i love being a paitent at great ormond street :) i love them like another family they really are amazing although i havent been treated for heart problems i have been treated for microtia under neil Bulstrode and also under the maxilliofacial department so decided to make videos about it have alot going on as usual n i think i may have heart palpitations but i dont know as i dont know much about it
Absolutly amasing! Great ormond street never ceases to amaze me and to see those bright eyes on your daughter, the fight you can see in them. Woah!! May God Bless your family always x
Great video. One of my twin daughters had open heart surgery to correct her TOF + PAPVD at Columbus Childrens Hospital. It was the only place in the US we could get the surgery done bloodless. An awesome experience. Surgery on monday AM and discharged Wed afternooon. It sound like our kids were discharged with the same....NO LIMITS! All fixed - all better for life. Again great photos. Take Care.
I have a family member who had the same problem but sadly didnt pull through also,another close friend had a gorgeous baby son who died of cancer aged 10months and i,myself have been told i might not able to have children ever & im only 19years old
Soo glad your daughter pulled through shes really a lil fighter,well done also,what a difference from the first to the last photo - Amazing
Wow my younger sister went to great ormond street when she was a baby and had an heart operation too , i never got to see my mum, but my sister survived and im glad to see her survive too!
Hi there and thank you for your comment. Funny as I was just chatting to my little girl when we saw your message. She says "It's very kind of you and thank you so much. I am glad your sister was OK too."
From my side, very sad to hear of your loss then, but I am sure you are very close as a family. Only way to be.
No, she didn't die. She is a beautiful normal little girl now of six with a real happiness and love of the world. And very proud of her little "zipper" in her chest (which can hardly be seen now!). Thanks for your interest.
just to say, i'm 16 i was misdiagnosed with tretalogy of fallot when i was 7 days old, turned out that i had pulmonary artresi, slightly more severe, which is where the pulmary artery is non-existent rather than blocked. just thought id say from an older patient/childs point of view that if shes anything like me her scars will just become her battle badges and she will actually grow to love them, and that as painful as some of the stuff looks its not all that bad, shes gorgeous and very brave. x
Thanks Emily.. I hope you're doing well with your health. Our daughter is perfectly well now, thankfully, and we've been luckier than some. Best wishes to you. Keep well.x
Thank you so much, Sorry I haven't replied in such a long time. Our little girl is fine now, and full of life. Puts us all to shame when we moan about a miserable day! LOL. Thank you again! xx
More power to her. I have TOF as well and I have had five surgery's the last being this summer. I hope you all are doing well, I wish you all the best of luck :) Feel free to watch the video I made of my surgery.
Why thank you. Very kind commment. She is a little angel, very confident and melts the hearts of everyone she meets. Perfectly normal little girl! As for her special "zip", it doesn't bother her and is hardly noticeable at all now. Thanks again. xx
i love being a paitent at great ormond street :) i love them like another family they really are amazing although i havent been treated for heart problems i have been treated for microtia under neil Bulstrode and also under the maxilliofacial department so decided to make videos about it have alot going on as usual n i think i may have heart palpitations but i dont know as i dont know much about it
eeyorebabe1 9 months ago
Absolutly amasing! Great ormond street never ceases to amaze me and to see those bright eyes on your daughter, the fight you can see in them. Woah!! May God Bless your family always x
flathanger 1 year ago
Great video. One of my twin daughters had open heart surgery to correct her TOF + PAPVD at Columbus Childrens Hospital. It was the only place in the US we could get the surgery done bloodless. An awesome experience. Surgery on monday AM and discharged Wed afternooon. It sound like our kids were discharged with the same....NO LIMITS! All fixed - all better for life. Again great photos. Take Care.
