MusicKey Hepatitis C 107

[choirlady1976]

So sorry to hear that at times during your treatment people didn't understand what you went through.. Hep C and the treatments are very rough, but these treatments are also so necessary to saving our lives and I'm so glad you succeeded and also shared your experiences, you are an inspiration and hope to so many!! Even 2 years later (or more) these videos are still so helpful!! Thanks my friend!

[MusicKeyF3]

@choirlady1976 :)

[arkansasmiss]

Bless your heart. I had to go through the use of Pegasys and Copegus. You encourage people, keep it up.

[MusicKeyF3]

Thank You! Good luck!!!

[fspismel33]

(cont. last part) So, MUSICKEY, go ahead, you help a lots os people who are under treatment! For sure, who disagrees, doesn´t take Interferon nor Ribavirin and just look to himself, like the selfish people usualy do. Good look and "see you tomorrow"!!

[fspismel33]

(Cont. 2nd part) I´d like to say that I talk to my friends too, but they don´t have hepC (or they don´t know they can have it) and they can´t understand what I´m passing tgrough. Hep C isn´t like AIDS or CANCER, nobody cares/knows about this virus and its treatment, the reason why it´s important to find people who are passing over it to talk and to change information about Hep C and its treatment, specially when you are being treated, like us...

[fspismel33]

(cont.) In another hand, when you post your videos your goal was help who needs be treated, not to (des)estimulate people to be tested! Musickey, orkut is free, you can hear and see a lots of opinion, but don´t stop it, because who are being treated, like myself, can say that it´s very important to find people who are in the similar situation. Your ideia of recording each day an episode helps me a lot to win the virus. Don´s give up! Don´t pay atention of critics, they always will be there.

[fspismel33]

In my opinion, your videos are very important to help people who are already tested and need to be treated, like myself. You prove that it´s possible to win the virus, even being the treatment very hard. It´s important to inform - who wants to see your episodes - your side effects. You don´t desestimulate anyone not to be tested!

Your episodes helped myself, because I´ve been treated and when I watch your videos I feel I´m not the only one who has to go tgrough this hard treatment.

[paulhepatitisc]

You are right, your chats on interferon have a right to be there. I should have asked you to include, the "know your risk list get tested" at the front of each of your chats. It's just we have millions of at risk people who need to know the risks, you tube is almost the UK's only place to put up this information. Imagine each of your statements could lead to people getting tests and lives saved.

[MusicKeyF3]

Test is nothing if person will not do treatment. I do treatment and if You don't care about me then don't talk then You care about people who just have to do test. Test will not fix situation, but treatment. RISK is to ignore treatment. But You want me to stop treatment and don't care if I die or not. Because I can do treatment only by making this videos. If You don't care about 1 life, how You can care about millions? And I don't forbid people to do tests! Please - do!

[foghat812]

oh i am giggling now... i used to be a proposal typist and editor for all colleges of a University... well it is good to laugh a little as it massages my stomach muscles from the inside you know LOL. i think the man meant waff which is to wave make a wave... i was taught when i became a massage therapist to be like a wave smooth with ocean's rythymn... mag (the prefix) TO FLOW (lava:magma) :^) ..so go with the flow and i think u r really awesome n quite MAGnificent and i/WE appreciate u a lot!

[foghat812]

you have RAISED TONS OF AWARENESS WORLD-WIDE my friend by doing these videos... my heart goes out to you because of lack of sleep/anxiety which i had also severely on treatment... i feel all your pain and fears as i have felt them for myself too. i always had very strong heart from being a hiker for many yrs... treatment slowed me down to where i didnt move at all... i did breathing exercises especially if my heart bothered me i would have to relax and force myself to think only positive HUGS2u

[MusicKeyF3]

My side effects perhaps will raise. But I will do all possible to my weak body to continue this treatment. Sometimes I cannot sleep at all, but someday I sleep a lot. That's important to think positive, but sometimes it's almost impossible, because treatment developes depression. Some day it will be over!!!

