Thanks so much for the information it has been helpful. I understand that not all cases are the same and have the same effect,, but that is the chance if we have to take and hope for the best out come.
I hope all of you find relief in this soon, as I understand how maddening and life crushing having hemifacial spasm is. It completely alters your life.
The hemifacial spasm association is a very good resource in researching surgeons and reading about people and their experiences with the surgery.
My very best to all you out there who are suffering with hemifacial spasm.
I am so glad you all have come across my video and that I can share my experience to hopefully provide hope for people and empathize with your pain in this. It is incredibly debilitating and if you are not experiencing it, no one really understands just how debilitating it really is. My surgery was a huge success, I didn't lose my hearing in the ear that was affected, and I had no other problems what so ever.
I do believe it is stress induced, by maybe causing the blood pressure to rise so high in moments of extreme stress that it maybe somehow causes the artery to expand into the facial nerve and their is probably a genetic component to the anatomy of individuals who experience this. But there is really no full understanding why this occurs and I am told it is genetic.
As a result, I could not sleep for more than three or two hours at a time. I was also going to school for my premeds and I would get sick from trying to read with it and the stress it caused just made my anxiety shoot through the roof. Mine started when I had a doctor botch up my ACL reconstruction and had to do two more surgeries to correct the first one. And I was a dancer and had lost her identity, and the day after I heard I had to do a third knee surgery, the spasm started.
I completely empathize with all of you out there with this. I understand completely how debilitating this is. It completely go in the way of my social life, because I couldn't talk or eat in public without my face going off. I had to quit work, hide from people, and became a recluse pretty much and went into a very deep depression as a result of having hemifacial spasm undiagnosed for three years. I could feel every spasm and hear every spasm because it pulled on my eardrum.
I did have one complication after the surgery. My body rejected the bone plug and I had to go in two weeks later to have another surgery because they thought it had gotten infected. I was lucky there was no infection, but I have a hole in my head, but I don't care and it won't be a problem. Just know that surgery will have its complications no matter what, don't expect perfection.
I researched surgeons for the MVD procedure for four months. I chose Dr. John Alksne at UCSD. He helped invent the MVD procedure with Dr. Janetta in Pittsburgh. I chose Dr. Alksne because of who he was and how many he has done(hundreds) and specializes in this and based on location. You want someone who has done 100s of these. My recovery was amazing, no side effects and problems at all, and I give the credit to the surgeon's skill and his detailed care and the care I received at UCSD.
The only thing that I have been told to correct hemifacial spasm is the MicroVascular Decompression(MVD) procedure through brain surgery. I still have residual spasms, but they come and they go in bouts and nothing like it was before. I still consider my surgery a huge success and it is 150% better than it was. No one really notices my spasm anymore and neither do I. Not every surgery is going to be the same b/c we are all anatomically different and depends on the skill of the surgeon.
Hello, I'm 47 years old and I started with the facial spasms back in 2006 after the death of my parents, I have been under going treatment trying every mediction out there and I still have the spasms, I have the same exact problem as you and it gets in the way of my social life, Could you give me the name of the Doctor that did the operation on you I would like to see if there is someting he could do for me. thanks so much for this video.
Permiso para bajar y publicar su video que ejemplifica clinicamente la enfermedad de espasmo hemifacial de larga evolucion, y los resultados psot DMV quirurgicos inmediatos. En nuestra clinica neurologia segura, estamos recibiendo para tratamiento definitivo con la tecnica de Jannetta DMV descompresion microvascular del nervio facial. Si me permite su cara podria ser manipulada digitalmente toda vez que su video ya es publico en la red. Dr Mauro Segura. Neurocirujano vascular. Anexo video
@neurologiasegura we also offer this new and effective technological procedures to all latin people living or working at USA but we consider the personal economical situation, please contact us in the web
Hi there. Thanks for posting this video. I have the same condition as you, was diagnosed 2 years ago at age 31.Am starting to consider treatment options. Did you do MVD? Are you still spasm free so far?
¿como comenzaron sus sintomas? ¿fue algo gradual o empezo asi como en el video de un dia para otro? yo tengo desde hace 15 dias un sintoma en el que se producen "saltos" o tiritones en el lado derecho de mi cara, que afectan solo el area alrededor de la nariz y de la parte superior de la boca. No afecta el parpado y el resto de la cara luce normal.Son leves y apenas notorios, pero me preocupa mucho de que se trate de un hemiespasmo facial en sus etapas iniciales. Gracias.
necesito mas información de tratamiento u operación , esta es la sesión de mi hijo mi correo es mmirandamejias@hotmail.com soy de Chile,agradezco cualquier información seria.
a mi me pasa exactamente lo mismo en el ojo derecho,hasta ahora solo me dan pastillas para dormir,pero no se me pasa,no puedo sonreir,hablar ni gesticular sin que el parpado me salte y se me cierre el ojo,necesito orientación,gracias
hemi facial spasm can be improved .. by latest treatment .. oral dietary catalyst therapy ... if you want to see before treatment & after treatment go to the you tube .. & write drvgo99 .... you will get collection of video ...& see hemifacial spasm before & after 10 days of treatment ... for further details .. e mail drvgo99@yahoo.co.in
dr vinod goyal NeuroPsychiatrist - Nadiad Gujarat India
Pardon me if i may ask.. Having done the surgery 1 year ago, you are the perfect person to ask. Are you 100% physically fine now? Is there anything left that holds you back? Can you tell me about your experience with the recovery process?
