Just like to say thanks everyone who's posted their comments here. I should post a new update since I had another flare up last year in May, but after that third flare up I've been healthy since. I think my condition has been influenced by my stress levels. In college, it's hard but manageable to keep the stress levels low. For me, if I can keep it low, I'm fine for now!
I have ulcerative colitis since last year, I have suffered a lot, until doctors discovered that I was celiac then they did me an allergies skin test and the result was that I was allergic to: lactose, eggs, vegetables, legumes, spices, garlic , onion , chocolate. I was intoxicating myself dairy. I don´t take cortisone I take homeopathic medicine and mesalamine. I recommend everyone to do allergies skin test: It saved my life for sure. I have been 7 months very healthy
@EscenasDVA Wow my condition is less severe than that. I'm really thankful I'm not barred from eating certain foods. So far I've been able to eat about anything and 1 year 3 months healthy so far! *knocks on wood*
Hey bud, ive had what you have for 27 yrs, believe me theres alot worse things that could happen to you. Live with it, do the best you can, but dont feel sorry for yourself, lifes luck of the draw. You could have been born retarded.
hey i was diagnosed at 15 with ulcerative colitis too ive been on pentasa to help with it. it seems to kind of work some times but then others ill just get awful pains anyways even if ive been taking the pills all day. Does the scd diet actually work? also does anyone know if that digestacure actually works too? Also when i got a scope when they gave me the drug to make me not feel the pain im 1 in 10000 people that react to it it was hell,
hey i was diagnosed at 15 with ulcerative colitis too ive been on pentasa to help with it. it seems to kind of work some times but then others ill just get awful pains anyways even if ive been taking the pills all day. Does the scd diet actually work? also does anyone know if that digestacure actually works too?
my son was diagnosed at 17... and we put him on the SCD diet and he felt better in 9 days and 6 months later he can eat whatever he wants. Check it out.!
hang in there buddy. I've had UC since I was 20. I am now 25. In those five years, I had to quit my band, quit my job, and luckily I had a great girl in my life who was very supportive. I've been on "Remicade," and "Imuran." I used to flare all the time but these drugs and a "happy environment" have kept me in remission for over a year now. I know flares SUCK! but hang in there man. I have written some songs about living with UC. Check them out at jordansweeney(dot)com or look at my Youtube page
hey bro. Thanks for commenting on my video. I am crossing my fingers that I don't have another flare up again. I don't want to be hurting and unable to do anything for a month...and possibly have to go back to the hospital. I'm keeping my fingers crossed all the time. I'll check out the songs!
one more thing bout the prdnisone dont take them for too long because they thin out ur bones over a period of time and also its kind of hard to get off of them because u feel so much better very quickly and when u try to taper off u feel terrible, very complicated really talk to ur doctor b4 taking them
i take prednisone and yes it helps out a lot its seriously like a miracle drug. the side effects suck but for people who work out its not that bad because u eat like a mad man and i jus turn all of that extra fat into muscle
i feel your pain i have exactly what you have and did everthing you did but just be happy you don't have cancer. and those steroids are not that muscle growth kind
thanks paduano! Quick update: since the flare up in fall semester of college I realized that it might've been stress that had caused this 2nd flare up as opposed to the first flare up where it may hav been the gumbo I ate.
Anyways, so far in this summer I've been taking my meds on time and making sure I don't get stressed. I still eat all the foods I want (but of course, don't eat as much of greasy fatty foods like I used to. Pretty healthy diet). So far so good :) thanks everyone!
Thanks man. Hang in there, go to your doctor, get a colonoscopy if they recommend it, and just keep drinking a lot of water and gatorade to replenish the vitamins and such. Also eat bland food like white bread, applesauce etc.
It was difficult to live with diagnosis but I am dealing with it. Its hard to change diet but so far no real problems. Alcohol does mess me up so I stopped. I rarely eat sushi now (favorite food) still drink milk, coffee and eat meat, sometimes moderate spicy food with no problems. All depends on person I guess. Dont get horrible urges to go anymore like some people do. I cant really complain. Just try to keep positive and stress free. Good idea to eat healthy though.. thats my goal for nextyear
I was bleeding for a few years couple days at a time and doctors kept saying hemmoroids..told me to take more fiber then one day got REAL sick, went to emergency room, told it was fissure. Got worse then went elsewhere diagnosed w/ colitis. Was out of work 3 months, lost 25 lbs. Crapped and threw up same time.. Now have been in remission 2 years on colazal x 9 a day. Havent really change eating habits but I dont drink. Horrible disease but always remember there are worse things to have
Thanks for sharing i''m right there with you. What happens if decide to not take medication. Do you think it even works or does it give us other problems to take more medication for? Google: "Bayer Hiv" and "IG Farben"! Good luck with everything!
I was diagnosed with Ulcerative Colitis when i was only 5 years old. That was my first flare up.. and i was in the hospital for a month while the doctors played "house" and tried to figure out what was wrong with me. I had another flare up when i was 9 and i was in the hospital for 14 days. After going through a very fat childhood (prednisone).. i haven't had any serious symptoms in almost 7 years.. I'm 16, almost 17 now.. i had a colonoscopy about a year ago and everything checked out!
Have you read "Breaking the Vicious Cycle"? and tried the SCDiet?? It's awesome (for us)!! My daughter (10 yrs old) was dx with severe crohn's colitis 6/07 and was told she would be on meds for the rest of her life too. Now, one year+ of SCD, she weaned off of ALL meds.
thanks to this UC i almost died twice and i was on the hospital for 1 month and i got operadet for and know i feel so good got no illness or sick thanks to my doctor
Crohn's and Colitis here. It caused me to almost be kicked out the university system of georgia...for 3 years .. No one seems to understand it . I hate not being able to enjoy all the foods I love... PS. Im a newb to this condition . and feel deeply alone
yeah im with u too man i have ulcerative colitis also. it sucks cuz i miss drinking milk and having diary products. i also get craps once in awhile, im taking medication. im takign some weird name it starts with an A idk dont kno whats its called right now but yeah i just hate how i have this for the rest of my life o and also im talking 12 pills a day 4 in the morning 4 at lunch and 4 befor i go to bed and im only 16!!!! wtffff this wackkk im too young to have this crap but im stuck with itnow
Came on YouTube to find some slides in order to better inform my inquisitive friends about this illness and found your vid...Feeling your pain as a fellow sufferer, best wishes.
I was diagnosed with UC earlier this year. It's annoying because I am only 16 (dispite my profile age) It totally effected my GCSE's, but the exam board understood. I don't understand why it takes so long and so many tests to work out what it is. Since the home medication of mesalazine tablets my symptoms no longer effect me- for now. I am no longer on prednizolone. Maybe they'll find a cure one day?
Hi, I have had UC for 4 years now and you'r right, it sucks. As for the Colonoscopy you was lucky. I was awake for the first one and had a local anasthetic for the second one so I was still awake lol It hurt but atleast I got to see my small and large intestine lol You are not alone, I'm from England and I'm sending you my luck, stay strong!
Hi there guys/gals I have crohns/colitis and i am currently med free after being on a diet called the SCD diet, its no joke and its FREE, please email me as I would love to help you regain your health back. Again im not selling anything just trying to help other people since this diet has helped me so much!! Jay
I got something like that like that, they say it's UC but it can be chrons as well. My sympthoms will always stay active as long as they dont coem up with a cure. I wish the doctors could giev em a exact diagnos so I really could adapt to it. The last 5 years have been a long wait for me. God, ae you ever thinking of how your life would have been without the desease?
hang in, man. i first got diagnosed with UC at age 26, between age 29 and 43, i had no symptoms, so good luck to you. hope you get a nice long remission like that. now mine is back and it sucks. hope you're doing well.
I'm 30 years old and have struggled with it UC for years. Four years ago I had j-pouch surgery and it's been a miracle for me. When all options fail J-pouch surgery will give you your life back.