[paulhepatitisc]

please stop filling the web with your waffle about your interferon. 500,000 people still need to hear the risks that need testing, you are blocking life saving information with your endless waffle. Do the treatment talk to a friend not the world

[MusicKeyF3]

1.I do talk with my friends, they live all over the world, I've never let You to watch my videos.

2.YouTube is free service and You might mistake, it probably don't belong to You!

3.Please stop spam!

4.Waffle is food, I've never talked anything about waffles, You've mistaken again.

5.Forbid people to upload copyrighted videos and porn. Then talk to me, revolutioner.

[blake2one]

Hey man! I am glad you are going on. I must confess that I have quit the treatment after just 3 weeks. I have become extremely disoriented. I am so angry then depressed so deeply that I can no longer work and my wife can not understand when I try to talk to her about it. So, I must stop to try and regain control of my mental stability.

[MusicKeyF3]

I wish You best luck. But if You will quit after 3 weeks it will be completed treatment or not?

[blake2one]

I only made it 17 days. I was suppose to go 48 weeks. I could not complete treatment. I wish I had known really how bad the mental problems were before I started treatment. I was not ready for it.- I will keep watching you! :)

[MusicKeyF3]

I am very sorry. I understood what problems I will awaiting for. And I was quite ready, but it doesn't make this process easier. But I must note about job - You cannot work at treatment period and that is normal.

[nabashalam]

Make sure you use a lot of cream rinse on your hair and get cream rinse with little or no alcohol. Also stocking caps can make your hair fall out faster! Also use a moisturizing shampoo!

[MusicKeyF3]

I'll try to remember this and do so.

[fspismel33]

My friend, another thing: On your "episodes" I saw you huging a carrot (!), using a "clawn nose" and with diferent kinds of exotic hairs. I´m sure I´ll see you dressed like "Ex-hepatitis C Santa Claus" (or "papai noel", like we say here). I´ll die laughing! See you! Felipe.

[MusicKeyF3]

I will make something similar after, of course :D

[foghat812]

hi have missed u since episo 107. SVR03i have had long-term post-tx mental stuff dxd 4yrs post-tx acute manic (bipolar1) and then one yr later ADHD at age 53 am on SSD now and make better money than i did self employed (last yr) i liked my "work" as a massage therapist for 19 yrs tho and have been adjusting to not making people feel good and trying just to make me feel 100% for next yr or two... i am older tho and have more a history with drugs than u did to begin with... wish u God speed in all

[fspismel33]

I forgt to tell you that I´m taking antidepressive and the dosis of it has been increased 2 or 3 weeks ago, and I feel emotionaly MUCH better now. Why don´t you talk to your doctor? If you can take it, for sure you´ll feel better!

I´d like to tell you also that in the hospital I get the injections, there is a patient who has strong anemia, and the doctor prescribe to her a medicine named "hemax" and she feels MUCH BETTER. Talk to your doctor!

[MusicKeyF3]

I started to use antidepresants before I started Hep C treatment, then I used it for couple of month. Now I don't use it.

I know it's really hard to take another medicaments for anemia. It's easier to to try keep blood cells in level.

[fspismel33]

Man, it´s nice to hear news from you again. I´ll finish the 15th week and I´m much better now. My skin isn´t 100%, but it´s much better than before, but my hair becomes tiner each day. I still gotta sleep a lot. The day and the folowing day I take pegintron I feel worse and I get depressed, on bad mud. The side effects of ribavirin aren´t so strong for me in this moment. As you see, inspite of some small diferences, we are feeling and having almost the same side effects. See you soon.

[MusicKeyF3]

Nice. We are in almost same place in treatment. My skin is Ok also, and before I hadnot any serious problems yet. Except it is a little bit dryer and maybe looks alittle bit older. Nothing special.

I sleep a lot too. I sleep at night and I like to sleep in daytime also. And in fact that is very good. You have thinner hair because of ribavirin.