@kyllw "When the common man can't rely on the law to protect them and help them, then they must take it into their own hands to help and protect themselves." - Me
Is there a similar type of headache to this? Sometimes I get a very bad headache on one side of my head around the temple/eye area and it hurts badly for several minutes and it's not a migraine and it's a throbbing sharp pain. I just try and curl into a ball if I can in the dark until the worst of it's over. It usually doesn't last long but it's horrible. It also seems they come in bouts. I won't get one for awhile but then I'll get several with a period. They seem to come along with stress to
THERE'S A CURE DONT LIVE IN PAIN It's like being smashed in the back of head with a baseball bat & left to die. Believe.Comfort arm soak in the tub, compressesCry it only makes it worse.Drink a lot of water,I would then start to feel better.Dr. Brian Cody at the Arizona Pain Center 602-265-8800 Diagnoses Occipital Nerve Damage. few minutes with twilight sleep, X ray between head and neck,inject a dye to pin point nerve, then burn it out.woke up with no pain just bandaid.Jan
about 2 years of suffering now. in my case nearly always out of the sleep. sometimes in the middle of the night and sometimes even 45 mins after falling asleep. i fall asleep - wake up from the pain with the attack beeing at its full power. in some nights i get 4-5 attacks in 1,5 hours episodes with the pain lasting 20-40 minutes. peaceful sleeping is nearly not possible.
There are a lot of comments about the use of shrooms. I have 1sthand experience using psylilocibe semilenciata for treating CH. THEY REALLY DO WORK!! 2-3 dried caps taken at the onset. (I usually just chew them raw) As these natural gifts from God are illegal I urge you as fellow sufferers to lobby you local MP's to press for more study.
Professor David Nutt (ex drugs advisory council) is trying to get funding for a study on their use in treating deppression in London.
Man I feel your pain. It makes u wanna rip off the side of your face and get it out. I sound just like you when it happens to me. Then when its over I'm perfectly normal. Its so weird.
@stevemfno Prof Davis Nutt is starting some clinical trials with shrooms for depression. He is willing to extend this to CH if he can get the funding. Please rally your MP's
Shrooms do definitely work and give me up to 2 days remission (I suffer 4 - 8 attacks per day for 3 years) Dosage is very low (3 psilocybin semilenciata) and not enough to cause a trip but I do have my fears about accumulation in the body. Hence the need for research
I was diagnosed with CH by a neurologist about 1 year ago. After little to no help from the medicines, I was sent to a physical therapist, who suggested that the problem was in my neck.I went to a chiropractor who used mechanical corrections. My axis and atlas in my neck was pinching a nerve that triggered the headaches which were like those of Mike. I am now without headaches, Hope this helps someone else.
i've seen a video on National Geographic saying that magic mushrooms ease the pain, please read up about it if you havent heard of it, you never know it may help you
I have been suffering CH for around 6 years now and this is something I pray someday will have a cure.
Every year, there has to be one month or so, that the 'beast that resides in my head' terrifies me. My heart goes out to everyone who suffers from this never ending knightmare.
I can just hope maybe, someone, somewhere, will find a cure for this.
i had heard the term cluster headache a few times and really thought it was just a specific type of headache, quite severe.. but NOTHING like what i am witnessing. This is truely a terrifying thing and my best wishes goes out to all the folks experiancing this. Lets hope for a more effective medical treatment !
It is exactly like the man in the video said when he referred to time of day & how predictable they are.... I would take Mike Tyson in his prime bashing my skull in over a cluster headache any day. I'm 34 years old, I have had Cluster headaches for 2 years, Out of no where they began for reasons that I don't understand. I have a very high tolerance for pain but the first time I got one I thought it was my last day on earth. After it was over all I could do was cry & started counting my days.
I can describe it, If you have ever seen the movie Hostel part 1 in the torture scene when the girl gets a torch put to her eyeball, That is the best way to put! It fucking sucks! After a cluster headache, Your brain feels a dull but constant pain much like a slightly torn muscle. So much effort & energy is drained from you during an attack that afterwards you can't just pick up right where you were beforehand. It takes everything out of you, & at times even the will to survive.
Today in the gym while trying to finish my workout, i had the worst type of headache i think it was a cluster headache, i felt my right eye being crashed
In my point of view i could see a Green yellowish line it was if you've looked into the sun for awhile.in my head i felt a pressure I've never felt before its was so painful. at first it was unbearable. but i slept it out when i got home.. i hope i never get another one of those pain again.I feel bad for the people that constantly getting it
I suffer really severe pain with ibs and sometimes feel suicidal, but this sounds so much worse, I really feel for all you people who suffer with this terrible condition. How you manage to cope with it, I can't begin to imagine.
I suffered for 12 years with C.H. I haven't had an attack for 2 years since switching to a low Histamine diet. I don't know if this will work for everyone, but it's stopped mine. Hope my post helps someone suffering from the terrible pain of C.H. Good luck.
I have suffered from these since 17 years ago Im 27 now the only thing that helps is exercising, drink a lot of water do not smoke, and most of all sleep well.
While having an episode control your self when you feel it coming, try not to feel anxious or angry(that will just make it worse) start jogging or jumping or any type of exercise, and when you feel that feeling of weakness stick your head in the freezer and breathe deeply throughout your nose. Hope it helps
I'm affected and in a period of this nuisance now, after about two years of relief. I'm privileged to be able to (after a costly first instalment of SEK 1150, run up to a high cost for medications programme )in Sweden and get the rest for free. Since my periods vary from 4 to 6 weeks, I've had them for eight years and they're called Imigran. The twnty years befre that were hell when the aches appeared.
Do things like Morphine help at all with the pain? Because i thought they are meant to completely shut down any pain sensors. Morphine is given to dying patients.
I've had these headaches off and on since 1987. Some have lasted over 3 hours, sometimes 3 daily. School was hard, I lost many jobs, ruined my personality. Not one doctor has helped me. I've seen many since 1988. The latest doc tells me oxygen is too dangerous to prescribe. Nobody understands the headaches well enough to help me at all. When I'm going through the pain I hate anyone who isn't hurting. I hate life.
I have suffered like this with these headaches for over 33 years, I will be 53 in dec and have made up my mind, I will not go through these again, my kids are all grown etc so checking out isn't as big a deal,one cannot live with these
@itsallamindgame bad plan. the CH crew is part of the Creators special display of suffering. how do i know? 25+ year CH sufferer, every other spring. but there are a bunch of chronic symptoms which never go away. i live in the shadow and feel the beast throughout the day. morbid depression is an understatement. but i endure. i have faith in the Plan. i recommend you not give up. smoke massive amounts of the sativa strain Jack Herer. it helps in the off times. i say none of this lightly. Live!
I suffered 12 years on a road and find a private doctor who stop it for 1,5 years straight. I never took the medicine what they gave me from hospital and belive that hurts.
It hurts so much that you wanna die but when goes of im floating.Never took the medi from Phd doctors cos they caant even say whats wrong. This private one sayedthat i had too much metal in my body so when surtain action is suppose to take place in the body it cant , soitsendsbacktheinfowhat is the headeace- Youmustnoyafood..
@ RudiGouws Unfortunately that isn't necessarily true. I am 45 and still suffer from them... 25 years now. The cycles do seem to be farther apart than when I was younger, but I still get severe episodes. The sad part is that after 25 years I still find myself educating the health professionals about treatment. Cluster headaches just are not researched or taught.
Hi to all, yes i do also have the beast in me, i was told that by adge 42-45 the clusters will dissapear, is ther anyone that can confirm this please. Good luck to all and yes i do have started a new attack sesssion, one week old :)
I've heard that cluster headaches are the worst pain known to man. Topping childbirth and a femur fracture. My heart goes out to anyone who suffers from these.
i suffer from migraines and they are bad but seeing this is so sad because i know they are 100000x worse and more painful especially because you cant cure these or know when they will stop because they keep coming, the only "cure" for clusters that i have heard of is LSD, shrooms, or other psychedelics. my heart goes out to the sufferers of this and i am amazed that they can handle living with them, because i would probably go insane or commit suicide if i had to live in constant pain
@squiffy242 I used to get cluster headaches and I found out a way to get rid of them using europeon truffles and I am providing them to people at near cost. How is that sick?
@squiffy242 I am selling at near cost man. This is too help people out, nothing is free. It works and if you find something that works you should start selling too. That is how the world works. You sell what people want and need. If you go to a doctor you will spend 100 times what I am charging, for some oxygen tanks or pills that weren't even designed for clusterheadaches that have side effects.
I know what pain you are all going through. This last Round of headaches gave me one that I had to be hospitalized, I was on Prednisone at the time, but it did'nt work for me.My Neorologist prescribed Verapamil to me.It started working right away and I was out of the hospital 1 wk after starting them. I have been out of the hospital for 3wks now headache free! I know the pills are working because I missed a dose the other day and got a headache. You can read about Verapamil in Wikepedia.