I've had something for a while now like 5/6 years without anything being diagnosed... the doctors assumed i was alergic to something like wheat or dairy products. Anyway, eventually i was refered to a gastro bloke. I had to have a sigmoidoscopy and was diagnosed with UC. i was given certain drugs (asocol) that didnt do anything, then was given steroids. These gaves me crazy side effects where my muscles were in a lot of pain and i couldnt actually move. went to hospital again and they kept...
me in to do futher tests et etc and it turned out i had blood poisoning too. becasue of the lining being so inflammed. i was kept in for 3 weeks which was a bitch but they eventually sorted me out. i was close to having the surgery as well becasue i was getting so ill, not that i wanted it. ive recently got another flare up but thats my own fault because i was at a party the other day and got pretty drunk but i'm sure diet has a big impact on UC. anyway hope everything goes ok
Hello, I think I may have UC. I have had IBS for 20 something years. I occasionally get a bad lower right pain that usually goes away within a week. Last month I got that pain again and it hasn't gone away. Went to the ER, doctors, tests and nothing yet. Getting refered to a gastroenterologist. I see a colonoscopy in my future. I don't want to take meds. I want to do things naturally. Do you have any suggestions on diet? I am trying to figure out what foods cause me pain and what doesn't.
Just a question: how come you don't want to take meds if they may speed up the relief process? Just curious, doing it the natural way could help to..no diet or prescription has been 100% proven to help (which sucks! cause the things some people take, may not work for others..)
a good thing to do is keep a diary of what foods you ate and what time. If you think you have UC then I'd stick with the BRAT diet for now (Bread, Rice, Applesauce, Toast) and drink water only. no juices
i was just diagnosed like 3 days ago with ulcerative colitis. yes.. it freaking sucks but at least we dont have something worse. I just thank God for the doctors knowlege and all the medication that can make us feel better. and our desease is curable.. not by man, but by God.
sometimes its sad when i cant eat the things that i want.. but then i just look around and look at the things that iam blessed with. just be positive :]
I dont have uc but my father does I think he has it very severly and has been taking predisone for years in the past 10 yrs predinsone has been less affective for him and he has go to the hospital and get an iv to get better. He has tried many herbs and supplements buts been pretty unsuccessful. But he is an extremely stuborn person and wont try other drugs or surgery.When he gets a flare up they increase his predinsone. That shit makes his drepressed and angry.
yea i have uc too its very tough to live with and still is a pretty sensitive subjuect for me. i had to get a iv put in my forarm that went to my heart, atleast they put me on medication for that. how long were you in the hospital for?
bout 2 straight days with full testing (blood work, IV's on me, physical, made me crap in a bowl or w/e haha) fun stuff... then they told me to go home cause they couldn't find anything wrong with me (this was in the beginning of the UC symptoms)..then it worsened...
i have UC too, i was diagnosed at 16, but was getting flare ups since i was about 11. so this has been on going for 10 years now. im one of the people that flare up often, ike you siad it depends on the person. I wish you all the best and i hope you dont let it get you down too much!!
i have it to check me out a childofdew628 that my channle o yeh im going to camp oasis its a camp only for kids with uc and chrons i have uc im on 6 asical pills a day :(
Wow, that must be amazing, to share experiences with others who are going through what you have gone through :). I wish I could go to something like that!
hey man i went through exactly what your going through a couple years ago!Colonoscopy's r fun eh?haha imagine it if u werent sleepping haha pain. But Keep hAPPYY cos u can easily get depressed etc. and u lose weight butt u can get rid of this disease! my aunt hasnt had it for 25 years so dont worry!! Just keep smiling and to be honest tell your mates whats going on, or at least a slightly less confronting version of it so they aren't too freaked out about whats happening to you! Keep strong.
"Colonoscopy's r fun eh? haha imagine it if u weren't sleeping haha pain"
haha.. But imagene this: In most countries you don't sleep! All you get is some pain relief and sometimes something to calm you down. I couldn't believe it when I first heard you were sleeping in the US. I think it's a good thing to be able to hear what the doctors say and to watch the whole thing on a big screen. It has definitely given me a bigger understanding of what is going with me!
Haha I don't think if I could stomach what my insides looks like with inflammation, blood, and ulcers all being in there :'(....i get queasy at the site of blood haha. though perhaps if they drugged me to the point didn't feel anything inside of me maybe they'd keep me up. but im quite fine sleeping and hearing the doctor talk after the procedure lol.. (i got some nice "pictures" of the inside though haha)
interesting. I had a colonoscopy, I suppose those two are similar in the region in which they see? Colitis acute infection, I think that may be the lesser version of UC? (I too was hoping it was an infection rather than UC..but I don't know if that was the type of infection it could've been had it not been UC).. Interesting...when will you get the final results?
when I was running track, sometimes id get cramps around the stomach area..but with UC..the cramps that I experience were 10x worse than a cramp experienced by physical movement (running etc). I felt like acid was in my stomach, I guess do to the numerous ulcers up and down my colon and that someone was stabbing me lol.I don't know how others experienced it
Though I'd sit on the toilet, I would not find relief until after I was finished crapping myself (which took about a good 20minutes or so)
because i had a sygmoidoscopy and they found ulcers, but doc has not said i have uc yet.. or at least they said i just had a colitis acute infection but never mentioned uc.. so i have been bummed out becaue i do feel pain..
You can have ulcers for other reasons than uc! And Im sure it can hurt as well... One thing TheOneAndOnlyTauhid never mentioned is blood. Usually uc is not described with pain but with diarrhea and a bloody stool. Hope you will be ok!
oh let me tell you, it was very very bloody. I didn't want to describe it all too much to keep my viewers from not getting sick :X. but yes, it was bloody, blood clots were coming out..it was a mess....
not sure if my last comment posted. but i was trying to say that prednisone is dangerous, it almost killed me, & i would suggest getting off of it asap. & please don't believe anyone when they tell you you're going to have colitis for the rest of your life. it is cureable. look up the yeast-free diet aka candida diet & maybe consider trying that. it has been the only thing that has ever worked for me. and of course try to get free of the stress because that's a major part of this.
Oh no - don't tell people to get of Prednisone asap. Just stopping in the middle of treatment is dangerous! But you dont have to use it and there are so many alternatives. Make sure you go to a specialist doctor who knows the latest news in treatment!
Curable -- NO! But you can be ok for years. Don't try 1000 crazy diets - there is no proof of any working diet. Uc influences your life too much anyway. Focus on feeling good and don't let the uc control every step you take =)
well in that case i guess im not screwed that bad... o boy yeah!! well i made some research and there is ways to put uc in long remission or to cure it.. no joke
: Breaking the Vicious Cycle by Elaine Gloria Gottscha (this book is a uc sufferer diet.. that works and also
I'm well aware that you have to wean off of Prednisone. I didn't say stop it suddenly. And I must disagree that UC is indeed curable. I have known people who have been fine for well over 30 years. But I guess doctors would just say that's a 30 year remission. Bullshit. That's what they say so they can keep you on your 'life-long' medication. Also, I am not saying to try 1000 crazy diets. I am saying what has worked for me (which I know may not work for everyone) but it's worth a try.
1(2)Guess I can tell you the reason why I don't really believe in diets (besides that no doctor ever recommends it). I got my uc 10 years ago but my doctor told me I was imagining it. I went back home believing that my bad stomach was just me being weak or whatever. I went on for 8 years without diagnose until I ended up in the emergency room. During this time my uc came and went away many times.
2(2) I was fine for months or years in between without doing any diets or taking any meds. So my conclusion is that if you can control it, it's not with food. But I do believe it is connected to stress just as you say s3ne! I know it can be depressing having uc and therefore I recommend everyone to enjoy life as much as possible. It's just my opinion, but following a strict diet could just be a limiting burden making you more depressed instead of feeling better...
