Living With Multiple Sclerosis

[seekirk]

Omega 3s, low saturated-fat diet (<10g/day), vitamin D (5000IU/day), and a multivitamin. Takes time to regenerate the brain with the right fat (15 weeks to 2 years), but it will help build myelin and reduce inflammation in the long run.

[seekirk]

Just saw my MRI for the first time. Swiss cheese. Bummer. Spine. Big spot. I am not feeling very well. I am highly skeptical of ms drugs. Too much money in them and not enough results. If something is not statistically significant, try and try again. Then rush to get it approved and make a bunch of money on it. I spent the day reading marketing materials on ms drugs. I don't want to take any of them, but I feel like I have to. Sucks. Best to all.

[wysiwyg43]

It's the little things. 'Nuff said. *sob*

[natsway]

I can really associate with his story!! The slow progressive changes that infiltrate every aspect of your life! Learning "new tricks" to handle every day challenges you once never gave a second thought too! I commend him for staying positive & for giving us all the incentive to stay strong!

[45nrodriguez]

I was diagnosed with MS in 2007, and have had it for 5 years before diagnosed. I am still working full time, and will continue to do this as long as god is willing. I am a firm believer in healing. I have my days where I don't want to get out of bed because of the pain, or being tired. But I know God is behind me giving me the strength to get up and get on with my day. To all of those that have MS, god walks by our side to us the strength to go on with our lives.

[sodamntired]

I have MS too.

[DrShakesBALLIN]

Inspiring dude. Best of luck to dan!

[savingbeauty]

Consider that LDN which stops MS progression and attacks at pennies a day. Further, there are great strides made in mind-body medicine.

[blazak]

The people who would stand in the way of stem cell research can only be described as evil.

Thank you for this video. It helped me today.

[BriefCon1]

What I've heard is that fish and linseed improves the brain cells connection, might be helpful, all the best to all :))

[ShunaP1]

Thanks for this video!

I was diagnosed with MS on New Years Eve 2008. I still work full time tho I had to take a medical leave from my Navy Reserve committment. I'm always looking for positive feedback on this disease.

Gook luck Dan!

[23waterlily]

Cells multiply and divide and are only as good as the ones they came from.

Study how to feed those cells. what nutrients they need.

Everybody WITHOUT exception that I have known with MS, & ALS,during my career, have ALL lived in areas with fluoridated water, use fluoride toothpaste, take prescription drugs (laboratory chemicals) and the list goes on and on, taking toxins into their bodies. eating white sugar, flour.sodium nitrates.

Its a Mystery to figure out & it can be done Love to you all.

[KWhy37]

I also have MS. I play football at the University of Minnesota Crookston. I started a documentary about my battle. Search Playing With MS

[jactress]

They call it 'the invisible disease', you begin to disappear as your world starts to disappear.

I have started to video blog on my 30 years of living with ms.

Plse check out 'multiplesclerosis 101'.

We need to connect more, there are no MS experts out there - only the people who have it are truely the experts.

Jacalyn x

[dianey94]

stay strong

my dad just got diagnosed 07/08

im the one who gives him his injections

every other day and this has really changed my life im only 14 and this has changed me i used 2 think that in life all u needed 2 be happy was moeny, driving a luxury car, owning a nice big house, expensive wear ,etc. now i know that if you dont have health yor not happy.i pray to the lord every day for their to be a cure and i have faith god 1 day will hear us.stay srong and thanks 4 sharing yor expirience.

[swhiz]

injections? :O my mum has had it diagnosed for 5 years and has no injections :O should she be taking something?

[Feverant]

i have had it for 4 years now i think and im not taking anything - i got some steroid pills today for it however.

[mamichocolat]

Maybe your moms too far along for injections. My moms had it for almost 20 years and she just have pills, but I got diagnosed with it 4 years ago and I take interferon shots

[isa2222]

Thank you for sharing your story, you are very strong and sincere well done! i synpathise I have hadMS since 1990 so I understand your frustration!

[CassandraMadeIt]

Thank you for this video. I have RRMS, and can appreciate Dan's comment about the contrast of who he was before MS to his "new" self. Some days, I look at myself in the mirror, and I don't recognize the person staring back at me. Even though my face is pretty much the same, the perspective behind my eyes changes everything.

I hope we find a cure too. Especially so those who cannot walk today will walk again.

Peace & love to all who made this and especially Dan who shared himself.

Cassandra

[rontrester]

Great! Not only, not giving in; but doing something for the cause.

[BigSCTVfan]

Sounds like the wife is having a hard time with it. The disappointment in her voice is obvious.

