Added: 2 years ago
From: DysautonomiaMD
Views: 264
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  • A Public Thank You for all of you who could see I was getting sick right in front of the camera.

    For those of you who never heard of dysautonomia, this kind of think is kinda regular and nomal for me.

    A life lived one drop at a time.

    Survivors are we all. I believe there are many that have died before us, and many fight suicidal thoughts every day.

    Thanks for being there with AND for me. You guys all R O C K....I mean R >>> O>>>>C>>>>K>>>!!!

    LOL,

    Margaret

  • Hi Margaret,

    Wouldn't be great if a PCP could just look at a patient who came into the office with complaints of syncope, nausea, MVP, IBS and he/she could just look at you and say; "you have Dysautonomia?" I have actually had one doctor, my Cardiologist, laugh at me when I mentioned the autonomic nervous system and its relationship to MVP syndrome...certainly doesn't make for a pleasant visit!

    Thanks so much for being such a help to me, you are the greatest!

    God Bless,

    Jeff

  • I hope computers can make this diagnosis, since the symptoms can easily be grouped together, pointing to Dysautonomia. I wish I had all the answers; you know we can just do that which we can do. Someday, they'll look back at us in History, and say, "They could send a man to the moon, but they couldn't figure out why bodies were lying on the floor."

    Can you give me in a nutshell, your knowledge on the ANS and MVP? Can you please tell me how it differs from everyday bad dysautonomia? Thanks, Mgt

  • I will send you a PM and explain further.

    Thanks Margaret,

    Jeff

  • I didn't know the ANS and the mitral valve are embryologically related in time of embryo growth. In a year, I hope to know much more. Appreciate all the people that have shared their personal medical information with me; it is an honor to be able to put these all together in my brain.

    You YT friends have really changed my life.

    I can't imagine going without talking to and interacting with you...thanks so much for all that you give.

    Your Sister in Christ,

    Margaret

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