Fibromyalgia Awareness

[Phoenix143EA]

I so want to find a cure for this. I do not suffer it but friends and family do and it is an insidious sucky disease.

[Bouncybenji]

just been diagnosed after 10 years of doctors not listening to me, seen a private specialist and I now have severe Fibromyalgia, nightmare of an illness :(

[wvgirl1967]

@haczu86  I know the pain you have, I too have it and have had it for a long time but killing yourself is not the answer. there is help, you just have to keep looking until you find the right doctor, and make them listen to you. praying you feel better. Terri

[ShellyWayne100]

What an amazing powerful & true video that we all need to forward onto as many family, friends, doctors, specialists, etc. as we can to continue FM Awareness.

[bubble5648]

@haczu86 I've been there too. Think of what your suicide would do to the people who love you. It is a very selfish end. I know the pain gets unbearable at times. Try to find things in your life that you can find some joy in even if it is a child's smile or the smell of your coffee or tea. If you are a faith based person, lean on the Lord. There is a good support page on facebook. Suicide is permanent, you can't take it back.

[americanautomaton]

I was recently diagnosed with FMS, though I've dealt with the symptoms since I was in my late teens. It's not an easy thing to live with, especially in terms of finding medical care and doctors who will actually listen to you instead of passing you off as a malingerer. Find a trustworthy friend who will advocate for you. It's your best bet. If you're so overwhelmed that you're suicidal, get help. Feel your own pain and imagine the pain your loss will cause to those around you. It's not worth it.

[tracylou1000]

What a powerful video! Brought tears to my eyes. A friend of mine has suffered from this for 11+ years. She is now pain free after starting on a natural product and is so grateful to be getting her life back on track. Unbelievable but true

@haczu86...pls talk to someone if you are feeling so low. I know my friend will be happy to listen.

[cecily745]

I was diagnosed with this last year and have almost 95% of the symptoms and I feel so much for other suffers .I do however feel more awarness needs to be made as to how much this can change the life of the one who suffers and those who care daily for them .

[mzkward1027]

@haczu86 dont think you shoud kill yourself thougb... im only 21... if you need someone to talk to or to understand im here... seriously

[00Nasia00]

Wonderful video.I have fibromyalgia too and I also have an autistic child.Have courage and be strong.Good luck everyone!

[natureasintended]

@haczu86 Sending lots and lots of love to you <3

[natureasintended]

Check out BoutenkoFilms on youtube. There is a video there called Green Smoothies Reverse Fibromyalgia Symptoms In 4 Days, and another video called Green Smoothies Reverse Lupus Symptoms. Sending lots of love and best wishes and hope this helps! <3

[angelmtza]

Dear ladies, I'm not a woman, I am a man who doesn't have fribromyalgia but someone whom I love very much has it, I know her pain and understand yours. I sincerely wish I could relief some of her and your pain, I can't but I wish you all the blessings and compassionate love of the Buddah! Despite everything, everyday is a good day. A big hug to you all!!!

[nordman6000]

thak you to doing this video and let other see how disabling and debitating this illness is and how it chang oue life

[karinnica]

@haczu86 ah don,t give up!!!!!!i know how terrible fm is!!!i have it since i was 21 or 22 and i,m 32 now.i have all the symptons and every so much pain everywhere in my body etc etc.but you never know maybe they find something in the future so that we don,t have to suffer so much every day!i hope your pain is less now their are months passed since you wrote this.if you want to talk let me know

[Des2neeismine]

Invisible Illness Week, Sept 13-19, 2010 is a time to increase awareness that about 1 in 2 people have a chronic illness, most of the illnesses invisible.

[moonwitch1981]

fibromyalgia can be very lonley and some times very scary, lucky in some ways there are also three other sufferes of this illnes in my family so we all understand, but sometimes it is easier to go through it myself then to see my mother or brother suffer. I'm 29 and thought i would be marride with kids, the kids part is not possible because of another illness pcos that i have seen alot of fibro women also have. The umberella illness with so many under, Keep going everyone, the sun always rise :)

[ValerieLumley]

Wonderful video. I am a recovered fibromyalgic and I know this disease completely from the inside and out again. What I know most of all is never give up!!!

Valerie Lumley, Recovered Fibromyalgic and author of

"Curing Chronic Fibromyalgia - Choosing What Works"

[jadeck58]

@ValerieLumley

Guess I've never heard of someone recovered from this.

