My Lyme Story and symptoms

[rniltonviolin]

THERAPEUTIC MASSAGE - Shiatsu, Ayuvedic, Chinese, Indian - as hard as you can take it. It has kept the pain at bay for me for the last 2 years. When the pain is bad I go once or twice a week and can ween off to once every two weeks once it is under control. Works better than anything for me.

[hannahboo227]

Hey everyone. I'm slowly getting back to each of you. I forgot my password. Lyme brain, GO FIGURE! Going to make another video soon about my treatment with IV antibiotics. Will let you know when it's up!

[LymeNurse]

@hannahboo227 Please friend me on Facebook. Send me an Email to Lymenurse at AOL. Facebook send a PM to gary2rn at yahoo dot com. Would like to give you some advice. Gary Engelman, BSN, RN

[smotleyjr79]

Im 32 years old and when I was in 5th grade living in Iowa I received lyme disease. I never received the bulls eye bit mark, doctors didnt really know what to do. I had an IV tube put into my arm going to my heart to feed me medicine, after awhile I had a bad reaction the the medicine they were giving me and the IV tube was taken out and I was put on some pills, but now I live in Ocala, FL and doing good, Im not sure if later on in my life if the disease will affect me or not.

[TheSoftballgirl2015]

I have over the past 3 years have had a lot of the same symptoms as you have listed above. They continue to tell me I do not have Lymes,  I have always thought maybe they were right until my second child was diagnosed with it. I now have my 15yr daughter going through this with sever back and neck pain and my 11 yr old son is in stage 4 with joint pain and two co-infections. Your story has conviced me that I should make them test me again. Thank you so much. praying for you

[MrAUFANATIC]

I thought this was curable...

[jroll7799]

i have had lymes for 5 years now i got it when i was 7 and im 12 now. i had stage 6 lymes. 1 week from brain damage. 2 weeks from dieing. yeah sad.<3

[KrazyKatIN]

I would love to talk to you about lyme they think i have it. I am 12 and for 3 years now it has been so horrible.

[cherrilicious1001]

ur story is very touching i complain about so much and it doesnt mean tht i havent been through anything tough but i forget that i can enjoy for what life is right now because there are people who are suffering for more than 15 years

[DickValentine87]

It's tough to think lyme's disease "initially" with there only being 20,000 cases a year, but having to go that long without a proper diagnosis is quiet ridiculous. I would have figured a western blot would have picked it up, didn't know they were so slack. Either way keep up the good fight! Sickness comes on horseback but departs on foot

[nhwhmpy7020]

My daughter has had Lyme for 10+ yrs. too and has gone through a lot of the same things. She was diagnosed a year ago. She missed out on a lot of her childhood and was treated poorly by too many people, so I can understand the heartache you've been through. I wish you the best on your road to recovery.

[ratmanbowers]

lyme disease nearly killed me. When I was 16 I had symtoms for 3 weeks during the summer. Saw a doctor everyone of those 3 weeks and none had answers. On the 3rd week after feeling my heart stop I went into the ER with a heart rate of 19 BPM when I walked in. I had a pacemaker implanted and it was determined by a nurse I had lyme disease and lyme carditis. FL is not used to lyme disease and no doctor had an answer for me. I'm 18 now and I get my pacemaker taken out in 3 weeks and my fight is dun

[KarinOll]

Look up this video on youtube and you will know what to do (copy and paste): “HemoPyrrol-Lactam-uria (HPU), Lyme disease and autism presented by Dietritch Klinghardt, MD”! It is a phenomenal lecture given by Dr. Klinghardt!