Oh man I feel your pain. 29 y/o male. Ive had these headaches for the past 5 years. Mine seem to come one season a year, for approx. 4 months. Luckily mine occur most often in the morning and only once a day for 30 to 60 min. Ive tried OTC meds, Tramadol, Ultracet, Maxalt, Oxygen @ 15 lpm, and Vicodin. None have stopped the pain yet. Hope u find a way out..good luck.
thank you for the info.ive tryed ever paine killer known to manthe one thing that i did find would stop a headache in its track is oxagen but i was useing to much ..im afread to eat or sleepbecouse some times food will triger one .i wish there was some way to make people under stand just how paineful thay arei try to tell people thay are not migraines that ive never felt paine like this.my mom is a lpn has ben one for 33 years. and it brakes her heart to see me go through one thank you
@thekid0275 Has your physician explored high doses of prednisone? Before everyone starts yelling at me for recommending, this is what was prescribed for me at the Mayo Clinic. 50mg per day for 5 days. No tapering, no nothing. the side effects are awful, but do not even come close to the pain associated with 2 - 3 clusters per day that last for 45 - 60 minutes per episode.
Unlike the video, KNOWING that one is going to hit at a specific time created such fear it was almost debilitating itself.
@thekid0275 ...omg. I am a 36 yr female chronic cluster headache sufferer. I completely feel for you. Mine came on around the age of 4 yr old. No doctor took me seriously until my senior year in high school where I got the diagnosis of migraine. I had that diagnosis up until about 3 years ago when I went a new doctor, and one of his questions was, "Have you ever banged your head against the wall during your attack?" I knew I'd found a dr to help me at least...
The worst pain I ever experienced in my life was when I had a tooth infection that infected my jaw, I was literally mad with pain to the point I took pliers to pull out the tooth and actually damaged part of my jaw, crushed it, and I heard cluster headaches are WORSE pain than that! I can't imagine!
I cried when I saw this video. I relate to this gentleman's pain. I had an Acoustic Neuroma removed. I've tried VERY strong medications, Chiropractic, Acupuncture, Guna ( a homeopathic drug) injected into my neck, Supplements, Essential Oil treatments, and Elimination Diet. The diet, Guna, and Acupucture have been the most effective for me and I'm down to about once a week for 2 hrs, but it still limits my lifestyle. If it were not for my girlfriend, family, and friends I would not be here now.
I cried when I saw this video. I relate to this gentleman's pain. I had an Acoustic Neuroma removed. I've tried VERY strong medications, Chiropractic, Acupuncture, Guna ( a homeopathic drug) injected into my neck, Supplements, Essential Oil treatments, and Elimination Diet. The diet, Guna, and Acupucture have been the most effective for me and I'm down to about once a week for 2 hrs, but it still limits my lifestyle. If it were not for my girlfriend, family, and friends I would not be here now.
I really hope those therapies work for you, they do sod all for my clusters :( Thankfully I've not walked the beast for about 8 months now...nothing stops them. You have no idea how painful they are - I'm an atheist and I still pray to God when they start :P
I have lived with these since 02 and I give testament that no man pain on earth can hold a candle to these dabilitating attacks. If one can endure these this is as close to a living hell that you can get to. as far as pain, it has to be the spearhead proceeding death. The good news is that it cannot get any worse than this.
I'm a CH sufferer myself. If you ask a 1000 doctors how to treat it, you'll probably meet one who actually knows how. This guy was very lucky to find a doctor who was able to help him right away. Took me 9 years to find one =(
@johnnyXsniper you dont the pain sucks i hate it im only 18 i cant take it no more.i had it 3 years back from a concussion in wrestaling 3 years ago.now pain is back went to the hostital 2 times in 1 week now i know i have this n idk when it well stop.your bless plz dont wish this on yourself.
@johnnyXsniper No you don't. If it lasts longer than 10 minutes, you want seriously to die or be put to sleep. It feels like a gnawing broken bone pain behind the eye, like something trying to bore a hole through your eye/jaw. I've found moderately good results with high doss of capsaicin (found in eating a bite of a Habanero, or snorting Cayenne Pepper), which floods the system with painkilling endorphins and disrupts nerve terminals responsible for inflammatory pain.
@johnnyXsniper No you don't. It is an INTOLERABLE pain you can't escape. It will drop you to your knees with you holding your head, rocking in pain, pleading with God to just let you die. For me, it feels like a hot poker in eyeball contstantly jabbing, with bone crushing pain behind my eye. As I cry out in pain, my family feels helpless. I have had these monsters for 32 years. I wouldnt wish this on anyone. ever.
guys, pleeeease ask for your doctors a presciption to buy sumatriptan (100mg). during an attack it works in 30m. there's a nasal one that works even faster. O2 could get the job in less time but it's not a sure thing like sumatriptan. also, chemits have developed a sort of lsd that does not get you high and is said to be pretty effective. i've taken regular lsd and made the beast disaper for like 3 days but one can't really count on such treatment so i'm looking fwd for this new lsd. cheers
im 15 yrs old and i have recently started to have cluster headaches and they suck i wanted to just get a knife and stab my eye to stop all the pain i tried icing my head and it only got worse luckly im not suffering from any currently but am truly scared for another to occur
I'm 27, man, and have clusters since 12 years now. I thought several times of the sucide when I had my cluster headache. I thank god, cause for me the "maxalt 10mg" functions 70% of time and it stop crises at the end of 20-25 minutes. It's better than 1, 2 or more hours. The problem is that it's an expensive drug. but I prefer to pay to not suffer. It is the pain more attroce which I never had, I hope it will stop someday, and I dont wish that to anybody !
I take Tramadol Hydrochloride to stop mine, the agony will last 15 to 30 mins. Without Tramadol then..God I pray to you as 2 hours upto 8 hours of pure unadulterated hell is in store for me. I asked why, what sin have I done to deserve the pain, the torture the none stop acute chronic agony pure pain. Mine are worse than a broken bone or ten toothaches. I was groaning that much I had a soar throat, my ribs hurt through the exertion of my stiffled screams.
I have cluster headaches. I usually take LSD and within 40 mins, the headache clears. But it is one hell of a tradeoff. Yeah, the headache goes away, but then I am tripping.
I hope he got the Cluster Headache oxygen mask insted of the one he uses in the video.. im inhaling 25liters a minute with the non-rebreathable horton mask
I am 25 yrs old and female. and this is WORSE THAN CHILDBIRTH!!! I thought I had a brain tumor and started making a will to the point that my family started fighting over my stuff. That's how bad it was and looked. I KNOW IT WORSE THAN CHILDBIRTH!
I have suffered from ch for 11 years now, 6 months ago I started taking Verapamil and this seems to have slowed episodes down considerably, has anybody else ever had luck with verapamil?
I've had good luck with Verapamil. i take 120mgs a day during a 2 month cycle and its been working so far..ive had ch for 18 years and only jus found treatment 5 years ago. i go to the MHNI clinic in AnnArbor MIchigan and they are the best thing i have ever done in my life! watching the man in this video suffering is hard.
Do any cluster HA sufferers ever get red lesions on their forehead or jaw after a particularly bad HA? They stay for a few days and then disappear? Wierdest thing, my Docs have no clue.. but it is related to the severity of my HA's.. had em for years now, no one knows why or what (some have suggested shingles.. but they are not really painful). Only on my face and head. I thought maybe due to super hot washcloth I use to distract from pain.
mine start under the right eye, in the upper jaw area, then crawl up to the right eye. and then drill further up and deep into the right hemisphere. since - for me - the pain always starts and continuous in the jaw region (before it fully hits the right eye), i considered pulling out some teeth to abort the beginning of an attack. i never did it, but i also know that doctors wouldnt pull out a bunch of healthy teeth for me. i still suffer CHA, and i may pull out my teeth one day.
In fact: most cluster HA sufferers when we get together and chat about a recent headache, we use the kip scale.. which is a pain scale that CH sufferes use among themselves to describe pain levels.. because the pain level BEGINS at 10 and goes up from there, on the 1-10 smiley face scale at the hospital. I would rather saw my arm off with a rusty blade. I hope that gives you some perspective on the pain issue phocjame.
@ltsgoyanks Damn, you must get CH headaches worse than me... I would rather a CH than to cut my arm off. But yeah, CH suck ass. I'm in remission atm....HOOray!
@ArsenalFC1981 I am glad they are in remission. I hope the pattern stays that way for you. I started out episodic for several years, and since 2003 I have been chronic (no more than 2-weeks remission) and the only break I get is when I take prednisone. Not all HAs are that bad, of the 3 or 4 I get per day, ONE of them is usually a biggie.. others are aborted within 3-5 minutes with O2. Once a month (roughly) I will have the "Saw off limb" type of HA. Thanks for sharing! Enjoy your break!
@ltsgoyanks Thanks! Yeah, I've been having CH cycles since I was about 17-18....I'm 29 now. Hopefully it ALWAYS is episodic. The only thing that seemed to make the remission longer for me has been YOGA believe it or not. I went 2 years with a single head ache till about a month ago. Then when I did have a cycle it was not HALF as bad. As you probably know, I learn something/some way of dealing with CH with every passing cycle. Take care.
@ArsenalFC1981 I have been practicing Ashtanga Yoga and I agree it is helpful. Do you do meditative Yoga or more for strength or flexibility? I have been practicing Isha yoga, but the relaxed state sometimes will give me a headache.. wierd. So correct! You learn to cope in new ways with each cycle.. I think it is sureal that many CH sufferers use the same exact techniques and approaches for comfort.. I would love to know what type of Yoga works best for you.
@ltsgoyanks I'm not even sure what you call the yoga I do. I practice Yoga from DVDs. A great instructor named Rodney Yee. I went to a chiropractor during a cycle that lasted 3 months straight. Told me to stretch a lot, gave exercises and it worked well. I just thought to do yoga and that helped. I was too embarrassed to do yoga posses in a classroom full of people...so I got a shit load of Yoga DVDs. Rodney Yee seemed to be the best. I don't follow the DVDs much, but know the routines well.