Good for you!!!!

[redthor60]

I believe that fuits and vegetables can reduce inflammation in joints!

I started taking Mona Vie Active for my shoulder pain and now I don't have to take Vicodin before I go to bed!

My wife has fibromyalgia, she feels a lot better when she drinks it as well!

If you seriously want the Monavie Active, go to juiceberg's channel! They will hook you up!

[LSecret]

@haczu86

You've just expressed what I'm going thru.

I can't take it anymore

[RevMichelle]

Please remember to lift those up in prayer who suffer from this disease. I am a sufferer of it also my sister has it. If you know someone who has this please understand their pain is very real!

[PeaceAngelGermany]

here is a gr8 network where u can join for free and talk to people who understand u with ur invisible disabilities.

invisibledisabilitiescommunity

love + hugs

[PeaceAngelGermany]

@PeaceAngelGermany

there are over 2.700 members so far, just add .org at the end, did not let me post the complete link

[casperblackcat1975]

@Jesuistouche Do your research before you start writing stupid comments like that I wouldn't wish this condition on anyone not even you, I had a life plan full of ambitions all taken away from me because of Fibro & I'm only existing instead of living.

[miyazoepsd]

after watching this I am scared that I have Fibro, i have sooo many of the symptoms

[scotcandy2001]

I'm tired of the arthritis doctors acting like you just want pain meds. One doctor I went to said I was a drug addict and the pain was all in my head. Its hard to find a good doctore who will believe you because the test always come back negative.

[cjbrittain]

hi i have set a facebook group called FIBROMYALGIA: SOMEONE I LOVE NEEDS A CURE. please check it out and feel free to join. gentle hugs. xxx chris

[GIASROSE]

ty ty ty well done

[lisahippie1]

@Jesuistouche I have never in all my years wished fibro upon anyone not even my worst enemies, until I have seen your posts on various fibro videos. You are a very sad individual. I imagine you are "touched" in the head and feel that you are are unbalanced and unstable. Perhaps you were the one not loved as a child so feel the need to abuse people who truly need help and support and some medical breakthroughs ... get some councelling!

[jessiebaird85]

@Jesuistouche the pain is real I want you to know and that if you have no clue what the subject is maybe stay out of it please

[jessiebaird85]

I have had Fibromyalgia for who knows how long. My insurance is so hard to convince about the medication that helps but there are days where I still cannot move or walk. I am 24 and My life hurts. I cannot take antidepressants they make me want to kill myself and others. the doctors do not beleive me..why do I hurt so bad even on Lyrica? What if I have children and they end up with it? I am married and I cannot even stand up long enough to dishes. I hate my life and my body :(

[casperblackcat1975]

@jessiebaird85 I totally agree sometimes I think what did I do wrong in life to deserve this condition I had a life plan of a good job in a industry which I love & the chance to travel the world, However all this has been taken away from me because of Fibromyalgia soft hugs to all FMS sufferers across the world XXOO.

[jimdigriztn]

@Jesuistouche You are the one who is sick - of the head and heart. If you don't believe it, the best thing you can do is keep your mouth shut and go on about your business, not our's.

[empressoffrance]

@eaglescheerleader02 Has anyone in here tried, oh it is a new antidepressant, used in England, France and China and it works. In England it is called Milnapricin, it is in the US now and I am praying to god that Canada gets it soon. It worked miracles for me. After only 1 day I was out of my wheelchair, it was like a miracle. My son researched it, spoke to my dr, she okayed it and I ordered it from England, very expensive though but it works honestly. The sad part is my son forgot to re-order

[eaglescheerleader02]

@haczu86 I feel the EXACT same way! I'm 18 and you think I would be full of energy as well....nope.

[danii3927]

i was diagnosed with fibromyalgia about 6 months ago...this is my last year at school, the one that counts the most and i'm hardly at school 'cause i'm always in so much pain. while it is a horrible condition, it's nice to know i'm not alone

[kimber7208]

I have been working on a page for fellow fibro sufferers just to have a place to discuss their daily lives because I am learning how little everyone in our lives really understands what we are talking about. They will usually say oh well I am stiff everyday it is just part of getting older.  My fibro fog is driving me nuts lately that is the hardest to explain especially to my husband.

