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From: superludan
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  • Literally 10 people in my family have this. It's only been diagnosed to them in the past 5 years. I have stumbled, fallen regularly but getting progressively worse, dizzy, be standing there still and just start falling to the side, for years. We thought it was due to the slight head injury I had in 99. Now, I dont think so. Im calling a doctor Monday. Im scared bad.

  • @princessoffire1107 what..did..the..doc..said???

  • @OwaisSwati I haven't been yet. I don't have insurance and getting someone to look at me when something is wrong that you can physically see, is almost impossible, but when its trying to get to see someone for such a specialized round of tests as this, without being able to phsyically see a problem, knowing you dont have insurance, is impossible. I am to the point of just giving up , no one will look at me because of the no insurance thing.

  • WTF HE LET HER FALL.!!!!!! HE IS SO DUMB........

  • SCA can be treated by neural stem cell transplantation. Clinical cases show that stem cell transplantation can effectly improve the patient's balance,coordination,speech,an­d strenfth. Please send e-mails to nscellinfo@gmail.com for help.

  • @remingtonrandtrypist this is based on a true story the video is a drama but it's based on a girl named Aya kitou and she died at age 25 so it's waaay to late to start on that.

  • Start her on Rilutek. It is working for a close friend of mine after only six months. And exercise, no matter how simple it is.

  • @KarinAbridgedSeries you should watch the drama and the movie they'll really help

  • 1 Liter of Tears is not enough when you watch this drama :"(

  • 1 litre of tears O_o I love it, really amazing and touching, poor aya :(

  • touching video! :)

  • You have a voice of an angel

  • My sister has this disease. I have some symptoms (balance, falling and some speech issues). Found that depending on the gene type it can affect 1 or 2 out of 4 siblings. Also, depending on gene type, the children of those affected have a chance of earlier onset and faster progression.

  • When I got SCA, I couldn't walk, talk, hear, eat, go the bathroom, could barely see, and my reflexes became dead. Over the past 7 years I have steadily gotten better, but now my improvement has stopped. My physical abilities are extremely limited for a 24 year old.

  • This film is some winy bullshit. Both my mother and I have SCA type 7. She 60 and Im 25. I cant do physical sports anymore and have trouble walking and writing by hand but I dont view myself as a victim. Because I dont see myself as weak my friends dont see me as weak either. Live in the now and see your opportunities and not limitations. Everybody has problems, Im glad mine are only physical and not mental.

  • @kilolima55555 self indulgence can be a sad thing. This video is about trying to raise awareness about this condition so that money can be filtered into research that will hopefully help people like my young son and people like you and your mother. You are the whinger who just wants to be heard. so just be heard without the negativity.

  • @jaspersonnyoner What does whinger mean?

  • @kilolima55555, Whinger is the australian/british form of Whiner, it's not incredibly difficult to see the similarities.

  • very nice

  • @HikaruMangaProject actually since this is the drama version they changed her name the real Ayas name is Aya Kitou

  • ataxia.org.ua

  • this is a fucking disgrace. spoiler alert. ITS NOT REAL

  • my sister died when she was 47 years old. m y 2 nephews died in there early 30's.

    My young nephew who is 31 is living with it. Pray for him.

  • wouldn't you get micrographia?

  • after watching i prayed to God to remove all the pain, suffering and death from the world.... I believe that when JESUS comes to reign. He will make her live again and will remove all the tears... so dont be discouraged.. JESUS is our Hope. for further details and comfort...pls...read bible...

  • Kristen Stewart is in a movie about so Erving similar to this , it is called the cake eaters

  • Damn, nature. YOU SCARY!

  • the worst part is it's real. i really wish and prey that everyone who has SCA dosent give up like aya and that there will be a cure soon. my fear is SCA, and its horrible that not many people know about it. people should really read the book, and learn to not give up on life, dignosed or not. god bless.

  • It's nice to know caring for the unlucky few has no real culture boundaries. I've seen and heard too much about disabled people being treated horribly in some asian countrys. Of course there are cruel people around the world, it's sad that people see the cruel people before they see the good

  • i didnt believe people when they told me i would cry during the drama

  • Aya is such a pretty girl. I 'm so sorry she went through this. She's amazing.

  • fantastic video. i will also try to find its cure.

  • so sad. =*( .

  • InshaAllah In future I will get cure this disease & No one will die of this disease..... May God Succeed Me in my dreams!!!!!! Ameen!!!!!!

