot.. im in menopause... been almost a yr... thanks for doing these videos.:)

[mcertonio]

DO NOT HAVE A HYSTERCTOMY! Its dollars for them AND hell for you! Watch my new one maybe You will laugh

Because that is all we have left

[babybunnies]

I have heard testimonies with Noni Juice and Gogi Juice. One friend was diagnosed with Fibro and is was taking Mannatech herbs and has helped tremendously. Please look into it.

[mcertonio]

Have done, THERE IS NO CURE IN A BOTTLE! Your brain is sending bad info to your body! If A FIBRO HELL person said it cured them, THEY ARE SELLING YOU SNAKE OIL AND THEY DO NOT LIVE IN PAIN!

[JosVanOosterwijck]

Hi,

I have bad fibro too and I feel your frustration, anger and sadness about this subject deeply. It's everything in my life unfortunately. Thank you for giving people such an honest explaination about what you're going through. It must be challenging to put this up, knowing that there are people everywhere that are judging. Thanks so much for doing this for us all. Don't give up, try and find something every day to get thru it, no matter how puny it is to other people.

Gentle hugs

Marianne

[fibrosucks]

Hi mercinto,

You areway to trtuthful and i like that. Of cours pain has a way of doing that to you, right? I'm starting (trying) to start a fibro page on facebook. Would you be interested in coming by once in a while?

Your choice.

Sincerely,

Fibrosucks.

[PiercerJenn]

You put it sooooo well. I dont think I could have said it better myself. The not sleeping thing, the being in shock from the pain in the morning. EVERYTHING! Some of my family doesnt take me seriously. It makes me sad because I could really use some family support. Thank you for your videos.:)

[ceveretts]

I read the other day that cussing actually helps to ease the pain! I'm trying not to because I have a toddler but I feel better having read that info! There are so many facets to this disease that can cause us to feel shame. After 10 years of suffering I'm ready to break through that into the "whatever works for you" phase! We have to be free somewhere! Why not here? Wish I was in the same place as you so we could be friends! Peace...

[mcertonio]

We are friends! And I love to curse and laugh and love and sing and paint BUT I am alone also because NO ONE GETS IT!

[GiftRap09]

i feel your pain how is th protocol workin for u

[MsDeadea]

Michelle, I support everything you are saying. I feel the pain also. Would love to have you on myspace so we can vent to eachother!

[zhiaah]

Hi Michelle, this is the first time I've actually listened to someone else describing the pain that I have. I too experience the kind of comments from people. I was diagnosed with rheumatoid arthritis first in 2006 then another specialist diagnosed Fibromyalgia , I asked for a second opinion, and was told I have low level RA with fibromyalgia. I get comments from people like " you look ok" ! ... yet, I'm in pain and attempting to carry on as best I can and that's on a "good " day .

[33molly33]

It means a lot to me to hear you talk about how difficult it is to got to the grocery store. I have been blaming myself for not being about to go nearly any store.

Thanks,

Nancy

[mcertonio]

@33molly33 The guilt is HELL & THE WORST

THING for me to deal with! See my Facebook

Site, Lots of good INFO

[Guai4life]

AM ON THE Guaifenesin Protocol FOR 3 years and it works !!!!!!!!!!!!!!

[mcertonio]

I am 9 months--i think into it. At first I felt bette and my

hair grew and looked healthy. Now more pain than ever

my arm muscles are pulling apart and you can see it visually!

I am looking into A clinic in Lake Tahoe. Any feedback I would appreciate.

[mcertonio]

@Guai4life Check out Fibro page on my Facebook site,

I think Gui has helped me but it is not A cure.

[LindazEyes]

We have much in common, but plz check any treatment 1st w/ the Fibro. Network: they're a clearinghouse for all of the facts & bogus claims about this illness. We who can't work ESP. don't need to be wasting our $ on quackery. Guai. has no proof of working, sorry to say. (I feel that anger, too, but keep it clean, hon'.)

[mcertonio]

What is clean?mOur Government? Insurance? Dr's,

My language is the least of your worries.

[oct7becky]

I have had FM diagnosed 6 years ago, and I had great progress from drinking kangen alkaline water. It has given me energy, 90% reduction of the muscle spasms, better clarity. I believe in the alkaline way of life. BEst of luck I have gotten my life back by 75% Getting better.

Please try it what is there to lose just water. Some detoxing at first, but the acid waste is leaving your system.BEst of luck.

[mcertonio]

THERE IS NO CURE IN A BOTTLE OF ANYTHING! I am happy if you feel better but All of the AMWAY stuff is BULL!

[joyfulgardenpr]

I also feel your pain because when my Father was sick, my family thought that I didn't want to pitch in. The reality was that the Pain and Body/Muscle Fatigue just drags you down. . . . . .So I feel your Pain Michelle. . . .nobody in my mother's side has given me absolutely any support. . . . . .and this comes from somebody who was born with Omphalocele, meaning your guts are out of your abdomen when you're born. . . . .but Fibromyalgia and CFS is a totally different body dragging thing.

[mcertonio]

I am here for you

[joyfulgardenpr]

My sister has never believed that I have FMS and CFS and its been 18 years so far.

In the year 2007 my wife and I visited a Horticultural and Ornamental Plant Trade Show in the Orange County Convention Center in Orlando and then went to Disney and Epcot, and I moved around in a Scooter the whole time. Renting Scooters can be a drain on your wallet since it cost approximately $ 90. . . . . . . . . .

[mcertonio]

Not to mention thepain in your neck from looking up!