[Himacmovieman]

Hello Hannah I am sorry for your suffering I am a re inventor and found the correct way to make a very effective colloidal silver that has been very helpful with people with lymes disease. I put the plans on how to build this unit on You tube search for Himacmovieman I use 2000 Volts AC on a constant flow over method usiong a micrwave for the unit. I use no microwaves in the production

[cntrymscfan08]

So I loved your video. Lyme Disease is one of those diseases that goes unnoticed by many doctors. It is just ridiculous that it took that long to find out what was wrong though. It's just unfair that you had to suffer for so long. I will keep you in my prayers. I wish good health upon you. :D

[holobody]

See TY - MMS Cure For Lyme Disease

[kitcat591]

Hi Hannah, So Sorry for All you've suffered.A great German Dr.Dietrich Klinghardt in U.S.now, Expert. Has more than antibiotics to offer you. He had LD @ 25 yrs. Ph(303) 499-4700.Many other biting insects spread LD- people spread it; often Carriers have No Symptoms, Mothers pass it to fetus & also breast milk.Antibiotics may make it worse eventually. Hopes 4 Good Health to you! I'm 61-in late stage LD.

kitcat591

[Immydog]

Is there a better test for lyme now? Or would you still recommend the western blot repeatedly?

[ExteelPaprika]

Its sad... seeing as how this is such a common disease found worldwide and rampant in certain states.... that so many doctors are oblivious to it and cannot detect it.

[ajveto]

Is it just me or does 95% of the human population have the majority of those symptoms?

[coverkingz]

this matches me so well. Im 16 i have horrible fatigue and stomach issues all the time. I used to bodybuild but since i got lyme i had to stop. I had the same problem as you the tests came up negative but i just recently found a herb that works. It's called "teasle root tincture" you should check it out on youtube and order some. I hope it works for you

[amandanstevens]

your story is so very similar to mine. it breaks me into pieces knowing how ppl suffer and get no anwers. i too have been on longterm IV abx for a full yr now, after many complications and surgeries. message me if you get a chance...

amanda

[cbrsmom]

my pastors daughter is suffering the same symptoms. she has been tested for everything under the sun and one doctor said it may be lyme disease so we are waiting on the results of that test now. thanks for sharing your story and now we know that if the test comes back negative we will just keep testing her! i will keep you in my prayers!

[sanlu9111]

Thanks... Really thanks. You are a blessing... and very brave.

[babyboom58]

I'm so glad you found out the truth! Keep fighting! I invite you to see my own story of hope here on Youtube, "The Hushed Truth About Lyme Disease". God bless you in your recovery!

[lymelight11]

girl, you have gone through some bad things! i've had lyme for about 6 years, but was only diagnosed 1 year ago. the pain get's unbearable sometimes, i just feel like i'm going to die! i hope you're feeling well these days :)

allison

[vinceally]

What is the treatment everyone is getting? My little girl has just been diagnosed with Lyme. We didn't see a bullseye or anything but they say that may have happened months ago. Her knee swelled up and this is why i then went to the ER. They drew the fluid and tested for Lyme which came back positive. She has been put on antibiotics for 4 weeks but i was under the impression that 4 weeks is if you catch it early enough (which we didn't). I think she needs to be treated for longer.

[ameliax2k8]

im 14 and i have a bullseye rash on my stomache from a tick bite. i went to the doctors and they did a blood test but i havnt got he results yet. im just wondering because i have the rash dose that mean i have lyme disease?

[aimeesbreakingnews]

WOW, thats sad, ur really prettie, is ur name Hannah? Did u become a christian when u got sick or does it run in the family? HOPE U GET BETTA xoxo

[coolgirlee]

Wow, I do believe I have lyme. I did the test twice and it came back negative. I am 18 years old, and I developed a syndrome... nervous system dysfunction. I had to figure that on my own. Pushed the doctors until they believed that I have that syndrome. I am trying to tell them that I think I have lyme, but no one is listening. Even my parents think I am making it up. It is very frustrating. I got cysts on my ovaries, muscle spasms, muscle twitching, muscle aches/pain, stomach aches.. etc.

[coverkingz]

@coolgirlee It sounds like lyme and people kept telling me "oh it's just a virus or a cold" but i did some research of my own and i know it's lyme. You should use "teasle root tincture" its a natural herb thats said to cure lyme disease and theres a couple videos on youtube about how people were cured with it, i hope you dont still have it and if you do i would recommend getting some.