Everyone's case of UC is different I'm sure. For me, this particular diet worked more than anything else ever has. When I kept the same diet of junk for years and years, sure, the UC went away many times, but it also came back many times - always worse than before. Until I cut out refined sugar and refined carbs and just generally eating healthier. I'm also not on any medications at all and am doing great. And I believe changing your diet will only depress you if you let it.
Plus, I always found it kind of ridiculous that doctors always seem to say that UC has nothing to do with diet. How can it not when it is your colon, which is directly where the food you eat passes through? Other factors play a role too I'm sure, but it's kind of crazy to say that food doesn't affect it at all.
I agree with both of your viewpoints. My doctor says UC affects everyone differently, and everyone has different "methods" of dealing with it. I have yet to go on a "diet" (im focus on actually gaining weight lol). But as of now, I've only been in remission for almost 3 months, and haven't crossed anything off my list of food. Though I do tend to not eat that much crap food (fast food etc).
I've read/viewed (on youtube) of different people using different methods to help keep their UC under control. One guy get spinach and I think cabbage and squeezes them and drinks their juices! He said he went to the doctor after a couple weeks of drinking the mixture every day and the doctor said his colon and bowels looked perfect and that whatever he was doing, to keep at it. Different methods work for different people. Some believe in diet, try it, and it works, others don't and its fine too
Although, I do recommend to stay away from junk food (fast food, greasy food etc) as much as possible. Once in a while is alright, i do it sometimes, but I'm conscious that at any point one of the foods will set me off and I will go back to hell. And I plan not to feel this pain until AFTER i finish college lol. I believe the medication I'm on is working well for me for now. I will continue to use it, and if I get another flare up, perhaps I shall look into dieting to see if it benefits me :)
Diet doesn't necessarily mean you'll lose weight - you can put weight on or gain weight on certain diets too. But yeah, definitely staying away from the junk food is most important. If you don't do anything else, it's good to at least do that, or try to recognize any foods that are giving you issues and stay away from those.
1(3)I see why people talk so much about diets as uc "is directly where the food passes through". But they do know for sure that uc is caused by a messed up immune system which "attacks" the colon like it attacks your joints if you get rheumatism. Just like you don't get rheumatism by wearing the wrong gloves for your fingers I don't believe that uc is caused by the food passing your colon.
2(3)However, as we do know that a healthy diet in general influences your immune system in a good way I'm sure eating healthy is good for your uc. So I guess I have to agree with doctors when they say it has nothing to do with diet. A final reason why I don't agree on the connection to diet is that I was once "free" from uc for 3,5 years.
3(3)During this time I had the worst diet ever though. I ate nothing but junk food and partied heavily up to 4-5 nights a week -- but I had the time of my life. I was absolutely stress free and happy since this was the only time in my life I didn't study and had to worry about exams. My advice is till to focus on taking care of yourself in general rather than on a diet =)
1) Actually, the idea that UC is caused by a messed up immune system is only one of the theories as to what causes colitis. There are many different theories, none of which have been proven for certain. The idea that yeast/candida is one of the main causes makes sense to me more than the body attacking its own tissues. The body is brilliantly designed to heal itself - why would it attack itself, unless something more is out of balance? Perhaps it's really trying to attack the yeast that lives
2)...on the lining of the intestines rather than the intestines themselves. There's a site I want to suggest that talks more about that, but I don't think it's letting me post it in my comment. Anyway, I absolutely agree with you that taking care of yourself in general is the most important thing. But sometimes even if you're not stressed mentally on the surface, it doesn't mean you're not stressing the hell out of your body by eating junk and partying.
Nutritioninstitute. Look that up and select Ulcerative Colitis. This explains what I'm talking about with the yeast. And by the way, this was written by an actual doctor, so I'm definitely not hatin' on all docs.
S3ne -- I believe we could have the same view on uc after all!
I say the immune system makes our intestines act differently than on others. You say that our intestines react to yeast. So couldn't it be that a messed up immune system is what causes us to react to the yeast whereas others don't?! =)
Could be, definitely. Or maybe the other way around... maybe an overgrowth of yeast causes the immune system to act up. But then again, something had to have caused the yeast overgrowth I guess.
all i remember my doctor saying is that i may have eaten something my body wasn't used to, and it somehow didn't recognize and my body basically attacked itself :/
Also, if you ever wonder why doctors never recommend certain diets, it's because IT DOESN'T MAKE THEM ANY MONEY. The only things that make a doctor money are prescriptions, procedures, and surgeries. Suggesting that a patient change or improve their eating habits isn't going to make them a dime, even if suggesting it might be smarter than suggesting you have your guts cut out.
haha true true. but I think they're making enough money as it is, my gastroenterologist gave me a check up a month ago and said how i was feeling. when i said "i dare say im normal for now" she said i could pretty much eat anything, just stay away from junk food every so often..
but i think the reason they dont want to suggest a diet because UC is different for everyone, so what they may suggest u eat, and u eat it and u get a flare up, is a grave risk to take.
Haha... Sorry but I just have to respond to you again. Are you sure doctors are that evil? Would they honestly choose not to cure a patient even if they knew how to?! Im sure what you say is true for medical companies, but not the doctors. And they do recommend diets for people with other conditions such as diabetes for instance. As sad as that is I rather think doctors don't cure all uc patients cause they don't know how to...
It probably is true since UC is different for everyone (hence I only need to take 2 pills a day, while some take 6 or more) different prescriptions work, so its impossible to come up with one general pill(s) that can help everyone relieve their colitis.. The fact they can't even come up with how people get this is a testament that they still are trying to find even that question out too.
I didn't say doctors are evil. I believe they really mean well, and yes, it's more the medical companies than the doctors - but the medical companies fund the doctors. Maybe it's just in my own experience, but doctors haven't been that helpful to me or my condition - actually, they did more harm than good. And my father has diabetes and his doctor never once said anything about changing his diet.
I'm finding it extremely hard to believe, bit Ok, there are some evil doctors after all =( Guess I just want to believe in people (doctors) and their will to do the best they can...
Not talking about sugar and diets with a diabetes patient is like telling people to jump from a bridge. A changed diet could even reverse the early stages of type 2 diabetes. Hope your father is doing ok.
Well around here a lot of the doctors are rednecks who seem like they went to med school in a barn... so they don't really take the time to tell patients what they need to know, I guess. My dad is doing okay, but he's stubborn, so even if a doctor did suggest changing his diet, I'm sure he probably wouldn't. All the same, hope you're doing okay with your condition (and everyone else on here).
much appreciated from both of you :). Thanks for showing your point of view and your opinions on how to deal with this terrible illness..yes some doctors are real stupid and you wonder how they even passed medical school...but all in all..we all have experienced how it feels to have UC. I hope you all keep it in remission for many many many years to come..Like 50 more years would be good :)
I'm finding it extremely hard to believe, but Ok, there are some evil doctors after all =( Guess I just want to believe in people (doctors) and their will to do the best they can...
Not talking about sugar and diets with a diabetes patient is like telling people to jump from a bridge. A changed diet could even reverse the early stages of type 2 diabetes. Hope your father is doing ok.
Funny thing too, Ulcerative colotis usually comes up in Jewish, and white people. I'm black, and have it. Going on to college too, I remember when my UC was really bad, the stomach cramps are annoying
AND UC is curable..the methods to cure it are well. Believe it or not, if you were a smoker, you probably wouldn't have gotten UC, the chemicals, or whatever actually stops inflammation or the agressive effects of the immunity system fighting aganist itself in your lower intestine. Bad side is, IT destroys your lung!
yea i rather have UC than be a smoker to be honest haha. I think UC is manageable and 100x better than smoking haha.
I think it was very terrifying at first because I didn't know what it was, and it really made an impact on my school and sports. The pain is indescribable in my opinion. I guess because it came at a bad time for me. But life must go on huh!