  • when I watch this movie,,

    really 1 litre of tears running out from my eyes...

  • wow, this video makes me cry..

    i'm like now watch one liter of tears.. and right now i'm on episode 3.

    hmm.. i think it will gonna make me cry cry cry XD.

  • My mother was diagnosed in 2001 with "Olivio Ponto Cerebellar Ataxia". Though some with this disease live for 20 or more years after diagnosis, it was not so for her. We lost her in 2008. Like Aya, she did her best to live in every moment she was given, and got up every day, except for the last. She Kept her sense of humor, even when she'd lost her ability to walk, and write. God bless Aya and her family; thank you for making this video so others can learn of these horrible illnesses.

  • @annepavlos amazing :)

  • @annepavlos Aya Ikeuchi was a real person who suffered this disease, she died a long ago,this are scenes of 1litre of tears wich are based on what she suffered, im so sorry for your lost..my condolences

  • @annepavlos Ihave the same problem..

    (I CANT WALK, CASNT STAND WITH OUT SUPPORT, CANT BALANCE MY BODY FROM FOOPT TO HEAD) if anybody knows about a good institute hospital or doctor, please send me the information by You tube messages.. thank you!! kindely,

  • @annepavlos Ihave the same problem..

    (I CANT WALK, CASNT STAND WITH OUT SUPPORT, CANT BALANCE MY BODY FROM FOOPT TO HEAD) if anybody knows about a good institute hospital or doctor, please send me the information by You tube messages.. thank you!! kindely,

  • @OwaisSwati Some people go into Nursing homes because governments funding exists to care for people there, but does not exist to care for people elsewhere. Some people who can afford to have caregivers come into their homes and help care for them so they can stay in their homes as long as possible. I work for such a company, but I'm in the US and I get the feeling you are not.

  • @annepavlos1 yeah u feel right. i am in Pakistan. but thanx 4 the reply. u r so kind.

  • @OwaisSwati i am sorry to hear that owais you have this ataxia, i can just give you advice that never give up keep trying ALLAH bless you

  • @annepavlos God give place in a heaven to ur mother i am nurse i just saw this disease in youtube because i was finding it for my study purpose

  • @gandabacha777 oh..itx..ok..bro..chill..bill.­.wese..where..u..from?n..is..v­id..pe..kese?????

  • @OwaisSwati ur welcome, i am from karachi awaiz brother and i am nurse i work for hospital ALLAH give u health ameen

  • @gandabacha777 thanx..but..u..r..nurse???u,,r­..a..female???

  • This vid made cry. I have a wife who is suffering from CSA like Aya. Diagnosed with it in 2006 after we got married. She was strong then. She had to resign coz she didn't want to burden her colleagues & also for my sake. I remember how I used to complain to her about her clumsiness when that thing started to develop.Little did I know that it would get worse. Until i knew it has no cure yet. But I know she loves me so much. Still crying when i write this. Now i juz want to go home & hug her.

  • Death is not fearful. What's fearful is giving up.

  • this story teach us how to appreciate live..

    i can found many quote in jmovie / jdrama

    some (many) of the story really teach me about life

    "I really don’t want to say things such as “I want to go back as how things were before” . I recognize how I am right now, and I will continue to live on."

    "humans aren't to live in the past, it will be fine if we do what we can now"

    i don't know if i can be as strong as her.

  • Plants are great, aren’t they?

    Even when it rains, and they get soaked,

    They still stay put there, growing fresh flowers.

    I want to become that strong too. [Ikeuchi Aya ; One Litre of Tears - Episode 10]

    “As I think about the past,

    the tears will come out.

    Reality is too cruel, too brutal.

    I don’t even have the right to dream.

    As I think about the future,

    the tears will come out again.”

  • "Being Alive is such a Lovely and Wonderful Thing - Aya"

    "What’s wrong with falling down?

    You can always stand up again.

    If you look up at the sky after falling down,

    the blue sky is stretching limitlessly and smiles at you. [ Ikeuchi Aya ; One Litre of Tears - Episode 8 ]"

    "People shouldn’t dwell on the past.

    It’s enough to try your best in all that you’re doing now. [Ikeuchi Aya ; One Litre of Tears - Episode 9]"

  • 1 liter of made me cry and made me strong

  • This is the only drama that made me cry throughout the whole series.