Or the pain in your back for sitting down

[Elsbeth1540]

Dear Michelle,

I wish I could take away your pain... I, too, suffer from FM. Your video was helpful, but it would be even more effective without the foul language. Why? Because the language limits to whom the video can be recommended --- and your video could be helpful to so many children who are struggling just like you are. Please, dear friend, could you clean up the material for a "G" audience? And, know that you have my sympathy. Thanks, and best wishes for your recovery.

.

[mcertonio]

My language is your last worry, We have A corrupt government, insurance companies, Credit cards, RUSH LIMBAUGH. If I can help more people I WILL DO IT!

Check out my new ones

[ll1816]

I can completely and totally relate to you. I have Fibro and CFS and other problems as a result. It is sooo hard when others don't understand or believe that we are sick. The pain and fatigue are so bad and I'm glad that you are posting your webcasts. It helps me just to hear someone like me talk about what it's like and it makes me feel less lonely. Thank you and take care Michelle. Please keep your videos coming. Gentle hugs, Lizzie

[wholeauto]

You have some of the symptoms that my wife has. She doesn't have it as bad. I do hope there is a support group.t

[wholeauto]

My wife is the carrier of Fibromyalgia and my 3 boys have it also. My wife suffers from Migraines and shes always tired...

My oldest son has it bad... Is there a support group that you attend?

[LindazEyes]

The Fibro Network isn't a local support, but they have newsletters w/ the latest accurate info,,w/ surveys + support in the form of reading about folks w/ FMS, scientist's work & relationships, You show bravery when so many run away.. Good luck. Support groups are everywhere, but some must start their own -they're valuable in keeping people together. Keep on!

[danielbrinaw]

I couldn't have said it better! You go girl!

[mcertonio]

THANKS BABE!

[justice4abi]

wonderful info thank you. i feel like this video is about me and what i go through. my family and friends don't get it either. i see that i am not alone. god bless you :)

[Leviticus45]

You shouldn't post while you are high on pain killers. You don't make sense and you make us all look bad.

[JustGrumpy]

I read your comment and they say if you can't say anything nice then don't say anything at all! How would you look if you was in pain all the time and your tired? you would not look like a model and I don't think she was on pain meds while making the video.

[truemirror]

I have chronic pain from spine & head injury, & I have fibro, the pain is different, the fibro pain at it's worse, is worst than the chronic pain.

I've taken hard core pain management meds & it doesn't touch the fibro, unless it knocks you out & you sleep through the pain.

If you have fibro now & still able to work.... just wait, few more years you'll be fighting to keep from killing yourself because of pain, it gets worse, enjoy life now, you won't have a life in the future.

[JustGrumpy]

regarding your comment. first of all I don't work I did but i had to stop because the pain got worse this was before I even know I had fibro.

[truemirror]

I was trying to comment to someone else, who claimed work and fibro.

[JustGrumpy]

Even though fibro hurts and gets worse everyday I still look outside and think what a beautiful day it is because I won't let fibro stop me from enjoying life. So take your rude as comment and put it in your pipe and smoke it! At least you get pain meds to knock your ass out for a few days It took me four years just to get pain meds and these don't knock me out! Just because you have fibro does not mean that you are the only one that suffers!

[truemirror]

I was agreeing with you and commenting on Leviticus, Fibro hurts more than being hit by a mack truck long term, & the one who still works & hasn't had it long who commented, I've delt with both, fibro is worse, I agreed with you, one can not take pain meds long term, it will damage or kill you, & they don't get rid of the pain unless you take enough to fall asleep, who wants that?, those with bad comments don't get it, & if it don't kill pain I won't put it in a pipe & smoke it!

[JustGrumpy]

Comment for truemirror: of course I know fibro hurts more then getting hit by a mack truck that is why I always say haveing fibro is like being hit by a mack truck.When I take my pain pills it makes me sleepy at least I will sleep a little which I don't sleep at all during the night. If pain pills will cause long term damage to a person with chronic pain then why do they give them to us? oh i know why! so we won't be in pain and lay in bed trying not to scream! Oh by the way here is a pipe for u

[mcertonio]

I love you! I bet youhave some good stories! If I get it up!

I will record them and others to help educate.

[danielbrinaw]

Leviticus45...DO YOU SUFFER FROM FIBROMYALGIA OR FROM CHRONIC PAIN??? God forbid YOU ever get this disease. Shame on you for your stupid comment(s)....go away and get a life.

[mcertonio]

Why Leviticus? Are those who shout CRISTianity the loudest-

More Judgemental than those of us that live Christianity?

Educate yourself and you will realize how little you know!

Some of us suffer more than others AND more sometimes

than others. Leviticus JUDGE THY SELF!

[PanzersWifey]

I finally got a doc to say yes u have it, I been diagnosed but never treated. I stay in pain and I will never get proper medical care because I am an Army wife. I have horrible medical care meanwhile my husband is fightin 4 this country worrying about his wife being in pain

[mcertonio]

It toom me 4 years to get disability and abuse from many asshole Dr,s. You must get a PAIN

Dr. and stay on a plan. pain cycles, WHICH

means You hurt! I think I will record it instead. thank You and PLEASE buy DR. ST Amands book.

I am on my feet now, Well sometimes AND I can wash my own hair after 4 years, YEAH!

[atigeronwheels1]

Hi there, I watched a lot of videos of people that have fibromyalgia and yours is the best. I have fibromyalgia and chronic fatigue and arthritis. I know how it feels when your family and friends don't understand. I am lucky to have my fiance. My family stop talking to me once I found out I have fibromyalgia but I say forget them because they don't understand. Awesome videos because it will show people that fibromyalgia is real.

[maximotion]

Tell it girl! I have fibromyalgia and I understand you completely. Fantastic video. 5*****