Thank you for sharing this beautiful tribute to your son. My niece was diagnosed with Kabuki Syndrome, she in 2 weeks she is turning 8 years old. We are from Spain, and I would love to be in contact with people to share information and their experience. Thanks again!
Thank you for sharing this beautiful tribute to your son. My niece was diagnosed with Kabuki Syndrome, she in 2 weeks she is turning 8 years old. We are from Spain, and I would love to be in contact with people to share information and their experience. Thanks again!
Thank you for sharing this beautiful tribute to your son. My niece was diagnosed with Kabuki Syndrome, she in 2 weeks she is turning 8 years old. We are from Spain, and I would love to be in contact with people to share information and their experience. Thanks again!
Thank you for sharing this beautiful tribute to your son. My niece was diagnosed with Kabuki Syndrome, she in 2 weeks she is turning 8 years old. We are from Spain, and I would love to be in contact with people to share information and their experience. Thanks again!
...but of course i understand if you can't or wouldn't like me to show it, I just thought it would be a good example to help tell my class about when we present what information we have gathered on the syndrome.
anyways I hope all goes well with your son, he seems adorable.
i was wondering if there is a way you could somehow make this or put this on some website I could burn this off of and show to my class because I'm doing research with one of my friends on Kabuki Syndrome and I think if my classmates all saw this they would really see how it effects people's lives
thank you for your comment. feel free to message me any time. How old is your son? i woud also like to know where you are located but do not post that in the public area. if yoiu care to share..post it privately to me.
God bless you joshua and sophie. This is what true love is all about. Being strong and counting the blessings each day. This video brought tears to my eyes but it showed the stregnth of your family.
Thank you - for your response - I am going to post this on my web site - walkinyourtalk. Beautiful voice and beautiful child - how can one NOT fall in love with him - our children are such wonderful gifts from God. Thank you again for sharing and caring... Palestar in Santa Fe, NM
thanks. i checked out the web site you mentioned and saw that you did in fact post my video but you mentioned that i am the voice int he video when I am not the one singing in the particular video. You may want to change the text on that. The song is by Mark schultz.
Sorry - it sounded like you - yes I know about Mark Schultz - who is the voice then? Thank you so much - Joshua is so blessed to have you as a mom. I know you feel blessed having him - both comments are true - children are pure souls.
It must be you in the one I placed in honour of Joshua - check it out and let me know - please. Thank you again. My neighbour swears it is you in that one - I have one with Mark he has a great voice - but this sounds like a mommy... take care.
NOPE..I doubled checked which one you had there and it is the same as this video you keep commenting on. It is definitely mark himself singing in that one.
I guess I had changed it since then - and this is the one I have now - sorry - visit again if you like I would change it if you check it out and I'll do what ever you prefer. Thank you. walkinyourtalk - You ought to be paid for a voice that beautiful.
I would love to paid for my voice but no one has yet to offer.LOL. the added comment helps but still implies I am singing in that video.You may want to add that mnark shultz is actually singing it.Up to you. I just do not want to take credit where it is not due.
Visit anytime - The soundtracks I have of Mark singing - sounds so different than this one... I am on your website - what a gift you have. I am enjoying it very much... Thank you again!
Thanks.I apreciate it. he is healthy now but still has challenges that include severe constipation and developemental delays. Right now we are praying for him to learn his alphabet. he is 6 and still can not recognize letters.
Waaa!! *sniff. sniff. THat took me back to when my first born was born premature.. all the wires..the times when we almost lost him. I believe in the power of a praying parent.God knows how much we love our children..because he loves us even more.
omg u did this on windows movie maker. i think youre the one i was helping on stickam im bennified from youtube chat room. Wow i was all teary eyed great video hun
Yes..you were the one I asked for help with how to lay on the soundtrack.Thanks for your help. It was the video I uploaded before this one that I asked for help on but it came in handy for this one too. Thanks so much for your help.
He is beautiful. My baby was born with Persistant Pulmonary Hypertension in Newborns. It was a nightmare but we made it:D Oh, and Yes thank you GOD, for the many people that it takes to help cure all these precious children.
