2 of 2 Marge Prietz Trigeminal Neuralgia Richmond VA No Pain

[cvatican]

Hi, I have a comment about trigeminal neuralgia. There is a simple solution that doctors do not tell patients. The reason for the pain is a blood vessel making pressure on the trigeminal nerv back in the neck. A surgical procedure will move the bloodvessel or nerve and the pain as been solved. It sound simple and it is. Some people has their teeth pulled and experience pain does not leave. Just ask a neurolgist about this and he/she would probably say yes its true

[flymasterA]

From a happy and cured TN sufferer for 3 years via MVD surgery.

PLEASE, if you suffer TN, get in touch with this surgeon:

Dr. Tom Kopitnik, Mountain View Hospital & Neurosurgery

Casper WY 307-266-4000 VERY reasonable with rates and payments.

[bacaba37]

thank you brian for your post.I went through the gamma knife . it felt alright except the drill holes, but the pain came back,since 2000 i had surgery of some type once or twice a year, I'm a disabled fire fighter bad knees plus a replacement. I'VE ASK MY DR. FOR THE DECOMPRESSION PRCEDURE , THATS NEXT. I'M POSTPONED ALL FOR NOW UNTIL THE NEW YEAR BY GODS GRACE THAT I MAKE IT . P.S ALTITUDE ALSO SEEM TO AGRIVATE IT TOO.

[BrianNelson123]

Bacaga37 I recall being in a plane with TN and it was excrutiating as the plane gained altitude. I will pray for you pain relief. ON my return trip I increased my medication dose the day before and day of and it helped. Brian Nelson 713-467-3025. Houston, TX

[orgbadbob]

I have been going thru this for about 4 years. I have had 3 teeth pulled and 4 root canals.

After being diagnosed with Atipical TN I have gone thru 3 different meds. I am on Triliptal today. It worked great for the last year, but the pain is coming back in spades even after an increase in dosage (the side effects are getting worse also). Now my doctor is talking about the Gamma Knife. I am leaning towards decompression.

What way do you folks think I should go.

[BrianNelson123]

Very sorry to hear about your pain. I have been there and it is no fun. People often become immune to drugs. I have heard about people who did not like the Gamma knife but it works for some. A MVD has been very successful for people like Marge in this vieo. AFter 10 years the nerve could grow around the MVD so you just don't know. Be sure to buy the book STRIKING BACK. SINCE HE WROTE THE BOOK TN CAME BACK AND AN MVD FAILED. NOT SURE WHERE HE IS NOW. BRIAN NELSON  713-467-3025

[dmplaura]

I have Multiple Sclerosis, but I have been diagnosed following an EMG with Trigeminal Neuralgia (by a dental specialist), however I feel mine is Atypical as well. Gone when I sleep, wake up, fine for the first few minutes, then the pain begins back again. Eventually it gets to a burning state. Currently I control with Clonazepam, bad side effects on 2 anticonvulsants and antidepressants so far.

[orgbadbob]

Trileptal has had the fewest side effects of all for me, but it still has side effects (Brain fog and memory loss).It is also in generic form (oxcarbazepine}.

After a long talk with my Neurologist I am going to have MVD in January.

I have high hopes that there is a good chance that this will help. Atypical apparently has lower odds of the surgery being successful. It's worth the risk for me.

Thanks for everyone's posts.

I appreciate it very much.

Bob

[dmplaura]

Bob, I just want to wish you the best of luck with this, and you will be in my prayers. I will ask about trileptal (I'll have to read about it, it may be under a different name in Canada). I'm thinking currently of trying Nortriptyline first however, since when I was on Amitriptyline, I wasn't having this pain, but Ami (Elavil) caused some wicked side effects.

[bacaba37]

I've had teeth pulled thinking it was a badd tooth ,but your right dentist need to be aware of this, I'd still have my smile if I would have known of T.N. MY PROBLEM IS SO FAR OKAY WITH MEDS

[BrianNelson123]

The probem with meds is that you can get immune to them and then they don't work like they used. Brian

[STARBARDD]

Thank you Marge, I will pass it on.

[sparklyskyangel]

Thank you so much for sharing your story with us all. I recently had an MVD op and am now pain free like you with the same twinges. I was so pleased when I heard this because I Know I am not alone. Thank you.

[wwhud]

What is an MVD?

[BrianNelson123]

An MVD is a Microvascular Decompression. It is done through a small insertion about the size of a quarter behind the ear. The surgeon then separates a blood vessel that has intertwined with the nerve in the brain causing significant pain. It is then separated from each other using a teflon piece. Sometimes this separation can grow back as the nerves can just grow where they want to. Dr. Peter Janetta invented the process about 30 years ago. Brian Nelson IamFightingCancer dot c.

[000dgtlkttn000]

Tegretol worked for me too! But like you, my liver was suffering and my sodium levels dropped suddenly. I'm now on Gabapentin which worked, until I tried to lower my dosage, I'm back to square 1 and now back to my full dose plus morphine until the Gabapentin hopefully begins to work again. Thank you for posting. This is a horrible illness, and I'm so glad for your recovery :0) N xx

[worldhealth]

I suffered from TN for 23 years. I took herbs, tegretol, dilantin, gabapentin, even morfin, for years. I had my 4 teeth removed and had an alcohol injection done into my jaw. After 23 years of suffering my pain got worse, my family doctor made 3 MRI + 2 CT scans of my head, no findings. I went to see a chiropractor, specialized for postural correction, after 6 months of regural visits, I was free of morfin and it took onother year to be fully free of pain. My neck was in a very bad shape.

[BrianNelson123]

Dear KWright, Thanks for your comments Sad your husband had an abscessed tooth.. Knowing how painful Trigeminal Neuralgia could be you would more appreciative of the lesser pain of a bad tooth. Thousands of TN people initially thought it was a bad tooth. They had root canals & teeth removed. The pain remained. TN is caused by something.. My TN was a cancerous jaw tumor. Took a year to find it was cancer. See my webs NelsonIdeasdot for Cancer and Trigeminal Neuralgia. Brian 713-467-3025

[BrianNelson123]

Anyone needing to talk with Marge Prietz can call her at 804-379-2882. Unable to put this in the YOutube description at all. NOt sure why. Brian Nelson 713-467-3025.

[loveyk]

The old "Brain Freeze". Brave woman.

[BrianNelson123]

The INjection is Glycerol to kill the pain. MVD is a Microvascular Decompression See my 6 videos on MVD's . Search for the Words "Dr. Parrish MVD" Also see my web MyTrigeminalNeuralgiaStorydot Brian

[BrianNelson123]

A Percutaneous Glycerol Rhizotomy is performed under local anesthetic. A needle is inserted in the skin beside the mouth, and directed through an opening at the base of the skull The chemical glycerol is injected into the space surrounding the Gasserion ganglion. This glycerol produces a relatively mild injury to the nerve with minimal risk of permanent facial numbness. See an MVD brain operation video at MyTrigeminalNeuralgiaStory /dot/ com