  • my father suffer's from type 7, this illness is so tricky and so hard to understand and so heart wrenching to watch, :( I wish there was more that could be done for SCA, s

  • Omg that was so sad 2 wach I never knew about this condition till I watched this video it allmost made me cry. If I had a family memeber or friend who had that condition it will be so difficult to watch them suffer and get weaker like that and not saying this in a nasty way but hope it ends quickly 4 them as the symptons get worse so they do not suffer

    Was this a true story? it must be difficult for any family member or friend to watch that happen 2 someone close

  • Its hard on everyone with it because it hurts those of us with the disease to see that our friends and family are hurting to see us this way and its something we cant control.

  • @JustPlainInsanity yea, its a true story. Aya wrote in journals up until she couldnt use her arms properly anymore. I bought a published version of her journal. Her story, like many others, is an incredibly sad one.

  • 1 litre of tears is a really good japanese drama and i would reccoment it to anyone!

  • this movie is call 1 litre of tears. it'll make u cry. search it up its on youtube

  • I have SCA 14. Unfortunately mine is very rare and theres no much info on it. As with every other type though theres no treatment and no cure. They predict a 10-20yr life span after onset and Im in yr 8 now. Im scared to death and feel completely alone. If anyone wants to be friends feel free to message me.

  • that is such a shame to hear feel free to message me about it if you like :) I never knew about this condition till I watched this vid it is so terrible that some people are unfortunate to have it

  • @angeljordan im so sorry...i hope you live as long as possible. it's going to be a long struggle but please remember your not alone. your well supported. i know you will, so i dont know why im saying this, but stay strong, dont give up on ANYTHING, and live your life to its fullest:)

  • @angeljordan Don't lose hope because everyone is there for you. You're not alone.

  • im doing research for my sci 200 course on sca and i just stumbled across this video and i cried like a baby.

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  • @CandyMusix that's saddd T^T

  • I have sca. The disease is progressive with doom and gloom awaiting me. I am struggling and guess what...there is no cure. I just hope and pray that I will die soon.

  • Same for me but have hope be strong like Aya.

  • please tell me how to be strong. I now hve a friend who is in the same boat as me!!!

  • Hope for a tomorrow! Don't give up and try your hardest :D Even if you get teased at or people look down on u remember than you r the strong one fighting against this disease! Be strong!

  • @eceuomo53 dont do that, please. people love you, and i know how hard it is for you and that there is no cure, but dont give up. though i dont know you, i know that there are people who are given joy because of you. live life to the fullest for them, and for you

  • im doing same thing for ap bio project, i have to find the incidence of SCA, can't find any real answer at all

  • ,,,while we can do so we have to do what we have to, we don't have to wait for the time that we're in Aya's place,right?

    :->

  • ,,,without hoping,,, every0ne can really do that,,

    _...the problem is that they just don't want to try, they are afraid to do what they want. 0ur problem is that we don't trust ourselves and don't believe in what we can do for the others..

  • 1 litre of tears was such an amazing drama T__T made my cry more than once

  • thnk uuuuuuuuuuuuuuuuuuuuuuuuuuuuuu­uuuuuuuuuuuuuuuuuuuuuu

    i really loved it n am ganna use it on ma presentation ...

    thnx million brooo

  • best tv show ever...Aya kito is a great inspiration,arigato gozai masu aya san

  • Got this when I was 17... It really sucks. :(

  • Comment removed

  • Haha the lady who died isn't this lady, this one is beautiful as she's an actress ._.

  • Wow! God Less you Aya!

  • that is so sad, it brings me to tears to see a young beautiful lady lose everything to such a crippling disease like that. i hope a cure or remedy is found soon.

  • this vid brought me to tears. my boyfriend was recently diagnosed with SCA. it's tough knowing the worst has yet to come and there is currently no cure. i urge anyone watching who knows if there are possible remedies to get in touch with me. i hear that stem cell research, now pursued in China, can only "correct" the problem one year at a time, but proves expensive. we're now trying ayurvedic medication. hopefully, over time, it'll work since it's a 'slow' remedy. God bless all dealing with SCA.

  • ,,thAnks f0r mAking me cry again,,I am reAlly a cry baby, but ever since that I have watch One Liter of Tears, I'm doing my best not to cry anymore with little things,,

    ,,truly, we don't know what life is up to us, we just have to be brave enough to handle this situations that we don't expect to happen, and inspire others to keep living as long as we can and as long as we have the ability to do so,,

  • I am fascinated with Aya-chan's life, she is an inspiration. I just heard of her last week while studying Japanese, and I've already watched the whole series, the movie (movie is more true to her real life), and I've read her diary online.