[ChristacheLaPistache]

Yes. She is living that illness too. Every minute and everyday of her life. She is so brave.

[SarahSoulFood]

I have RRMS yet it no longer gets me down. I walk 6 mile events for charity with about 6 weeks to recover. Using herbal Cannabis very successfully! Giving others hope whatever treatment they choose. Never ever give in! X

[stayclose2us]

Thank you for this video. I have had MS since 1996 and sometimes it is very hard to obtain understanding from people who don´t have MS. You are very fortunate to have such a supportive spouse. I teach English here in Spain and every day is a battle to get up and have energy to finish the day. Thank you again for this sensitive and candid video about living with MS. :)

[johnnykougra]

Thanks for your very sincere video. Check out anything MS by Australia's Dr. George Jelinek. It will give you lots of hope.

[TFJ2005]

Thanks Dan for this video.

I to have a hard time putting my socks on.

Some days are good to hold a pen. Some days I can't even hold a pen. My figers are numb.

I would like to scream also.

Life is hard some days.

Take Care of U.

Sue

[blondehell28]

I to have a hard time putting my socks on.

Walking is very hard to do. I have been falling allot lately. Thanks for making this video and take care.

[helmuthoorn]

Get a crutch.

l HATE falling, cause then it takes me at least 5 minutes to get up again and concrete tends to be hard and painfull.

(Diagnosed in 2006)

[saltfan2]

is the deseace irreversable?

[senhuan]

Yes, irreversible.

[trojantjl]

not yet

[Rocky2Math]

Dan,

Im a teacher with MS (See "Durham Dancing" on youtube). I understand your frustration. Thanks for sharing.

With great appreciation,

Jim Durham

[NoMoreMS2008]

Thanks Dan for sharing your story and details of your daily struggles with MS. This is a terrible disease, but just know that there really is hope... I know first hand because I'm living proof that you can beat this thing afterall.

[theworldiknow]

Hey Dan,

God Bless you and your beautiful wife. I was diagnosed with MS at 25 and it was so hard to think about. Then I realized that our thoughts are our greatest help. I think you probably know this. Always notice the contrast, so you remain Thankful,grateful and appreciate all you have. I send good vibes to your family Dan.

BE HAPPY

[skeezydaboss]

Great video...I too have MS...and I love that this video shows the spouses thoughts and inner feelings about living with someone who has MS. I wish you the best, and I too hope to maybe participate in the adult stem cell treatment one day!

[mikecat23]

As pointed out below. Tysabri looks the best treatment for MS.

[FoodIsYourBestMed]

I am so sorry you are suffering with this neurological disorder! There is hope - google Ann Boroch and you will find her web page and you tube. She too had MS. Find out what she did!

[sadeynkj]

After reading Ann Boroch's book - Healing MS, I became aware of the way food affected me. Since starting a gluten and dairy free diet, and other things Ann suggested, I am doing much better. Don't let doctors tell you food doesn't matter, because it does. I'm still researching, but I believe food intolerance or allergies may be a factor in some types of MS. Each person's trigger foods may be different. Avoiding gluten and dairy is a good place to start.

[amhart33]

I'm glad you Pointed that out about the Foods . I have MS 6yrs. As Of 09/08 , I went Vegan Never Took the MS Medications against my Dr's Order. I feel wonderful and my Dr. said I would never walk again almost lost my sight and Kidney problems. People don't believe me when I tell them I have MS it has made me acknoledge how Blessed I am . I continue to tell People what God had done for me and they DR. said there isn't a cure there's no money in cure.

[sunnymser]

You and your wife are a GREAT insparation, have you ever heard about the MS CRUISE FOR A CAUSE? I think that you would LOVE it and I know that everyone there would be encouraged by your 'story'..please concact either me or the MS FOUNDATION

sunnymser

[deluvly2]

Thank you Dan. A very intelligent, moving video of your life with MS. Well said.

I am a "retired" photojournalist, currently on Tysabri. I'm doing well, but I miss the old me and the future I dreamed of living.

I know 5 other photographers with MS...all in a 60 mile radius. Very strange.

Good luck to you and your wife in all you do. She seems like a very strong, loving support. Diane H.

[Maninga2]

Dear Dan

Beautifully said. So many curl up and button up when it comes to talking about this illness. My MS has striking parallels with yours. The early years of denial followed by anger around the time of realisation that the disease is progressing and getting a grip. I have however found huge inspiration in opening up and making MS at focal point. Our new MS Resource and Therapy Centre in Guildford UK bears testimony to the strength of human spirit in adversity. God bless you

John

[Kwisthoutmedia]

I am affected with MS also. We are planning a camper trip to Canada because I hope I can still do that. I recognized everything in your clip. Keep up the good work!! Take care!