[lemongirlohyeah]

Had it as far back as I can remember... I have ALL OVER my body, unlike the stick thin athletes who only have it in one small part :(

I hate not being able to walk fast like my friends, lack of concentrate in lesson, sleepless nights... I AM NOT LAZY !!! I. AM. IN. PAIN EVERY DAY !!!! And pain killers don't even touch it :'(

So please understand if somebody you know has it !!! Help them carry thier bags, slow down a bit, give up your chair occasionally !!!

Love and support to you all xxxxxxxx

[empressoffrance]

@lemongirlohyeah Do you know if Savella is in the US yet? It is used for fibro, great success in England, France and China.  I was getting it from an overseas pharmacy, but my son forgot to reorder and I had to wait 6-7 wks and when I took it again it did not work. I could have killed him. I had to use a scooter to get around. I could walk but very slowly and painfully. Oh God this disease is horrible. Everyone I know who has it looks so healthy.

[lemongirlohyeah]

@empressoffrance i am in england XD and ive not heard of it !!!

the really annoying part is some hospitals wont accpet me at 16 (my age) because im a child... but other wont accept me because im not an adult !!! :S

hmm... at my school, a scooter wouldnt work... and kids can be cruel :'( its happened to me before xx

[fibrotree]

I've had it for 11 years. My support. Hugs everyone

[thecherylmay]

ive just found out today that i have fibromyalgia.i feel uesless,tired ect all the time.even wrighting this comment hurts the my fingers and hands.

[JAPANIC20]

I had it since I was 5 yrs old. I've been to tons of Drs and after 20 yrs I finally found out about my sickness. Here in the Phil, meds are very expensive. Imagine the life without medication and just bare the pain. Let's join hand in hand and help one another! God bless us all!

[valmikecal1]

Please know that all of this suffering not permanant. Thats what helps me, leaning on our God Jehovah.

[Duppertwins]

ive had fibro for years too and im 18 next month, no one understands the pain and exhaunstion.. they just think we are lazy and faking right? stay strong xxx

[kjnangel2001]

This is an OMG comment. This song it me like a ton of bricks describing exactly what I feel during my flare-up days. I cried and cried. Great job. Gentle hugs to fellow sufferers out there!!!

[MsArkansasgirl]

Thank you for this video. Wish my spouse would try to understand my pain and FIBRO FOG, which lately is a constant. 8,{

[fibrosucks]

Hi,

I have fibro, also. I was trying to start a fibro group on facebook, called "the Faces of Fibromyalia" It would really mean a lot if you could stop by,

Thinks,

fibrosucks

[luvinmarywana]

it seemed like I was watching a video about me.....Its nice to know you arent alone with this

[LUCAX651]

I have fibro and m.e, i really need some friends who understand, so if you want to be my friend get in touch via yt mail , thanks and gentle hugs luca x

[kingbabolos]

i wear purple for my sister :)

[jhem50]

There are just too many of us that are suffering with this for them to at least find out WHY! So many people suffering...so many years it has been going on. And still no difinitive answer as to what is causing it? Does anyone know where the research for this disease is being done?

[asherah2]

what is disequalibrium ? Is that when it feels the ground or the couch or something moves.. i hate it when i feel like i'm giong to fall.

[fireflyxxxtmd3]

hi eveyone, feeling v v low at the min , cant sleep , ache, hurt, cant take much more.

[redwhitenblonde]

It's kind of strange. Many of you, myself included seem to have had this for 10 years. Anyone notice symptoms after a tetanus shot?

[lorilee74]

This brought tears to my eyes, I have had FM for just over 10 yrs, sometimes we feel we are all alone in this suffering..til u read other replies. It saddens me to know SO many others go thru the same pain as I do, everyday. Thank you for this video. Bless all of you. {hugs}

[BarrysDaughter]

No one understands like another fibromite thanks for posting :0)

xxxJoolsxxx

[mjw0047]

Great video and very informative. I've been dealing with Fibroymalgia for nine yrs. I agree with andreanixon1 with It's sad when people don't understand the misery that we live with on a daily basis. 5*

~Melissa~

[andreanixon1]

Very touching, I've been dealing with FMS/CFS for at least 4 years..........It's sad when people don't understand the misery that we live with on a daily basis

[NAKEDPISTOL1994]