@ArsenalFC1981 Awesome. Thanks for the info, I will check it out. I agree Yoga has seemed to be beneficial. I don't know if there is any ONE thing that helps, it's usually a combination of things that makes me the most comfortable. Thanks again for the feedback.
cont: I said my headaches are at a ten level for me, nothing else can compare (including broken bones, a pulled tooth w/o anesthesia when I was in the Marines etc). Dr replied, no headache is that painful, are you sure you don't have a clot or tumor? This 1-10 pain scale helped facilitate his research and diagnosis. My meds for my Cluster HA cause me to have 5-6 kidney stones per yr.. gladly pas them if it means shorter periods of HAs. You are insensitive...and no one can know our pain.
phocjame: Pain is a difficult thing to gauge; hospitals and doctors still use the smiley chart 1-10 for highest pain level in your lie compared to anything. The chart is good for some things, it helped my doctor diagnose my CH finally. I had a kidney stone and pissing up blood, and I said the pain was between a 4 and a 5; he said, you cannot be having a stone then. I passed the stone and gave it to the dr a week later. He asked me.. what in the world was more painful than the stone?
Bad attacks for me might feel as if someone is pulling a threaded needle through my eye repeatedly. I feel as if my eye is going to collapse in on itself. Daily nortriptyline seems to make the bad attacks uncommon.
I'm atypical. Mine come sporadically (and no time of year is safe) and often are mixed day to day with migraine attacks. I can get incapacitatingly photophobic, like nothing I get with migraine. Vision can be blurry for days afterwards, even with the mildest of mild attacks.
I have recently been diagnosed with cluster headaches that I have been having since 1991. They were originally misdiagnosed by the VA Hospital as "Gulf War Syndrome". I have tried several abortive drugs with little relief, I do use oxygen with every attack and I know take daily medications in an attempt to lessen the frequency, duration, and intensity of the headaches. I'm 41 and my neurologist says they will most likely get worse as I age. The batte rages on...
hes right paracetamol does NOT work! i get cluster headaches alot and when i take a pain killer it does not work! they are very painful but i find them anoying more. they stress me out which makes it even worse. The only thing that helps me is sleep
I can't bare to watch this man. It is all too familiar. The nights the days the years when will it stop? When will it come back. My husband the love of my life. I feel every scream, every bang made by his Hand against a wall. I tense up and I pray! I am so helpless!
I had to cry seeing this video. I suffer cluster headache for about 21 years now. For the last 3 years the beast had left me be, now he is back again. I hope that your video can help people to understand where we have to go true.
Mike, let us try to stay strong together, knowing we are not alone!
I am a 17 year old boy, when i was 16 years old the doctor said i had the clusterheadache, (Suicidal Headache) You can't describe the pain it feels like the devil is in your head i prayed to god to take away the pain after a few months i finaly got the right medicine, but there's always a chance it comes back... Now i don't have the clusterheadache anymore i feel like the happiest boy on earth
@thestickyfin i dont remember anymore i really dont care to i just wanted to be healthy again :) and my docter said it had something to do with stress
I'm a chronic and find the only solution in psychedelics. There are legal way's to take them: LSA from Hawaian Baby Woodrose seeds ( 5 seeds crushed in plain water for 2 hours and than drink it ) - Psilocybe ( you can order magic truffels online, just put them in yogurt and eat them ) Ayahuasca ( go to a meeting of the Santo Daime church ). To get out of the episode do it once a week and absolutely take no other medicins exept oxygen and lots of water. Than once a month to stay out of pain. QED!
Excellent video, if only ppl new and understood the pain we go through, Ive been suffering for about the past 5 years, usually the episodes last for 3 months having 2 or 3 attacks a day, just lately ive been getting them worse than ever, and no tablets seem to work, and can understand why ppl commit suicide, as i was close to doing so the other night, my doctor doesnt seem to have a clue nor do my family, but with short docs like this may help ppl understand.
I am in my cycle and living the hell. For the first time I have had to use Imitrex injections with O2. Thanks for this documentary to make everyone aware of how horrible the pain is. Watching him suffer made me cry uncontrollably because I know!
I have dealt with this same monster for about 25 years and the degree of pain is unimaginable unless you have had a cluster headache. Most people think it is a migraine and they claim to understand. Migrainesare horrible in their own way. Clusters are the kind of pain that makes you wish for the sweet release of death sometimes during a bout. Vise grips closing on the back of your eyeball
There are Painkillers that work - try Triptanes - They help really good on an attack
If u have none try 1200-1600 mg Ibuprofen in an emergency helps a bit, but kills your stomach, but dont try any other Painkillers they make it stronger
Dont eat Cheese or Food with lots of Histamine while on an Episode
get Verapamil for attack prevention - helps after 1-2 weeks
Just thought I'd mention that I'm in no way trying to take away from cluster headache sufferers, I'm merely curious. I have nothing but respect for this horrible affliction and what its victims go through.
Frankly, I've had toothaches that were so absolutely unbearable that I blacked out. I've also cried, rocked in the fetal position while clutching my face and screaming and broken my own hand once punching a solid concrete wall just to distract from the pain. I really wanted to grab my jaw and rip it completely off. I've also considered suicide during some of the worst fits. Sometimes the pain lasts an hour or longer. How does this compare to cluster headaches?
then thread a white hot cable slide through your eye and slide down it at light speed.
while on bad LSD.
now, add insult to injury and have half the people around you say you are faking, and have the other half offer you an aspirin while saying they understand.
although i just suffer from "regular" migraine i fell with them. i get migraine attacks 15 times a month. it interferes with work and studying. sometimes it gets unbearable, with vomitting etc. but these guys really have to get help. i really felt him saying that he wants to get a spoon to take the pain out of his head. i feel that too
yeh i used to get migranes and the fear of getting them was horrible. i cannot begin to imagine what it is like for you. have you tried magic mushrooms tho? they are supposed to work
im haveing my 5-6 week spell now. please find a cure. and if i dont pull through, and really do committ suicide, these fucken headaches are why. cant deal with the pain no more
Your step dad just described my worst headaches to the letter!! OMG...Thank you for posting...I'm so sorry that someone else also know's what this evil thing feels like..you can't sleep, you can't sit, you can't lie down...you can't even cry..it hurts so bad...morphine dosen't make the pain go away...it is the worst pain ever...even his describing holding your arms over your head...that's me..cause you feel like your head is going to explode..and you live in fear of the next attack-
Wow, I really need to stop complaining about my migraines if this can happen. The ones who suffer from these pains really are mighty, to all the CH sufferers out there, I can't even begin to mention how strong you must be to overcome such trauma.
I have cluster headaches and Trigeminal Neuralgia it doesn't matter both are miserable why would you argue over the internet which one is more miserable?? Pointless it turned me into a heroin/morphine/oxycodone/hydromorphone addict those painkillers dont work to well but they are the only things that has even put a dent in my conditions. Now I live in Egypt and go to school (well when I can)
I have tried topimax,(side effects were terrible), imigran injections, nasal spray, all gave some relief but the only medication that works for me are steriods, stopped this thing its tracks, but sadly I have to reduce my dose again and yes the clusters are starting again, Im a chronic sufferer, off to London in Jan for an implant so I will keep you all posted.
Jesus fucking Christ this is a stupid argument. I have CH. It is a pain that does not have words to describe. It may or may not be the worst blah blah blah. However, getting your leg ripped off, or stung by a jellyfish, or having a fourteen pound baby come out of your vagina sideways may be just as bad, I have no way of knowing. But those things DO NOT happen four times a day for weeks or months or a lifetime.
My Doctor put me on Prednisone to get the CH under control and Imetrex inhaler for pain, then he put me on Verapamil 180mg twice a day haven't had a headache since 2005 I know everyone is different but it worked for me and I had these CH sine I was about 22 yeras of age I'm now 59.
toothache? yeah, fuck you asshole. I considdered killing myself durring my last CH. I punched myself so hard I knocked myself out just to make it stop. Ended up in the ER
TN is not more painful than CH's, simply due to the fact that the pain is sharp, quick, and pulsing. A cluster lasts far, far longer, driving people into a deep depression and anxiety due to the unbelievable pain.
You stated earlier that pain is something you need to experience. Well, you're reading this from someone who has had TN, and suffers with CH's. CH's are worse.
Even if TN is not more painful to you than a Custer Headache, it doesn't particularly matter as I was simply using TN to prove a point.
If you want, you can replace TN with "slowly being burned alive in a crashed car, your flesh melting onto the soft fabric of the seat" or perhaps "dental torture", the fact remains that if I have knowledge of one but not the other, or indeed neither, then I cannot make a reasoned judgement on the statement: "a Cluster Headache is the worst pain to man."
@phocjame Something tells me if you were being burned alive in a car crash while your flesh was being melted on the soft fabric of the seat, that would be an excruiating, painful, one time thing. And something else tells me you do not suffer from cluster headaches, episodic or chronic. Episodic is bad enough, but chronic, my goodness, they have little to no relief. Point being, the painful situations you're referring to, although quite painful, aren't repetitive. Case closed.
@SAlvizo Oh for Christ's sake, don't drag up shit from eight friggin' months ago.
Trigeminal Neuralgia IS repetitive, Trigeminal Neuralgia IS extremely painful, but my point - for fuck's sake, i've said this so many godddamn times - is that pain experience is subjective and that I can't take other people's experience as definitive objective proof of absolute worst case pain.