UC came up when I was well 14 years old. I didn't tell my parents at first, then it got worse and worse to the point that if i told them I knew they were going to get mad. I was bleeding so much, anyway I finally told, of course I found at the reaction. I got medicine, and well after three years of battling it's finally toned down. (I'm 17 years old). But, it's not scary terrifying disease as everyone thinks it is.
I have just been diagnosed with colitis. im 22 and i am on prednisilone and balsalazide. things have slowed down slightly but are still bad. i am just sh** scared of surery. how are u doing now?
hey man. I have had ulcerative colitis since i was 2 but i had a flare up when i was a freshman in high school. I was going to the bathroom more than 15 times a day for 2 months before i started taking the remicade treatment which helped me a lot. Since then i am taking 6mp but i was on predisnose when i was really sick and it did nothing! just made my face fat and made me break out. Now i am done with high school and have been in remission for 4 years now. It feels great to be in remission
yea man, I just got into remission about 2 weeks ago. I can't believe I've taken advantage of eating/drinking simple foods!! (like even milk/orange juice or even a cookie =O). im livin life as much as I can, I just hate that nagging "waiting" presence in the back of my mind. Cause sooner or latter it will come back again huh?..hopefully by the time im done college
definitely ask about Lialda, I was taken off the prednisone (it worked, but really messed me up, mentally (getting all angry at the littlest things!) and made me break out..meh..) and just using the Lialda now. seems to be keeping the inflammation at an all time low :D
I did it when i was 15 and have been off all meds for over 2 years. It's awsome because you wont have to lose any friends because you'll be able to live a normal life w/ out any of the b.s. that comes from U.c. Also, you have a good upbeat attitude given your situation I mean I was really depressed, of coarse I'm happier than ever now, not to mention I'm in better shape than ever but good for you man.
hey bro you seem around my age im 17 and i've had U.C. since I was 10 but don't worry its not uncurable the doctors just have to say that for legal issues. Its actually VERY curable, atleast from my experience. They said the same exact things to me when I was diagnosed (lifelong, meds for life, random flare-ups, ect..) Well just get this book [RESTORING YOUR DIGESTIVE HEALTH, HOW THE GUTS AND GLORY PROGRAM CAN TRANSFORM YOUR LIFE] and follow (strickly) the program in it.
Oh man.. that's rough, I can't imagine what it must be like to have colitis while still in school. Be brave and don't lose hope. I have colitis too...
We got diagnosed a week apart. Lialda and the other drugs made my symptoms worse. I refused to go on prednisone, I'm trying the SCD diet to control my symptoms. Best of luck to you!
woa lialda made yours worse? that sucks! why do you refuse to go on prednisone? I just got off taking it yesterday, and it's seemed to help me a lot, though it does have its drawback (moodiness, weight gain- which was fine with me lol). whats the SCD diet? Ive heard of the BRAT diet, but not the SCD
Have anyone tested antebiotics?
djbrynte 4 weeks ago
Just like to say thanks everyone who's posted their comments here. I should post a new update since I had another flare up last year in May, but after that third flare up I've been healthy since. I think my condition has been influenced by my stress levels. In college, it's hard but manageable to keep the stress levels low. For me, if I can keep it low, I'm fine for now!
TheOneAndOnlyTauhid 6 months ago
I have ulcerative colitis since last year, I have suffered a lot, until doctors discovered that I was celiac then they did me an allergies skin test and the result was that I was allergic to: lactose, eggs, vegetables, legumes, spices, garlic , onion , chocolate. I was intoxicating myself dairy. I don´t take cortisone I take homeopathic medicine and mesalamine. I recommend everyone to do allergies skin test: It saved my life for sure. I have been 7 months very healthy
EscenasDVA 8 months ago
@EscenasDVA Wow my condition is less severe than that. I'm really thankful I'm not barred from eating certain foods. So far I've been able to eat about anything and 1 year 3 months healthy so far! *knocks on wood*
TheOneAndOnlyTauhid 6 months ago
Hey bud, ive had what you have for 27 yrs, believe me theres alot worse things that could happen to you. Live with it, do the best you can, but dont feel sorry for yourself, lifes luck of the draw. You could have been born retarded.
blindmellonchittlen 1 year ago
why does the end of this video jump to another one? That's bs, you're trying to type something important and it get erased in a video jump.
endthedisease 1 year ago
hey i was diagnosed at 15 with ulcerative colitis too ive been on pentasa to help with it. it seems to kind of work some times but then others ill just get awful pains anyways even if ive been taking the pills all day. Does the scd diet actually work? also does anyone know if that digestacure actually works too? Also when i got a scope when they gave me the drug to make me not feel the pain im 1 in 10000 people that react to it it was hell,
orieoman 1 year ago
hey i was diagnosed at 15 with ulcerative colitis too ive been on pentasa to help with it. it seems to kind of work some times but then others ill just get awful pains anyways even if ive been taking the pills all day. Does the scd diet actually work? also does anyone know if that digestacure actually works too?
orieoman 1 year ago
my son was diagnosed at 17... and we put him on the SCD diet and he felt better in 9 days and 6 months later he can eat whatever he wants. Check it out.!
redwriter1 1 year ago
@redwriter1 Thanks! I will :)
TheOneAndOnlyTauhid 1 year ago
i hate this stuff i have left sided colitas im on asacol it dont do nothing thou and its like 430 dollars for thirty day supply
fraiserboy 1 year ago
Holy hell man...it shouldn't be so high if you have insurance O.o.
TheOneAndOnlyTauhid 1 year ago
thats the thing i am in school on my own im only twenty five i dont have insurance
fraiserboy 1 year ago
@fraiserboy Ah damn man :( I'm really sorry to hear that.
TheOneAndOnlyTauhid 1 year ago
Have the shit to,,,,man it sucks.
andenahlino 2 years ago
Amen to that. Hang in there...are you taking any medication?
TheOneAndOnlyTauhid 2 years ago
hang in there buddy. I've had UC since I was 20. I am now 25. In those five years, I had to quit my band, quit my job, and luckily I had a great girl in my life who was very supportive. I've been on "Remicade," and "Imuran." I used to flare all the time but these drugs and a "happy environment" have kept me in remission for over a year now. I know flares SUCK! but hang in there man. I have written some songs about living with UC. Check them out at jordansweeney(dot)com or look at my Youtube page
ILikeOWLS 2 years ago
hey bro. Thanks for commenting on my video. I am crossing my fingers that I don't have another flare up again. I don't want to be hurting and unable to do anything for a month...and possibly have to go back to the hospital. I'm keeping my fingers crossed all the time. I'll check out the songs!
TheOneAndOnlyTauhid 2 years ago
one more thing bout the prdnisone dont take them for too long because they thin out ur bones over a period of time and also its kind of hard to get off of them because u feel so much better very quickly and when u try to taper off u feel terrible, very complicated really talk to ur doctor b4 taking them
dipsetking27 2 years ago
i take prednisone and yes it helps out a lot its seriously like a miracle drug. the side effects suck but for people who work out its not that bad because u eat like a mad man and i jus turn all of that extra fat into muscle
dipsetking27 2 years ago
i have uc and i'm healthy now if anyone has any questions i'll answer them.
BruceGiron 2 years ago
can any of you fellow uc people message me a uc diet. thank so much
BruceGiron 2 years ago
Has the steroids helped anyone
BruceGiron 2 years ago
i have uc too im on prednisone and its tha worst i seriously rather be dead.
TheReuben01 2 years ago
Keep fighting it. Don't give up.
TheOneAndOnlyTauhid 2 years ago
is the prednisone working for you?
BruceGiron 2 years ago
yea, the prednisone worked for me (slowly but surely over the month that I was fighting it). I don't take it unless Im having a flare up.
