He wants into the kitchen? THAT PROVES IT THEN....autistic or not, the male species loves to EAT, EAT, EAT. :) This video made me want to give Jamey lots of hugs.
I have had jerks and jolts in my legs, arms and some in my neck to the point i fall down. I have tried several meds to control my migraines as well one of the meds was depakote i had taken.
I have watched several of your videos and I want to thank you for putting them up. They are very educational because you tell what's going on during the video. I know that taking care of James is so very difficult on the whole family, I've seen your side of it on some of your other vids. Bravo for you and your family.
Thank you so much for posting this. My autistic son has recently begun exhibiting behavior that looks suspiciously myoclonic in nature. Like your son, he is mostly nonverbal. We're waiting to see a neurologist and get a diagnosis. My best to you and your son.
Thank you.. My daughter is 19 years old autistic. Myoclonic seizures could last for hours and turn into a grand mal. Epistatus (Midazolam) stops them quickly.Recenlty using acupressure and massage with lavender oil on legs and hands to calm her down. Success rate 2 out of 3 without Epistatus. 3 years ago,she started to have Myoclonic after replacing Epilim/ Lamictal with Keppra/Lamictal. After 4 months Keppra was stopped.Myoclonic seizures and hands trembles continue.
@chamounkl PLEASE be aware, Lamictal INCREASES myoclonus!! Lamicatal is good for drop or tonic clonic seizures BUT increases myolconic jerks/trembles. you have to mitigate it with Keppra or depakote. But keep in mind depakote causes gastrointestingal issues, alone with risk of hyperammonia, so have lactalose as PRn (when needed) to eliminate ammonia. Also, milk thistle herb protects liver.
I have this type of seizure. I don't think you should fim this unless James gave you permission and really understands all that entails. I am sure you love him a lot but I don't really get why you'd tape this. Poor James.
I tape this because the public is IGNORANT about seizure activity in autistic populations, thus hurting the autism community and those who care for autistic persons with seizures. Moreover, my son can't speak for himself. He's like an infant in his mind. If you asked him, he would not answer. He's in his own sweet world. This is educational material. If one person learns something, it could protect an autistic person from getting hurt by people who don't get it.
@kgaccount I have those jerks too, the only difference is I can speak up. When I don't take my meds for a certain amount of time I can have a big one and black out. I think you can have seizures while being consous. When you have jerks in your arms like that it feels like your touching electricty, but it doesn't hurt until you fall down. JME, I looked it up it's also called Janz syndrome, that's what wiki called it.
Hi, I also have similar ones. I have simple partial and complex partial seizures.... I put up a couple of vids so far...a few months ago before things got bad. I will subscribe to your channel. I hope he is OK, and I am glad you know how to handle someone who has epilepsy with care.
I believe I show us feeding him a bit outside on the government healthcare not healthy for autistics video....with seizures, we can't feed him until he's stopped having seizures or he can "aspirate" (choke on food)....
Thats awesome that you can explain what's going on at the same time as caring for him. I have complex partial seizures and end up walking around sometimes without knowing it. Sometimes I have Atonic and fall straight down to my knees and quickly get back up again. I was born three months early and have vision and hearing impairment. My twin does as well.
With Myoclonic, usually awareness is still there- just uncomfortable type seizure to have.
He wants into the kitchen? THAT PROVES IT THEN....autistic or not, the male species loves to EAT, EAT, EAT. :) This video made me want to give Jamey lots of hugs.
streamofawareness 2 weeks ago
I have had jerks and jolts in my legs, arms and some in my neck to the point i fall down. I have tried several meds to control my migraines as well one of the meds was depakote i had taken.
guardian38761 5 months ago
@guardian38761 Depakote is good, but long term effects triggered hyperammonia and we had to stop it.
kgaccount 5 months ago
Does he know he his having seizures?
MeaganWolf18 8 months ago
Get a syringe full of benzos and stab him with it.
