Please Watch! One Congenital Heart Defects Story.

[mylovesofmylife]

Wonderful that the little boy in this video with a CHD grew up to be a sweet man.

[tambone007]

i had the mustard procedure done when i was 6 weeks old in 1972.my parents were told i would be lucky to live through the surgery let alone to age 5 i'am now 39 yrs old have 2 great sons and a new granddaughter.i had no real problems growing up until after the kids were born.i'am now on my 3rd pacemaker and one day will need a heart transplant but everyday i wake up i thank the good lord for giving me more then my fair share of life.if u have faith and are strong u can overcome anything.

[tuntunkhanrocks]

I also Have Congenital heart defect. T_T

I had immidiate surgery right WHEN was BORN.

I am currently doing fine now though. god bless the people with this disease.

You are not alone.

[megodude]

Hello

I had mustard surgery in 1967 in LA CA

I was born in 1964 july 31.

the first pic in your video really hit home with the black and white photo.

I live in carson city ,NV now and am 46 years old and on pacemaker # 5

If you like to e mail me feel free at megodude@charter.net

If you still live in No Cal I sure would like to talk with an meet you

Hang in there

Kurt lepire

[jennylou67]

I also have TGV and have had the Mustard procedure done to correct the TGV. I was 13 months old when I had the surgery done. I was also the first survior at Henry Fords Hospital of Detroit,MI and 125th in the world to have it done-back when they still counted. when I was 32 ZI was told within 10 years i was lookimg at a heart transplant, am now 42 and still kickn' :). I have had a pacemaker put in in 89, replaced in 95 & 2006. I am in the beginning stages of CHF. and also have atrial flutter.

[dellpav]

aww im sooo srry =(

[mskristynrose]

im 20 years old i have the same thing and the mustard procedure i never got them switched .. i have a pacemaker now for 3 mnths

[babycasper121206]

Im very sorry to hear about that. My son was born with D-TGA in June of 2009 He had the arterial switch done. Which is different from the Mustard. I would love it if you could keep me informed on how your husband is doing.

[grybold]

It has been nine months since the last comment on this thread. How is your husband doing? What are his complications that are causing him to require a new heart? I have the mustard procedure myself. I was born in 1980 and I have been healthy my whole life (I've been told I am very lucky, and that most don't do as well). But now at age 29, I am beginning to develop arrhythmias (for the first time ever). It's scary. My cardiologist is referring me to other specialists now. Please message me

[pennyzeigler]

My husband had a pacemaker icd put in Jan 2009 that give him more time. Right now the new heart is on the back buriner till he can loss more weight.

[mhickey1001]

My brother too has TGA and they preformed the mustard procedure when he was about 2, he is 37 now. the pacemaker whent in 10yrs ago but we are now faced with a blockage in the baffle and it is leaking blood. drs say to operate would do more harm than good. he meets with drs next week. At what point did your husband discuss transplant? any advise. dr recommedations. he is NE but originally from IN (where Mustard was done)

thank you and good luck.

[pennyzeigler]

Wow of all days! My husband is again in the hospital just today! It was about 6 months before he had the pacemaker put in. He having really trouble loses the weight. His body is started to give in on him. Make sure when you do ask the Drs your bother BMI and any other health problems are okay!

[pennyzeigler]

My husband was denied because of his BMI and his diet beets. My husband also is working 40 hours or more to keep himself busy at work. But we got today that his DRs. May what to make him slow down or stop altogher. But we told him that he would just go faster sit around. As long as his work with him he'll have a good job.

[pennyzeigler]

We are at this point scared. We live day to day, the sad part no one knows what we going thought. I feel it like live with some with Cancer.

[pennyzeigler]

Dont get me wronge but there no really support out there for familys that are possible face death every day. I just happy what time I have with my husband. Sorry to be so low today on my replay. I had a hard day!

[pennyzeigler]

The down fall we have with him on the pacemaker now is that he been in the er for bleeding because of the medican he take. We been there 4 times the last one was just a day ago. We learn the hard way that he has to be extra careful or he bleed to death if he loss to much.

[pennyzeigler]

Luck we got him to the er in time for all of them. But we not in the er as much as we were before he had the pacemaker. My husband does work full time so he keep active and is try to work out at a gym. My husband still has arrhythmias even with his pacemaker icd. What is your heart problem called?

[pennyzeigler]

My husband is D-TGA. Thanks so much for commenting it really nice to talk to someone that has the mustard procedure done also.

[JessMsLovely]

@pennyzeigler i've had that same operation i am 22 now and have been doing ok. besides a few miner health issues.. I hope all is well with your husband.

[kittypop96]

oh my gosh this is so beautiful! i love it! it was so touching!

-sharon

[ILuvMyCHDBaby]

Beautiful video. My youngest son was born with a Congenital Heart Defect. My heart goes out to you & your entire family. :)

[rebhoward]

Such a beautiful man and a beautiful video. My deepest heartfelt sympathies go out to you and your daughter for the loss of your husband and Daddy. Thank you so much for posting this video and giving so many of the parents now that have babies that are still fighting, so much hope that they too will grow up and have their own children. Michael was a true CHD warrior and is in heaven now taking special care of all our little CHD Angels, our Landon included. I too hope that many see this!

[pennyzeigler]

My husband not dead. I made this video as a way for me and my child to cope with his heart problem. To also show the world that he still fighting to this day! But I do thank you for comment. I sorry if this video made you think he had pass on. I never look at the video that way!

[rebhoward]

I am sorry I made that interpretation from the video from what was said about his last wish. Thank you for correcting me on that. I hope that you, Michael and your daughter have many, many more years of happiness together. I am so relieved to know that he is still with you and your daughter. My prayers are with you always. I continue to spread awareness about CHD in our Angel Landon's memory, please continue to share your story as well.

Love and Prayers to you and your family always

[pennyzeigler]

Thanks This video is in the work to show some younger shots of him even photo take by his drs when he was a teen! They will be a eye opener when them photo are added! Thanks for stop by again!

[flblover1123]

aww god was lucky that that he was able to live to go to disney world.

[piinkyray]

aww imma about to cry about the surgery

[mamichristie]

Thank you For this Video My heart goes out to you ! God Bless you! We are trying to Spread Awareness I hope that many people get to see this !