but i use my phenyl-free powder.. ( if any of you others with pku no of it ) and i use it expecially before working out. who knew you can get insanly big, expecially in the arms, without b eing able to eat meat???? i lve my life like a normal person, idc that i have pku, bc im so used to it
i am 44 dont agree with you that the effects are not as severe in adult hood they could be for some like myself.. i also know this because i also have pku...
Thanks so much Dr Koch for everything that you do for adults and family who deals with PKU on a daily basic. Wish that there were more people like you in the world!
Thank you so much, to Dr. Koch and all others who have worked to help people with PKU. Your efforts touch the lives of more people than than the 1/15,000 incidence in the population.
RIP Dr Koch, you have done so much for us...thank you! Fly with the angels
Timfan4ever 4 months ago
damn. like the video. i have pku.
but i use my phenyl-free powder.. ( if any of you others with pku no of it ) and i use it expecially before working out. who knew you can get insanly big, expecially in the arms, without b eing able to eat meat???? i lve my life like a normal person, idc that i have pku, bc im so used to it
yllib25 3 years ago
HI MR DOCTOR KOCH
olerolerojiju 3 years ago 3
I've got PKU too! *sigh* It sucks like bloody hell.
IchigoDancerNyan 3 years ago
Good video! I've admired Dr Koch for many years but never was able heard him speak about PKU-I'm never able to go to the pku functions up north.
txwildcat60 3 years ago
where are you from italiandude I have classic which in my case is the most severe. And it's no fun but I live with it. later joshua
bluelights1233 3 years ago
I have P.K.U and this video is very informational especially for people who don't know about it. joshua miller adrian ,mi
bluelights1233 3 years ago
Comment removed
ItalianDude88Returns 4 years ago
i am 44 dont agree with you that the effects are not as severe in adult hood they could be for some like myself.. i also know this because i also have pku...
fctbria 2 years ago
Thanks so much Dr Koch for everything that you do for adults and family who deals with PKU on a daily basic. Wish that there were more people like you in the world!
Debbie303 4 years ago 2
It's interesting....anyone who ever had a serious impact on PKU research has met a mother with two kids. Coincidence? I think not ;)
Sgi dv(thanks so much) to Dr. Koch, and to the director from a non-PKU who's just curious and wants to learn.
courtneyrao 4 years ago
Thank you so much, to Dr. Koch and all others who have worked to help people with PKU. Your efforts touch the lives of more people than than the 1/15,000 incidence in the population.
conundrum324 4 years ago 2