Hell, I whish i'd never shared my own opinion, since people seem so hell bent on telling me my experiences are wrong.
@phocjame Ok, I see your point. Your point being one person's pain isn't another's so who's to say what is the most painful thing in the world? My answer, doctors. I'm not saying what it the most painful thing is, medical physicians are. Do a google search on it if you want to disapprove me or just for your own personal knowledge or whatever. I welcome more people knowing about clusters.But again, I understand where you're coming from so there's no point in arguing. We'll just agree to disagree.
@SAlvizo I don't have Trigeminal Neuralgia, but I have talked to people that do, and of the people that I have talked to some say that it is worse than cluster headaches, some say that cluster headaches are worse than tg, so I don't get why people are still replying to stuff I had thought we'd wrapped up eight bloody months ago.
@SAlvizo If God reveals himself to you, then that's good reason for you to believe in God, but not for anyone else. Same prinicple here - I'm not saying that it's not the worst pain in the world for the people that suffer from it, but I am saying that their experience is not enough to prove that to me, especially when I have other people telling me other experiences are incredibly bad.
@SAlvizo I'm done with this video, i'm ignoring all further replies to my comments, because people just never understand the point, regardless of how many times I impress it upon them.
@SAlvizo If you get a Cluster Headache, I have no way of gauging the scale of pain you're in accurately because it is not my own experience, so if you say that's the worst pain know to man, to you, i'm can't argue with that.
But if I have intense toothache, continuously, for three days straight, so that every other pang of shock causes my head to wrench sideways, it is apparently perfectly understandable for someone with no experience of my own pain to tell me Cluster Headaches are still worse.
This comment has received too many negative votesshow
The only thing I can say is that I don't accept other people's opinion that it is the worst pain known to man.
If someone is stung by a stonefish and they say its the worst pain known to man, I find myself in the same position - they've experienced it but I haven't, and therefore cannot make a reasonable assessment of that statement.
If people want me to take their word on what the worst pain known to man is, then why should they argue with me if I was to say that my toothache was?
@ArsenalFC1981 Yes, the idea that I cannot accept something I have not experienced as the be all and end all of pain is stupid.
Tell me, if you saw someone cradling their stomach, obviously in a lot of pain, and they said that this was the worst pain possible, would you accept that as truth?
I can gauge pain fairly well, but I can't make statements like "That is by far the worst pain possible" because I simply don't know.
@ArsenalFC1981 All I said originally was that I couldn't accept this pain is the worst possible, and in response I get a load of people assuring me that it is the worst pain in the world, and that i'm a dick for holding a dissenting view.
With the responses i've received, I don't really give a shit about sensitivity.
"It's just stupid and insensitive...your argument" does not sway my position, and neither does "just accept it, because I said so".
@phocjame@phocjame Well, that's fine. You really have no way of knowing the exact amount of or in your opinion, lack there of pain. I don't understand way you'd come to this video and argue w/people who are obviously IN severe pain,suffered from this pain, or knows someone close to them that suffers from this pain.
As a CH myself, I know it hurts a lot worse than anything close to what I'VE experienced.It might or might not be the worst pain known to man. Who really knows.but it DEFINITELY is a debilitating condition that disrupts your everyday life a whole lot. Y even comment?
@ArsenalFC1981 Amebic infection can cause the worst pain, especially those parasites who can infect the nervious center, happens rarely. It’s called (The Pain) because they can trigger every pain impulse in the body. It’s like the opposite effect of heroin. Except that heroin doesn’t affect all the painreceptors. Some examples of amebic parasits: Naegleria Fowleri, Balamuthia Madrillaris and Acanthamoeba. Worst pain known to man. Just so you know : )
some srooms can actually stop the seasures all together for some. so if ur willing to break the law, you might escape from your pain.
kyllw 4 days ago
@kyllw "When the common man can't rely on the law to protect them and help them, then they must take it into their own hands to help and protect themselves." - Me
gaminginpublic 16 hours ago
I have these for 8 years. The pain is something I never felt. Has brought me to tears many times.
TheDarkKnightFreak85 1 week ago
NO MORE PAIN.
A lot of people don't even really know what is causing their
headaches.My headaches were so bad I'd vomiting for hours.
With this new procedure I do not have any more headaches.
A new cure Arizona Pain Center, Dr. Cody diagnose,
"OCCIPITAL NERVE TRAUMA "Dr. Nasser did the proceduer.
MEDIAL BRANCH NERVE BLOCK. Arizona Pain Center, Phx AZ.
602-265-8800 For this painless procedure. God Bless Jan
K9ZRKIDS2@AOL.COM I will send you mor detailed information
here2helpu2day 2 weeks ago
Is there a similar type of headache to this? Sometimes I get a very bad headache on one side of my head around the temple/eye area and it hurts badly for several minutes and it's not a migraine and it's a throbbing sharp pain. I just try and curl into a ball if I can in the dark until the worst of it's over. It usually doesn't last long but it's horrible. It also seems they come in bouts. I won't get one for awhile but then I'll get several with a period. They seem to come along with stress to
follielafemme 2 weeks ago
try looking into a medication derived from LSD - there is a documentary on youtube somewhere.
magic mushrooms are very safe, and will not harm your body. there has never been any cases of death due to overdose or prolonged use of mushrooms.
i dont think accumulation from eating a couple a day will be a problem. the active ingredient will be metabolised. shrooms are as natural as it gets
ConfidentialMCR 2 weeks ago
THERE'S A CURE DONT LIVE IN PAIN It's like being smashed in the back of head with a baseball bat & left to die. Believe.Comfort arm soak in the tub, compressesCry it only makes it worse.Drink a lot of water,I would then start to feel better.Dr. Brian Cody at the Arizona Pain Center 602-265-8800 Diagnoses Occipital Nerve Damage. few minutes with twilight sleep, X ray between head and neck,inject a dye to pin point nerve, then burn it out.woke up with no pain just bandaid.Jan
k9zrkids2@aol.com
here2helpu2day 2 weeks ago
about 2 years of suffering now. in my case nearly always out of the sleep. sometimes in the middle of the night and sometimes even 45 mins after falling asleep. i fall asleep - wake up from the pain with the attack beeing at its full power. in some nights i get 4-5 attacks in 1,5 hours episodes with the pain lasting 20-40 minutes. peaceful sleeping is nearly not possible.
cluster593 3 weeks ago
i have been suffering CH for a few years, i read about shooms might help, do any one know where i can get hold of some?
rajeevv502000 3 weeks ago
This has been flagged as spam show
There are a lot of comments about the use of shrooms. I have 1sthand experience using psylilocibe semilenciata for treating CH. THEY REALLY DO WORK!! 2-3 dried caps taken at the onset. (I usually just chew them raw) As these natural gifts from God are illegal I urge you as fellow sufferers to lobby you local MP's to press for more study.
Professor David Nutt (ex drugs advisory council) is trying to get funding for a study on their use in treating deppression in London.
mojudaro 3 weeks ago
Man I feel your pain. It makes u wanna rip off the side of your face and get it out. I sound just like you when it happens to me. Then when its over I'm perfectly normal. Its so weird.
stevemfno 3 weeks ago
@stevemfno Just on a side note. Don't take shrooms for this condition. Its painful, but does not last that long, don't further risk your health.
stevemfno 3 weeks ago
@stevemfno Prof Davis Nutt is starting some clinical trials with shrooms for depression. He is willing to extend this to CH if he can get the funding. Please rally your MP's
Shrooms do definitely work and give me up to 2 days remission (I suffer 4 - 8 attacks per day for 3 years) Dosage is very low (3 psilocybin semilenciata) and not enough to cause a trip but I do have my fears about accumulation in the body. Hence the need for research
mojudaro 3 weeks ago
I was diagnosed with CH by a neurologist about 1 year ago. After little to no help from the medicines, I was sent to a physical therapist, who suggested that the problem was in my neck.I went to a chiropractor who used mechanical corrections. My axis and atlas in my neck was pinching a nerve that triggered the headaches which were like those of Mike. I am now without headaches, Hope this helps someone else.
mdpowell1958 4 weeks ago
I had to use opiates for many years, I chose between a bullet and a buzz...fairly easy choice.
movadoband 1 month ago
i've seen a video on National Geographic saying that magic mushrooms ease the pain, please read up about it if you havent heard of it, you never know it may help you
nipplecat 1 month ago
I have been suffering CH for around 6 years now and this is something I pray someday will have a cure.
Every year, there has to be one month or so, that the 'beast that resides in my head' terrifies me. My heart goes out to everyone who suffers from this never ending knightmare.
I can just hope maybe, someone, somewhere, will find a cure for this.