TheOneAndOnlyTauhid 2 years ago
so are you saying your stools are normal and you don't have to take meds??? if so wow
BruceGiron 2 years ago
i feel your pain i have exactly what you have and did everthing you did but just be happy you don't have cancer. and those steroids are not that muscle growth kind
BruceGiron 2 years ago
yea at first it was either UC, a tumor, or a virus infection...thankfully it wasn't a tumor.
TheOneAndOnlyTauhid 2 years ago
hey has the steroids helped you?
BruceGiron 2 years ago
hey man, thanks for sharing.
IBDUwebsite 2 years ago
you're welcome :)
TheOneAndOnlyTauhid 2 years ago
I know how you feel. I just have been diagnosed in January but I've had this for years! It's absolutely awful...good luck with everything! :]
PaduanoFilms 2 years ago
thanks paduano! Quick update: since the flare up in fall semester of college I realized that it might've been stress that had caused this 2nd flare up as opposed to the first flare up where it may hav been the gumbo I ate.
Anyways, so far in this summer I've been taking my meds on time and making sure I don't get stressed. I still eat all the foods I want (but of course, don't eat as much of greasy fatty foods like I used to. Pretty healthy diet). So far so good :) thanks everyone!
TheOneAndOnlyTauhid 2 years ago
the medicine u described did not work for me disease spread to pancolitis within only 5 years...
ummm surgery? now that sucks even more!
mikeplayboy 2 years ago
I have a friend that who has this...
I will say this....
type
"Ulcerative Colitis Vitamin E Fish oil"
in Google... good luck
theremixcom 2 years ago
I have this as well.
I hate it.
Horrible thing.
I hope you get well soon
flinty13 2 years ago
i hope ya feel betta man...
UltraDOG17 2 years ago
Thanks man. Hang in there, go to your doctor, get a colonoscopy if they recommend it, and just keep drinking a lot of water and gatorade to replenish the vitamins and such. Also eat bland food like white bread, applesauce etc.
TheOneAndOnlyTauhid 2 years ago
Thanks 4 ya video man
im really lookin 2 lived pass 20 tho
tryin 2 not 2 eat or drink so much
ya a positive brotha 4real
UltraDOG17 2 years ago
i got colitis tho
i dunno what 2 do man
i felt like dying
even tho im 19 man
UltraDOG17 2 years ago
holy shit impressive app cycle
videos136 2 years ago
Try acupuncture Tauhid. It cured my UC which I had bad for 8 yrs.
Good luck to you...
Naropa2002 3 years ago
theres no such thing as curing it
childofdew628 3 years ago
It was difficult to live with diagnosis but I am dealing with it. Its hard to change diet but so far no real problems. Alcohol does mess me up so I stopped. I rarely eat sushi now (favorite food) still drink milk, coffee and eat meat, sometimes moderate spicy food with no problems. All depends on person I guess. Dont get horrible urges to go anymore like some people do. I cant really complain. Just try to keep positive and stress free. Good idea to eat healthy though.. thats my goal for nextyear
chachipower 3 years ago
I was bleeding for a few years couple days at a time and doctors kept saying hemmoroids..told me to take more fiber then one day got REAL sick, went to emergency room, told it was fissure. Got worse then went elsewhere diagnosed w/ colitis. Was out of work 3 months, lost 25 lbs. Crapped and threw up same time.. Now have been in remission 2 years on colazal x 9 a day. Havent really change eating habits but I dont drink. Horrible disease but always remember there are worse things to have
chachipower 3 years ago
I've got UC too, was diagnosed in August of 06.
Hope you're feeling better by now.
Keep your chin up :)
pinkXhippo 3 years ago
good luck mate, and also check chinese herbal medicine.they have quite good results with inflammatory bowel disorders.
egekeskin 3 years ago
Thanks for sharing i''m right there with you. What happens if decide to not take medication. Do you think it even works or does it give us other problems to take more medication for? Google: "Bayer Hiv" and "IG Farben"! Good luck with everything!
sambozze 3 years ago
I will be posting again how I had another flare up (damnit!!!) and how it got me out of college (double damnit!!)
Started- oct 15.
lasted-nov 21
=(
TheOneAndOnlyTauhid 3 years ago
i found that most people that take sulfasalazine have good results
athlonier 3 years ago
I was diagnosed with Ulcerative Colitis when i was only 5 years old. That was my first flare up.. and i was in the hospital for a month while the doctors played "house" and tried to figure out what was wrong with me. I had another flare up when i was 9 and i was in the hospital for 14 days. After going through a very fat childhood (prednisone).. i haven't had any serious symptoms in almost 7 years.. I'm 16, almost 17 now.. i had a colonoscopy about a year ago and everything checked out!
phantomofopera91 3 years ago
Tauhid,
Have you read "Breaking the Vicious Cycle"? and tried the SCDiet?? It's awesome (for us)!! My daughter (10 yrs old) was dx with severe crohn's colitis 6/07 and was told she would be on meds for the rest of her life too. Now, one year+ of SCD, she weaned off of ALL meds.
FASBAnna 3 years ago
thanks to this UC i almost died twice and i was on the hospital for 1 month and i got operadet for and know i feel so good got no illness or sick thanks to my doctor
svennnen 3 years ago
Crohn's and Colitis here. It caused me to almost be kicked out the university system of georgia...for 3 years .. No one seems to understand it . I hate not being able to enjoy all the foods I love... PS. Im a newb to this condition . and feel deeply alone
jawjascamp 3 years ago
hey bro. your not alone. lot of people here have put some very valuable info here and their suggestions.
in fact im feelin some slight symptoms of my colitis coming back :(. but we'll see how that goes.
Fight on bro. And thank you everyone for your input =]
TheOneAndOnlyTauhid 3 years ago
yeah im with u too man i have ulcerative colitis also. it sucks cuz i miss drinking milk and having diary products. i also get craps once in awhile, im taking medication. im takign some weird name it starts with an A idk dont kno whats its called right now but yeah i just hate how i have this for the rest of my life o and also im talking 12 pills a day 4 in the morning 4 at lunch and 4 befor i go to bed and im only 16!!!! wtffff this wackkk im too young to have this crap but im stuck with itnow
Foxboy656 3 years ago
Came on YouTube to find some slides in order to better inform my inquisitive friends about this illness and found your vid...Feeling your pain as a fellow sufferer, best wishes.
sugarfreegene 3 years ago
im sorry to hear this man but i wish you luck
phantomscarz 3 years ago
Smoking cured all symptoms for me. It has been 18 months in remission. Thank You to the man who posted this info, you saved my life.
God Bless you all. I am praying for all of those still suffering. I have since quit smoking. PEACE
RylanBlu 3 years ago
or it can happen every hour...
anhowert 3 years ago
Hey man.
I was diagnosed with UC earlier this year. It's annoying because I am only 16 (dispite my profile age) It totally effected my GCSE's, but the exam board understood. I don't understand why it takes so long and so many tests to work out what it is. Since the home medication of mesalazine tablets my symptoms no longer effect me- for now. I am no longer on prednizolone. Maybe they'll find a cure one day?
Peace.
HerbyHippie 3 years ago
Hi, I have had UC for 4 years now and you'r right, it sucks. As for the Colonoscopy you was lucky. I was awake for the first one and had a local anasthetic for the second one so I was still awake lol It hurt but atleast I got to see my small and large intestine lol You are not alone, I'm from England and I'm sending you my luck, stay strong!
Daniel3yteh 3 years ago
Hi there guys/gals I have crohns/colitis and i am currently med free after being on a diet called the SCD diet, its no joke and its FREE, please email me as I would love to help you regain your health back. Again im not selling anything just trying to help other people since this diet has helped me so much!! Jay
jaybaluk 3 years ago
i have ulcerative colitis too which is affecting my studies. please visit my website to see how i am suffering.
sendmeapound 3 years ago
I got something like that like that, they say it's UC but it can be chrons as well. My sympthoms will always stay active as long as they dont coem up with a cure. I wish the doctors could giev em a exact diagnos so I really could adapt to it. The last 5 years have been a long wait for me. God, ae you ever thinking of how your life would have been without the desease?
