Parkinson's disease: real story

[buffyslayer30]

good info right here.

[paulstar777]

Thanks for this video. Though I was diagnosed a couple of years ago it never occurred to me to search PD on YouTube until tonight. I'm going to be on here a while looking at the masses of stuff there is here. Hope you're doing ok.

[videolver2]

My moms mom had this Diease and then she lost her memory, she passed away in 2006.

[VellaDamitaJo]

@VixenRender bless your heart!

[VixenRender]

I'm age 22 and i've been diagnosed with early onset parkinsons. It is the scariest thing any young person can go through. I was uneducated about parkinsons and thought it was the end of the world.

But now i know the last two years of my life where symptoms have started just seems to fit, my partner is very supportive. I just wish they'd do more documentries about this, maybe then other people could spot the symptoms early enough to perhaps help themselves.

[vatoslocos321]

pple like this inspire me! staying positive even with such a sad condition like this... it reminds me that it is important to invest happiness in the things that cannot be taken away from me

[cindymcmahan11]

THIS SOUNDS LIKE DYSTONIA>>>peace, cindy

[ruokay87]

my mother had parkins and medicenes didnt help her. daddy had to feed her and use a cup with lid and straw. but then she began to eat peeled oranges, about two a day and she was steady as a rock. the real oranges work not vit, c...please try the peeled oranges..

[Alexandraloves100]

wish her all the luck

[dakine2285]

(continue from below) - These seizures/tremor happen at random and have lasted from 1-10 minutes. She just goes real quite, starts to shake, and kinda looks she is off in space. Sometimes if things happen during this time she does not remember it either. No doc has said anything about Parkinson but they have talked about strokes or even anxiety attacks or even nerve issues but they docs are still unsure. Any kind of info would help.

[NHSChoices]

@dakine2285 Hello, her consultants and GP would definitely be the best people to ask about what's happening. For general information about Parkinson's Disease, stroke, and anxiety please go to the Health A-Z section of the NHS Choices website (nhs.uk)

Kind regards,

NHS Choices

[dakine2285]

Great info a video. I know one some that is having some signs of Parkinson's Disease (maybe) some of the things they are having issues with also falls under the stroke category and nerve issues as well. They had the C3/4 disc replaced in the neck because it was getting pushed into the spin but her walking and movements along with have seizures/tremor "still unsure what they are it's unclear to the doctors right now" and they are getting worse. These seizures/tremor happen at random and have la

[oarmedt]

I also got diagnosed with parkinson at a young age at 22 I'm 32 now and I have been taking the same meds for the last 10 years

[fywacia]

@oarmedt Can you please tell me what the early symptoms consisted of? Did you ever have periods of muscle stiffness and pain that last for weeks and then subsided for a short time only to return?

[NHSChoices]

@fywacia

On the nhs.uk website you can find more information about the symptoms of Parkinson's Disease in the Health A-Z section. If you are concerned we would always recommend that you ask your GP for advice.

Kind regards

NHS Choices

[EndlessYuki]

thank you for sharing your story

[anticliche321]

At 34? oh my gosh! 

[nasser63uk]

Salam brother and sister I wish u all my best and stay strong don't give up,every disease have to be occur just look forward and right people to help u don't tried to upset your self.And get soon better and all other people who they are suffering all kind of disease and thank u for ur video.

[JodiBrighton]

thanks for sharing ur experience you are an inspiration. I had a stroke at 26 and am always getting told "you're too young to have a stroke". x

[3695oggie]

I was diagnosed 6 yrs ago when i was 48. Like this lady simple tasks can be a challenge like getting out of bed or just getting dressed. When my medication has kicked in I'm a different person but then you get the off periods . Learning to live with it is hard, I was once asked to leave a large dept store cos i was " rocking & rolling " cos i'd forgotten to take my pills and they thought i was drunk . I have had to give up work now. You have to learn to beat it or it will beat you.

[catcow11]

I like this lady and listening to her. My father has been diagnoised and I will share this video with him and my Mom. I think a support group is a great idea. Support is what he needs! Thanks!

[shadowflare2255]

im so sowwy tah hear that about you and it almost made me cry .. but you can still live a normal life and its not that you can die from it ... you can still wake up in the mornin and drink a cup of coffee .. its ok .. its ok..

[ShockingHannaH]

My grandma has this....

[videolver2]

@ShockingHannaH  my Grandma did too ,she died in 06

[xiawhuaidan]

My mum is diagnosed with Parkinson when she was only 38 years old too .. and we have been coping with her disease for more than 10 years now ... It is not only important for the person who suffers the disease to think positive ... it is Much More important for those around them to understand what they are going through and try to keep up ....

I HATE those ppl who ACTUALLY thinks that my mum uses it as an excuse to escape hardwork! They dunno half of the truth & are being very unsupportive !!

[DcfJrf56]

I too have parkinson and I was 43 when I started. I am now 57 and parkinson starts slow an painful.

[Lindawatcher]

You know what, she has a really nice butt! She looks good in those jeans when she gets up from the table!!

[myousiknlaw]

I share your symptoms and your observations. People see us when the meds are working and not often when we are brought to our knees in pain and have to crawl from room to room. PD is a cruel and expensive mistress. I do find that the creative side helps reduce the pain and symptoms, however, and have posted my performance at the Parkinson's Disease Foundation Bal du Printemps as a response to your video. All the best,

Peter Thompson

[Nosmos]

Very attractice and brave lady.

[AndrewKFletcher]

Hi. Would you be interested in testing my theory on PD by tilting your bed to see what happens?

It should take around 4 weeks to kick in and you may need to experiment with medication level as typical irrational behaviour developed indicative of Ldopamine OD.

The video posts above should help you understand why tilting the bed is useful for neurological conditions. Need to reach more people with pd also.

[damienroman]

This is a wonderful interview Because it explains so much, especially what one with PD does regularly. Its like she is a spokesperson for everyone with PD. Bless her heart~

[Venusdelicate]

This is too good but I hope these patients should go for gene therapy being given by Dr. Kaplitt in New York. That has proved to be effective. I hope this young lady can try.

Dr. aman Biswas

[floralvarez6]

im sorry what is gere therapy? Thank you! i have no ideas what is that.

[rsl98]

I have just been diagnosed as having the onset of Parkinson's disease, and have been feverishly looking this up on the Net. Your video was most reassuring and helpful.

[floralvarez6]

im sorry to see this . Its so hard. I just went to the neurologist because something is wrong with me. Im 44 and Im so scare that this can happent to me. I cry for so many days . I dont even want to know. But I saw this video and I can even wash it all. Im so scared of having that. This deasease should have more studys and find the cure. I trully hope the vest for you and other. its crazy how we dont appreciate our body till it is not the same. Good bless you .