I ask because i am kind of a person who does sports and moves a lot. This really affects my decision in whether i do the surgery or not.
I have the same problem and doctor suggest i do MVD. Thank you so much for this video, it really made me feel better specially when you do the whistle expression in the end, it's the the move that i can never do without having my eye completely closed.
@iNZoW I am glad this helped. On May 27th, it will have been a year from the surgery and I am still doing good and healing and sleeping(big YaY!). I know what you mean about the whistle. I had to stop working and hid from people, b/c every time I talked or ate, my eye would shut. I know how awful it can be and how debilitating. It took 3 years to get it diagnosed correctly, I am glad you found a good doctor who recommended MVD. It's risky, and I am lucky I have my hearing intact.
MVD surger at UCSD. They inserted a teflon pillow between the offending artery and nerve, and it was located near the brainstem. They go in through the back of your head.
Thanks so much for the information it has been helpful. I understand that not all cases are the same and have the same effect,, but that is the chance if we have to take and hope for the best out come.
myspeciallady1964 3 months ago
I hope all of you find relief in this soon, as I understand how maddening and life crushing having hemifacial spasm is. It completely alters your life.
The hemifacial spasm association is a very good resource in researching surgeons and reading about people and their experiences with the surgery.
My very best to all you out there who are suffering with hemifacial spasm.
TheFritzkitty 3 months ago
I am so glad you all have come across my video and that I can share my experience to hopefully provide hope for people and empathize with your pain in this. It is incredibly debilitating and if you are not experiencing it, no one really understands just how debilitating it really is. My surgery was a huge success, I didn't lose my hearing in the ear that was affected, and I had no other problems what so ever.
TheFritzkitty 3 months ago
I do believe it is stress induced, by maybe causing the blood pressure to rise so high in moments of extreme stress that it maybe somehow causes the artery to expand into the facial nerve and their is probably a genetic component to the anatomy of individuals who experience this. But there is really no full understanding why this occurs and I am told it is genetic.
TheFritzkitty 3 months ago
As a result, I could not sleep for more than three or two hours at a time. I was also going to school for my premeds and I would get sick from trying to read with it and the stress it caused just made my anxiety shoot through the roof. Mine started when I had a doctor botch up my ACL reconstruction and had to do two more surgeries to correct the first one. And I was a dancer and had lost her identity, and the day after I heard I had to do a third knee surgery, the spasm started.
TheFritzkitty 3 months ago
I completely empathize with all of you out there with this. I understand completely how debilitating this is. It completely go in the way of my social life, because I couldn't talk or eat in public without my face going off. I had to quit work, hide from people, and became a recluse pretty much and went into a very deep depression as a result of having hemifacial spasm undiagnosed for three years. I could feel every spasm and hear every spasm because it pulled on my eardrum.
TheFritzkitty 3 months ago
I did have one complication after the surgery. My body rejected the bone plug and I had to go in two weeks later to have another surgery because they thought it had gotten infected. I was lucky there was no infection, but I have a hole in my head, but I don't care and it won't be a problem. Just know that surgery will have its complications no matter what, don't expect perfection.
TheFritzkitty 3 months ago
I researched surgeons for the MVD procedure for four months. I chose Dr. John Alksne at UCSD. He helped invent the MVD procedure with Dr. Janetta in Pittsburgh. I chose Dr. Alksne because of who he was and how many he has done(hundreds) and specializes in this and based on location. You want someone who has done 100s of these. My recovery was amazing, no side effects and problems at all, and I give the credit to the surgeon's skill and his detailed care and the care I received at UCSD.
TheFritzkitty 3 months ago
The only thing that I have been told to correct hemifacial spasm is the MicroVascular Decompression(MVD) procedure through brain surgery. I still have residual spasms, but they come and they go in bouts and nothing like it was before. I still consider my surgery a huge success and it is 150% better than it was. No one really notices my spasm anymore and neither do I. Not every surgery is going to be the same b/c we are all anatomically different and depends on the skill of the surgeon.