Weson88 3 years ago
hang in, man. i first got diagnosed with UC at age 26, between age 29 and 43, i had no symptoms, so good luck to you. hope you get a nice long remission like that. now mine is back and it sucks. hope you're doing well.
sfmichale 3 years ago
I'm 30 years old and have struggled with it UC for years. Four years ago I had j-pouch surgery and it's been a miracle for me. When all options fail J-pouch surgery will give you your life back.
Spirtled 3 years ago
I've had something for a while now like 5/6 years without anything being diagnosed... the doctors assumed i was alergic to something like wheat or dairy products. Anyway, eventually i was refered to a gastro bloke. I had to have a sigmoidoscopy and was diagnosed with UC. i was given certain drugs (asocol) that didnt do anything, then was given steroids. These gaves me crazy side effects where my muscles were in a lot of pain and i couldnt actually move. went to hospital again and they kept...
peter9106 3 years ago
me in to do futher tests et etc and it turned out i had blood poisoning too. becasue of the lining being so inflammed. i was kept in for 3 weeks which was a bitch but they eventually sorted me out. i was close to having the surgery as well becasue i was getting so ill, not that i wanted it. ive recently got another flare up but thats my own fault because i was at a party the other day and got pretty drunk but i'm sure diet has a big impact on UC. anyway hope everything goes ok
peter9106 3 years ago
Hello, I think I may have UC. I have had IBS for 20 something years. I occasionally get a bad lower right pain that usually goes away within a week. Last month I got that pain again and it hasn't gone away. Went to the ER, doctors, tests and nothing yet. Getting refered to a gastroenterologist. I see a colonoscopy in my future. I don't want to take meds. I want to do things naturally. Do you have any suggestions on diet? I am trying to figure out what foods cause me pain and what doesn't.
bcnewe 3 years ago
Just a question: how come you don't want to take meds if they may speed up the relief process? Just curious, doing it the natural way could help to..no diet or prescription has been 100% proven to help (which sucks! cause the things some people take, may not work for others..)
a good thing to do is keep a diary of what foods you ate and what time. If you think you have UC then I'd stick with the BRAT diet for now (Bread, Rice, Applesauce, Toast) and drink water only. no juices
TheOneAndOnlyTauhid 3 years ago
heyy youu, dont be so sad.
i was just diagnosed like 3 days ago with ulcerative colitis. yes.. it freaking sucks but at least we dont have something worse. I just thank God for the doctors knowlege and all the medication that can make us feel better. and our desease is curable.. not by man, but by God.
sometimes its sad when i cant eat the things that i want.. but then i just look around and look at the things that iam blessed with. just be positive :]
lulokax 3 years ago
so just dont get stuck with prednisone and good luck
damawsomedan 3 years ago
I dont have uc but my father does I think he has it very severly and has been taking predisone for years in the past 10 yrs predinsone has been less affective for him and he has go to the hospital and get an iv to get better. He has tried many herbs and supplements buts been pretty unsuccessful. But he is an extremely stuborn person and wont try other drugs or surgery.When he gets a flare up they increase his predinsone. That shit makes his drepressed and angry.
damawsomedan 3 years ago
yea i have uc too its very tough to live with and still is a pretty sensitive subjuect for me. i had to get a iv put in my forarm that went to my heart, atleast they put me on medication for that. how long were you in the hospital for?
oGH057o 3 years ago
bout 2 straight days with full testing (blood work, IV's on me, physical, made me crap in a bowl or w/e haha) fun stuff... then they told me to go home cause they couldn't find anything wrong with me (this was in the beginning of the UC symptoms)..then it worsened...
TheOneAndOnlyTauhid 3 years ago
i have UC too, i was diagnosed at 16, but was getting flare ups since i was about 11. so this has been on going for 10 years now. im one of the people that flare up often, ike you siad it depends on the person. I wish you all the best and i hope you dont let it get you down too much!!
chunkybuttloserface 3 years ago
Same too you!
LilLazy650 3 years ago
i have it to check me out a childofdew628 that my channle o yeh im going to camp oasis its a camp only for kids with uc and chrons i have uc im on 6 asical pills a day :(
childofdew628 3 years ago
Wow, that must be amazing, to share experiences with others who are going through what you have gone through :). I wish I could go to something like that!
6 pills? That must really suck....=(...
TheOneAndOnlyTauhid 3 years ago
the only cure is surgery.
life's a bitch but oh well...shit happens.
damoo 3 years ago
amen. just gotta play the cards your dealt with
TheOneAndOnlyTauhid 3 years ago
hey man i went through exactly what your going through a couple years ago!Colonoscopy's r fun eh?haha imagine it if u werent sleepping haha pain. But Keep hAPPYY cos u can easily get depressed etc. and u lose weight butt u can get rid of this disease! my aunt hasnt had it for 25 years so dont worry!! Just keep smiling and to be honest tell your mates whats going on, or at least a slightly less confronting version of it so they aren't too freaked out about whats happening to you! Keep strong.
LeArtfulDodger 3 years ago
"Colonoscopy's r fun eh? haha imagine it if u weren't sleeping haha pain"
haha.. But imagene this: In most countries you don't sleep! All you get is some pain relief and sometimes something to calm you down. I couldn't believe it when I first heard you were sleeping in the US. I think it's a good thing to be able to hear what the doctors say and to watch the whole thing on a big screen. It has definitely given me a bigger understanding of what is going with me!
sillisillisillio 3 years ago
Haha I don't think if I could stomach what my insides looks like with inflammation, blood, and ulcers all being in there :'(....i get queasy at the site of blood haha. though perhaps if they drugged me to the point didn't feel anything inside of me maybe they'd keep me up. but im quite fine sleeping and hearing the doctor talk after the procedure lol.. (i got some nice "pictures" of the inside though haha)
TheOneAndOnlyTauhid 3 years ago
interesting. I had a colonoscopy, I suppose those two are similar in the region in which they see? Colitis acute infection, I think that may be the lesser version of UC? (I too was hoping it was an infection rather than UC..but I don't know if that was the type of infection it could've been had it not been UC).. Interesting...when will you get the final results?
TheOneAndOnlyTauhid 3 years ago
i have a question.. in uc does the pain feel like, cramps or a burning in the colon? only relieve by going to the restroom?
teinorbak 3 years ago
when I was running track, sometimes id get cramps around the stomach area..but with UC..the cramps that I experience were 10x worse than a cramp experienced by physical movement (running etc). I felt like acid was in my stomach, I guess do to the numerous ulcers up and down my colon and that someone was stabbing me lol.I don't know how others experienced it
Though I'd sit on the toilet, I would not find relief until after I was finished crapping myself (which took about a good 20minutes or so)
TheOneAndOnlyTauhid 3 years ago
ive only had one flare up, which the doctors say is usually the worst one, but I don't know how it feels when another flare up comes.
TheOneAndOnlyTauhid 3 years ago
because i had a sygmoidoscopy and they found ulcers, but doc has not said i have uc yet.. or at least they said i just had a colitis acute infection but never mentioned uc.. so i have been bummed out becaue i do feel pain..
teinorbak 3 years ago
You can have ulcers for other reasons than uc! And Im sure it can hurt as well... One thing TheOneAndOnlyTauhid never mentioned is blood. Usually uc is not described with pain but with diarrhea and a bloody stool. Hope you will be ok!
sillisillisillio 3 years ago
oh let me tell you, it was very very bloody. I didn't want to describe it all too much to keep my viewers from not getting sick :X. but yes, it was bloody, blood clots were coming out..it was a mess....