    My heart goes out to anyone suffering with spinocerabellar ataxia, but I hope you can achieve everything you ever wanted before you become unable.

    Dan

  • i understand how she feels.i have it myself.

  • I know very difficult.

    Because my mother,sister and brother died last 25 year. This is heredite so I did not want to have child.Now I am afraid, I don't have any child.I like Them.

    I Know English a little. So I'm sorry for grammer.

  • OMG! That's sad! as in the real disease? the doctor prescript? or u think...?

  • mi madre tiene eso... :(

  • SCA is a genetically inherited disorder characterized by abnormal brain function.

    Individuals affected with SCA develop a degenerative condition that affects a region in the base of the brain called the cerebellum located behind the brainstem.

    The primary function of the cerebellum is to coordinate the body's ability to move. Loss of this quintessential function leads to a progressive atrophy.

    There is no cure for (SCA) and also no treatment to slow the progression of the disease.

  • Comment removed

  • im feel sad...and i miss u aya and this video is so very grateful...love it

    nakakatouch....

  • My baby cousin has this disease can anyone offer help or advice?

  • Tell her to live her life to the fullest.

  • nice video...its sad, we have to think about it and to give thanks to god no more...

  • What movie is this!?!?... that is so sad!

  • oh..men is this for real?or based on a true story? (sigh)... at least..she really got the support she needed.. and the love..

  • Mhm. Her diary was published shortly before she died at the age of 25, I have hunted down the book in English and waiting for the order now.

    She was such a positive girl..no..woman. She lived her life to the fullest and even though her future got dimmer every day, her smile and self-motivation always shone through.

  • wow, you found it in english!?, nearly 3 years ago i had looked for but couldn't find it, can you please tell me where you found the english version.

  • really? hmm interesting! umm what was the book called? i am doing a research on the disease and her life =D

  • could you PLEASE tell me where i can order that book!!!

    PLEASE!!!!!!!!!!!!!!

    Thank You

  • i feel sorry for her..

  • i really cried hard...aya kito, is really amazing

  • I cried for practically 3 days straight while watching this drama. My eyes started hurting. Just FYI

  • i have watched this movie yesterday, and it was really great. however, it made me cried a lot!!!! it really touches my heart!

    worth to watch it!

  • I have just found out i have this, and i had no idea...........

  • OMO i remember watching this a while ago and i cried so much;

    Then watching this and reminding me of the drama;

    hahah i must have cried about 7 litres of tears.

    Its so sad. I feel for Miss Aya Kito. She lived about 35yrs ago and this drama was based on her suffering.

    Whats the name of this song btw?? i really like it (:

  • The song at the beginning is K - Only Human and the second one is Remioromen - Konayuki

  • why ... why..... why.......

  • thanks for the video.. i cried a bit.. T_T

  • Thanks for viewing this... even till now that i have not yet watched this video (only in commecial).. i have cried a lot not only because this video is really great but also we have a family friend who is also suffering in this kind of disease... .hope the doctors can find a solution to treat this.... Help us to pray for the sake of them... thank you....

  • name of drama is one liter of tears

  • There is no known cure for spinocerebellar ataxia

  • Spinocerebellar ataxia (SCA) is a genetic disease

  • it is based on the true story of a 15-year-old girl named aya..it is a story of courage and hope..she has an incurable disease and day by day it get worse.cannot move ur legs even if u want,can't speak out even if u want,cannot eat properly and choked a bit,.i read about this disease but i cant find the treatment,,

  • by now,do everything u want because we dont know the future,there are symptoms that are slow..maybe tomorrow we have this disease..so live ur life to the fullest..and no regrets..we cannot go back to the past..

  • i have child having this disease i hope from gad to cure from it it very difficult things

  • it is realy hard to have this disease

    i saw the drama

    it is make me sad and feeling depressed

    i thank god to be healthy

  • wow, nice job making this video~!

    it helped me a lot to understand about spinocerebellar ataxia :)

  • My grandad was diagnosed with cerebellar ataxia (the genetic form), and now my mum has recently been diagnosed with it too. I have a 50 percent chance of having it. I have a dilemma as to whether or not I should get tested this early in my life, because seeing as there is no cure for it, it would only haunt me until I'm older. (this form of it doesn't affect until 30s-40s) Im currently 19 years old and it does worry me, but if I do have it, I just have to live life to the fullest whilst I can.