[JamesGrandeMusic]

With that being said... let's be penpals. I'm going to make a YouTube video about this. I've been home from work working hard on making something that could go viral and raise awareness. But I want the outcome to be positive. Keep up w the treatment, I know the herxes suck. I'm in the midst of a second one now. Your story is one to make people mad, and I will share with others. I hope your feeling better

[JamesGrandeMusic]

Watching this makes me very mad! I'm a musician, made a career out of it. Then, at my peak I got pretty sick. I had to give up playing guitar for a living. This was in October of 2009. I've been sick for almost a year, and was misdiagnosed just as you were. I've been to 14 different docs...Tested over and over... I feel your frustration. I'm fortunate I didn't suffer as long as you have. But I am going to get better, and raise awareness with my music about this disease. Lyme SUCKS!

[Meddy38]

We share almost every symptom. I tested CDC positive the 1st time. The infectious disease doc told me he didn't trust LabCorp. I've tested CDC positive now on 4 Tests, the latest through IgeneX. I KNOW there are people testing negative that have Lyme. Their symptoms are too similar to mine. My sister tested CDC positive in a different state through Quest Labs. IDSA doc there told her it was a false positive. Yeah, I would say the system is seriously messed up when it comes to Lyme.

[noddle515]

it is so sad to know that you had to put up with this ur hole life i wish you only the best :-)

[kwicksilver89]

well thank you very much! likewise :)

[hannahboo227]

haha thilly boyfriend!

but really, thank you :) hope you're doing ok

[alicat4377]

Wow, watching and reading your video was like reading my exact story. I started the same age as you getting ill and was finally pulled out of school and homebound in the 7th grade. I've had the same things happen, in and out of school, hospitals, jobs, and 15yrs for me to find out what was wrong. How did we lose so much of our youth to this disease? You are a very brave person and your story will help so many people. I wish you good luck with your treatment and recovery. Keep us updated:)

[hannahboo227]

Thank you, but I think anyone with this is has to be brave! I'm sorry for your struggles also and I wish the best for you!

[ecftube]

Wrote a Lyme disease brochure with the help of 2 Lyme disease specialists. Will email to anyone interested. God bless

[sickfrmtick]

Your story is much like mine as well as 100's of thousands suffering of late Neuro Lyme , It's maddening. Hag in there, we all must. Thank you for sharing although I do hate to see such young kids lose their childhood to this, it;s just as bad for older ones who lost their homes, lives, friends and family members. Such an world wide needless tragedy for all victims. My prayers are with you and everyone suffering.

[hannahboo227]

Agreed, it kills me to think that hundreds of thousands suffer from this every year and make no progress. Prayer is the most reliable. Thank you for your support and my hope and prayers are with you also

[mikeydude319]

@hannahboo227 are you ok r u cured because i just saw a tick on me =( i pulled it all off (including the head) and now i have it in a bag and i am going to take it to the doctors tomm. and hope it negative. good luck and i loved your video so informative as well!!

[xXxDoNk3yPuNcHxXx]

WOW i feel bad for you :( you really have been to hell and back and your not out of the fire yet..i wouldnt wish this disease on my worst enemy.

all i can say is i pray to god you will get better in time,keep your head up

and your a very good looking girl ;)

[thane17]

Wow that is quite the story. Its so similar to my own in so many ways I feel so bad for both of us, we've both lost so much of our lives to this thing. I used to always think that I would be well soon, that I would feel better tomorrow, but now looking back I can see over twenty years slipped by while I struggled to survive the day. I'm so happy you're on the road to recovery. You are a warrior!

[hannahboo227]

Thank you! That's very nice of you. I know what you mean. I rarely see the outside of my house. If I do a load of laundry, I need a nap afterwards. I'm a 20 year old and I can't even keep up with my 80 year old grandmother. They're going to try a new medicine bc the ones I'm on now have made no progress. Thank you for the kind words, I admire your courage. Good luck with everything

[hannahboo227]

boo you can't read the symptoms!