The only real hope we have is if the people responsible for public health are forced through overwhelming pressure to take seriously our complaints, garner the funds necessary to do the type of research we did on aid's and polio and find out what is causing this epidemic. I live in SW New Mexico. I plan on going up N in a specialized metal trailer where it's freezing and snowing most of the winter. Weather sites list pollen/mold/grass seed .2 on a scale of 1-10
@antares4141 I've never been allergic to anything all my life and still am not in the context of the types of reactions ordinary allergy suffer's experience. My symptoms are fatigue, brain fog, poor coordination etc. Medical literature contains no references to these types of symptoms from allergies. Hope is taking extreme measures to avoid allergens might give me a much higher degree of relief from symptoms. It's not cheap or easy but what else have I got to do but watch my life waste away.
Please! Someone try it $70 bucks is all it will cost you. Than come back here to youtube and tell me I am wrong. Not trying to be a smart ass, I have 12 years of this illness under my belt I know from hard knocks.
@antares4141 where are you NOW? I am open to listen to what you have to say about a $70 cure for this epidemic illness.. 12 years you suffered. How are you now?
@karmakomodia Not sure what your talking about if it's about mold avoidance I can't conclusively say everyone reacts to it the way I do but certainty they need to be aware of this. Also food sensitivity is a key issue for a lot of people specifically but not limited to gluten sensitivity. Not making any broad based claim that applies to everyone only that it does to a lot of people who sufferer from brain fog, poor coordination, debilitating fatigue, stomach bloat, and othershould consider it.
@karmakomodia I'm still very sick and only seem to be getting worse but I sincerely believe I would be much much worse if I still lived in a building that has or ever did have some kind of water damage and the subsequent mold growth. I have been on a gluten free diet since early 2011 and this has helped markedly with stomach bloat and the fatigue I used to always have to endure after meals. Two things that have worked for me and thousands of others can't say they will work for everyone, my 2CT
@antares4141 I am so sorry to hear that you are suffering still.. The weirdest thing that has ever worked for me is Bee Propolis.. really helped my stomach issues... I used to really be in agony with digestive disorders I too, avoid gluten as much as possible. Thank you for sharing your info.. I hope we all can find our way out of this nightmare and we can share has worked for us individually.. until we have a cure..... Blessings...
Walmart has a 9x7 dome shaped tent for $37 it's made of nylon (low voc), don't need stakes, the poles will support if you set it up in your bedroom. Put a hepa filter in it and don't come out without a respirator made for mold abatement $35 home depot. Do this for 2 weeks, I strongly believe many will see a huge drop in symptoms. if only everyone who suffered were on the same page with their symptoms and their cause the pressure would be too great for authorities to write it off as psychological
Thank you Greg. I think giving ME a face is the most important way of campaigning. Polititians can ignore statistics much more easily than they can people. Getting them to look is the problem. I also agree that there is a real problem with knowing who truly has ME. I have questioned whether I really have it, or is it something else and I still have no answers.
Thanks Greg. You are right on every point and yes, we do have to go it alone at the end of the day, which is a human disgrace and a sign of our times.
Great video :) I think the book, Osler's Web does talk about the HIV connection and how CFIDS/ME rose concurrently with the AIDS epidemic in the 80's. For the governments of the world to continue to deny that connection after all these years, it's just amazing.
Neenyah Ostrom's work over the years in trying to uncover the coverup is excellent. If you haven't read her work, you should.
We are coming together worldwide, and eventually we will make things better.
Lets start our own You tube channel. We could call it the You Tube ME Support Channel and anyone who has ME or cares for someone with ME or who is just sympathetic towards ME would be welcome to join. We could gather all of our vidoes together in one place which would make them easier to find and view and discuss. This would give us some kind of visible on line loose coalition. We could get something started and see where it goes from there.