TheOneAndOnlyTauhid 3 years ago
not sure if my last comment posted. but i was trying to say that prednisone is dangerous, it almost killed me, & i would suggest getting off of it asap. & please don't believe anyone when they tell you you're going to have colitis for the rest of your life. it is cureable. look up the yeast-free diet aka candida diet & maybe consider trying that. it has been the only thing that has ever worked for me. and of course try to get free of the stress because that's a major part of this.
s3ne 3 years ago
yea ive heard of cases with bad reactions to prednisone, but when I took it, I didn't have any bad symptoms..call me lucky i suppose!
and the whole stress-free life is going to be a nice challenge specially when im about to start college :'(..oh joy
TheOneAndOnlyTauhid 3 years ago
Oh no - don't tell people to get of Prednisone asap. Just stopping in the middle of treatment is dangerous! But you dont have to use it and there are so many alternatives. Make sure you go to a specialist doctor who knows the latest news in treatment!
Curable -- NO! But you can be ok for years. Don't try 1000 crazy diets - there is no proof of any working diet. Uc influences your life too much anyway. Focus on feeling good and don't let the uc control every step you take =)
sillisillisillio 3 years ago
well in that case i guess im not screwed that bad... o boy yeah!! well i made some research and there is ways to put uc in long remission or to cure it.. no joke
: Breaking the Vicious Cycle by Elaine Gloria Gottscha (this book is a uc sufferer diet.. that works and also
Koumbucha tea can help..
teinorbak 3 years ago
I'm well aware that you have to wean off of Prednisone. I didn't say stop it suddenly. And I must disagree that UC is indeed curable. I have known people who have been fine for well over 30 years. But I guess doctors would just say that's a 30 year remission. Bullshit. That's what they say so they can keep you on your 'life-long' medication. Also, I am not saying to try 1000 crazy diets. I am saying what has worked for me (which I know may not work for everyone) but it's worth a try.
s3ne 3 years ago
1(2)Guess I can tell you the reason why I don't really believe in diets (besides that no doctor ever recommends it). I got my uc 10 years ago but my doctor told me I was imagining it. I went back home believing that my bad stomach was just me being weak or whatever. I went on for 8 years without diagnose until I ended up in the emergency room. During this time my uc came and went away many times.
sillisillisillio 3 years ago
2(2) I was fine for months or years in between without doing any diets or taking any meds. So my conclusion is that if you can control it, it's not with food. But I do believe it is connected to stress just as you say s3ne! I know it can be depressing having uc and therefore I recommend everyone to enjoy life as much as possible. It's just my opinion, but following a strict diet could just be a limiting burden making you more depressed instead of feeling better...
sillisillisillio 3 years ago
Everyone's case of UC is different I'm sure. For me, this particular diet worked more than anything else ever has. When I kept the same diet of junk for years and years, sure, the UC went away many times, but it also came back many times - always worse than before. Until I cut out refined sugar and refined carbs and just generally eating healthier. I'm also not on any medications at all and am doing great. And I believe changing your diet will only depress you if you let it.
s3ne 3 years ago
Plus, I always found it kind of ridiculous that doctors always seem to say that UC has nothing to do with diet. How can it not when it is your colon, which is directly where the food you eat passes through? Other factors play a role too I'm sure, but it's kind of crazy to say that food doesn't affect it at all.
s3ne 3 years ago
I agree with both of your viewpoints. My doctor says UC affects everyone differently, and everyone has different "methods" of dealing with it. I have yet to go on a "diet" (im focus on actually gaining weight lol). But as of now, I've only been in remission for almost 3 months, and haven't crossed anything off my list of food. Though I do tend to not eat that much crap food (fast food etc).
TheOneAndOnlyTauhid 3 years ago
I've read/viewed (on youtube) of different people using different methods to help keep their UC under control. One guy get spinach and I think cabbage and squeezes them and drinks their juices! He said he went to the doctor after a couple weeks of drinking the mixture every day and the doctor said his colon and bowels looked perfect and that whatever he was doing, to keep at it. Different methods work for different people. Some believe in diet, try it, and it works, others don't and its fine too
TheOneAndOnlyTauhid 3 years ago
Although, I do recommend to stay away from junk food (fast food, greasy food etc) as much as possible. Once in a while is alright, i do it sometimes, but I'm conscious that at any point one of the foods will set me off and I will go back to hell. And I plan not to feel this pain until AFTER i finish college lol. I believe the medication I'm on is working well for me for now. I will continue to use it, and if I get another flare up, perhaps I shall look into dieting to see if it benefits me :)
TheOneAndOnlyTauhid 3 years ago
Diet doesn't necessarily mean you'll lose weight - you can put weight on or gain weight on certain diets too. But yeah, definitely staying away from the junk food is most important. If you don't do anything else, it's good to at least do that, or try to recognize any foods that are giving you issues and stay away from those.
s3ne 3 years ago
1(3)I see why people talk so much about diets as uc "is directly where the food passes through". But they do know for sure that uc is caused by a messed up immune system which "attacks" the colon like it attacks your joints if you get rheumatism. Just like you don't get rheumatism by wearing the wrong gloves for your fingers I don't believe that uc is caused by the food passing your colon.
sillisillisillio 3 years ago
2(3)However, as we do know that a healthy diet in general influences your immune system in a good way I'm sure eating healthy is good for your uc. So I guess I have to agree with doctors when they say it has nothing to do with diet. A final reason why I don't agree on the connection to diet is that I was once "free" from uc for 3,5 years.
sillisillisillio 3 years ago
3(3)During this time I had the worst diet ever though. I ate nothing but junk food and partied heavily up to 4-5 nights a week -- but I had the time of my life. I was absolutely stress free and happy since this was the only time in my life I didn't study and had to worry about exams. My advice is till to focus on taking care of yourself in general rather than on a diet =)
sillisillisillio 3 years ago
1) Actually, the idea that UC is caused by a messed up immune system is only one of the theories as to what causes colitis. There are many different theories, none of which have been proven for certain. The idea that yeast/candida is one of the main causes makes sense to me more than the body attacking its own tissues. The body is brilliantly designed to heal itself - why would it attack itself, unless something more is out of balance? Perhaps it's really trying to attack the yeast that lives
s3ne 3 years ago
2)...on the lining of the intestines rather than the intestines themselves. There's a site I want to suggest that talks more about that, but I don't think it's letting me post it in my comment. Anyway, I absolutely agree with you that taking care of yourself in general is the most important thing. But sometimes even if you're not stressed mentally on the surface, it doesn't mean you're not stressing the hell out of your body by eating junk and partying.
s3ne 3 years ago
Nutritioninstitute. Look that up and select Ulcerative Colitis. This explains what I'm talking about with the yeast. And by the way, this was written by an actual doctor, so I'm definitely not hatin' on all docs.
s3ne 3 years ago
S3ne -- I believe we could have the same view on uc after all!
I say the immune system makes our intestines act differently than on others. You say that our intestines react to yeast. So couldn't it be that a messed up immune system is what causes us to react to the yeast whereas others don't?! =)
Thanks for an interesting discussion!
Take care!
sillisillisillio 3 years ago
Could be, definitely. Or maybe the other way around... maybe an overgrowth of yeast causes the immune system to act up. But then again, something had to have caused the yeast overgrowth I guess.
s3ne 3 years ago
all i remember my doctor saying is that i may have eaten something my body wasn't used to, and it somehow didn't recognize and my body basically attacked itself :/
TheOneAndOnlyTauhid 3 years ago
Also, if you ever wonder why doctors never recommend certain diets, it's because IT DOESN'T MAKE THEM ANY MONEY. The only things that make a doctor money are prescriptions, procedures, and surgeries. Suggesting that a patient change or improve their eating habits isn't going to make them a dime, even if suggesting it might be smarter than suggesting you have your guts cut out.
s3ne 3 years ago
haha true true. but I think they're making enough money as it is, my gastroenterologist gave me a check up a month ago and said how i was feeling. when i said "i dare say im normal for now" she said i could pretty much eat anything, just stay away from junk food every so often..
but i think the reason they dont want to suggest a diet because UC is different for everyone, so what they may suggest u eat, and u eat it and u get a flare up, is a grave risk to take.
