'CFS' harms everyone, not just M.E. sufferers

[cvpmailutube]

Great video, thanks.

I was also misdiagnosed with 'probably CFS' for 8 years, during which time I continued to get worse. Luckily I found out about some rare conditions which fitted my symptoms and my fantastic GP sent me to London to see some specialists.

I now have a diagnosis of EDS Type 3 (Ehler's Danlos) and associated Postural Orthostatic Tachycardia Syndome (POTs) which causes extreme fatigue. I am receiving treatment including steroids & physio and am finally improving!

[carlos2004w]

CFS is a massive assasination, a genocide. We are all suffering the same devastating consequences all over the world. It is a genocide and responsibles should pay for it sooner or later. The patients must unite worldwide via internet and fight with the little strength they have before they die miserably after decades of agony and well planned disbelief, rejection and abandonment.

CFS is the largest genocide ever and only growing.

[thingsinevertell]

Superb video, well done.

[SAMMYBABYLOVE]

I agree with this! scumbags! i hate medical idiots who think they know everything! when they are so stupid they can not find out and get treatments for m.e suffers! i may become a doctor as it seems they can do what ever they want and say what they want!

[BigWoodyAllen]

I've suffered from M.E. for 24 years,and lived in my own world quite apart from life. At times I feel like an abandoned animal. I haven't done anything wrong and I feel I would be treated better if I abused myself with drugs or alchohol. Shame on you medical world!!!

[EutuveX]

@BigWoodyAllen

26 years here...I know how you ( we ) feel...I wish sometimes this was transmittable...I would love to give my doctors some cc of my "all in my mind" blood..

[AHummingbirdsGuide]

@EutuveX M.E. is transmissable, in early stages and also possibly during relapses!

I know what you mean, I would LOVE to give a 1 month taste of severe ME to soem of my ex doctors. Sigh...

[purefire47]

i remember watching this a year ago thinking i had cfs. after a successful diagnosis of lyme disease i am on my way to recovery. that bogus diagnosis of cfs wasted 7 months of my life. cfs is a nice way for doctors to tell you they do not know whats wrong with you. keep fighting, and don't accept a diagnosis just because you finally want one, it is worth it to find the answer

[erin517]

You put things into words extremely well, thanks for posting this your right, its so much more than a struggle

[Elfins]

My daughter was mis-diagnosed since she was 10 with CFS and treated with CGT and GET, she got worse. When these doctors wanted her admitted to a long stay Psychiatric unit and were having closed meetings because we objected, we took her to London privately. She was diagnosed with having a rare genetic condition called Ehlers-Danlos.

[PrincessaChic]

I reckon there's just no excuse for misdiganosis. shame shame shame

[mollyfairy]

we have to get this accurate important information out there. well done

[Antoinette61]

Totally agree with you!! Well said

[deadgirldreaming]

Thank you!

Best wishes,

Joss

[kaazoom]

Once again, you hit it right on the head. Thanks Jodie!

Paul