equifax9 2 years ago
Wow, she's beautiful. My son had tetralogy of Fallot as well...all better now! :-)
minequeen1 2 years ago
I have a family member who had the same problem but sadly didnt pull through also,another close friend had a gorgeous baby son who died of cancer aged 10months and i,myself have been told i might not able to have children ever & im only 19years old
Soo glad your daughter pulled through shes really a lil fighter,well done also,what a difference from the first to the last photo - Amazing
All the best for the futre,Take care
Sarah x
glamourgirl2008 3 years ago
Wow my younger sister went to great ormond street when she was a baby and had an heart operation too , i never got to see my mum, but my sister survived and im glad to see her survive too!
missxxxaxrocks 3 years ago
Hi there and thank you for your comment. Funny as I was just chatting to my little girl when we saw your message. She says "It's very kind of you and thank you so much. I am glad your sister was OK too."
From my side, very sad to hear of your loss then, but I am sure you are very close as a family. Only way to be.
Kindest thoughts
xxx
AllexUK 3 years ago
1:38!Wow!Was she born like this?What happends when your heart is like this?
girly4now 3 years ago
dud she die why did she have an operation she must of been so scared
worm9100 3 years ago
No, she didn't die. She is a beautiful normal little girl now of six with a real happiness and love of the world. And very proud of her little "zipper" in her chest (which can hardly be seen now!). Thanks for your interest.
AllexUK 3 years ago
Wow she is really an angel and she survive the major operation. shes a fighter, shes amazing. god bless your family
best regards to you and your daughter
Dindin051082 3 years ago
Thank you so much, she's all fine now, and just annual checks. Top little girl.
AllexUK 3 years ago
just to say, i'm 16 i was misdiagnosed with tretalogy of fallot when i was 7 days old, turned out that i had pulmonary artresi, slightly more severe, which is where the pulmary artery is non-existent rather than blocked. just thought id say from an older patient/childs point of view that if shes anything like me her scars will just become her battle badges and she will actually grow to love them, and that as painful as some of the stuff looks its not all that bad, shes gorgeous and very brave. x
emzily121 3 years ago
Thanks Emily.. I hope you're doing well with your health. Our daughter is perfectly well now, thankfully, and we've been luckier than some. Best wishes to you. Keep well.x
AllexUK 3 years ago
Oh My Goodness.
What a beautiful little angel. How hard that must have been for you as parents. I am so glad that she is all good.
This videa was very touching. Thankyou.
Much Love, to you and your daughter.
xxxx
SuperDramaticSCENE 3 years ago
Thank you so much, Sorry I haven't replied in such a long time. Our little girl is fine now, and full of life. Puts us all to shame when we moan about a miserable day! LOL. Thank you again! xx
AllexUK 3 years ago
Oh I bet it does. Thats great that shes all better. (:
<3
SophieLouiseee 3 years ago
Heart babies are heros they show courage beyond there years!
sylviesangels 3 years ago
Heart babies are heros they show courage beyoonf there years!
sylviesangels 3 years ago
Your daughter is amazing. Wishing all the best to your family!
Know what is this all about, my son went throught the same one year ago.
S.
Sonule 3 years ago
More power to her. I have TOF as well and I have had five surgery's the last being this summer. I hope you all are doing well, I wish you all the best of luck :) Feel free to watch the video I made of my surgery.
BERTTANY17 4 years ago
What a little fighter!!
Your daughter is an amazing!
Well done
With best regards
xxxxxxxxx
helliecoates 4 years ago
Thank you for your lovely comments. She is indeed a fighter...a very determined little thing!! :)
AllexUK 3 years ago
GOD please bless them....
oluydoiyhgjk 4 years ago
Thank you for your kind thoughts.
AllexUK 3 years ago
Your daughters a star, she looks fantastic !!! All the best to you all XXXXX
lynnbrum 4 years ago
Why thank you. Very kind commment. She is a little angel, very confident and melts the hearts of everyone she meets. Perfectly normal little girl! As for her special "zip", it doesn't bother her and is hardly noticeable at all now. Thanks again. xx
AllexUK 4 years ago