[angelafreedman21]

This is inspiring. Our hopes and prayers are with you.

[PlayThrough1978]

I am an MSer myself (RRMS, Dx 2002), and I found your documentary very moviing. You have summed it up nicely.

Way to ride the MS rollercoaster!!!!!

[FAITHOUSE]

Very, very well stated. I have a progressive form of MS. It is so difficult to explain. It is hard to let go of so many things. I keep pushing it. I will not let it own me. I admire your courage. Thanks for posting this.

[lexusmom1999]

You're still handsome. I admire your wife for being a great support. May Gods love continue to smile upon you. Check out my self produced Documentary.

[roxytrot]

it is a accomplishiment I too have M.S but it do not have me! way to go

[Aloosh12]

what treatment u taking.. my uncle takes a medicine called rebife is there a better one?

[protonjinx]

rebif is one of the best but not the best currently. 'the best' is tysabri which should be approved in the US and europe, but you cannot use it in combination with any other medicine that affects the immune system.

[7mumfred7]

"the best" indeed is Tysabri, but it is already approved in the US and EU for over a year....... see the videos by "vernbeachy" and "laurenvparrott" on youtube, you will be surprised that progress can be made.

[floricabatu]

What a great inspiration video

[sergebobroff]

thanks, good video.

i am at exactly the same point in life with my MS, so it is good to see how other people cope.

[sheilalavenson]

Nice video, my husband Gary Shane has had MS for 22 years. We have been going to Greece for treatments over the years. Check his video out and his web site. You will be encouraged. No drugs. Life is good!

[watoo75]

That's what we're waiting for....(Sorry, 4 my BAD english) i can speak french.lol;)

[watoo75]

Just a "french touch" of hope; that's what we (people with ms, family....).

KEEP ON FIGTING!

Jérôme-Paris-35y.

[WORRO01]

brother, thanks,,i was dx'ed last year with ms, i has to give up 23 years as a deputy sheriff due to ms, wife left me, with a 1 year old, and 3 year old, so that's kept me going taking care of my babies, wow what a change of pace, lol,,,love u man, keep on keeping on

john

[opirnia]

I also have ms and this is exactly, exactly right...

[Sefardisafran]

Thanks Dan, I too have PP MS but not getting any better.Like you I taught for 34 years in aHS in Brooklyn NY (BrooklynTech HS), now that I am in a wheelchair I hav started to practice Street Photography again.

Hugs brother,

LuisM

Hoboken NJ

[sarakonecky]

This is amazing. Makes you realize how much you take for granted. Dan is such an inspiration.

[pjdtoshi]

btw, i am in a wheel chair but my energy has imporved a great deal. i have had a lot of help from bee venom and the hand held rife machine b3. if anyone whats info feel free to contact me. peace

[pjdtoshi]

hope you and wife are managing still and God bless all of you out there that are in the battle. God loves you , no matter what the circumstances look like. keep the faith. peace

[pjdtoshi]

great video, thanks. i have had ms for over 20 yrs now, it is an arduous task to try to live as normal as possible while constantly adjusting to the relentless task master MS. it may take our bodies little by little but it can never take our souls. this is one of my favorite scriptures...(2Cr 4:18 While we look not at the things which are seen, but at the things which are not seen: for the things which are seen [are] temporal; but the things which are not seen [are] eternal.)

[larslaursen]

Man that touched me. Hope you´re doing alright. I´m having my mr scan in two weeks. My mom has ms and I´m almost certain I have it too. These past months have been worrying for me. If I get diagnised with it, I hope I can stay as strong as you.

[drodga]

Thanks for sharing that very intimate story of your experience! I am 27 and have relapsing/remitting MS but I'm finding things harder now. (Diagnosed 1 year ago after different and weird thnings affecting me) Message me if you want, there's no need for it to be a lonely place! :-) Andy UK

[darudes]

How old were you when diagnosed?

[MUZZA83]

hi ppl i have ms and it would be nice to chat to pll with ms on msn becouse for a person who have ms is a lonely place so if any one wants to send me there addy for msn i would be happy to chat thanks

[worktosser]

This is an excellent video. Thanks Dan for sharing your unfortunately kindred story. You are blessed with a wonderful wife and I admire your "keep going" spirit.

[aspadeisaspade]

Thank you for sharing. I hope many people view this and then have some insight into what it is like to live with MS: the fatigue, the frustration, the anxiety, etc. Very well done.

[Narimatsu]

Thank you for sharing... I too struggle with MS and appreciate your courage to share your story.