SyedRizvi786110 1 month ago
I'm a chronic suffer too and i'm 18. I don't want to suffer this for another few decades.
jetsamjetsam 2 months ago
i had heard the term cluster headache a few times and really thought it was just a specific type of headache, quite severe.. but NOTHING like what i am witnessing. This is truely a terrifying thing and my best wishes goes out to all the folks experiancing this. Lets hope for a more effective medical treatment !
cockroachafro 2 months ago
It is exactly like the man in the video said when he referred to time of day & how predictable they are.... I would take Mike Tyson in his prime bashing my skull in over a cluster headache any day. I'm 34 years old, I have had Cluster headaches for 2 years, Out of no where they began for reasons that I don't understand. I have a very high tolerance for pain but the first time I got one I thought it was my last day on earth. After it was over all I could do was cry & started counting my days.
chill14later 2 months ago
I can describe it, If you have ever seen the movie Hostel part 1 in the torture scene when the girl gets a torch put to her eyeball, That is the best way to put! It fucking sucks! After a cluster headache, Your brain feels a dull but constant pain much like a slightly torn muscle. So much effort & energy is drained from you during an attack that afterwards you can't just pick up right where you were beforehand. It takes everything out of you, & at times even the will to survive.
chill14later 2 months ago
oh my god.. and I complain about frequent headaches.. i feel so bad :(
xPGPRoDiGy97 3 months ago
Today in the gym while trying to finish my workout, i had the worst type of headache i think it was a cluster headache, i felt my right eye being crashed
In my point of view i could see a Green yellowish line it was if you've looked into the sun for awhile.in my head i felt a pressure I've never felt before its was so painful. at first it was unbearable. but i slept it out when i got home.. i hope i never get another one of those pain again.I feel bad for the people that constantly getting it
Ellista2k 3 months ago
Comment removed
Ellista2k 3 months ago
Jesus, my neighbors probably thought I was watching some guy get off, Im looking for actual information.
powerfulnun 3 months ago
PLEASE HELP US ALL AND GET US CLOSER TO A CURE!
ajg33nyc 4 months ago 17
I suffer really severe pain with ibs and sometimes feel suicidal, but this sounds so much worse, I really feel for all you people who suffer with this terrible condition. How you manage to cope with it, I can't begin to imagine.
WeTheStrange 4 months ago
I suffered for 12 years with C.H. I haven't had an attack for 2 years since switching to a low Histamine diet. I don't know if this will work for everyone, but it's stopped mine. Hope my post helps someone suffering from the terrible pain of C.H. Good luck.
ranjoharbri 4 months ago
I have suffered from these since 17 years ago Im 27 now the only thing that helps is exercising, drink a lot of water do not smoke, and most of all sleep well.
While having an episode control your self when you feel it coming, try not to feel anxious or angry(that will just make it worse) start jogging or jumping or any type of exercise, and when you feel that feeling of weakness stick your head in the freezer and breathe deeply throughout your nose. Hope it helps
85hazen 4 months ago
Thank you for making this. I've had episodic clusters for about 15 years. There aren't words for what this does to a person.
j2long 5 months ago
I'm affected and in a period of this nuisance now, after about two years of relief. I'm privileged to be able to (after a costly first instalment of SEK 1150, run up to a high cost for medications programme )in Sweden and get the rest for free. Since my periods vary from 4 to 6 weeks, I've had them for eight years and they're called Imigran. The twnty years befre that were hell when the aches appeared.
systemspel 5 months ago
Do things like Morphine help at all with the pain? Because i thought they are meant to completely shut down any pain sensors. Morphine is given to dying patients.
mcnultyfrank 5 months ago
I've had these headaches off and on since 1987. Some have lasted over 3 hours, sometimes 3 daily. School was hard, I lost many jobs, ruined my personality. Not one doctor has helped me. I've seen many since 1988. The latest doc tells me oxygen is too dangerous to prescribe. Nobody understands the headaches well enough to help me at all. When I'm going through the pain I hate anyone who isn't hurting. I hate life.
BassFever74 5 months ago
I have suffered like this with these headaches for over 33 years, I will be 53 in dec and have made up my mind, I will not go through these again, my kids are all grown etc so checking out isn't as big a deal,one cannot live with these
itsallamindgame 6 months ago
MoronMantra 6 months ago
@itsallamindgame I saw a documentary recent about some derivative of LSD helping to stop these headaches.
LadyCypher54 4 months ago
I suffered 12 years on a road and find a private doctor who stop it for 1,5 years straight. I never took the medicine what they gave me from hospital and belive that hurts.
It hurts so much that you wanna die but when goes of im floating.Never took the medi from Phd doctors cos they caant even say whats wrong. This private one sayedthat i had too much metal in my body so when surtain action is suppose to take place in the body it cant , soitsendsbacktheinfowhat is the headeace- Youmustnoyafood..
ahuli1 7 months ago
@ RudiGouws Unfortunately that isn't necessarily true. I am 45 and still suffer from them... 25 years now. The cycles do seem to be farther apart than when I was younger, but I still get severe episodes. The sad part is that after 25 years I still find myself educating the health professionals about treatment. Cluster headaches just are not researched or taught.
TheLocalJoe 7 months ago
Hi to all, yes i do also have the beast in me, i was told that by adge 42-45 the clusters will dissapear, is ther anyone that can confirm this please. Good luck to all and yes i do have started a new attack sesssion, one week old :)
RudiGouws 7 months ago
@RudiGouws to ad i'm 42 years old now.
RudiGouws 7 months ago
I've heard that cluster headaches are the worst pain known to man. Topping childbirth and a femur fracture. My heart goes out to anyone who suffers from these.
rmfarwell 7 months ago
i suffer from migraines and they are bad but seeing this is so sad because i know they are 100000x worse and more painful especially because you cant cure these or know when they will stop because they keep coming, the only "cure" for clusters that i have heard of is LSD, shrooms, or other psychedelics. my heart goes out to the sufferers of this and i am amazed that they can handle living with them, because i would probably go insane or commit suicide if i had to live in constant pain
FDelp994 9 months ago
Natural remedy for sale from a former sufferer ! Just search for cluster headache remedy on ebay
daniacea 9 months ago
@daniacea you are fucking sick
squiffy242 8 months ago
@squiffy242 I used to get cluster headaches and I found out a way to get rid of them using europeon truffles and I am providing them to people at near cost. How is that sick?
daniacea 8 months ago
@squiffy242 I am selling at near cost man. This is too help people out, nothing is free. It works and if you find something that works you should start selling too. That is how the world works. You sell what people want and need. If you go to a doctor you will spend 100 times what I am charging, for some oxygen tanks or pills that weren't even designed for clusterheadaches that have side effects.
daniacea 7 months ago
I know what pain you are all going through. This last Round of headaches gave me one that I had to be hospitalized, I was on Prednisone at the time, but it did'nt work for me.My Neorologist prescribed Verapamil to me.It started working right away and I was out of the hospital 1 wk after starting them. I have been out of the hospital for 3wks now headache free! I know the pills are working because I missed a dose the other day and got a headache. You can read about Verapamil in Wikepedia.
MyHickster 9 months ago
Oh man I feel your pain. 29 y/o male. Ive had these headaches for the past 5 years. Mine seem to come one season a year, for approx. 4 months. Luckily mine occur most often in the morning and only once a day for 30 to 60 min. Ive tried OTC meds, Tramadol, Ultracet, Maxalt, Oxygen @ 15 lpm, and Vicodin. None have stopped the pain yet. Hope u find a way out..good luck.
FlaDiver425 9 months ago
thank you for the info.ive tryed ever paine killer known to manthe one thing that i did find would stop a headache in its track is oxagen but i was useing to much ..im afread to eat or sleepbecouse some times food will triger one .i wish there was some way to make people under stand just how paineful thay arei try to tell people thay are not migraines that ive never felt paine like this.my mom is a lpn has ben one for 33 years. and it brakes her heart to see me go through one thank you
thekid0275 10 months ago
I know what it feels like I have had them since I was 5 im 36 now still cant find a way to stop them.
thekid0275 10 months ago
@thekid0275 Has your physician explored high doses of prednisone? Before everyone starts yelling at me for recommending, this is what was prescribed for me at the Mayo Clinic. 50mg per day for 5 days. No tapering, no nothing. the side effects are awful, but do not even come close to the pain associated with 2 - 3 clusters per day that last for 45 - 60 minutes per episode.
Unlike the video, KNOWING that one is going to hit at a specific time created such fear it was almost debilitating itself.
TheTemest 10 months ago
@thekid0275 ...omg. I am a 36 yr female chronic cluster headache sufferer. I completely feel for you. Mine came on around the age of 4 yr old. No doctor took me seriously until my senior year in high school where I got the diagnosis of migraine. I had that diagnosis up until about 3 years ago when I went a new doctor, and one of his questions was, "Have you ever banged your head against the wall during your attack?" I knew I'd found a dr to help me at least...
candirenee74 9 months ago
@candirenee74 i,ve hade mine since i was 5 still cant control them
thekid0275 9 months ago
The worst pain I ever experienced in my life was when I had a tooth infection that infected my jaw, I was literally mad with pain to the point I took pliers to pull out the tooth and actually damaged part of my jaw, crushed it, and I heard cluster headaches are WORSE pain than that! I can't imagine!
JamesTKirkCobain 10 months ago
Sorry for the repost. My first time leaving a comment.
dustang65 11 months ago
This has been flagged as spam show
I cried when I saw this video. I relate to this gentleman's pain. I had an Acoustic Neuroma removed. I've tried VERY strong medications, Chiropractic, Acupuncture, Guna ( a homeopathic drug) injected into my neck, Supplements, Essential Oil treatments, and Elimination Diet. The diet, Guna, and Acupucture have been the most effective for me and I'm down to about once a week for 2 hrs, but it still limits my lifestyle. If it were not for my girlfriend, family, and friends I would not be here now.
dustang65 11 months ago
I cried when I saw this video. I relate to this gentleman's pain. I had an Acoustic Neuroma removed. I've tried VERY strong medications, Chiropractic, Acupuncture, Guna ( a homeopathic drug) injected into my neck, Supplements, Essential Oil treatments, and Elimination Diet. The diet, Guna, and Acupucture have been the most effective for me and I'm down to about once a week for 2 hrs, but it still limits my lifestyle. If it were not for my girlfriend, family, and friends I would not be here now.
dustang65 11 months ago
@dustang65
I really hope those therapies work for you, they do sod all for my clusters :( Thankfully I've not walked the beast for about 8 months now...nothing stops them. You have no idea how painful they are - I'm an atheist and I still pray to God when they start :P
I call him a few choice names as well.