The only real hope we have is if the people responsible for public health are forced through overwhelming pressure to take seriously our complaints, garner the funds necessary to do the type of research we did on aid's and polio and find out what is causing this epidemic. I live in SW New Mexico. I plan on going up N in a specialized metal trailer where it's freezing and snowing most of the winter. Weather sites list pollen/mold/grass seed .2 on a scale of 1-10
antares4141 6 months ago
@antares4141 I've never been allergic to anything all my life and still am not in the context of the types of reactions ordinary allergy suffer's experience. My symptoms are fatigue, brain fog, poor coordination etc. Medical literature contains no references to these types of symptoms from allergies. Hope is taking extreme measures to avoid allergens might give me a much higher degree of relief from symptoms. It's not cheap or easy but what else have I got to do but watch my life waste away.
antares4141 6 months ago
Thank you for acknowledging her GREG.. She is my best friend.. I am so proud of her. We will not put up with it..
I am ready to GO TO WAR...
karmakomodia 6 months ago
Please! Someone try it $70 bucks is all it will cost you. Than come back here to youtube and tell me I am wrong. Not trying to be a smart ass, I have 12 years of this illness under my belt I know from hard knocks.
antares4141 3 years ago
@antares4141 where are you NOW? I am open to listen to what you have to say about a $70 cure for this epidemic illness.. 12 years you suffered. How are you now?
karmakomodia 6 months ago
@karmakomodia Not sure what your talking about if it's about mold avoidance I can't conclusively say everyone reacts to it the way I do but certainty they need to be aware of this. Also food sensitivity is a key issue for a lot of people specifically but not limited to gluten sensitivity. Not making any broad based claim that applies to everyone only that it does to a lot of people who sufferer from brain fog, poor coordination, debilitating fatigue, stomach bloat, and othershould consider it.
antares4141 6 months ago
@karmakomodia I'm still very sick and only seem to be getting worse but I sincerely believe I would be much much worse if I still lived in a building that has or ever did have some kind of water damage and the subsequent mold growth. I have been on a gluten free diet since early 2011 and this has helped markedly with stomach bloat and the fatigue I used to always have to endure after meals. Two things that have worked for me and thousands of others can't say they will work for everyone, my 2CT
antares4141 6 months ago
@antares4141 I am so sorry to hear that you are suffering still.. The weirdest thing that has ever worked for me is Bee Propolis.. really helped my stomach issues... I used to really be in agony with digestive disorders I too, avoid gluten as much as possible. Thank you for sharing your info.. I hope we all can find our way out of this nightmare and we can share has worked for us individually.. until we have a cure..... Blessings...
karmakomodia 6 months ago
Walmart has a 9x7 dome shaped tent for $37 it's made of nylon (low voc), don't need stakes, the poles will support if you set it up in your bedroom. Put a hepa filter in it and don't come out without a respirator made for mold abatement $35 home depot. Do this for 2 weeks, I strongly believe many will see a huge drop in symptoms. if only everyone who suffered were on the same page with their symptoms and their cause the pressure would be too great for authorities to write it off as psychological
antares4141 3 years ago
Thank you Greg. I think giving ME a face is the most important way of campaigning. Polititians can ignore statistics much more easily than they can people. Getting them to look is the problem. I also agree that there is a real problem with knowing who truly has ME. I have questioned whether I really have it, or is it something else and I still have no answers.
kaazoom 3 years ago
Thanks Greg. You are right on every point and yes, we do have to go it alone at the end of the day, which is a human disgrace and a sign of our times.
Zarynity 3 years ago
Great video :) I think the book, Osler's Web does talk about the HIV connection and how CFIDS/ME rose concurrently with the AIDS epidemic in the 80's. For the governments of the world to continue to deny that connection after all these years, it's just amazing.
Neenyah Ostrom's work over the years in trying to uncover the coverup is excellent. If you haven't read her work, you should.
We are coming together worldwide, and eventually we will make things better.
Carrigon 3 years ago
Sorry, You tube Group, not channel!
patrick3235 3 years ago
Well done again Greg, a great video - thanks for making this for us all.
luminescentfeeling 3 years ago
Lets start our own You tube channel. We could call it the You Tube ME Support Channel and anyone who has ME or cares for someone with ME or who is just sympathetic towards ME would be welcome to join. We could gather all of our vidoes together in one place which would make them easier to find and view and discuss. This would give us some kind of visible on line loose coalition. We could get something started and see where it goes from there.
patrick3235 3 years ago