  • uhmm..can i ask u a question?..have u already experienced some of its symptoms?..like when ur still at the age of 12?14?..if u have ..what are those symptoms?..tnx in advance..ill pray for ur grandad and ur mom..as well as u too..GODBLESS!

  • Well, there are many different types of cerebellar ataxia, and each one can affect you in different ways. The form that my family has seems to affect the person earlier in their life with each generation that passes. For example, my great grandma started noticing symptoms in her 50s, my grandad in his late 40s, and my mum has started to develop symptoms in her late 30s. But, usually it only shows symptoms in the person when they're an adult, the genetic form that my family has, that is.

  • Actually ur rong. LOL sorrie.

    She got it at 14. ive read the book i dunno why it says she's 15 in the drama. but its actualy 14

  • omg the drama was soooo sad.

  • i watch this like last year i cried its sooo sad i wish there was a cure i feel soo sorry for her she was a brave girl every time i hear that disease i think of her may her soul rest in peace

  • Dear God bless this young lady, and all that are living with this illness that many know nothing about.

  • she looks a little bit like jessica alba

  • IT WAS SO SAD... I've seen the series, and it made me cry... People like this make you think how precious is this life....

  • is there other dramas like 1 litre of tears

    it is the greatest movie i seen

  • there is only a movie and a drama serie, what I know..

  • itz based on a real thing. u can check it online. she initially wrote the diary which turned into a book. and ppl interpreted the book as movie and TV series

  • yes her name is aya kitade

    i watched the drama about her and i can't stop crying

    you all have to watch it

    the drama is called "one litre of tears" and based on a diary of an 15 aged girl from japan

  • aya ikeuchi is the name in the drama.. the real person's name is aya kito

  • this is from the 12 episode series the movie was shorter o-e

  • Involvement of the cerebellum affects our movement coordination, thats why she has difficulty in writing, walking with a wide based support, difficulty in talking due to uncoordinated jaw muscles. Huhu poor Aya such a beautiful girl T_T

  • Like, this video is hosed because it's a 16:9 widescreen image squeezed into a 4:3 frame, with resulting horizontal distortion. Way to go, babe!

  • awwz 1 litre of tears is my favorite drama!!! the story is soooo touching!!!

  • the story is great

  • My father suffered from Spinocerebellar Ataxia

    When i watched this movie...it bring tears to my eyes

    I rarely cry but i know how how real it is

  • what causes this disease??????????????????

  • unknown cause

  • that drama was very touching and sad but it was good, i liked it alot.

  • its been SOO long and this incurable desease is still not curable...

  • Not to mention, the drama was based on the life of a real person.

  • Regardless, the disease is real.

  • its based on a real story.

  • the story is based on aya kitou's diary(4 the real)

  • It is!!!!!

    like tat oso dunno

    go to hell lah

    it is a real thing that ever happen in JAPAN

  • No. This was based on Real Life. It's re acted. There was a girl who suffered from this & this is her Life Story. * 1 Litre Of Tears * It was a true story.

  • I can't hold back my tears when I watch this film and know this disease. Hope some day, it can be cure.

    No more tear..

  • Let's find a cure for Ataxia and Multiple System Atrophy! My mom has MSA and she too used to have excellent aim and especially talented coordination. She was an incredible pianist....now we are left with one recording only. This is an excellent video.

  • it was brian MRI in the vedio

    NOt X-RAY

    but it still awesome vedio

  • how much did u get?fr the project i mean!U deserve an A+ i actually jst finished watching 1 litre of tears today and i found myself crying!When i grow up i wanna be a doctor so i can help ppl like aya and hopefullyy cure them!

  • I CAN'T EVEN WATCH IT BECAUSE I KNOW THE ENDING!

    I bought the film version the other day, sat down to watch it, put in the dvd, and as soon as the menu came up, I burst into anguished tears D:

  • great video...

  • 1litre of tears is so sad i cryied in the last episode soo much T.T

  • choruje na ataksje. To nie jest tak straszne jak pokazano w tym filmie

  • spinocerebellar ataxia is such a sad disease, the drama made me cried so much, even this short video!! :( thx for uploading!

  • como se llama la ultima cancion de este video? please

  • Konayuki ~ Remioromen