AlchemicalDavid 10 months ago
I have lived with these since 02 and I give testament that no man pain on earth can hold a candle to these dabilitating attacks. If one can endure these this is as close to a living hell that you can get to. as far as pain, it has to be the spearhead proceeding death. The good news is that it cannot get any worse than this.
sadiki35 11 months ago
I can't even imagine how much this hurts.
Why does nature make people endure such things?
OriginalYTName 11 months ago
Oh men i feel whit you...
Pain is my constant Fear. Every Moment there is a cruel feelin of knowing every minute i can get a attack.
I do life whit Cluster since 10 jears. I am happy about every moment whitout pain. sometimes i think, i learnd to valure te life more...
But then the Pain comes and i think i creep miserably...
Then i would be Death..
Wotanspride 11 months ago
I know for a fact what a CH fictim feels...it's the worst of the worst and I feel with the guy in this video at the beginning and end.
Myself I have them 1 time every two year....all knot together in one week. The only stuff that helps me is Sumatriptan...
I wish you guys the very best...my respect to Dreditor to get some awarness on this.
Demolitionben 11 months ago
I'm a CH sufferer myself. If you ask a 1000 doctors how to treat it, you'll probably meet one who actually knows how. This guy was very lucky to find a doctor who was able to help him right away. Took me 9 years to find one =(
palmisano 1 year ago
is there nothing that would help? Pain killers? Morphine?
JonaBay 1 year ago
@JonaBay There are meds that help, like breathing pure oxygen and vasoconstrictors, but painkillers definitely don't work.
palmisano 1 year ago
thanks for the awesome Documentary. Iam a chronic suffer....5.5 years...Not one single day off.....I have a video as well.
Again thanks and Blessings
ClusterHeadSurvivor 1 year ago 7
i wish i could experience just ONE to understand the pain
johnnyXsniper 1 year ago
@johnnyXsniper you dont the pain sucks i hate it im only 18 i cant take it no more.i had it 3 years back from a concussion in wrestaling 3 years ago.now pain is back went to the hostital 2 times in 1 week now i know i have this n idk when it well stop.your bless plz dont wish this on yourself.
itsmecarl25 1 year ago
@johnnyXsniper
oh no you don't . i have suffered nearly every day for 9 years now, the only thing that helps me is pure oxygen. . the pain is so indescribable.
vy2002s 1 year ago
@johnnyXsniper No you don't. If it lasts longer than 10 minutes, you want seriously to die or be put to sleep. It feels like a gnawing broken bone pain behind the eye, like something trying to bore a hole through your eye/jaw. I've found moderately good results with high doss of capsaicin (found in eating a bite of a Habanero, or snorting Cayenne Pepper), which floods the system with painkilling endorphins and disrupts nerve terminals responsible for inflammatory pain.
KungFuTheater75 10 months ago
@johnnyXsniper No you don't. It is an INTOLERABLE pain you can't escape. It will drop you to your knees with you holding your head, rocking in pain, pleading with God to just let you die. For me, it feels like a hot poker in eyeball contstantly jabbing, with bone crushing pain behind my eye. As I cry out in pain, my family feels helpless. I have had these monsters for 32 years. I wouldnt wish this on anyone. ever.
candirenee74 9 months ago
guys, pleeeease ask for your doctors a presciption to buy sumatriptan (100mg). during an attack it works in 30m. there's a nasal one that works even faster. O2 could get the job in less time but it's not a sure thing like sumatriptan. also, chemits have developed a sort of lsd that does not get you high and is said to be pretty effective. i've taken regular lsd and made the beast disaper for like 3 days but one can't really count on such treatment so i'm looking fwd for this new lsd. cheers
abc1155 1 year ago
@abc1155
watch documentary called " inside LSD"...
vy2002s 1 year ago
@vy2002s will do that. cheers mate.
abc1155 1 year ago
im 15 yrs old and i have recently started to have cluster headaches and they suck i wanted to just get a knife and stab my eye to stop all the pain i tried icing my head and it only got worse luckly im not suffering from any currently but am truly scared for another to occur
Garcia4317 1 year ago
I'm 27, man, and have clusters since 12 years now. I thought several times of the sucide when I had my cluster headache. I thank god, cause for me the "maxalt 10mg" functions 70% of time and it stop crises at the end of 20-25 minutes. It's better than 1, 2 or more hours. The problem is that it's an expensive drug. but I prefer to pay to not suffer. It is the pain more attroce which I never had, I hope it will stop someday, and I dont wish that to anybody !
MrOlisimon 1 year ago
My mom is going through one right now. Tramadol is a joke.
twistt 1 year ago
I take Tramadol Hydrochloride to stop mine, the agony will last 15 to 30 mins. Without Tramadol then..God I pray to you as 2 hours upto 8 hours of pure unadulterated hell is in store for me. I asked why, what sin have I done to deserve the pain, the torture the none stop acute chronic agony pure pain. Mine are worse than a broken bone or ten toothaches. I was groaning that much I had a soar throat, my ribs hurt through the exertion of my stiffled screams.
depoty 1 year ago
I have cluster headaches. I usually take LSD and within 40 mins, the headache clears. But it is one hell of a tradeoff. Yeah, the headache goes away, but then I am tripping.
ImoenOfTelengard 1 year ago
I hope he got the Cluster Headache oxygen mask insted of the one he uses in the video.. im inhaling 25liters a minute with the non-rebreathable horton mask
punkish87 1 year ago
It's like an electric needle that's put in your eye...
technofreak3535 1 year ago
I am 25 yrs old and female. and this is WORSE THAN CHILDBIRTH!!! I thought I had a brain tumor and started making a will to the point that my family started fighting over my stuff. That's how bad it was and looked. I KNOW IT WORSE THAN CHILDBIRTH!
TruegamerGirl 1 year ago 2
Listen to death metal while having a cluster headache.
rayzrblayd24 1 year ago 2
LOL its just a head ache, man up
Keyboardbeatz 1 year ago
@Keyboardbeatz omg you dont know how friggin hard that is. Its also called suicide headache.
Dimiranger 1 year ago
@Dimiranger just trollin man, i would probably killmyself if i had it
Keyboardbeatz 1 year ago
I have suffered from ch for 11 years now, 6 months ago I started taking Verapamil and this seems to have slowed episodes down considerably, has anybody else ever had luck with verapamil?
outsiderpromotions 1 year ago
I've had good luck with Verapamil. i take 120mgs a day during a 2 month cycle and its been working so far..ive had ch for 18 years and only jus found treatment 5 years ago. i go to the MHNI clinic in AnnArbor MIchigan and they are the best thing i have ever done in my life! watching the man in this video suffering is hard.
turtlebutt333 1 year ago
Do any cluster HA sufferers ever get red lesions on their forehead or jaw after a particularly bad HA? They stay for a few days and then disappear? Wierdest thing, my Docs have no clue.. but it is related to the severity of my HA's.. had em for years now, no one knows why or what (some have suggested shingles.. but they are not really painful). Only on my face and head. I thought maybe due to super hot washcloth I use to distract from pain.
ltsgoyanks 1 year ago
@ltsgoyanks are you sure you dont have trigeminal neurolga .look it up ,and compare symtums
amycassidy1324 1 year ago
@amycassidy1324 trigeminal neuralgia and symptoms, learn how to type!
dacorsua 1 year ago
I FEEL your pain. :(
I have a "shadow" that's almost as bad!!
ualflygal 1 year ago
mine start under the right eye, in the upper jaw area, then crawl up to the right eye. and then drill further up and deep into the right hemisphere. since - for me - the pain always starts and continuous in the jaw region (before it fully hits the right eye), i considered pulling out some teeth to abort the beginning of an attack. i never did it, but i also know that doctors wouldnt pull out a bunch of healthy teeth for me. i still suffer CHA, and i may pull out my teeth one day.
georgfly 1 year ago
imitrex evrywhere :P
Sevisija 1 year ago
In fact: most cluster HA sufferers when we get together and chat about a recent headache, we use the kip scale.. which is a pain scale that CH sufferes use among themselves to describe pain levels.. because the pain level BEGINS at 10 and goes up from there, on the 1-10 smiley face scale at the hospital. I would rather saw my arm off with a rusty blade. I hope that gives you some perspective on the pain issue phocjame.
ltsgoyanks 1 year ago
@ltsgoyanks Damn, you must get CH headaches worse than me... I would rather a CH than to cut my arm off. But yeah, CH suck ass. I'm in remission atm....HOOray!
ArsenalFC1981 1 year ago
@ArsenalFC1981 I am glad they are in remission. I hope the pattern stays that way for you. I started out episodic for several years, and since 2003 I have been chronic (no more than 2-weeks remission) and the only break I get is when I take prednisone. Not all HAs are that bad, of the 3 or 4 I get per day, ONE of them is usually a biggie.. others are aborted within 3-5 minutes with O2. Once a month (roughly) I will have the "Saw off limb" type of HA. Thanks for sharing! Enjoy your break!
ltsgoyanks 1 year ago
@ltsgoyanks Thanks! Yeah, I've been having CH cycles since I was about 17-18....I'm 29 now. Hopefully it ALWAYS is episodic. The only thing that seemed to make the remission longer for me has been YOGA believe it or not. I went 2 years with a single head ache till about a month ago. Then when I did have a cycle it was not HALF as bad. As you probably know, I learn something/some way of dealing with CH with every passing cycle. Take care.
