Added: 4 years ago
From: salvaggiojohn
Views: 9,589
Sort by time | Sort by thread (beta)

Link to this comment:

Share to:
see all

All Comments (12)

Sign In or Sign Up now to post a comment!
  • RIP Dr Koch, you have done so much for us...thank you! Fly with the angels

  • damn. like the video. i have pku.

    but i use my phenyl-free powder.. ( if any of you others with pku no of it ) and i use it expecially before working out. who knew you can get insanly big, expecially in the arms, without b eing able to eat meat???? i lve my life like a normal person, idc that i have pku, bc im so used to it

  • HI MR DOCTOR KOCH

  • I've got PKU too! *sigh* It sucks like bloody hell.

  • Good video! I've admired Dr Koch for many years but never was able heard him speak about PKU-I'm never able to go to the pku functions up north.

  • where are you from italiandude I have classic which in my case is the most severe. And it's no fun but I live with it. later joshua

  • I have P.K.U and this video is very informational especially for people who don't know about it. joshua miller adrian ,mi

  • Comment removed

  • i am 44 dont agree with you that the effects are not as severe in adult hood they could be for some like myself.. i also know this because i also have pku...

  • Thanks so much Dr Koch for everything that you do for adults and family who deals with PKU on a daily basic. Wish that there were more people like you in the world!

  • It's interesting....anyone who ever had a serious impact on PKU research has met a mother with two kids. Coincidence? I think not ;)

    Sgi dv(thanks so much) to Dr. Koch, and to the director from a non-PKU who's just curious and wants to learn.

  • Thank you so much, to Dr. Koch and all others who have worked to help people with PKU. Your efforts touch the lives of more people than than the 1/15,000 incidence in the population.

Loading...
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more