Promoting Congenital Heart Defects Awareness

[abymcd1605]

Hi there. I am 8 months pregant and base on the babys ultrasound, our precious one has CHD- and its the TA - Truncus Arteriosus. I am so scared and hoping for a miracle. I need some advice.

[tuntunkhanrocks]

I was born with chd, and had to go through a surgery right when i was born. Thats how serious my case was T_T

[notche100]

my baby alexis born with CHD and her case was ALCAPA "anomalous left coronary artery from the pulmonary artery" she undergo an open surgery and stayed at d hospital for 3months...she was a miracle baby..we were so blessed that GOD let her stay with us..and now she's turning 3 ds august..

[xXDigitalThund3rXx]

I was born with 2 aortic heart valves or flaps...Your sopposed to have 3. Im 16. My question is why me? 2% of people on earth are born with this heart defect that I have. But yeah....

[goffer49]

Trevor is so cute! I was born in 89 with tricuspid atresia. Ive had an open heart surgery and am about to have my second one next thursday. i hope your family does well!

[zate75]

I really hope your surgery goes well. Good luck.

[goffer49]

thank you!

[picosa96]

my son too has chd, he has gone thru 2 surgeries and 3 in next couple of months thanks for making this video. god bless ur family and that precious lil boy

[karayna]

Lovely video! Trevor is adorable. I will be 23 years old in two weeks and I have Truncus Arteriosus and repaired ASD & VSD. I've gone through 4 open heart sugeries (currently waiting for the 5th one) plus a couple of angioplasties. But I've been able to live a near normal life so far. Don't hesitate to contact me. ^^

[amiegeyer]

My son was born with TGA and he had open heart surgery at 5 days old. He is now 19 months old and doing great, but another OHS may be in his future.

[asweedee]

My son was born with hlhs and at 9 months he had a heart transplant and he went to be with the lord nearly two weeks before his first birthday

[shonaky]

hey hun i think your on the truncus group on yahoo groups just saw video trevor is lovley hope your all well xxxxxxx

my son liam also has truncus

[RuralGypsy]

I am a 42 year old Congenital Heart Patient..

My defect is called D-Transposition of The Great Vessels. I am seeking all who have succeeded age 40 without a heart transplant.

I would like to know their success story, and the quality of life for which they have lived. I have been told, I am the oldest living, in the United States, with this particular Heart Defect. Is this true????

I accept any assistance available, in finding others like myself. Time is of the essence.

[Rockerchick42987]

I hope you and your family are doing fine..I know exactly how you feel..my daughter was born with TAPVR..this video makes me so emotional

[timandtabea]

ohbuddyiliketowatch, we too lost our son when he was 27 days old to two Congenital Heart Defects. He had heart failure at 3 weeks old without any forewarning. We had no idea what was wrong as he was a seemingly healthy being born at 9 lb and 22 inches long. I understand your pain though no one can feel it in the way that you do. I pray that God heals your heart and keeps your precious child forever in your memories.

[menve21]

what a cute lil guy glad hes doing ok

[ohbuddyiliketowatch]

you are very blessed to still have him

my son passed away suddenly at 11weeks old we had no idea he was even sick.... my prayers are with you for a lifetime of memories

[AddiesMamma]

So sorry to hear about your heart break, what did your angel have? Our angel was born with HLHS and got her wings when she was 15 days old. She, too, passed suddenly, but we knew of her diagnosis in utero and were able to deliver her and have her surgery done in what we had been told was the top Congenital Heart Defect Center in the nation. I pray for healing in your hearts to help you through this.

[ohbuddyiliketowatch]

i don't even know yet for sure its been over a year and were going for the sitting with the coroner in 2 weeks for the autopsy report

[AddiesMamma]

I hope you get good, solid answers. We were waiting quite a while on our daughter's autopsy report as well.. it is very hard not knowing. Sadly our daughter's autopsy was not conclusive as to the exact cause of her passing.

[ohbuddyiliketowatch]

i have a feeling it will be the same for me... god bless

[AddiesMamma]

Unfortunately you may be right, it may not be until you hold your angel in Heaven before you have any conclusion, but I believe someday you will. I still am and will be  praying that you get your answers when you meet with the coroner because as you know waiting isn't easy. Take Care- Gina

[AddiesMamma]

My daughter, Adelle, had HLHS. When she was first diagnosed in utero the doctors thought she had truncus arteriousis on top of Single atrium, Single ventricle. Does your son have any chromosomal abnormalities?

[zate75]

No we were very lucky, he was tested negative for DiGeorge Syndrome.

[kswanner23]

Very sad. I have a son just 7 months old. I am so glad that your son is doing well.

[Vishuss70]

Sad story...GREAT video ! Nicely done.