ArsenalFC1981 1 year ago
@ArsenalFC1981 I have been practicing Ashtanga Yoga and I agree it is helpful. Do you do meditative Yoga or more for strength or flexibility? I have been practicing Isha yoga, but the relaxed state sometimes will give me a headache.. wierd. So correct! You learn to cope in new ways with each cycle.. I think it is sureal that many CH sufferers use the same exact techniques and approaches for comfort.. I would love to know what type of Yoga works best for you.
ltsgoyanks 1 year ago
@ltsgoyanks I'm not even sure what you call the yoga I do. I practice Yoga from DVDs. A great instructor named Rodney Yee. I went to a chiropractor during a cycle that lasted 3 months straight. Told me to stretch a lot, gave exercises and it worked well. I just thought to do yoga and that helped. I was too embarrassed to do yoga posses in a classroom full of people...so I got a shit load of Yoga DVDs. Rodney Yee seemed to be the best. I don't follow the DVDs much, but know the routines well.
ArsenalFC1981 1 year ago
@ArsenalFC1981 Awesome. Thanks for the info, I will check it out. I agree Yoga has seemed to be beneficial. I don't know if there is any ONE thing that helps, it's usually a combination of things that makes me the most comfortable. Thanks again for the feedback.
ltsgoyanks 1 year ago
@ltsgoyanks Yeah, no problem.
ArsenalFC1981 1 year ago
cont: I said my headaches are at a ten level for me, nothing else can compare (including broken bones, a pulled tooth w/o anesthesia when I was in the Marines etc). Dr replied, no headache is that painful, are you sure you don't have a clot or tumor? This 1-10 pain scale helped facilitate his research and diagnosis. My meds for my Cluster HA cause me to have 5-6 kidney stones per yr.. gladly pas them if it means shorter periods of HAs. You are insensitive...and no one can know our pain.
ltsgoyanks 1 year ago
phocjame: Pain is a difficult thing to gauge; hospitals and doctors still use the smiley chart 1-10 for highest pain level in your lie compared to anything. The chart is good for some things, it helped my doctor diagnose my CH finally. I had a kidney stone and pissing up blood, and I said the pain was between a 4 and a 5; he said, you cannot be having a stone then. I passed the stone and gave it to the dr a week later. He asked me.. what in the world was more painful than the stone?
ltsgoyanks 1 year ago
Bad attacks for me might feel as if someone is pulling a threaded needle through my eye repeatedly. I feel as if my eye is going to collapse in on itself. Daily nortriptyline seems to make the bad attacks uncommon.
I'm atypical. Mine come sporadically (and no time of year is safe) and often are mixed day to day with migraine attacks. I can get incapacitatingly photophobic, like nothing I get with migraine. Vision can be blurry for days afterwards, even with the mildest of mild attacks.
chemoelectric 1 year ago
Very nice job.
I have recently been diagnosed with cluster headaches that I have been having since 1991. They were originally misdiagnosed by the VA Hospital as "Gulf War Syndrome". I have tried several abortive drugs with little relief, I do use oxygen with every attack and I know take daily medications in an attempt to lessen the frequency, duration, and intensity of the headaches. I'm 41 and my neurologist says they will most likely get worse as I age. The batte rages on...
Specter6 1 year ago
hes right paracetamol does NOT work! i get cluster headaches alot and when i take a pain killer it does not work! they are very painful but i find them anoying more. they stress me out which makes it even worse. The only thing that helps me is sleep
BizareShow 1 year ago
Bless you man, you have done truly good work here, you have helped me explain my wrecked life to the people who know me.
TheRasibo 1 year ago
I can't bare to watch this man. It is all too familiar. The nights the days the years when will it stop? When will it come back. My husband the love of my life. I feel every scream, every bang made by his Hand against a wall. I tense up and I pray! I am so helpless!
jhartist123 1 year ago
Hi,
I had to cry seeing this video. I suffer cluster headache for about 21 years now. For the last 3 years the beast had left me be, now he is back again. I hope that your video can help people to understand where we have to go true.
Mike, let us try to stay strong together, knowing we are not alone!
Roel, The Netherlands
reconxvideohq 1 year ago
I am a 17 year old boy, when i was 16 years old the doctor said i had the clusterheadache, (Suicidal Headache) You can't describe the pain it feels like the devil is in your head i prayed to god to take away the pain after a few months i finaly got the right medicine, but there's always a chance it comes back... Now i don't have the clusterheadache anymore i feel like the happiest boy on earth
Lorlax 1 year ago
This has been flagged as spam show
@Lorlax im 16 and i have them :(
ThatAndreKid1 1 year ago
@Lorlax what medicine
thestickyfin 1 year ago
@thestickyfin i dont remember anymore i really dont care to i just wanted to be healthy again :) and my docter said it had something to do with stress
Lorlax 1 year ago
@thestickyfin God =)
Lorlax 5 months ago
I'm a chronic and find the only solution in psychedelics. There are legal way's to take them: LSA from Hawaian Baby Woodrose seeds ( 5 seeds crushed in plain water for 2 hours and than drink it ) - Psilocybe ( you can order magic truffels online, just put them in yogurt and eat them ) Ayahuasca ( go to a meeting of the Santo Daime church ). To get out of the episode do it once a week and absolutely take no other medicins exept oxygen and lots of water. Than once a month to stay out of pain. QED!
teatropereyra 1 year ago
Excellent video, if only ppl new and understood the pain we go through, Ive been suffering for about the past 5 years, usually the episodes last for 3 months having 2 or 3 attacks a day, just lately ive been getting them worse than ever, and no tablets seem to work, and can understand why ppl commit suicide, as i was close to doing so the other night, my doctor doesnt seem to have a clue nor do my family, but with short docs like this may help ppl understand.
thegur3 1 year ago
I am in my cycle and living the hell. For the first time I have had to use Imitrex injections with O2. Thanks for this documentary to make everyone aware of how horrible the pain is. Watching him suffer made me cry uncontrollably because I know!
usnad1 1 year ago
i got it too but the pain runs away on weed!
lelles24 1 year ago
thank you for making this short documentary, EXTREMELY interesting, and horrific
evanthepanther 1 year ago
I just took my Sumatriptan. Mine were getting up to 3 hours long. Seems like watching videos of others suffering seems to sooth me a bit.
BrandonPChat 1 year ago
I have dealt with this same monster for about 25 years and the degree of pain is unimaginable unless you have had a cluster headache. Most people think it is a migraine and they claim to understand. Migrainesare horrible in their own way. Clusters are the kind of pain that makes you wish for the sweet release of death sometimes during a bout. Vise grips closing on the back of your eyeball
gadics1 1 year ago
I have Cluster Headache for 6 years,
There are Painkillers that work - try Triptanes - They help really good on an attack
If u have none try 1200-1600 mg Ibuprofen in an emergency helps a bit, but kills your stomach, but dont try any other Painkillers they make it stronger
Dont eat Cheese or Food with lots of Histamine while on an Episode
get Verapamil for attack prevention - helps after 1-2 weeks
good luck
mucxlx 1 year ago
Just thought I'd mention that I'm in no way trying to take away from cluster headache sufferers, I'm merely curious. I have nothing but respect for this horrible affliction and what its victims go through.
CYBERBARBARIAN 1 year ago
I forgot to add that I'm 24 years old and by no means a frail individual.
CYBERBARBARIAN 1 year ago
Frankly, I've had toothaches that were so absolutely unbearable that I blacked out. I've also cried, rocked in the fetal position while clutching my face and screaming and broken my own hand once punching a solid concrete wall just to distract from the pain. I really wanted to grab my jaw and rip it completely off. I've also considered suicide during some of the worst fits. Sometimes the pain lasts an hour or longer. How does this compare to cluster headaches?
CYBERBARBARIAN 1 year ago
@CYBERBARBARIAN
thats a good start.
now, imagine that x100.
then thread a white hot cable slide through your eye and slide down it at light speed.
while on bad LSD.
now, add insult to injury and have half the people around you say you are faking, and have the other half offer you an aspirin while saying they understand.
MoronMantra 1 year ago
Comment removed
MrIonoin 1 year ago
As a cluster sufferer, watching this breaks my heart. And thank GOD it was made. EVERYONE needs to see this They need to see what we go through.
72grantorino 1 year ago
although i just suffer from "regular" migraine i fell with them. i get migraine attacks 15 times a month. it interferes with work and studying. sometimes it gets unbearable, with vomitting etc. but these guys really have to get help. i really felt him saying that he wants to get a spoon to take the pain out of his head. i feel that too
romanwoznik 1 year ago
This really is heartbreaking, what a horrible condition.
KingChiliPepper 1 year ago
yeh i used to get migranes and the fear of getting them was horrible. i cannot begin to imagine what it is like for you. have you tried magic mushrooms tho? they are supposed to work
abSURDub 1 year ago
I have cluster since 15 years and I wish all cluster patients and a lot of strength and everything good that it soon ceases to greet from Austria
Efe035Efe 2 years ago
fuck....i hope never come again to my head...it is ....ohhhhhhhhhhh fuckkkkkkkkkkkkking painfulllll and horible.....
rh200 2 years ago
This has been flagged as spam show
im haveing my 5-6 week spell now. please find a cure. and if i dont pull through, and really do committ suicide, these fucken headaches are why. cant deal with the pain no more
robvischjr 2 years ago
hey guys , There somebody does not like the fact that the cause of the cluster headaches has been known .
