Added: 3 years ago
From: Jodidelf
Views: 3,825
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  • thank you so much for showing your journy with BA. my son was diagnosted with it at 5 1/2 weeks old. he is 3 now and although didnt have to have the liver transplant (the DR. done the kasi procedure) i know at some point he will. thanks for the video. im sure it will help when when that day come. may God bless your son and family.

  • I'm not an organ donor

  • so pleased for you. he is beautiful, you have given us hope as my grandaughter summer is now waiting on the transplant list for a liver she has B.A.S.M and is two and a bit. if she comes throught like your little one it will be wonderful

    bless you and all of your family, if you like you can watch about summer its under biliary atresia summers story and biliary atresia summers story part two x

  • God bless you and your child, I pray he is still well.

    

  • Hi. Your family is lovely. Im so pleased your son is doing well. I'm 34 and had a liver transplant 7 months back and all is good. When I got my phone call I was only going on stand by. They were trying to split the liver for a baby. In the end it couldn't be split and it came to me. I cried because I was so sad that the little baby never got their chance and had to carry on waiting. X

  • Your child has the most amazing smile and a wonderful spirit shining through - i hope he continues to do well - there is something very special about him.

  • God bless you and your family. Chase has a wonderful father and mother. Thank you for posting this. Our daughter was diagnosed with biliary atresia and recently had the Kasai procedure done on 6/13/08 at Children's Hospital of Pittsburgh, PA. Seeing your video gives me hope. It speaks volumes to me. I have him in my prayers. He will grow up to make a video for his son and his son's son.

    Amy

  • WOW - what a beautiful moving story. I work for LifeBanc - the OPO in Northeast Ohio. We appreciate this beautiful testimony to what a power impact organ donation has on those family waiting for the life saving gift. Best wishes to Chase and your whole family.

  • -----many doctors said that he is a nice yet intelligent baby boy, they saw many potential in him...I hope you could help us raise a fund to save his life, 'coz we're running out of time, and you know why...here in the Philippines, he is a member of a foundation with same cases like his...LIFT B.A.B.I.E.S FOUNDATION...u can also visit their website...the picture of my son is posted there if you don't believe me enough...by the way thanks again! and congrats for a great video work!!!!

  • (hematemesis, hematochezia)..everytime it happens, I have to instill so much strength to face all of these and for my son to see that I'm not giving up, we both not giving up...I know prayers are powerful...We hope that we can surpass this...I just wish somebody will help us too...Thanks because watching this video made me better,and that there is still hope... I wish Chase and his family a good luck...God Bless!!!------if you guys want to see my son, he has a friendster account

  • burden from here...My son as of now is already 2 years and 7 mos...but God is so good, Lourd still stays with us..I know my son is fighting that hard for his life...You know guys, it is so hard for me to burst these things out...if you only knew I'm crying now while typing...It's really difficult being a single mom, I don't know where to seek help, I don't know where to start...He is always hospitalized monthly due to portal vein hypertension secondary to biliary atresia

  • Hi, I'm Susara May Mendoza, I'm a Filipino single mom, and I do have a son named Lourd Benedict Dio, as of now he is confined @ Dela Salle University Medical Center here in the Philippines for the nth time...He is also suffering from Biliary Atresia, and this video hit me a big impact, actually, as I watch the video, i breakdown to tears...I'm so touched and being true to myself I got envy, coz we don't have such huge mount for pediatric liver transplant...sorry, but I just want to ease the

  • I'm a mom from China and my son has biliary atresia as well. He did kasai operation to prolong his life. It's a great video. I wish Chase have a wonder life. I sent message to you, hopefully you can reply.

  • Thank you so much for your comments and the work YOU do!

  • My name is Melissa and I'm the Community Relations Coordinator for The Living Bank the national organ donor registry and I wanted to tell you that stories like Chases is why I do my job. That was a beautiful video and I wish Chase luck!!

  • Fantastic video Jodi! Out best to Chase!

    -Scott

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