this is a very beautiful video! my nephew has to do that too. and when i saw this video it made me cry so much! well i hope your daughter is doing fine! god bless her♥♥
You have a very beautiful girl there. I love the first song, who is the singer and name of the song. Seeing the post operation pictures brings back memories when my kids had their operations. I hope and pray for the best for your daughter.
juliana is a beutiful babygirl i am crying in this moment because my babygirl she is 7 month old and she has craniosynostosis too i feel sad a i have a lot of questions to god she will have the same surgery of juliana so soom i hope god everything will be fine god bless all the kids and the parents with this condition>>
I have or had craniosynostosis. I had my operation at 13 and I am 41 now. Both of my kids have it as well. My son now 18 had his operation at 3 months. My daughter had to have two operations at 5 months and 3 years of age.
If you have questions I will be happy to answer them.. Replay to this message and I will give you my email address
@sirdcac I am a worried mom.. they are thinking my son (who is now 2) has sagittal synostosis. I was hoping to get information on it and if you give me your email address I will email you pics of my son
gorgeous girl
mylovesofmylife 1 year ago
this is a very beautiful video! my nephew has to do that too. and when i saw this video it made me cry so much! well i hope your daughter is doing fine! god bless her♥♥
SharleenLovesJonas 2 years ago
Oh Becca, this just brings it all back to me, hope little Julianna is doing well, Chloe xxx
chloeaylward 2 years ago
!!so amazing!!!!today is your birthday you are so beautiful!!in about 2 weeks my baby going to have same surgery so worry!!!!!!
nicoya040605 3 years ago
You have a very beautiful girl there. I love the first song, who is the singer and name of the song. Seeing the post operation pictures brings back memories when my kids had their operations. I hope and pray for the best for your daughter.
sirdcac 3 years ago
thanks i will happy if you send to me your email address
nicoya040605 3 years ago
WOW one out of every 2000. Back in 1973 it was one in 100,000.
sirdcac 3 years ago
juliana is a beutiful babygirl i am crying in this moment because my babygirl she is 7 month old and she has craniosynostosis too i feel sad a i have a lot of questions to god she will have the same surgery of juliana so soom i hope god everything will be fine god bless all the kids and the parents with this condition>>
nicoya040605 3 years ago
Hi,
I have or had craniosynostosis. I had my operation at 13 and I am 41 now. Both of my kids have it as well. My son now 18 had his operation at 3 months. My daughter had to have two operations at 5 months and 3 years of age.
If you have questions I will be happy to answer them.. Replay to this message and I will give you my email address
sirdcac 3 years ago
@sirdcac I am a worried mom.. they are thinking my son (who is now 2) has sagittal synostosis. I was hoping to get information on it and if you give me your email address I will email you pics of my son
Jinny198721 1 year ago
Julianna is so bautiful Becca
Tamz722 3 years ago
You have a beatuiful duaghter!! thanks so much for sharing you experience.
kevinmwill 3 years ago