Im 14 years old, my mom has Fibro, shes been acompletely different person since she has got this. She used to be energitc, take me out with my brother, and all the things you can think of, now she barley does any of that, shes depresses, and is taking medicine that is not helping, if ANYONE knows somthing that will help it, or make it GO AWA Y, PLEASE, please, tell me. Thank you very much nice video. :(

[meow1964]

Sorry NAKEDPISTOL1994 - that's a lot to take at your age, there is NO CURE but there is help

Fibromyalgia and Chronic Myofascial Pain: A Survival Manual 2nd Edition

by Devin Starlanyl MD is the BEST fibro book ever & check out her web site & About . com look up fibromyalgia is excellent go to google for support groups close to you

PS dont let anyone SELL you a CURE

help=yes support=yes cure=NO

[HorseLadyJane]

I'm with you meow1964. The book is invaluable and she has a book on FMS and advocacy. Don't we just wish it could be cured, along with the double whammy of Chronic Myofascial Pain Syndrome? Pistol, you just being there for your Mom and trying to understand is a blessing.

[meow1964]

HorseLadyJane - I agree they're both EXCELLELNT BOOKS

[sarajka43]

Thank you from me who has had it in abou 10 years:/

[m4dun5]

Certainly gets the message across:) Well Done xx

[DrFrankyDolan]

I am working so hard to bring help to all of us with 'invisible' diseases. It is great to see that there are more videos like these in the world. Thank you for sharing!

Sending love...

[chermann57]

great

[natandella]

Thanks for this video, I think this is a good way of explaining to other people without sounding like a whingebag. I'm sending it to my friends and family and putting it on my facebook. You know what really hurts is the lack of understanding, but people can only identify with things they have felt. I get loads of sympathy when I have a cold! Make your home a sanctuary, apply heat, gaze out of the window & be as comfy as you can. All the poeple reading this understand. Keep on keeping on.

[tattoomama9]

I was diagnosed with Fibro 3 years ago, but have had symptoms of it since I was 17 (I'm now 36). This past year is when my fibro has been really flared. But it's great to see more and more awareness for those of us who suffer through this!

[69partyboy25]

I was diagnosed with fibromyalgia a year ago.

I have many pressure points around arms shoulders and neck, im stiff in the morning, it takes hours to fall asleep sometimes i lay in mi bed the whole night not bein able to sleep, even when i do get a good sleep i feel like i havent slept in ages, i also get bad IBS and ive noticied and mi friends tell me that i have bad short term memory problems...

in grade 9 i missed over 70 days of school.

but there is a cure... marijuana, look it up.

[meow1964]

Sorry 69partyboy25

There is no cure: I'v had fibro for about 20 yrs. (I've tried EVERYTHING) The weed may relax you & make you feel better- which is good, but it's NOT a CURE.

[69partyboy25]

meow1964 ur right if anything it has been making me worse because then i just lay around and get worse it might take the pain away for that time but in the long run its better to try to stay as active as possible.. my doctor told me i either spiral up or down and keeping active has made me much better its hard at first but i just stuck with it and all the symptoms slowly get less worse

[dragonflylady44]

Absoluely , Positively LOVED this video. I have suffered with Fibromyalgia for 7 years since diagnosis. Ive had it for several years before that, probably around 5 years. Ive had a DR tell me to my face that it was a wastebasket disease. Thanks for making this video. It is nice to know that there is an awareness day now. Keep your spirits up and God bless. Thanks for getting the message out. Many blessings...Elizabeth

[ambervisions]

THank you for this! I'm trying to do some self diagnosis prior to the doctor...they are so quick to give pain meds and I wont take em!

[MaestroBABrimer]

treatment that suits the individual. exactly. Why must everyone just give up so much? It's not good to give up!

[korkyackland1969]

Fibromyalgia in its very essence 'waxes and wanes over time', I too have had 'remissions' in the past to a point where I sold my wheelchair and bought a surfboard and went shouting from the rooftops that I was 'cured', the truth is sadly that there is no cure, and chances are that no matter what miracle cure people think they have found once you have this syndrome it will rear its ugly head again. I saw a chiropractor at the beginning and had xrays etc, bottom line is (continued

[korkyackland1969]

)... my personal experience of fibro has been caused by biomechanical problems as a result of a genetic condition called Ehlers Danlos Syndrome,therefore my fibromyalgia is classed as 'secondary' and no chiropractor can fix a gene defect.