@BangableLaura god bless you for helping him achieve this goal. he is blessed to know you
allthingsartist 1 year ago
Nosotros tenemos nuestro SOLSITO nuestro corazoncito
Besos
madriagac 1 year ago
Just looking at the list of his symptoms is overwhelming, so I don't know how you deal with it. He looks like such an amazing kid!
Buffheart 1 year ago
Thank you for sharing this beautiful tribute to your son. My niece was diagnosed with Kabuki Syndrome, she in 2 weeks she is turning 8 years old. We are from Spain, and I would love to be in contact with people to share information and their experience. Thanks again!
mariavg27 1 year ago
Thank you for sharing this beautiful tribute to your son. My niece was diagnosed with Kabuki Syndrome, she in 2 weeks she is turning 8 years old. We are from Spain, and I would love to be in contact with people to share information and their experience. Thanks again!
mariavg27 1 year ago
Thank you for sharing this beautiful tribute to your son. My niece was diagnosed with Kabuki Syndrome, she in 2 weeks she is turning 8 years old. We are from Spain, and I would love to be in contact with people to share information and their experience. Thanks again!
mariavg27 1 year ago
Thank you for sharing this beautiful tribute to your son. My niece was diagnosed with Kabuki Syndrome, she in 2 weeks she is turning 8 years old. We are from Spain, and I would love to be in contact with people to share information and their experience. Thanks again!
mariavg27 1 year ago
Wow, that's a lot for little man.
TropicalBeauty1 1 year ago
I was diagnosed with Kabuki Syndrome in 1999 or somewhere around there.
andrewdemello 2 years ago 2
merci davoire parler de ma maladie le syndrome kabuki jai 17 ans
yann065 3 years ago
de rien. ou est ce que tu habite? nous sommes dans l'ontario sud a canada.
allthingsartist 3 years ago
an france a brest
yann065 3 years ago
je suis venu vous prandre des nouvelle yann
yann065 3 years ago
Absolutely Amazing my prayers are with you all! What a miracle child you have there.
mesanto09 3 years ago
absolutely amazing...ur an amazing woman...
xoxo
maddy
MYSHELLSEA 3 years ago
God bless you all! Children are so precious! Hug them every time you get a chance to do so!
Lootmeister 4 years ago
What a great tribute to your son! I pray that GOd Blesses him any your entire family. How is he doing now?
jackeee1002 4 years ago
thank you so much. God has already blessed him and us in so many ways but we appreciate your prayers form continued blessings.
allthingsartist 4 years ago
sorry thats kind of out of order now and confusing =/
it just wouldn't all fit in one, sorry=/
Livefreely1792 4 years ago
...but of course i understand if you can't or wouldn't like me to show it, I just thought it would be a good example to help tell my class about when we present what information we have gathered on the syndrome.
anyways I hope all goes well with your son, he seems adorable.
Best Wishes-
Lainey
Livefreely1792 4 years ago
i was wondering if there is a way you could somehow make this or put this on some website I could burn this off of and show to my class because I'm doing research with one of my friends on Kabuki Syndrome and I think if my classmates all saw this they would really see how it effects people's lives
Livefreely1792 4 years ago
Thank you for sharing your son's story. He sure has been through a lot. My little boy also has Kabuki syndrome.
HezC99 4 years ago
thank you for your comment. feel free to message me any time. How old is your son? i woud also like to know where you are located but do not post that in the public area. if yoiu care to share..post it privately to me.
allthingsartist 4 years ago
God bless you joshua and sophie. This is what true love is all about. Being strong and counting the blessings each day. This video brought tears to my eyes but it showed the stregnth of your family.
runningtexasdave 4 years ago
thank you for sharing your thoughts on my video.
allthingsartist 4 years ago
Thank you - for your response - I am going to post this on my web site - walkinyourtalk. Beautiful voice and beautiful child - how can one NOT fall in love with him - our children are such wonderful gifts from God. Thank you again for sharing and caring... Palestar in Santa Fe, NM
Palestar 4 years ago
thanks. i checked out the web site you mentioned and saw that you did in fact post my video but you mentioned that i am the voice int he video when I am not the one singing in the particular video. You may want to change the text on that. The song is by Mark schultz.
allthingsartist 4 years ago
Sorry - it sounded like you - yes I know about Mark Schultz - who is the voice then? Thank you so much - Joshua is so blessed to have you as a mom. I know you feel blessed having him - both comments are true - children are pure souls.