TheOneAndOnlyTauhid 3 years ago
Haha... Sorry but I just have to respond to you again. Are you sure doctors are that evil? Would they honestly choose not to cure a patient even if they knew how to?! Im sure what you say is true for medical companies, but not the doctors. And they do recommend diets for people with other conditions such as diabetes for instance. As sad as that is I rather think doctors don't cure all uc patients cause they don't know how to...
sillisillisillio 3 years ago
It probably is true since UC is different for everyone (hence I only need to take 2 pills a day, while some take 6 or more) different prescriptions work, so its impossible to come up with one general pill(s) that can help everyone relieve their colitis.. The fact they can't even come up with how people get this is a testament that they still are trying to find even that question out too.
TheOneAndOnlyTauhid 3 years ago
I didn't say doctors are evil. I believe they really mean well, and yes, it's more the medical companies than the doctors - but the medical companies fund the doctors. Maybe it's just in my own experience, but doctors haven't been that helpful to me or my condition - actually, they did more harm than good. And my father has diabetes and his doctor never once said anything about changing his diet.
s3ne 3 years ago
I'm finding it extremely hard to believe, bit Ok, there are some evil doctors after all =( Guess I just want to believe in people (doctors) and their will to do the best they can...
Not talking about sugar and diets with a diabetes patient is like telling people to jump from a bridge. A changed diet could even reverse the early stages of type 2 diabetes. Hope your father is doing ok.
sillisillisillio 3 years ago
Well around here a lot of the doctors are rednecks who seem like they went to med school in a barn... so they don't really take the time to tell patients what they need to know, I guess. My dad is doing okay, but he's stubborn, so even if a doctor did suggest changing his diet, I'm sure he probably wouldn't. All the same, hope you're doing okay with your condition (and everyone else on here).
s3ne 3 years ago
much appreciated from both of you :). Thanks for showing your point of view and your opinions on how to deal with this terrible illness..yes some doctors are real stupid and you wonder how they even passed medical school...but all in all..we all have experienced how it feels to have UC. I hope you all keep it in remission for many many many years to come..Like 50 more years would be good :)
TheOneAndOnlyTauhid 3 years ago
I'm finding it extremely hard to believe, but Ok, there are some evil doctors after all =( Guess I just want to believe in people (doctors) and their will to do the best they can...
Not talking about sugar and diets with a diabetes patient is like telling people to jump from a bridge. A changed diet could even reverse the early stages of type 2 diabetes. Hope your father is doing ok.
sillisillisillio 3 years ago
Funny thing too, Ulcerative colotis usually comes up in Jewish, and white people. I'm black, and have it. Going on to college too, I remember when my UC was really bad, the stomach cramps are annoying
Monton85 3 years ago
AND UC is curable..the methods to cure it are well. Believe it or not, if you were a smoker, you probably wouldn't have gotten UC, the chemicals, or whatever actually stops inflammation or the agressive effects of the immunity system fighting aganist itself in your lower intestine. Bad side is, IT destroys your lung!
Monton85 3 years ago
yea i rather have UC than be a smoker to be honest haha. I think UC is manageable and 100x better than smoking haha.
I think it was very terrifying at first because I didn't know what it was, and it really made an impact on my school and sports. The pain is indescribable in my opinion. I guess because it came at a bad time for me. But life must go on huh!
TheOneAndOnlyTauhid 3 years ago
My original GI doctor was part of that study somehow... but I asked him about it after another visit... he said they didn't figure out the link.
Fritaly 2 years ago
DOES YO UC LOOKS LIKE HEMOROIDS ?
arkashhhh 2 years ago
UC came up when I was well 14 years old. I didn't tell my parents at first, then it got worse and worse to the point that if i told them I knew they were going to get mad. I was bleeding so much, anyway I finally told, of course I found at the reaction. I got medicine, and well after three years of battling it's finally toned down. (I'm 17 years old). But, it's not scary terrifying disease as everyone thinks it is.
Monton85 3 years ago
hey
nice one for posting the vid
I have just been diagnosed with colitis. im 22 and i am on prednisilone and balsalazide. things have slowed down slightly but are still bad. i am just sh** scared of surery. how are u doing now?
danielcohen00 3 years ago
hey man. I have had ulcerative colitis since i was 2 but i had a flare up when i was a freshman in high school. I was going to the bathroom more than 15 times a day for 2 months before i started taking the remicade treatment which helped me a lot. Since then i am taking 6mp but i was on predisnose when i was really sick and it did nothing! just made my face fat and made me break out. Now i am done with high school and have been in remission for 4 years now. It feels great to be in remission
bluebaron1 3 years ago
yea man, I just got into remission about 2 weeks ago. I can't believe I've taken advantage of eating/drinking simple foods!! (like even milk/orange juice or even a cookie =O). im livin life as much as I can, I just hate that nagging "waiting" presence in the back of my mind. Cause sooner or latter it will come back again huh?..hopefully by the time im done college
TheOneAndOnlyTauhid 3 years ago
i have it. I am on Prednisone. The other meds you are taking i've never heard of. I'm on totally different meds but I want to ask about the others.
artistNexile 3 years ago
definitely ask about Lialda, I was taken off the prednisone (it worked, but really messed me up, mentally (getting all angry at the littlest things!) and made me break out..meh..) and just using the Lialda now. seems to be keeping the inflammation at an all time low :D
TheOneAndOnlyTauhid 3 years ago
I did it when i was 15 and have been off all meds for over 2 years. It's awsome because you wont have to lose any friends because you'll be able to live a normal life w/ out any of the b.s. that comes from U.c. Also, you have a good upbeat attitude given your situation I mean I was really depressed, of coarse I'm happier than ever now, not to mention I'm in better shape than ever but good for you man.
ColitisExperiment07 3 years ago
hey thanks man. Ill look into that book :)
TheOneAndOnlyTauhid 3 years ago
hey bro you seem around my age im 17 and i've had U.C. since I was 10 but don't worry its not uncurable the doctors just have to say that for legal issues. Its actually VERY curable, atleast from my experience. They said the same exact things to me when I was diagnosed (lifelong, meds for life, random flare-ups, ect..) Well just get this book [RESTORING YOUR DIGESTIVE HEALTH, HOW THE GUTS AND GLORY PROGRAM CAN TRANSFORM YOUR LIFE] and follow (strickly) the program in it.
ColitisExperiment07 3 years ago
Sounds like you have it fairly mild.
Im nearly completely off the Prednisolone.
Now, and always will be, on an immunesuppresent drug, Azathioprine; I think its called Imuran in the States.
Good luck.
stevenv1992 3 years ago
Oh man.. that's rough, I can't imagine what it must be like to have colitis while still in school. Be brave and don't lose hope. I have colitis too...
fernpixel 3 years ago
We got diagnosed a week apart. Lialda and the other drugs made my symptoms worse. I refused to go on prednisone, I'm trying the SCD diet to control my symptoms. Best of luck to you!
cadreamin77 3 years ago
woa lialda made yours worse? that sucks! why do you refuse to go on prednisone? I just got off taking it yesterday, and it's seemed to help me a lot, though it does have its drawback (moodiness, weight gain- which was fine with me lol). whats the SCD diet? Ive heard of the BRAT diet, but not the SCD
TheOneAndOnlyTauhid 3 years ago
woohoo, jus cam across ya blog, keep smiling :)
iffatxxx 3 years ago
Hey good luck with all this...for what it's worth, keep strong dude.
UrbanAndTurban 3 years ago