[zhaoyanyan2009]

@korkyackland1969 Thanks for the video, I have been suffering from unexplained pain for about 4 years after a very dysfunctional marriage in which I felt isolated, worried and scared all the time. I develped depression and anxiety over time. Been to the docs' numerous times, all tests positive, no one seem to believe or understand how much pain I am in. Now I don't feel alone any more, there is hope and that lies in our willpower to build a positive approach to life!

[MaestroBABrimer]

I had to go thru rehab too with excercises and stretching. In my case the pinched nerves weakened me and caused my FM. I had every blood test and scan and everything, believe me, it was FM. I could barely even hold my violin up or walk or think!!!!!! Now it's almost all better. So don't give up! I'm trying to help, what's the big stink about "false hope"?

[zebbie27]

false hope means that although fibro does wax and wane as suggested you usually have it for life..also that there are that many supposed cure claims out there it is easy to spend alot of money on 'cures' as a sufferer..false hope. yes try to stay positive but dont hold out for the miracle cure its about coping and treatment that suits the individual.ive had fibro for 9 years with being able to go out twice a week to being completely bed and housebound

[Subfightr]

well said!

[MaestroBABrimer]

No i did have FM with tender points and everything! I'm not giving anyone false hope, and anyway what's wrong with hope, it's better than accepting being disabled and crying in bed for life. I had more than one pinched nerve. They used the Proadjuster on me, so it directly adjusts the vertebrae. I tell u it's not coincidence! It's science and technology. It's not false hope, the other doctors usually want u to be like that so they can make more money and think there r no other options.

[DDHenderson]

Secondly, if you had FM as bad as I do, your chiropractor wouldn't be your chiropractor!

You wouldn't be able to be touched by anyone, anywhere!

So big difference between a pinched nerve and FM.

Pls don't get ppl's hopes up with false hope

[MaestroBABrimer]

My chiropractor has almost cured me of fibro. It was due to pinched nerves in my spine that showed on x-rays, you just have to go to someone who has experience with actually reading them! Hope this advice helps! Oh yeah and don't say u have already had x- rays and the doctor did not find anything because you need to keep trying and pushing past the obstacles like I did. I could barely walk then, now I can run full speed!

[DDHenderson]

I'm confused, it sounds to me like you never had FM to begin with or got a false diagnosis because fail to see how a correction, even in your spine, is somehow going to reverse your tender points, on that ...How many do you have?

Sounds to me like you never had FM to begin with but did in fact have a disability caused by a pinched nerve.

[DDHenderson]

My life in a nutshell; cut short at 27 years of age with the worst form of Fibro...The majority of my year is spent in bed in agonizing pain. My life has been utterly turned upseide down and it was all started by the intolerance and actions of an Insurance company that didn't care about human life.

Just wrecking a life...They succeeded

[ChimyChangsta]

There's hope...I know it's hard but try to stay positive...I heard it's good to name your fibro, then curse that son of a bitch everytime it shows it's ugly face

[OzzyPlayaGirl]

Thank you. I would like a copy for my personal viewing if that is OK.

[m00nang3l]

Thank you for posting this viedo! Kudos to you! And may love and light ease your pain. I was working full time for 18 months after being on disability for 5 years. My doc just put me out for several months due to everything being out of control again. Was off all my meds and now im back on 2. At least that is all it is right now and I will not allow it to be anymore!

I hope people can understand someday, but they truely never will unless they, themselves, experience it.

[natandella]

Exactly my point. I heard everyone this year complaining about flu & I kept thinking you thought that was SO terrible but you got better after a couple of weeks, I have that feeling and more for ever!

[daculadawg1]

That was great! Thank u for posting it.

[AmyDale71]

Thank you for making this video!

[Elfins]

I know those sleepless nights well Rachael as thats when I do most of my videos too :( My daughter is not so good at the moment but we have only just got over the flu so will probably vlog about it soon.

Blessings

Linda

[Elfins]

Absolutley loved this. I had been planning to do one about FMS but never got round to it with everything thats going on with my daughter.

Blessings

Linda

[korkyackland1969]

Thanks Linda, it didn't turn out as well as I had hoped, but I have been struggling with the fibro and EDS and haven't slept in days, it occupied a sleepless night! I hope your daughter is ok (((hugs))) Rachael