My uncle died from this in 2009 as well. He diagnosed himself long before he told anyone, so from when we all knew until he died took 18 months. It went insanely quickly after the first really serious symptoms set in. Inability to walk, talk and breathe without machines, all within half a year after he got a second crutch for walking. One of the hard things about the disease is that the deterioration is so quick, that every visit shows something new, but it is such a slow and torturous death.
My grandad had this & like what you said it was terrible for him not being able to do the things he loved like going to watch the local football team play (he used to manage them) & all that, thank you for raising awareness about this
I'm so sorry about your nana, Conor. That's very sad and you're right: cruel, too. Awesome/amazing video, though, my friend. Well done! Brilliant! "Liked" and favourited!
I started tearing up, though, I admit it. Because of what happened to your nana and because of how awesome/touching this video is. Someone we both sort of know told once told me that they got freaked out when I admitted to crying but I think it's perfectly normal and healthy, too. I hope you don't mind.
My Father passed away from that illness 4 years ago. It wasn't until he was diagnosed with it that I actually heard of it. And your right. It's a cruel sneaky merciless disease.
Unfortunately I know only to well about this horrible disease, my best friend and co-worker developed it and in 2 years he went from a rugby playing, life loving family man to an almost vegetable like state. It was so hard for him and everyone near to him to deal with his sudden changes and he eventually passed away on Christmas eve 2000.
You are doing an awesome job by promoting awareness of this nasty, sneaky disease. Thumbs up m8!
This was such a amazing video, BIG WELL DONE to you for doing this, Very thoughtful and inspirational. Il be sure to share this on all my social networks. Take care my friend :)
Ah how moving Connor : )
raftsr2 1 month ago
My uncle died from this in 2009 as well. He diagnosed himself long before he told anyone, so from when we all knew until he died took 18 months. It went insanely quickly after the first really serious symptoms set in. Inability to walk, talk and breathe without machines, all within half a year after he got a second crutch for walking. One of the hard things about the disease is that the deterioration is so quick, that every visit shows something new, but it is such a slow and torturous death.
grangrangran 2 months ago
My grandad had this & like what you said it was terrible for him not being able to do the things he loved like going to watch the local football team play (he used to manage them) & all that, thank you for raising awareness about this
2010Niamh 2 months ago
DFTBA.
BarryAldridge 2 months ago
This was beautiful conor :) Very well made ! <3 Ima share it all over the webz
helloitsmasterhulk 2 months ago
DFTBA <3
beautychaotic 2 months ago
Very well explained. Heartfelt and honest.
noahspam 2 months ago
@noahspam Thank you. :)
MrConConsftw 2 months ago
@MrConConsftw check my ALS/MND awareness videos for your amusement.
noahspam 2 months ago
DFTBA <3
alilona 2 months ago
This is very touching. DFTBA. :(
MissLucyLane 2 months ago
I'm so sorry about your nana, Conor. That's very sad and you're right: cruel, too. Awesome/amazing video, though, my friend. Well done! Brilliant! "Liked" and favourited!
I started tearing up, though, I admit it. Because of what happened to your nana and because of how awesome/touching this video is. Someone we both sort of know told once told me that they got freaked out when I admitted to crying but I think it's perfectly normal and healthy, too. I hope you don't mind.
jeremyshaw 2 months ago
DFTBA.
HatboxEnthusiast 2 months ago
This is very well done. Thank you for sharing and for decreasing world suck!
SantifyYoSelf 2 months ago
great work
giahnacnud 2 months ago
this is so interesting.
DFTBA.
Raemation 2 months ago
Great video Conor, way to take a stand for something you believe in. Great cause if I don't say so myself.
phexid4real 2 months ago in playlist Uploaded videos
My Father passed away from that illness 4 years ago. It wasn't until he was diagnosed with it that I actually heard of it. And your right. It's a cruel sneaky merciless disease.
The98Funnyman 2 months ago
@The98Funnyman It's the same with me. I hadn't heard of the illness until diagnosis, at which point I wanted to attempt to help raise awareness.
MrConConsftw 2 months ago
This is such a touching video <3
allthelostones 2 months ago
@allthelostones Thank you Katie. :)
MrConConsftw 2 months ago
DFTBA! <3
allthelostones 2 months ago
immediate response, great to see this getting some show from someone with a subscriber group. good work conor.
TheGuzzaboy 2 months ago
this is a really touching video. thank you for this
shads616 2 months ago
I like to hear about new charities. Good video! DFTBA!
MagicTurtle643 2 months ago
@MagicTurtle643 I'm glad I could inform you about a new charity! :)
MrConConsftw 2 months ago
Thanks for being awesome! DFTBA
HelloChelllo 2 months ago
You are awesome Conor, you really are. Thank you for doing this, all of your videos are great, and you deserve every success in all you do :)
PaulJameson100 2 months ago
isn't this what stephen hawking has?
AdenCrockerTV 2 months ago
You've done a really good job presenting the information about it and helping people become more aware, well done. :3
Rarachee 2 months ago
Is it OK if I post this on my web site m8?
IanDigs 2 months ago
@IanDigs Yeah Ian, I would be honoured. :)
MrConConsftw 2 months ago
Unfortunately I know only to well about this horrible disease, my best friend and co-worker developed it and in 2 years he went from a rugby playing, life loving family man to an almost vegetable like state. It was so hard for him and everyone near to him to deal with his sudden changes and he eventually passed away on Christmas eve 2000.
You are doing an awesome job by promoting awareness of this nasty, sneaky disease. Thumbs up m8!
IanDigs 2 months ago
Well done talking about this, it's brillIant if people become more aware :)
IronRyan66 2 months ago
DFTBA. Great video. Sorry for your loss, even if it was two years ago.
LMNOP1214 2 months ago
Very well done, if it achieves one more person becoming aware then thats the main thing.
2211stegre 2 months ago
This was such a amazing video, BIG WELL DONE to you for doing this, Very thoughtful and inspirational. Il be sure to share this on all my social networks. Take care my friend :)
itsCARLDOUGLAS 2 months ago
Nice one Conor :O)
pywellie 2 months ago in playlist Uploaded videos
Well done Con, very proud of you
Pywellie76 2 months ago in playlist Uploaded videos
is this the same dises that steven hawkings has ?
lukefeedback 2 months ago
@lukefeedback He has a rare form of this disease, yes.
MrConConsftw 2 months ago
@lukefeedback yes it is
stgeorgeorsaintdavid 2 months ago