Hello Landon! You look great, so "healthy". My son Mikey also has SMA1. He was diagnosed at 5 weeks old and is now 21 months old! Although he is on a vent, he is very happy. Keep strong Landon and tell mommy and daddy you already know all the answers, even when you struggle. Mommy, try the nasal aire II petite mask and the simplicity mask, they don't cause sores! You have to use the softcap headgear for the simplicity. If you need, I will tell you how to alter it. God Bless, I'm praying for you!
Hey Guys, Great video!! I am posting this on My Myspace and Facebook. I am Praying for Landon everyday!! God is in control all the way through this!! Hang in there, and keep up the great faith you have!! Love ya!!
Hello thank you for this video I too also have SMA and looking for a cure (:
GoogooEyedChihuahua 7 months ago
I love you Landon :)
KickinLovesBuddy 2 years ago
Hello Landon! You look great, so "healthy". My son Mikey also has SMA1. He was diagnosed at 5 weeks old and is now 21 months old! Although he is on a vent, he is very happy. Keep strong Landon and tell mommy and daddy you already know all the answers, even when you struggle. Mommy, try the nasal aire II petite mask and the simplicity mask, they don't cause sores! You have to use the softcap headgear for the simplicity. If you need, I will tell you how to alter it. God Bless, I'm praying for you!
rcmkbe1 2 years ago
Hey Guys, Great video!! I am posting this on My Myspace and Facebook. I am Praying for Landon everyday!! God is in control all the way through this!! Hang in there, and keep up the great faith you have!! Love ya!!
2009darci 3 years ago