National Organization for Rare Disorders 25th Anniversary

[psod2006]

We are your infant counterpart in the Philippines. Your video gave us much hope that we too, in God's time be a blessing to as many children with rare disorders. Congratulations for a job well done! God bless NORD!

Philippine Society for Orphan Disorders, Inc.

Philippines

[necrolily]

That sounds really great. I have Giant Cell Myocarditis and it almost killed me but thankfully my Doctors were the first to catch it before it killed me. Only two other kids had it and I think like 9 adults.

I'm glad the suffering didn't last long and I was unconcious while they found all this out and gave me a new heart.

If it would have been long term a little suppoert would have been nice though. Also nurses are the best part of the hospital.

[PMLdisease]

I for one can vouch for this Organization. Stefanie (one of the nurses there help me out immensely) helped me find a DR. that researches PML (Progressive Multifocal Leukoencephalopathy). I then joined it to help find with the research of PML. If it was not for Stefanie I would have never found the researcher in my condition.

I am so thankfull for Abbey Meyer, Stefanie and staff, you guys are the best.

Bobby

[raredisorders]

Thanks Bobby

Paul the new IT Guy is pretty awesome too.

[goodfoot08]

A great video about a really nice organization. Congratulations on the Silver Anniversary.