As I posted it a few times and tried to contact those who try to find a cure .
anyway,I was a cluster headaches patient myself , But Now I am free,Without Oxygen ,Without drugs,and without mushroom,Or LSD
Contact me if intersted
clusterheadachesfree 2 years ago
This has been flagged as spam show
"hey guys , There somebody does not like the fact that the cause of the cluster headaches has been known .
As I posted it a few times and tried to contact those who try to find a cure .
anyway,I was a cluster headaches patient myself , But Now I am free,Without Oxygen ,Without drugs,and without mushroom,Or LSD
Contact me if intersted"
How? Magic?
ArsenalFC1981 1 year ago
Your step dad just described my worst headaches to the letter!! OMG...Thank you for posting...I'm so sorry that someone else also know's what this evil thing feels like..you can't sleep, you can't sit, you can't lie down...you can't even cry..it hurts so bad...morphine dosen't make the pain go away...it is the worst pain ever...even his describing holding your arms over your head...that's me..cause you feel like your head is going to explode..and you live in fear of the next attack-
yankeegurl62 2 years ago
absolutly. i can feel your pain.
vren1960 2 years ago
Wow, I really need to stop complaining about my migraines if this can happen. The ones who suffer from these pains really are mighty, to all the CH sufferers out there, I can't even begin to mention how strong you must be to overcome such trauma.
sovietkazakh 2 years ago 2
POOR GUY
luv2spooge1 2 years ago
I have cluster headaches and Trigeminal Neuralgia it doesn't matter both are miserable why would you argue over the internet which one is more miserable?? Pointless it turned me into a heroin/morphine/oxycodone/hydromorphone addict those painkillers dont work to well but they are the only things that has even put a dent in my conditions. Now I live in Egypt and go to school (well when I can)
16adamsaid 2 years ago
I have tried topimax,(side effects were terrible), imigran injections, nasal spray, all gave some relief but the only medication that works for me are steriods, stopped this thing its tracks, but sadly I have to reduce my dose again and yes the clusters are starting again, Im a chronic sufferer, off to London in Jan for an implant so I will keep you all posted.
leap2jump 2 years ago
Jesus fucking Christ this is a stupid argument. I have CH. It is a pain that does not have words to describe. It may or may not be the worst blah blah blah. However, getting your leg ripped off, or stung by a jellyfish, or having a fourteen pound baby come out of your vagina sideways may be just as bad, I have no way of knowing. But those things DO NOT happen four times a day for weeks or months or a lifetime.
secretcodeword 2 years ago
My Doctor put me on Prednisone to get the CH under control and Imetrex inhaler for pain, then he put me on Verapamil 180mg twice a day haven't had a headache since 2005 I know everyone is different but it worked for me and I had these CH sine I was about 22 yeras of age I'm now 59.
Mel85255 2 years ago
toothache? yeah, fuck you asshole. I considdered killing myself durring my last CH. I punched myself so hard I knocked myself out just to make it stop. Ended up in the ER
Jainjme 2 years ago
Trigeminal Neuralgia is more severe than Cluster Headaches - disprove that.
Go on.
I look forward to the answer of yours that lacks appeals to emotion, reliance on personal experience and references to wikipedia.
phocjame 2 years ago
Phocjame, your comment is riddled with hypocrisy.
TN is not more painful than CH's, simply due to the fact that the pain is sharp, quick, and pulsing. A cluster lasts far, far longer, driving people into a deep depression and anxiety due to the unbelievable pain.
You stated earlier that pain is something you need to experience. Well, you're reading this from someone who has had TN, and suffers with CH's. CH's are worse.
maganashi 2 years ago
How is it riddled with hypocrisy?
You say it is, yet you give no examples.
Can you tell me that CH's are worse than stonefish stings, or box jellyfish stings, or having the lower half of your body ripped away by an IED?
I never stated that CH's aren't particularly bad, I just said that I wouldn't accept that the Cluster Headache is the worst pain known to man.
phocjame 2 years ago
Even if TN is not more painful to you than a Custer Headache, it doesn't particularly matter as I was simply using TN to prove a point.
If you want, you can replace TN with "slowly being burned alive in a crashed car, your flesh melting onto the soft fabric of the seat" or perhaps "dental torture", the fact remains that if I have knowledge of one but not the other, or indeed neither, then I cannot make a reasoned judgement on the statement: "a Cluster Headache is the worst pain to man."
phocjame 2 years ago
@phocjame Something tells me if you were being burned alive in a car crash while your flesh was being melted on the soft fabric of the seat, that would be an excruiating, painful, one time thing. And something else tells me you do not suffer from cluster headaches, episodic or chronic. Episodic is bad enough, but chronic, my goodness, they have little to no relief. Point being, the painful situations you're referring to, although quite painful, aren't repetitive. Case closed.
SAlvizo 1 year ago
@SAlvizo Oh for Christ's sake, don't drag up shit from eight friggin' months ago.
Trigeminal Neuralgia IS repetitive, Trigeminal Neuralgia IS extremely painful, but my point - for fuck's sake, i've said this so many godddamn times - is that pain experience is subjective and that I can't take other people's experience as definitive objective proof of absolute worst case pain.
Hell, I whish i'd never shared my own opinion, since people seem so hell bent on telling me my experiences are wrong.
phocjame 1 year ago
@phocjame Ok, I see your point. Your point being one person's pain isn't another's so who's to say what is the most painful thing in the world? My answer, doctors. I'm not saying what it the most painful thing is, medical physicians are. Do a google search on it if you want to disapprove me or just for your own personal knowledge or whatever. I welcome more people knowing about clusters.But again, I understand where you're coming from so there's no point in arguing. We'll just agree to disagree.
SAlvizo 1 year ago
@SAlvizo I don't have Trigeminal Neuralgia, but I have talked to people that do, and of the people that I have talked to some say that it is worse than cluster headaches, some say that cluster headaches are worse than tg, so I don't get why people are still replying to stuff I had thought we'd wrapped up eight bloody months ago.
phocjame 1 year ago
@SAlvizo If God reveals himself to you, then that's good reason for you to believe in God, but not for anyone else. Same prinicple here - I'm not saying that it's not the worst pain in the world for the people that suffer from it, but I am saying that their experience is not enough to prove that to me, especially when I have other people telling me other experiences are incredibly bad.
phocjame 1 year ago
@SAlvizo I'm done with this video, i'm ignoring all further replies to my comments, because people just never understand the point, regardless of how many times I impress it upon them.
phocjame 1 year ago
@SAlvizo If you get a Cluster Headache, I have no way of gauging the scale of pain you're in accurately because it is not my own experience, so if you say that's the worst pain know to man, to you, i'm can't argue with that.
But if I have intense toothache, continuously, for three days straight, so that every other pang of shock causes my head to wrench sideways, it is apparently perfectly understandable for someone with no experience of my own pain to tell me Cluster Headaches are still worse.
phocjame 1 year ago
This comment has received too many negative votes show
The only thing I can say is that I don't accept other people's opinion that it is the worst pain known to man.
If someone is stung by a stonefish and they say its the worst pain known to man, I find myself in the same position - they've experienced it but I haven't, and therefore cannot make a reasonable assessment of that statement.
If people want me to take their word on what the worst pain known to man is, then why should they argue with me if I was to say that my toothache was?
phocjame 2 years ago
@phocjame It's just stupid and insensitive...your argument.
ArsenalFC1981 1 year ago
@ArsenalFC1981 Yes, the idea that I cannot accept something I have not experienced as the be all and end all of pain is stupid.
Tell me, if you saw someone cradling their stomach, obviously in a lot of pain, and they said that this was the worst pain possible, would you accept that as truth?
I can gauge pain fairly well, but I can't make statements like "That is by far the worst pain possible" because I simply don't know.
phocjame 1 year ago
@ArsenalFC1981 All I said originally was that I couldn't accept this pain is the worst possible, and in response I get a load of people assuring me that it is the worst pain in the world, and that i'm a dick for holding a dissenting view.
With the responses i've received, I don't really give a shit about sensitivity.
"It's just stupid and insensitive...your argument" does not sway my position, and neither does "just accept it, because I said so".
phocjame 1 year ago
@phocjame @phocjame Well, that's fine. You really have no way of knowing the exact amount of or in your opinion, lack there of pain. I don't understand way you'd come to this video and argue w/people who are obviously IN severe pain,suffered from this pain, or knows someone close to them that suffers from this pain.
ArsenalFC1981 1 year ago
As a CH myself, I know it hurts a lot worse than anything close to what I'VE experienced.It might or might not be the worst pain known to man. Who really knows.but it DEFINITELY is a debilitating condition that disrupts your everyday life a whole lot. Y even comment?
ArsenalFC1981 1 year ago
@ArsenalFC1981 Amebic infection can cause the worst pain, especially those parasites who can infect the nervious center, happens rarely. It’s called (The Pain) because they can trigger every pain impulse in the body. It’s like the opposite effect of heroin. Except that heroin doesn’t affect all the painreceptors. Some examples of amebic parasits: Naegleria Fowleri, Balamuthia Madrillaris and Acanthamoeba. Worst pain known to man. Just so you know : )
Blubang 1 year ago