Palestar 4 years ago
I am the one singing in my singing videos but the photo video you posted on your web site was not me singing. It was Mark Schultz singing.
allthingsartist 4 years ago
It must be you in the one I placed in honour of Joshua - check it out and let me know - please. Thank you again. My neighbour swears it is you in that one - I have one with Mark he has a great voice - but this sounds like a mommy... take care.
Palestar 4 years ago
NOPE..I doubled checked which one you had there and it is the same as this video you keep commenting on. It is definitely mark himself singing in that one.
allthingsartist 4 years ago
I guess I had changed it since then - and this is the one I have now - sorry - visit again if you like I would change it if you check it out and I'll do what ever you prefer. Thank you. walkinyourtalk - You ought to be paid for a voice that beautiful.
Palestar 4 years ago
I would love to paid for my voice but no one has yet to offer.LOL. the added comment helps but still implies I am singing in that video.You may want to add that mnark shultz is actually singing it.Up to you. I just do not want to take credit where it is not due.
allthingsartist 4 years ago
Visit anytime - The soundtracks I have of Mark singing - sounds so different than this one... I am on your website - what a gift you have. I am enjoying it very much... Thank you again!
Palestar 4 years ago
Beautiful video. Glad I watched it, thanks. I also have a vid of my son up on youtube.
jason420jason 4 years ago
Oh yeah, my son is also named Joshua. His video is in my profile.
jason420jason 4 years ago
I have been through so much with my son Joshua as well. God gives these beautiful gifts to people like you and I. God bless you and Joshua!
sherryhumikowski 4 years ago
thank you for your comments
allthingsartist 4 years ago
God bless you all.
SunFire1051 4 years ago
thank you and may you also be blessed.
allthingsartist 4 years ago
Very Touching. Every day of life you must love him soooo much. God is on your side and he is helping your son. Alain xxx
Pivert 4 years ago
I do love him every day of my life..even when he is in time out.LOL he is so precious to me ...as is my daughter. They are both blessings to me.
allthingsartist 4 years ago
That was so touching, Sophie.
I'll keep you and your family in my prayers!
lajavableue 4 years ago
Thanks.I apreciate it. he is healthy now but still has challenges that include severe constipation and developemental delays. Right now we are praying for him to learn his alphabet. he is 6 and still can not recognize letters.
allthingsartist 4 years ago
Waaa!! *sniff. sniff. THat took me back to when my first born was born premature.. all the wires..the times when we almost lost him. I believe in the power of a praying parent.God knows how much we love our children..because he loves us even more.
setfree2day 4 years ago
Amen.These special children bless us in ways we can not even phathom.
allthingsartist 4 years ago
Wow Soph! Great video!!
archergal2440 4 years ago
I am glad you enjoyed it. I apreciate the kind words.
allthingsartist 4 years ago
omg u did this on windows movie maker. i think youre the one i was helping on stickam im bennified from youtube chat room. Wow i was all teary eyed great video hun
TheBennyZone 4 years ago
Yes..you were the one I asked for help with how to lay on the soundtrack.Thanks for your help. It was the video I uploaded before this one that I asked for help on but it came in handy for this one too. Thanks so much for your help.
allthingsartist 4 years ago
He is beautiful. My baby was born with Persistant Pulmonary Hypertension in Newborns. It was a nightmare but we made it:D Oh, and Yes thank you GOD, for the many people that it takes to help cure all these precious children.
lilvoyce 4 years ago
And Thank God for giving your baby a wonderful mom
allthingsartist 4 years ago
Oh man Soph, I teared up watching this video, Joshua has been through alot but God will help him through it, and the video was beautifully done.
GothicTwig 4 years ago
Thanks Twiggy.God HAS helped him and continues to help him.Joshua is a healthy boy now though some challenges still lay ahead.
allthingsartist 4 years ago