TheFritzkitty 3 months ago
Hello, I'm 47 years old and I started with the facial spasms back in 2006 after the death of my parents, I have been under going treatment trying every mediction out there and I still have the spasms, I have the same exact problem as you and it gets in the way of my social life, Could you give me the name of the Doctor that did the operation on you I would like to see if there is someting he could do for me. thanks so much for this video.
myspeciallady1964 3 months ago
esto tiene cura, tengo casi 2 años y medio de tenerlo, y nada, cantidad de tratamientos, y nada, como se cura con que. gracias. porque se da esto.
breykq 4 months ago
esto tiene cura, tengo casi 2 años y medio de tenerlo, y nada, cantidad de tratamientos, y nada, como se cura con que. gracias.
breykq 4 months ago
Permiso para bajar y publicar su video que ejemplifica clinicamente la enfermedad de espasmo hemifacial de larga evolucion, y los resultados psot DMV quirurgicos inmediatos. En nuestra clinica neurologia segura, estamos recibiendo para tratamiento definitivo con la tecnica de Jannetta DMV descompresion microvascular del nervio facial. Si me permite su cara podria ser manipulada digitalmente toda vez que su video ya es publico en la red. Dr Mauro Segura. Neurocirujano vascular. Anexo video
neurologiasegura 5 months ago
@neurologiasegura we also offer this new and effective technological procedures to all latin people living or working at USA but we consider the personal economical situation, please contact us in the web
neurologiasegura 5 months ago
i just mvd 5 weeks ago and i still have the same sintoms
MsGordy2011 6 months ago
Hi there. Thanks for posting this video. I have the same condition as you, was diagnosed 2 years ago at age 31.Am starting to consider treatment options. Did you do MVD? Are you still spasm free so far?
thank you so much!
snufericious 7 months ago
Comment removed
ecotia 7 months ago
¿como comenzaron sus sintomas? ¿fue algo gradual o empezo asi como en el video de un dia para otro? yo tengo desde hace 15 dias un sintoma en el que se producen "saltos" o tiritones en el lado derecho de mi cara, que afectan solo el area alrededor de la nariz y de la parte superior de la boca. No afecta el parpado y el resto de la cara luce normal.Son leves y apenas notorios, pero me preocupa mucho de que se trate de un hemiespasmo facial en sus etapas iniciales. Gracias.
Deyna34 8 months ago
This has been flagged as spam show
necesito mas información de tratamiento u operación , esta es la sesión de mi hijo mi correo es mmirandamejias@hotmail.com soy de Chile,agradezco cualquier información seria.
pipemaravilla14 1 year ago
en que consiste la operacion,como la busco en internet.....necesito la respuesta,este es la sesion de mi hijo,yo tengo 42 años.
pipemaravilla14 1 year ago
a mi me pasa exactamente lo mismo en el ojo derecho,hasta ahora solo me dan pastillas para dormir,pero no se me pasa,no puedo sonreir,hablar ni gesticular sin que el parpado me salte y se me cierre el ojo,necesito orientación,gracias
pipemaravilla14 1 year ago
hemi facial spasm can be improved .. by latest treatment .. oral dietary catalyst therapy ... if you want to see before treatment & after treatment go to the you tube .. & write drvgo99 .... you will get collection of video ...& see hemifacial spasm before & after 10 days of treatment ... for further details .. e mail drvgo99@yahoo.co.in
dr vinod goyal NeuroPsychiatrist - Nadiad Gujarat India
drvgo99 1 year ago
This has been flagged as spam show
I would like to have more information about the surgery can you please write me my email adress is oshyvaldez@gmail.com
1962rosalinda 1 year ago
Comment removed
fit4jenice 1 year ago
Pardon me if i may ask.. Having done the surgery 1 year ago, you are the perfect person to ask. Are you 100% physically fine now? Is there anything left that holds you back? Can you tell me about your experience with the recovery process?
I ask because i am kind of a person who does sports and moves a lot. This really affects my decision in whether i do the surgery or not.
Thank you for your time!
iNZoW 1 year ago
Comment removed
fit4jenice 1 year ago
@fit4jenice
I know i am bothering you with questions, I don't know when will my next doctor appointment be so i have no one to ask but you so, bear with me!
When did you start sleeping normally without trouble? Why could'nt you sleep?
What about hitting the ball with the head (soccer) or riding 360' roller coasters and similar things, are those to be feared from?
I should also add that i am really happy for you and wish you all the luck in your life.
iNZoW 1 year ago
I have the same problem and doctor suggest i do MVD. Thank you so much for this video, it really made me feel better specially when you do the whistle expression in the end, it's the the move that i can never do without having my eye completely closed.
iNZoW 1 year ago
@iNZoW I am glad this helped. On May 27th, it will have been a year from the surgery and I am still doing good and healing and sleeping(big YaY!). I know what you mean about the whistle. I had to stop working and hid from people, b/c every time I talked or ate, my eye would shut. I know how awful it can be and how debilitating. It took 3 years to get it diagnosed correctly, I am glad you found a good doctor who recommended MVD. It's risky, and I am lucky I have my hearing intact.
fit4jenice 1 year ago
Comment removed
fit4jenice 2 years ago
It is already stated....she had surgery!
0Deirdre 2 years ago
can you tell us what kind of treatment you get please?
sao1297 2 years ago
explain the treatment please.i am sure a lot of patients will benefit from it.thanks very much.
kingblade190 2 years ago
This was very clear of symptoms of Hemi-Facial Spasms but your title included "Before & After". Can you elaborate what the treatment was?
RuLu075 2 years ago
MVD surger at UCSD. They inserted a teflon pillow between the offending artery and nerve, and it was located near the brainstem. They go in through the back of your head.
fit4jenice 2 years ago