JenkemBOMBS 9 months ago
thank you for the video - you and your son are amazing people! i hope he feels better.
breakdown2999 1 year ago
I have watched several of your videos and I want to thank you for putting them up. They are very educational because you tell what's going on during the video. I know that taking care of James is so very difficult on the whole family, I've seen your side of it on some of your other vids. Bravo for you and your family.
genmama1955 1 year ago
@genmama1955 Thank you.
kgaccount 1 year ago
Thank you so much for posting this. My autistic son has recently begun exhibiting behavior that looks suspiciously myoclonic in nature. Like your son, he is mostly nonverbal. We're waiting to see a neurologist and get a diagnosis. My best to you and your son.
whitemunin1 1 year ago
poor fellow =-/ your a wonderful mother. it must be very difficult for you to deal with. God bless you and your family. I can tell he is well loved.
hottopicgirlacdc 1 year ago
Thank you.. My daughter is 19 years old autistic. Myoclonic seizures could last for hours and turn into a grand mal. Epistatus (Midazolam) stops them quickly.Recenlty using acupressure and massage with lavender oil on legs and hands to calm her down. Success rate 2 out of 3 without Epistatus. 3 years ago,she started to have Myoclonic after replacing Epilim/ Lamictal with Keppra/Lamictal. After 4 months Keppra was stopped.Myoclonic seizures and hands trembles continue.
chamounkl 1 year ago
@chamounkl PLEASE be aware, Lamictal INCREASES myoclonus!! Lamicatal is good for drop or tonic clonic seizures BUT increases myolconic jerks/trembles. you have to mitigate it with Keppra or depakote. But keep in mind depakote causes gastrointestingal issues, alone with risk of hyperammonia, so have lactalose as PRn (when needed) to eliminate ammonia. Also, milk thistle herb protects liver.
kgaccount 1 year ago
your an amazing woman, thankyou for showing this, so ppl like me understand!!
mariamorningstar 2 years ago
I have this type of seizure. I don't think you should fim this unless James gave you permission and really understands all that entails. I am sure you love him a lot but I don't really get why you'd tape this. Poor James.
marytcombs1981 2 years ago
I tape this because the public is IGNORANT about seizure activity in autistic populations, thus hurting the autism community and those who care for autistic persons with seizures. Moreover, my son can't speak for himself. He's like an infant in his mind. If you asked him, he would not answer. He's in his own sweet world. This is educational material. If one person learns something, it could protect an autistic person from getting hurt by people who don't get it.
kgaccount 2 years ago 3
@kgaccount I have those jerks too, the only difference is I can speak up. When I don't take my meds for a certain amount of time I can have a big one and black out. I think you can have seizures while being consous. When you have jerks in your arms like that it feels like your touching electricty, but it doesn't hurt until you fall down. JME, I looked it up it's also called Janz syndrome, that's what wiki called it.
Casper4092 9 months ago
Hi, I also have similar ones. I have simple partial and complex partial seizures.... I put up a couple of vids so far...a few months ago before things got bad. I will subscribe to your channel. I hope he is OK, and I am glad you know how to handle someone who has epilepsy with care.
4ReasonBeing 2 years ago
I heard no matter what nothing will stop him even seizures. I hope you don't mind though but can you post a video you feeding him...
Tnx
GOD BLESS You and Your FAMILY
snkm12 2 years ago
I believe I show us feeding him a bit outside on the government healthcare not healthy for autistics video....with seizures, we can't feed him until he's stopped having seizures or he can "aspirate" (choke on food)....
kgaccount 2 years ago
Thats awesome that you can explain what's going on at the same time as caring for him. I have complex partial seizures and end up walking around sometimes without knowing it. Sometimes I have Atonic and fall straight down to my knees and quickly get back up again. I was born three months early and have vision and hearing impairment. My twin does as well.
With Myoclonic, usually awareness is still there- just uncomfortable type seizure to have.
I wish him luck
Yoshiko11 2 years ago