Added: 4 years ago
From: APSFA
Views: 11,673
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  • I was diagnosed with catastrophic antiphospholipid syndrome this year but it was a very weak positive. After getting a few rounds of plasmapheresis treatments, I've never tested positive again however we still have no real diagnosis so we have kept the CAPS diagnosis in all my paperwork. It's very frustrating because my d-dimers are still very high, staying anywhere between 7-19 despite being on blood thinners so my risk of clotting is still high. I just want to know what's wrong with me...

  • I thank you so much for this video! I was diagnosed with APS when I was 17. I have been living with APS for 15 years. I have lost 2 pregnancies. Both were lost at 24 weeks. My husband and I are are about to try again and it is a frightening process, but I refuse to let my APS hold me back! Thank you again!

  • hi  my name is beccy i have just been diagnosed with aps a week ago

  • Thanks for posting this video. I was diagnosed just days ago with APS, so this video is very useful as far as helping family and friends understand what I'll have to deal with the rest of my life.

  • I'm sorry...I accidently gave you 4 instead of 5 stars. great vid. I was told I has APS when I was diagnosed with Lupus 5 years ago. Thanks for sharing.

  • Thank you Scott and the APSFA for making this video.

  • thank you! my family needed this to understand better!

  • Just saw your video on the APS Foundation site.

    I'm a double-hitter with MS and APS. Am sending a link to this video to everyone I know to help spread the word.

  • This is very informative, I appreciate you taking the time to explain APS. Having recently diagnosed with APS it is great to see these resources out there. thanks

  • Great Job! Very clear and informative. It will help me explain this to friends and family. THANK YOU!

  • Very well done. I see you are getting some exposure out there that is great. keep up the great work.

    Mark

  • Good Job!! Finally something out on APS!

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